Readiness to participate in advance care planning: A qualitative study of renal failure patients, families and healthcare providers

Chronic Illness

Volumn 13, Issue 3, 2017, Pages 171-187

  Hutchison, Lauren A ^a   Raffin Bouchal, Donna S ^a   Syme, Charlotte A ^b   Biondo, Patricia D ^a   Simon, Jessica E ^a  

^a UNIVERSITY OF CALGARY   (Canada)

^b Northern Health Authority   (Canada)

Author keywords

Advance care planning; process; qualitative research; readiness; renal failure

Indexed keywords

ADVANCE CARE PLANNING; ARTICLE; CLINICAL ARTICLE; CONTROLLED STUDY; DECISION MAKING; DISEASE SEVERITY; FAMILY; HUMAN; INFORMED CONSENT; KIDNEY FAILURE; NURSE; PHYSICIAN; QUALITATIVE RESEARCH; RURAL AREA; SEMI STRUCTURED INTERVIEW; SOCIAL WORKER; TERMINAL CARE; URBAN AREA; ALBERTA; CHRONIC KIDNEY FAILURE; FEMALE; HEALTH CARE PERSONNEL; MALE; PATIENT PARTICIPATION; PSYCHOLOGY;

ADVANCE CARE PLANNING; ALBERTA; DECISION MAKING; FAMILY; FEMALE; HEALTH PERSONNEL; HUMANS; KIDNEY FAILURE, CHRONIC; MALE; PATIENT PARTICIPATION; QUALITATIVE RESEARCH; TERMINAL CARE;

EID: 85027199936     PISSN: 17423953     EISSN: 17459206     Source Type: Journal    
DOI: 10.1177/1742395316675023     Document Type: Article

References (37)

