Collective and negotiated design for a clinical trial addressing smoking cessation supports for Aboriginal and Torres Strait Islander mothers in NSW, SA and Qld - Developing a pilot study

Australian Journal of Primary Health

Volumn 23, Issue 6, 2017, Pages 497-503

  Bovill, Michelle ^a   Bar Zeev, Yael ^a   Gruppetta, Maree ^b   O'Mara, Peter ^b   Cowling, Brett ^c   Gould, Gillian S ^a  

^a UNIVERSITY OF NEWCASTLE   (Australia)

^b UNIVERSITY OF NEWCASTLE   (Australia)

^c Biripi Aboriginal Corporation Medical Centre   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; AUSTRALIAN ABORIGINE; CAPACITY BUILDING; COMMUNITY CARE; CONTROLLED STUDY; COOPERATION; EVIDENCE BASED MEDICINE; FEMALE; HEALTH CARE ORGANIZATION; HEALTH CARE PERSONNEL; HUMAN; MATERNAL SMOKING; METHODOLOGY; NEW SOUTH WALES; NICOTINE REPLACEMENT THERAPY; PARTICIPATORY RESEARCH; PATIENT COUNSELING; PILOT STUDY; PREGNANCY; QUEENSLAND; RANDOMIZED CONTROLLED TRIAL; SMOKING CESSATION; SOUTH AUSTRALIA; STAFF TRAINING; TORRES STRAIT ISLANDER; CLINICAL TRIAL (TOPIC); COUNSELING; EPIDEMIOLOGY; INTERPERSONAL COMMUNICATION; MOTHER; OCEANIC ANCESTRY GROUP; PROCEDURES; PROGRAM DEVELOPMENT; PSYCHOLOGY; PUBLIC RELATIONS; SMOKING;

CLINICAL TRIALS AS TOPIC; COMMUNITY-BASED PARTICIPATORY RESEARCH; COOPERATIVE BEHAVIOR; COUNSELING; FEMALE; HUMANS; INTERINSTITUTIONAL RELATIONS; INTERPROFESSIONAL RELATIONS; MOTHERS; NEGOTIATING; NEW SOUTH WALES; OCEANIC ANCESTRY GROUP; PILOT PROJECTS; PREGNANCY; PROGRAM DEVELOPMENT; QUEENSLAND; SMOKING; SMOKING CESSATION; SOUTH AUSTRALIA;

EID: 85027065273     PISSN: 14487527     EISSN: 18367399     Source Type: Journal    
DOI: 10.1071/PY16140     Document Type: Article

References (54)

