Effective management of breathlessness: A review of potential human rights issues

European Respiratory Journal

Volumn 49, Issue 5, 2017, Pages

  Başoğlu, Metin ^a  

^a Istanbul Center for Behavior Research and Therapy   (Turkey)

Author keywords

[No Author keywords available]

Indexed keywords

CHRONIC DISEASE; DISEASE MANAGEMENT; DYSPNEA; EUROPE; HUMAN; HUMAN RIGHTS; LEGISLATION AND JURISPRUDENCE; MEDICAL SOCIETY; PRACTICE GUIDELINE; TORTURE;

CHRONIC DISEASE; DISEASE MANAGEMENT; DYSPNEA; EUROPE; HUMAN RIGHTS; HUMANS; PRACTICE GUIDELINES AS TOPIC; SOCIETIES, MEDICAL; TORTURE;

EID: 85027887724     PISSN: 09031936     EISSN: 13993003     Source Type: Journal    
DOI: 10.1183/13993003.02099-2016     Document Type: Review

References (35)

1. Johnson MJ, Currow DC. Chronic refractory breathlessness is a distinct clinical syndrome. Curr Opin Support Palliat Care 2015; 9: 203–205.
2. Johnson M, Yorke J, Hansen-Flaschen J, et al. Towards an expert consensus to delineate a clinical syndrome of chronic breathlessness. Eur Respir J 2017; 49: 1602277.
3. Gysels M, Higginson IJ. Access to services for patients with chronic obstructive pulmonary disease: the invisibility of breathlessness. J Pain Symptom Manage 2008; 36: 451–460.
4. Haugdahl HS, Storli SL, Meland B, et al. Underestimation of patient breathlessness by nurses and physicians during a spontaneous breathing trial. Am J Respir Crit Care Med 2015; 192: 1440–1448.
5. Chanques G, Nelson J, Puntillo K. Five patient symptoms that you should evaluate every day. Intensive Care Med 2015; 41: 1347–1350.
6. Schmidt M, Banzett RB, Raux M, et al. Unrecognized suffering in the ICU: addressing dyspnea in mechanically ventilated patients. Intensive Care Med 2014; 40: 1–10.
7. Currow DC, Abernethy A, Ko DN. The active identification and management of chronic refractory breathlessness is a human right. Thorax 2014; 69: 393–394.
8. Parshall MB, Schwartzstein RM, Adams L, et al. An official American Thoracic Society statement: update on the mechanisms, assessment, and management of dyspnea. Am J Respir Crit Care Med 2012; 185: 435–452.
9. Banzett RB, O’Donnell CR, Guilfoyle TE, et al. Multidimensional dyspnea profile: an instrument for clinical and laboratory research. Eur Respir J 2015; 45: 1681–1691.
10. Booth S, Lansing R. The construct of breathlessness. In: Bausewein C, Currow DC, Johnson MJ, eds. Palliative Care in Respiratory Disease (ERS Monograph). Sheffield, European Respiratory Society, 2016; pp. 85–101.
11. Schmidt M, Demoule A, Polito A, et al. Dyspnea in mechanically ventilated critically ill patients. Crit Care Med 2011; 39: 2059–2065.
12. Miranda SD, Pochard F, Chaize M, et al. Postintensive care unit psychological burden in patients with chronic obstructive pulmonary disease and informal caregivers: a multicenter study. Crit Care Med 2011; 39: 112–118.
13. Rotondi AJ, Chelluri L, Sirio C, et al. Patients’ recollections of stressful experiences while receiving prolonged mechanical ventilation in an intensive care unit. Crit Care Med 2002; 30: 746–752.
14. Başoğlu M, Paker M, Paker O, et al. Psychological effects of torture: a comparison of tortured with nontortured political activists in Turkey. Am J Psychiatry 1994; 151: 76–81.
15. Başoğlu M. Waterboarding is severe torture: Research findings. Mass Trauma, Mental Health & Human Rights. https://metinbasoglu.wordpress.com/2012/12/25/waterboarding-is-severe-torture-research-findings/ Date last updated: December 25, 2012. Date last accessed: August 27, 2016.
16. Başoğlu M, Livanou M, Crnobarić C. Torture vs other cruel, inhuman, and degrading treatment: Is the distinction real or apparent? Arch Gen Psychiatry 2007; 64: 277–285.