1. Canadian Hospice Palliative Care Association. Advance Care planning in Canada: national framework. Ottawa, ON: Canadian Hospice Palliative Care Association, www.advancecareplanning.ca/wp-content/uploads/2016/08/ACP-Framework-2012-ENG.pdf (2012, accessed 25 August 2016).
2. Davison SN,. Integrating palliative care for patients with advanced chronic kidney disease: recent advances, remaining challenges. J Palliat Care 2011; 27: 53-61.
3. Davison SN, Simpson C,. Hope and advance care planning in patients with end stage renal disease: qualitative interview study. BMJ 2006; 333: 886-886.
4. Health Canada. Implementation guide to advance care planning in Canada. Ottawa, ON: Health Canada, www.hc-sc.gc.ca/hcs-sss/pubs/palliat/2008-acp-guide-pps/index-eng.php (2008, accessed 25 August 2016).
5. National Institute on Aging. Advance care planning, www.nia.nih.gov/health/publication/advance-care-planning (accessed 25 August 2016).
6. Wright AA, Zhang B, Ray A, et al. Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA 2008; 300: 1665-1673.
7. The Kidney Foundation of Canada. Facing the facts, www.kidney.ca/facing-the-facts (accessed 25 August 2016).
8. Zhang B, Wright AA, Huskamp HA, et al. Health care costs in the last week of life: associations with end-of-life conversations. Arch Intern Med 2009; 169: 480-488.
9. Barber K. Ready. Canadian Oxford Dictionary, Oxford University Press, 2004.
10. Walczak A, Butow PN, Davidson PM, et al. Patient perspectives regarding communication about prognosis and end-of-life issues: how can it be optimised? Patient Educ Couns 2013; 90: 307-314.
11. Graham ID, Logan J, Harrison MB, et al. Lost in knowledge translation: time for a map? J Contin Educ Health Prof 2006; 26: 13-24.
12. Calvin AO,. Haemodialysis patients and end-of-life decisions: a theory of personal preservation. J Adv Nurs 2004; 46: 558-566.
13. Advance Care Planning Collaborative Research and Innovation Opportunities Research Program (ACP CRIO), www.acpcrio.org (accessed 24 August 2016).
14. Thorne S. Interpretive description. Walnut Creek, CA: Left Coast Press Inc., 2008.
15. Simon J, Murray A, Raffin S,. Facilitated advance care planning: what is the patient experience? J Palliat Care 2008; 24: 256-264.
16. Thorne S, Reimer Kirkham S, O'Flynn-Magee K,. The analytic challenge in interpretive description. Int J Qual Methods 2004; 3: 1-21.
17. Thorne S, Kirkham SR, MacDonald-Emes J,. Interpretive description: a noncategorical qualitative alternative for developing nursing knowledge. Res Nurs Health 1997; 20: 169-177.
18. Lincoln YS, Guba EG,. Naturalistic inquiry, London, UK: Sage, 1985.
19. Attride-Stirling J,. Thematic networks: an analytic tool for qualitative research. Qual Res 2001; 1: 385-405.
20. Moss AH, Ganjoo J, Sharma S, et al. Utility of the "surprise" question to identify dialysis patients with high mortality. Clin J Am Soc Nephrol 2008; 3: 1379-1384.
21. Alberta Health Services. Advance Care planning and goals of care designation level 1 policy. Alberta, Canada: Alberta Health Services, www.albertahealthservices.ca/info/Page9099.aspx (2014, accessed 25 August 2016).
22. Sandman L, Munthe C,. Shared decision making, paternalism and patient choice. Health Care Anal 2010; 18: 60-84.
23. Sudore RL, Fried TR,. Redefining the "planning" in advance care planning: preparing for end-of-life decision making. Ann Intern Med 2010; 153: 256-261.
24. Silveira MJ, Kim SY, Langa KM,. Advance directives and outcomes of surrogate decision making before death. N Engl J Med 2010; 362: 1211-1218.
25. Pfeifer MP, Mitchell CK, Chamberlain L,. The value of disease severity in predicting patient readiness to address end-of-life issues. Arch Intern Med 2003; 163: 609-612.
26. Tung EE, North F,. Advance care planning in the primary care setting: a comparison of attending staff and resident barriers. Am J Hosp Palliat Care 2009; 26: 456-463.
27. Davison SN,. Facilitating advance care planning for patients with end-stage renal disease: the patient perspective. Clin J Am Soc Nephrol 2006; 1: 1023-1028.
28. Fine A, Fontaine B, Kraushar MM, et al. Nephrologists should voluntarily divulge survival data to potential dialysis patients: a questionnaire study. Perit Dial Int 2005; 25: 269-273.
29. Simpson C,. Advance care planning in COPD: care versus "code status". Chron Respir Dis 2012; 9: 193-204.
30. Bristowe K, Horsley HL, Shepherd K, et al. Thinking ahead-the need for early advance care planning for people on haemodialysis: a qualitative interview study. Palliat Med 2015; 29: 443-450.
31. Kirchhoff KT, Hammes BJ, Kehl KA, et al. Effect of a disease-specific planning intervention on surrogate understanding of patient goals for future medical treatment. J Am Geriatr Soc 2010; 58: 1233-1240.
32. Kirchhoff KT, Hammes BJ, Kehl KA, et al. Effect of a disease-specific advance care planning intervention on end-of-life care. J Am Geriatr Soc 2012; 60: 946-950.
33. De Vleminck A, Pardon K, Beernaert K, et al. How do general practitioners conceptualise advance care planning in their practice? A qualitative study. PLoS One 2016; 11: e0153747-e0153747.
34. Haras MS, Astroth KS, Woith WL, et al. Exploring advance care planning from the nephrology nurse perspective: a literature review. Nephrol Nurs J 2015; 42: 23-35.
35. You JJ, Downar J, Fowler RA, et al. Barriers to goals of care discussions with seriously ill hospitalized patients and their families: a multicenter survey of clinicians. JAMA Intern Med 2015; 175: 549-556.
36. Robinson L, Dickinson C, Bamford C, et al. A qualitative study: professionals' experiences of advance care planning in dementia and palliative care, 'a good idea in theory but... '. Palliat Med 2013; 27: 401-408.
37. Biondo PD, Lee LD, Davison SN, et al. How healthcare systems evaluate their advance care planning initiatives: results from a systematic review. Palliat Med 2016; 30: 720-729.