1. Adams E, Tongs J (2011) Winnunga Nimmityjah Aboriginal Health Service-starting a perinatal and infant mental health service atWinnunga Nimmityjah. Australasian Psychiatry 19, S20-S22. doi:10. 3109/10398 562. 2011. 582751
2. AH&MRC Ethics Committee (2013) AH&MRC guidelines for research into Aboriginal health: key principles. Available at http://www. ahmrc. org. au/media/resources/ethics/ethics-application-resources/271-ah-mrcguidelines-for-research-into-aboriginal-health-key-principles-1/file. html [Verified 20 June 2016]
3. Arnold L, Hoy W, Wang Z (2016) Low birthweight increases risk for cardiovascular disease hospitalisations in a remote Indigenous Australian community-a prospective cohort study. Australian and New Zealand Journal of Public Health 40, S102-S106. doi:10. 1111/1753-6405. 12426
4. Australian Government (2013) National Aboriginal and Torres Strait Islander Health Plan 2013-2023. Commonwealth of Australia. Available at http://www. health. gov. au/internet/main/publishing. nsf/content/B92E 980680486C3BCA257BF0001BAF01/File/health-plan. pdf [Verified 20 June 2016]
5. Australian Institute of Health and Welfare (2015) Australia's mothers and babies 2013: in brief. Perinatal Statistics Series number 31. Australian Institute of Health and Welfare, Canberra. Available at http://www. aihw. gov. au/publication-detail/?id=60129553770 [Verified 15 February 2017]
6. Bovill M, Donovan S (2016) Indigenous Counselling and Nicotine (ICAN) Quit in Pregnancy Intervention. In 'AH&MRC Tackling Tobacco and Chronic Conditions Conference', 3 May 2016, Sydney, NSW, Australia.
7. Carson K (2014) Indigenous smoking program cuts risk widening the gap. The Conversation. Available at http://theconversation. com/indigenoussmoking-program-cuts-risk-widening-the-gap-29051 [Verified 1 August 2016]
8. Cochran PA, Marshall CA, Garcia-Downing C, Kendall E, Cook D, McCubbin L, Gover RM (2008) Indigenous ways of knowing: implications for participatory research and community. American Journal of Public Health 98(1), 22-27. doi:10. 2105/AJPH. 2006. 093641
9. Commonwealth of Australia (2015) Closing the gap: Prime Minister's Report. Available at https://www. dpmc. gov. au/sites/default/files/publications/ Closing-the-Gap-2015-Report. pdf [Verified 10 August 2016]
10. Couzos S, Nicholson AK, Hunt JM, Davey ME, May JK, Bennet PT, Westphal DW, Thomas DP (2015) Talking about the smokes: a largescale, community-based participatory research project. The Medical Journal of Australia 202(10), 13-19. doi:10. 5694/mja14. 00875
11. Dunbar T, Scrimgeour M (2006) Ethics in Indigenous research-connecting with community. Journal of Bioethical Inquiry 3(3), 179-185. doi:10. 1007/s11673-006-9018-1
12. Durey A, McEvoy S, Swift-Otero V, Taylor K, Katzenellenbogen J, Bessarab D (2016) Improving healthcare for Aboriginal Australians through effective engagement between community and health services. BMC Health Services Research 16, 224. doi:10. 1186/s12913-016-1497-0
13. Eades SJ, Chamberlain C (2015) Seeking a comprehensive approach to tobacco control for Aboriginal and Torres Strait Islander people. The Medical Journal of Australia 202(10), 511-512. doi:10. 5694/mja15. 00455
14. Eades SJ, Read AW (1999) The Bibbulung Gnarneep Project: practical implementation of guidelines on ethics in indigenous health research. The Medical Journal of Australia 170(9), 433-436.
15. Eades SJ, Stanley FJ (2013) Improving the health of First Nations children in Australia. The Medical Journal of Australia 199(1), 12-13. doi:10. 5694/mja13. 10726
16. Eades SJ, Sanson-Fisher RW, Wenitong M, Panaretto K, D'Este C, Gilligan C, Stewart J (2012) An intensive smoking intervention for pregnant Aboriginal and Torres Strait Islander women: a randomised controlled trial. The Medical Journal of Australia 197(1), 42-46. doi:10. 5694/ mja11. 10858
17. Fletcher G, Fredericks B, Adams K, Finlay S, Andy S, Briggs L, Hall R (2011) Having a yarn about smoking: using action research to develop a 'no smoking' policy within an Aboriginal Health Organisation. Health Policy 103, 92-97. doi:10. 1016/j. healthpol. 2011. 06. 014
18. Fredericks BL, Adams K, Finlay SM, Fletcher G, Andy S, Briggs L (2011) Engaging the practice of yarning in Action Research. Action Learning and Action Research Journal 17(2), 7-19.
19. Gilligan C, Sanson-Fisher R, Eades S, D'Este C (2007) Antenatal smoking in vulnerable population groups: an area of need. Journal of Obstetrics& Gynaecology 27(7), 664-671. doi:10. 1080/01443610701667486
20. Gilligan C, Sanson-Fisher RW, D'Este C, Eades S, Wenitong M (2009) Knowledge and attitudes regarding smoking during pregnancy among Aboriginal and Torres Strait Islander women. The Medical Journal of Australia 190(10), 557-561.
