Acceptance of epilepsy surgery among adults with epilepsy — What do patients think?

Epilepsy and Behavior

Volumn 24, Issue 3, 2012, Pages 352-358

  Erba, Giuseppe ^a   Messina, Paolo ^b   Pupillo, Elisabetta ^b   Beghi, Ettore ^b  

^a STRONG MEMORIAL HOSPITAL   (United States)

^b MARIO NEGRI INSTITUTE FOR PHARMACOLOGICAL RESEARCH   (Italy)

Author keywords

Epilepsy surgery; Intractable epilepsy; Patient attitude; Patient beliefs; Questionnaire; Survey

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; ATTITUDE TO HEALTH; BRAIN; EPILEPSY; FEMALE; HUMAN; MALE; MIDDLE AGED; PATIENT ATTITUDE; QUALITY OF LIFE; QUESTIONNAIRE;

ADOLESCENT; ADULT; AGED; BRAIN; EPILEPSY; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; MALE; MIDDLE AGED; PATIENT ACCEPTANCE OF HEALTH CARE; QUALITY OF LIFE; QUESTIONNAIRES;

EID: 85027953606     PISSN: 15255050     EISSN: 15255069     Source Type: Journal    
DOI: 10.1016/j.yebeh.2012.04.126     Document Type: Article

References (28)

1. Engel, J. Jr., Shewmon, D.A., Overview: who should be considered a surgical candidate?. Engel, J. Jr., (eds.) Surgical treatment of the epilepsies, 2nd ed., 1993, Raven Press, NY: New York, 23–34.
2. Engel, J. Jr., Wiebe, S., French, J., et al. Practice parameters: temporal lobe and localized neocortical resections for epilepsy — report of the Quality Standards Subcommittee of the American Academy of Neurology, in association with the American Epilepsy Society and the American Association of Neurological Surgeons. Neurology 60 (2003), 538–547.
3. Spencer, S.S., Berg, A.T., Vickrey, B.G., et al. Predicting long-term seizure outcome after resective epilepsy surgery: the multicenter study. Neurology 65 (2005), 912–918.
4. Gilliam, F., Kuzniecky, R., Meador, K., et al. Patient-oriented outcome assessment after temporal lobectomy for refractory epilepsy. Neurology 53 (1999), 687–694.
5. Wiebe, S., Blume, W.T., Girvin, J.P., Eliasziw, M., A randomized controlled trial of surgery for temporal lobe epilepsy. N Engl J Med 345 (2001), 311–318.
6. Benbadis, S.R., Heriaud, L., Tatum, W.O., Vale, F.L., Epilepsy surgery, delays and referral patterns: are all your epilepsy patients controlled?. Seizure 12 (2003), 167–170.
7. Spencer, S.S., Berg, A.T., Vickrey, B.G., et al. Multicenter study of epilepsy surgery. Initial outcomes in the Multicenter Study of Epilepsy surgery. Neurology 61 (2003), 1680–1685.
8. Lhatoo, S., Solomon, J.K., McEvoy, A.W., Kitchen, N., Shorvon, S., Sander, J., A prospective study of the requirement for and the provision of epilepsy surgery in the United Kingdom. Epilepsia 44 (2003), 673–676.
9. De Flon, P., Kumlien, E., Reuterwall, C., Mattson, P., Empirical evidence of underutilization of referrals for epilepsy surgery evaluation. Eur J Neurol 17 (2010), 619–625.
10. Raush, R., Crandall, P.H., Psychological status related to surgical control of temporal lobe seizures. Epilepsia 23 (1982), 191–202.
11. Hermann, B.P., Seidenberg, M., Dow, C., et al. Cognitive prognosis in chronic temporal lobe epilepsy. Ann Neurol 60 (2006), 80–87.
12. Markand, O.N., Salanova, V., Whelihan, E., Emsley, C.L., Health related quality of life outcome in medically refractory epilepsy treated with anterior temporal lobectomy. Epilepsia 41 (2000), 749–759.
13. Sperling, M.R., The consequences of uncontrolled epilepsy. CNS Spectr 9:98–101 (2004), 106–109.
14. Mihara, T., Inoue, Y., Matsuda, K., et al. Recommendation of early surgery from the viewpoint of daily quality of life. Epilepsia 37:Suppl. 3 (1996), 33–36.
15. Trevathan, E., Gilliam, F., Lost years. Delayed referral for surgically treatable epilepsy. Neurology 61 (2003), 432–433.
16. Sperling, M.R., Feldman, H., Kinman, J., Liporace, J.D., O'Connor, M.J., Seizure control and mortality in epilepsy. Ann Neurol 46 (1999), 45–50.
17. Tomson, T., Nashef, L., Ryvlin, P., Sudden unexpected death in epilepsy: current knowledge and future directions. Lancet Neurol 7 (2008), 1021–1031.
18. Sillampaa, M., Shinnar, S., Long-term mortality in childhood-onset epilepsy. N Engl J Med 363 (2010), 2522–2529.
19. Choi, H., Carlino, R., Hediman, G., Hauser, W.A., Gilliam, F.G., Evaluation of duration of epilepsy prior to temporal lobe epilepsy surgery during the past two decades. Epilepsy Res 86 (2009), 224–227.
20. Haneef, Z., Stern, J., Dewar, S., Engel, J. Jr., Referral pattern for epilepsy surgery after evidence-based recommendations. Neurology 75 (2010), 699–704.
21. Hakimi, A.S., Spanaki, M.V., Schuh, L.A., Smith, B.J., Schultz, L., A survey of neurologists views on epilepsy surgery and medically refractory epilepsy. Epilepsy Behav 13 (2008), 96–101.
22. Erba, G., Moja, L., Beghi, E., Messina, P., Pupillo, E., Barriers toward epilepsy surgery. A survey among practicing neurologists. Epilepsia 53 (2012), 35–43.
23. Veriano, A. Jr., Capovilla, G., Fattore, C., et al. Characteristics of a large population of patients with refractory epilepsy attending tertiary referral centers in Italy. Epilepsia 51 (2010), 921–925.
24. Swarztrauber, K., Dewar, S., Engel, J. Jr., Patient attitudes about treatments for intractable epilepsy. Epilepsy Behav 4 (2003), 19–25.
25. Pruss, N., Grant, A.C., Patient beliefs about epilepsy and brain surgery in a multicultural urban population. Epilepsy Behav 17 (2010), 46–49.
26. Greenacre, M., Blasious, J., Multiple correspondence analysis and related methods. 2006, Chapman & Hall, London.
27. Mohanraj, R., Brodie, M.J., Diagnosing refractory epilepsy: response to sequential treatment schedules. Eur J Neurol 13 (2006), 277–282.
28. Engel, J. Jr., McDermott, M.P., Wiebe, S., et al. Early surgical therapy for drug-resistant temporal lobe epilepsy: a randomized trial. JAMA 307 (2012), 922–930.