17. Başoğlu M, Mineka S. The role of uncontrollable and unpredictable stress in post-traumatic stress responses in torture survivors. In: Başoğlu M, ed. Torture and its Consequences: Current Treatment Approaches. Cambridge, Cambridge University Press, 1992; pp. 182–225.
18. Başoğlu M, Şalcıoğlu E. A Mental Healthcare Model for Mass Trauma Survivors: Control-Focused Behavioral Treatment of Earthquake, War, and Torture Trauma. Cambridge, Cambridge University Press, 2011; pp. 39–64.
19. Gysels M, Higginson IJ. The experience of breathlessness: the social course of chronic obstructive pulmonary disease. J Pain Symptom Manage 2010; 39: 555–563.
20. Disler RT, Green A, Luckett T, et al. Experience of advanced chronic obstructive pulmonary disease: metasynthesis of qualitative research. J Pain Symptom Manage 2014; 48: 1183–1199.
21. Solomon BK, Wilson KG, Henderson PR, et al. Loss of dignity in severe chronic obstructive pulmonary disease. J Pain Symptom Manage 2016; 51: 529–537.
22. UN General Assembly. Convention Against Torture and Other Cruel, Inhuman or Degrading Treatment or Punishment. www.ohchr.org/EN/ProfessionalInterest/Pages/CAT.aspx Date last updated: December 10, 1984. Date last accessed: August 27, 2016.
23. Méndez J, Nicolescu A. Evolving standards for torture in international Law. In: Başoğlu M, ed. Torture and Its Definition in International Law. New York, Oxford University Press (in press).
24. UN Human Rights Council. Report of the special rapporteur on torture and other cruel, inhuman or degrading treatment or punishment, A/HRC/22/53. www.ohchr.org/Documents/HRBodies/HRCouncil/RegularSession/Session22/A.HRC.22.53_English.pdf Date last updated: February 1, 2013. Date last accessed: August 27, 2016.
25. Ginbar Y. Making human rights sense of the torture definition. In: Başoğlu M, ed. Torture and Its Definition in International Law. New York, Oxford University Press (in press).
26. Nordgren LF, McDonnell MH, Loewenstein G. What constitutes torture? Psychological impediments to an objective evaluation of enhanced interrogation tactics. Psychol Sci 2011; 22: 689–694.
27. Lansing RW, Gracely RH, Banzett RB. The multiple dimensions of dyspnea: review and hypotheses. Respir Physiol Neurobiol 2009; 167: 53–60.
28. Ley R. The modification of breathing behavior. Pavlovian and operant control in emotion and cognition. Behav Modif 1999; 23: 441–479.
29. Van Diest I, Janssens T, Bogaerts K, et al. Affective modulation of inspiratory motor drive. Psychophysiology 2009; 46: 12–16.
30. Şalcıoğlu E, Başoğlu M. What works best in cognitive behavioral treatment? A meta-analysis of therapeutic ingredients of treatment protocols for PTSD. Eur J Psychotraumatol 2011; 2 Suppl 1: S113–S114.
31. Başoğlu M, Livanou M, Şalcıoğlu E, et al. A brief behavioural treatment of chronic post-traumatic stress disorder in earthquake survivors: Results from an open clinical trial. Psychol Med 2003; 33: 647–654.
32. Başoğlu M, Şalcıoğlu E, Livanou M, et al. Single-session behavioral treatment of earthquake-related posttraumatic stress disorder: a randomized waiting list controlled trial. J Traumatic Stress 2005; 18: 1–11.
33. Başoğlu M, Şalcıoğlu E, Livanou M. A randomized controlled study of single-session behavioral treatment of earthquake-related posttraumatic stress disorder using an earthquake simulator. Psychol Med 2007; 37: 203–214.
34. Şalcıoğlu E, Başoğlu M, Livanou M. Effects of live exposure on symptoms of posttraumatic stress disorder: The role of reduced behavioural avoidance in improvement. Behav Res Ther 2007; 45: 2268–2279.
35. Başoğlu M, Marks IM, Kılıç C, et al. The relationship between panic, anticipatory anxiety, agoraphobia, and global improvement in panic disorder with agoraphobia treated with alprazolam and exposure. Br J Psychiatry 1994; 164: 647–652.