메뉴 건너뛰기




Volumn 15, Issue 1, 2017, Pages

Determining the longitudinal validity and meaningful differences in HRQL of the PedsQL™ Sickle Cell Disease Module

(20)  Panepinto, Julie A a   Paul Scott, J a   Badaki Makun, Oluwakemi b   Darbari, Deepika S c   Chumpitazi, Corrie E d   Airewele, Gladstone E d   Ellison, Angela M e   Smith Whitley, Kim e   Mahajan, Prashant f   Sarnaik, Sharada A f   Charles Casper, T g   Cook, Larry J g   Leonard, Julie h   Hulbert, Monica L i   Powell, Elizabeth C j   Liem, Robert I k   Hickey, Robert l   Krishnamurti, Lakshmanan m   Hillery, Cheryl A n   Brousseau, David C a  


Author keywords

Acute pain crises; Longitudinal validity; Quality of life; Responsiveness; Sickle cell disease

Indexed keywords

HYDROXYUREA;

EID: 85020437622     PISSN: None     EISSN: 14777525     Source Type: Journal    
DOI: 10.1186/s12955-017-0700-2     Document Type: Article
Times cited : (26)

References (17)
  • 1
    • 84862269475 scopus 로고    scopus 로고
    • Health-related quality of life in sickle cell disease: past, present, and future
    • Panepinto JA, Bonner M. Health-related quality of life in sickle cell disease: past, present, and future. Pediatr Blood Cancer. 2012;59(2):377-85.
    • (2012) Pediatr Blood Cancer , vol.59 , Issue.2 , pp. 377-385
    • Panepinto, J.A.1    Bonner, M.2
  • 3
    • 84947996077 scopus 로고    scopus 로고
    • A multicenter randomized controlled trial of intravenous magnesium for sickle cell pain crisis in children
    • Brousseau DC, Scott JP, Badaki-Makun O, Darbari DS, Chumpitazi CE, Airewele GE, et al. A multicenter randomized controlled trial of intravenous magnesium for sickle cell pain crisis in children. Blood. 2015;126(14):1651-7.
    • (2015) Blood , vol.126 , Issue.14 , pp. 1651-1657
    • Brousseau, D.C.1    Scott, J.P.2    Badaki-Makun, O.3    Darbari, D.S.4    Chumpitazi, C.E.5    Airewele, G.E.6
  • 4
    • 84901698463 scopus 로고    scopus 로고
    • Pediatric Emergency Care Applied Research Network Magnesium in Sickle Cell Crisis Study G: Intravenous magnesium for pediatric sickle cell vaso-occlusive crisis: methodological issues of a randomized controlled trial
    • Badaki-Makun O, Scott JP, Panepinto JA, Casper TC, Hillery CA, Dean JM, Brousseau DC, Pediatric Emergency Care Applied Research Network Magnesium in Sickle Cell Crisis Study G: Intravenous magnesium for pediatric sickle cell vaso-occlusive crisis: methodological issues of a randomized controlled trial. Pediatr Blood Cancer 2014, 61(6):1049-1054.
    • (2014) Pediatr Blood Cancer , vol.61 , Issue.6 , pp. 1049-1054
    • Badaki-Makun, O.1    Scott, J.P.2    Panepinto, J.A.3    Casper, T.C.4    Hillery, C.A.5    Dean, J.M.6    Brousseau, D.C.7
  • 5
    • 0036525747 scopus 로고    scopus 로고
    • The PedsQL in pediatric cancer: reliability and validity of the pediatric quality of life inventory generic core scales, multidimensional fatigue scale, and cancer module
    • Varni JW, Burwinkle TM, Katz ER, Meeske K, Dickinson P. The PedsQL in pediatric cancer: reliability and validity of the pediatric quality of life inventory generic core scales, multidimensional fatigue scale, and cancer module. Cancer. 2002;94(7):2090-106.
    • (2002) Cancer , vol.94 , Issue.7 , pp. 2090-2106
    • Varni, J.W.1    Burwinkle, T.M.2    Katz, E.R.3    Meeske, K.4    Dickinson, P.5
  • 7
    • 0004213134 scopus 로고
    • Statistics for social scientists
    • London: Harper and Row;
    • Cohen LaH M. Statistics for social scientists. London: Harper and Row; 1982.
    • (1982)
    • Cohen LaH, M.1
  • 8
    • 0033125875 scopus 로고    scopus 로고