21. Gilligan C, Sanson-Fisher R, Eades S, Wenitong M, Panaretto K, D'Este C (2010) Assessing the accuracy of self-reported smoking status and impact of passive smoke exposure among pregnant Aboriginal and Torres Strait Islander women using cotinine biochemical validation. Drug and Alcohol Review 29(1), 35-40. doi:10. 1111/j. 1465-3362. 2009. 00078. x
22. Gould GS, Munn J, Avuri S, Hoff S, Cadet-James Y, McEwen A, Clough AR (2013a) 'Nobody smokes in the house if there's a new baby in it': Aboriginal perspectives on tobacco smoking in pregnancy and in the household in regional NSW Australia. Women and Birth; Journal of the Australian College of Midwives 26, 246-253. doi:10. 1016/j. wombi. 2013. 08. 006
23. Gould GS, Munn J, Watters T, McEwen A, Clough AR (2013b) Knowledge and views about maternal tobacco smoking and barriers for cessation in Aboriginal and Torres Strait Islanders: a systematic review and meta-ethnography. Nicotine & Tobacco Research 15(5), 863-874. doi:10. 1093/ntr/nts211
24. Gould GS, Watt K, Stevenson L, McEwen A, Cadet-James Y, Clough AR (2014) Developing anti-tobacco messages for Australian Aboriginal and Torres Strait Islander peoples: evidence from a national cross-sectional survey. BMC Public Health 14(1), 250-262. doi:10. 1186/1471-2458-14-250
25. Gould GS, Bittoun R, Clarke MJ (2015) A pragmatic guide for smoking cessation counselling and the initiation of nicotine replacement therapy for pregnant Aboriginal and Torres Strait Islander smokers. Journal of Smoking Cessation 10, 96-105. doi:10. 1017/jsc. 2014. 3
26. Gould GS, Stevenson L, Cadet-James Y, Clough AR (2016) Cultural challenges reported when developing anti-tobacco messages for Indigenous Australians. Health Promotion International 2016, daw072. doi:10. 1093/heapro/daw072
27. Gwynn J, Lock M, Turner N, Dennison R, Coleman C, Kelly B, Wiggers J (2015) Aboriginal and Torres Strait Islander community governance of health research: turning principles into practice. Australian Journal of Rural Health 23(4), 235-242. doi:10. 1111/ajr. 12182
28. Hearn S, Nancarrow H, Rose M, Massi L, Wise M, Conigrave K, Barnes I, Bauman A (2011) Evaluating NSW SmokeCheck: a culturally specific smoking cessation training program for health professionals working in Aboriginal health. Health Promotion Journal of Australia 22(3), 189-195. doi:10. 1071/HE11189
29. Holmes W, Stewart P, Garrow A, Anderson I, Thorpe L (2002) Researching Aboriginal health: experience from a study of urban young people's health and well-being. Social Science & Medicine 54(8), 1267-1279. doi:10. 1016/S0277-9536(01)00095-8
30. Ivers RG (2004) An evidence-based approach to planning tobacco interventions for Aboriginal people. Drug and Alcohol Review 23(1), 5-9. doi:10. 1080/09595230410001645501
31. Jamieson LM, Paradies YC, Eades S, Chong A, Maple-Brown L, Morris P, Bailie R, Cass A, Roberts-Thomson K, Brown A (2012) Ten principles relevant to health research among Indigenous Australian populations. The Medical Journal of Australia 197(1), 16-18. doi:10. 5694/mja11. 11642
32. Jongen C, McCalman J, Bainbridge R, Tsey K (2014) Aboriginal and Torres Strait Islander maternal and child health and wellbeing: a systematic search of programs and services in Australian primary health care settings. BMC Pregnancy and Childbirth 14(1), 251. doi:10. 1186/ 1471-2393-14-251
33. Kendall E, Barnett L (2015) Principles for the development of Aboriginal health interventions: culturally appropriate methods through systemic empathy. Ethnicity & Health 20(5), 437-452. doi:10. 1080/13557858. 2014. 921897
34. Lin I, Green C, Bessarab D (2016) 'Yarn with me': applying clinical yarning to improve clinician-patient communication in Aboriginal health care. Australian Journal of Primary Health 22(5), 377-382. doi:10. 1071/ PY16051
35. Marley JV, Kitaura T, Atkinson D, Metcalf S, Maguire GP, Gray D (2014) Clinical trials in a remote Aboriginal setting: lessons from the BOABS smoking cessation study. BMC Public Health 14(1), 579. doi:10. 1186/ 1471-2458-14-579
36. Massey PD, Miller A, Saggers S, Durrheim DN, Speare R, Taylor K, Pearce G, Odo T, Broome J, Judd J, Kelly J, Blackley M, Clough A (2011) Australian Aboriginal and Torres Strait Islander communities and the development of pandemic influenza containment strategies: community voices and community control. Health Policy 103(2-3), 184-190. doi:10. 1016/j. healthpol. 2011. 07. 004