    • Linking clinical relevance and statistical significance in evaluating intra-individual changes in health-related quality of life
    • Wyrwich KW, Nienaber NA, Tierney WM, Wolinsky FD. Linking clinical relevance and statistical significance in evaluating intra-individual changes in health-related quality of life. Med Care. 1999;37(5):469-78.
    • (1999) Med Care , vol.37 , Issue.5 , pp. 469-478
    • Wyrwich, K.W.1    Nienaber, N.A.2    Tierney, W.M.3    Wolinsky, F.D.4
  • 9
    • 0033199526 scopus 로고    scopus 로고
    • Further evidence supporting an SEM-based criterion for identifying meaningful intra-individual changes in health-related quality of life
    • Wyrwich KW, Tierney WM, Wolinsky FD. Further evidence supporting an SEM-based criterion for identifying meaningful intra-individual changes in health-related quality of life. J Clin Epidemiol. 1999;52(9):861-73.
    • (1999) J Clin Epidemiol , vol.52 , Issue.9 , pp. 861-873
    • Wyrwich, K.W.1    Tierney, W.M.2    Wolinsky, F.D.3
  • 10
    • 79953862195 scopus 로고    scopus 로고
    • A point of minimal important difference (MID): a critique of terminology and methods
    • King MT. A point of minimal important difference (MID): a critique of terminology and methods. Expert Rev Pharmacoecon Outcomes Res. 2011;11(2):171-84.
    • (2011) Expert Rev Pharmacoecon Outcomes Res , vol.11 , Issue.2 , pp. 171-184
    • King, M.T.1
  • 12
    • 59449097396 scopus 로고    scopus 로고
    • Impact of family income and sickle cell disease on the health-related quality of life of children
    • Panepinto JA, Pajewski NM, Foerster LM, Sabnis S, Hoffmann RG. Impact of family income and sickle cell disease on the health-related quality of life of children. Qual Life Res. 2009;18(1):5-13.
    • (2009) Qual Life Res , vol.18 , Issue.1 , pp. 5-13
    • Panepinto, J.A.1    Pajewski, N.M.2    Foerster, L.M.3    Sabnis, S.4    Hoffmann, R.G.5
  • 13
    • 84870969044 scopus 로고    scopus 로고
    • Guidance for Industry: Patient-reported outcome measures: Use in medical product development to support labeling claims
    • FDA. Guidance for Industry: Patient-reported outcome measures: Use in medical product development to support labeling claims [ http://www.fda.gov/downloads/Drugs/GuidanceComplianceRegulatoryInformation/Guidances/UCM071975.pdf ].
  • 14
    • 84887957162 scopus 로고    scopus 로고
    • Interpretation of patient-reported outcomes
    • Cappelleri JC, Bushmakin AG. Interpretation of patient-reported outcomes. Stat Methods Med Res. 2014;23(5):460-83.
    • (2014) Stat Methods Med Res , vol.23 , Issue.5 , pp. 460-483
    • Cappelleri, J.C.1    Bushmakin, A.G.2
  • 16
    • 37549004786 scopus 로고    scopus 로고
    • Recommended methods for determining responsiveness and minimally important differences for patient-reported outcomes
    • Revicki D, Hays RD, Cella D, Sloan J. Recommended methods for determining responsiveness and minimally important differences for patient-reported outcomes. J Clin Epidemiol. 2008;61(2):102-9.
    • (2008) J Clin Epidemiol , vol.61 , Issue.2 , pp. 102-109
    • Revicki, D.1    Hays, R.D.2    Cella, D.3    Sloan, J.4
  • 17
    • 84876467768 scopus 로고    scopus 로고
    • Methods for interpreting change over time in patient-reported outcome measures
    • Wyrwich KW, Norquist JM, Lenderking WR, Acaster S, Industry Advisory Committee of International Society for Quality of Life R. Methods for interpreting change over time in patient-reported outcome measures. Qual Life Res. 2013;22(3):475-83.
    • (2013) Qual Life Res , vol.22 , Issue.3 , pp. 475-483
    • Wyrwich, K.W.1    Norquist, J.M.2    Lenderking, W.R.3    Acaster, S.4


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.