37. Mc Loughlin F, Hadgraft NT, Atkinson D, Marley JV (2014) Aboriginal health research in the remote Kimberley: an exploration of perceptions, attitudes and concerns of stakeholders. BMC Health Services Research 14(1), 517. doi:10. 1186/s12913-014-0517-1
38. McCalman J, Bainbridge R, Percival N, Tsey K (2016) The effectiveness of implementation in Indigenous Australian healthcare: an overview of literature reviews. International Journal for Equity in Health 15, 47. doi:10. 1186/s12939-016-0337-5
39. Minichiello A, Lefkowitz ARF, Firestone M, Smylie JK, Schwartz R (2016) Effective strategies to reduce commercial tobacco use in Indigenous communities globally: a systematic review. BMC Public Health 16, 21. doi:10. 1186/s12889-015-2645-x
40. Mundine K, Edwards L, Williams JDB (2001) Why an Aboriginal ethical perspective is necessary for research into Aboriginal health. In 'From the Ground up-a Conference on Aboriginal Health in the 63rd Millennium', 1-4 May 2006, Sydney, NSW, Australia. (AH&MRC) Available at http://www. ahmrc. org. au/media/resources/ethics/ethicsbackground-resources/278-aboriginal-ethical-perspective-for-researchers/ file. html [Verified 15 February 2017]
41. NHMRC (2003) Values and ethics: guidelines for ethical conduct in Aboriginal and Torres Strait Islander health research (1864962135). Available at https://www. nhmrc. gov. au/-files-nhmrc/publications/attach ments/ e52. pdf [Verified 30 January 2016]
42. NHMRC (2005) Keeping research on track: a guide for Aboriginal and Torres Strait Islander peoples about health research ethics. (Australian Government: Canberra, ACT, Australia) Available at https://www. nhmrc. gov. au/-files-nhmrc/publications/attachments/e65. pdf [Verified 5 January 2016]
43. NHMRC (2010) NHMRC Road Map ll: a strategic framework for improving the health of Aboriginal and Torres Strait Islander people through research. (Australian Government Canberra, ACT, Australia) Available at https://www. nhmrc. gov. au/-files-nhmrc/publications/attachments/r47. pdf [Verified 5 January 2016]
44. O'Donahoo FJ, Ross KE (2015) Principles relevant to health research among Indigenous communities. International Journal of Environmental Research and Public Health 12(5), 5304-5309. doi:10. 3390/ijerph1 20505304
45. Panaretto KS, Mitchell MR, Anderson L, Gilligan C, Buettner P, Larkins SL, Eades S (2009) Tobacco use and measuring nicotine dependence among urban Indigenous pregnant women. The Medical Journal of Australia 191(10), 554-557.
46. Passey ME, Sanson-Fisher RW (2015) Provision of antenatal smoking cessation support: a survey with pregnant Aboriginal and Torres Strait Islanderwomen. Nicotine&Tobacco Research 17(6), 746-749. doi:10. 1093/ ntr/ntv019
47. Passey ME, Bryant J, Hall AE, Sanson-Fisher RW (2013) How will we close the gap in smoking rates for pregnant Indigenous women? The Medical Journal of Australia 199(1), 39-41. doi:10. 5694/mja12. 11848
48. Patten CA (2012) Tobacco cessation intervention during pregnancy among Alaska Native women. Journal of Cancer Education 27, 86-90. doi:10. 1007/s13187-012-0317-4
49. Rae K, Weatherall L, Hollebone K, Apen K, McLean M, Blackwell C, Eades S, Boulton J, Lumbers E, Smith R (2013) Developing research in partnership with Aboriginal communities-strategies for improving recruitment and retention. Rural and Remote Health 13(2), 2255.
50. Reeve C, Humphreys J, Wakerman J, Carroll V, Carter M, O'Brien T, Erlank C, Mansour R, Smith B (2015) Community participation in health service reform: the development of an innovative remote Aboriginal primary health-care service. Australian Journal of Primary Health 21(4), 409-416. doi:10. 1071/PY14073
51. Singer J, Bennett-Levy J, Rotumah D (2015) 'You didn't just consult community, you involved us': transformation of a 'top-down' Aboriginal mental health project into a 'bottom-up' community-driven process. Australasian Psychiatry 23(6), 614-619. doi:10. 1177/1039856215 614985
52. Snijder M, Shakeshaft A, Wagemakers A, Stephens A, Calabria B (2015) A systematic review of studies evaluating Australian indigenous community development projects: the extent of community participation, their methodological quality and their outcomes. BMC Public Health 15, 1154. doi:10. 1186/s12889-015-2514-7
53. Vos T, Barker B, Begg S, Stanley L, Lopez A (2009) Burden of disease and injury in Aboriginal and Torres Strait Islander Peoples: the Indigenous health gap. International Journal of Epidemiology 38, 470-477. doi:10. 1093/ije/dyn240
54. Wood L, France K, Hunt K, Eades S, Slack-Smith L (2008) Indigenous women and smoking during pregnancy: knowledge, cultural contexts and barriers to cessation. Social Science & Medicine 66(11), 2378-2389. doi:10. 1016/j. socscimed. 2008. 01. 024