SPN Position Statement: Transition of Pediatric Patients Into Adult Care

Journal of Pediatric Nursing

Volumn 35, Issue , 2017, Pages 160-164

  Betz, Cecily L ^a,b  

^a UNIVERSITY OF SOUTHERN CALIFORNIA   (United States)

^b UNIVERSITY OF SOUTHERN CALIFORNIA   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; CHILD; CHRONIC DISEASE; EVIDENCE BASED NURSING; HEALTH CARE QUALITY; HUMAN; ORGANIZATION AND MANAGEMENT; PRACTICE GUIDELINE; TRANSITION TO ADULT CARE; TRANSITIONAL CARE; UNITED STATES;

ADULT; CHILD; CHRONIC DISEASE; EVIDENCE-BASED NURSING; GUIDELINES AS TOPIC; HUMANS; QUALITY ASSURANCE, HEALTH CARE; TRANSITION TO ADULT CARE; TRANSITIONAL CARE; UNITED STATES;

EID: 85019687940     PISSN: 08825963     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.pedn.2017.05.003     Document Type: Article

References (46)

1. Aldiss, S., Ellis, J., Cass, H., Pettigrew, T., Rose, L., Gibson, F., Transition from child to adult care – ‘It's not a one-off event’: Development of benchmarks to improve the experience. Journal of Pediatric Nursing 30:5 (2015), 638–647, 10.1016/j.pedn.2015.05.020.
2. American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians, Transitions Clinical Report Authoring Group, Cooley, W.C., Sagerman, P.J., Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics 128 (2011), 182–200, 10.1542/peds.2011-0969.
3. Bridgett, M., Abrahamson, G., Ho, J., Transition, It's More Than Just An Event: Supporting Young People With Type 1 Diabetes. Journal of Pediatric Nursing 30:5 (2015), e11–e14, 10.1016/j.pedn.2015.05.008.
4. Campbell, F., Biggs, K., Aldiss, S.K., O'Neill, P.M., Clowes, M., McDonagh, J., Gibson, F., Transition of care for adolescents from paediatric services to adult health services. Cochrane Database of Systematic Reviews, 2016(4), 2016, 10.1002/14651858.CD009794.pub2.
5. Celona, C.A., Measuring Acuity and Patient Progress for Youth With Special Health Care Needs in Transition Care Utilizing Nursing Outcomes. Journal of Pediatric Nursing 30:5 (2015), e15–e18, 10.1016/j.pedn.2015.05.005.
6. Chu, P.Y., Maslow, G.R., von Isenburg, M., Chung, R.J., Systematic Review of the Impact of Transition Interventions for Adolescents With Chronic Illness on Transfer From Pediatric to Adult Healthcare. Journal of Pediatric Nursing 5 (2015), e19–e27, 10.1016/j.pedn.2015.05.022. Epub.
7. Cook, K., Siden, H., Jack, S., Thabane, L., Browne, G., Up against the system: A case study of young adult perspectives transitioning from pediatric palliative care. Nursing Research and Practice 2013 (2013), 1–10, 10.1155/2013/286751.
8. Disabato, J.A., Cook, P.F., Hutton, L., Dinkel, T., Levisohn, P.M., Transition from Pediatric to Adult Specialty Care for Adolescents and Young Adults with Refractory Epilepsy: A Quality Improvement Approach. Journal of Pediatric Nursing 30:5 (2015), e37–e45, 10.1016/j.pedn.2015.06.014.
9. Fair, C., Cuttance, J., Sharma, N., Maslow, G., Wiener, L., Betz, C., Ferris, M., International and interdisciplinary identification of health care transition outcomes. JAMA Pediatrics 170:3 (2015), 205–211, 10.1001/jamapediatrics.2015.3168.
10. Fegran, L., Hall, E.O.C., Uhrenfeldt, L., Aagaard, H., Ludvigsen, M.S., Adolescents’ and young adults’ transition experiences when transferring from paediatric to adult care: A qualitative metasynthesis. International Journal of Nursing Studies 51 (2014), 123–135, 10.1016/j.ijnurstu.2013.02.001.
11. Ferris, M., Cohen, S., Haberman, C., Javalkar, K., Massengill, S., Mahan, J.D., Hooper, S.R., Self-Management and Transition Readiness Assessment: Development, Reliability, and Factor Structure of the STARx Questionnaire. Journal of Pediatric Nursing 30:5 (2015), 691–699, 10.1016/j.pedn.2015.05.009.
12. Ferris, M.E., Gipson, D.S., Kimmel, P.L., Eggers, P.W., Trends in treatment and outcomes of survival of adolescents initiating end-stage renal disease care in the United States of America. Pediatric Nephrology 21 (2006), 1020–1026.
13. Findley, M.K., Cha, E., Wong, E., Faulkner, M.S., A Systematic Review of Transitional Care for Emerging Adults with Diabetes. Journal of Pediatric Nursing 30 (2015), e47–e62, 10.1016/j.pedn.2015.05.019.
14. Fredericks, E.M., Dore-Stites, D., Well, A., Magee, J.C., Freed, G.L., Shieck, V., Lopez, M.J., Assessment of transition readiness skills and adherence in pediatricliver transplant recipients. Pediatric Transplantation 14 (2010), 944–953, 10.1111/j.1399-3046.2010.01349.x.
15. Got Transition, Center for Healthcare Transition Improvement, Six core elements for healthcare transition 2.0. Retrieved from http://www.gottransition.org/resourceGet.cfm?id=206, 2014.
16. Hait, E., Arnold, J.H., Fishman, L.N., Educate, communicate, anticipate- practical recommendations for transitioning adolescents with IBD to adult health care. Inflammatory Bowel Diseases 12:1 (2006), 70–73.
17. Joly, E., Transition to Adulthood for Young People with Medical Complexity: An Integrative Literature Review. Journal of Pediatric Nursing 30:5 (2015), e91–103, 10.1016/j.pedn.2015.05.016.
18. Joly, E., Integrating Transition Theory and Bioecological Theory: A theoretical perspective for nurses supporting the transition to adulthood for young people with medical complexity. Journal of Advanced Nursing 72:6 (2016), 1251–1262, 10.1111/jan.12939.
19. Major, J., Stewart, D., Amaria, K., Nguyen, T., Doig, J., Adams, S., Wilson, L., Care in the long term for youth and young adults with complex care needs. 2014, Canadian Foundation for Healthcare Improvement, Ottawa, ON (Retrieved from http://www.cfhi- fcass.ca/PublicationsAndResources/ResearchReports/ArticleView/2014/07/30/improvin g-care- in-the-long-term-for-youth-and-young-adults-with-complex-care-needs).
20. Mannino, J.E., Resilience and Transitioning to Adulthood among Emerging Adults with Disabilities. Journal of Pediatric Nursing 30 (2015), e131–e145, 10.1016/j.pedn.2015.05.017.
21. Maturo, D., Powell, A., Major-Wilson, H., Sanchez, K., De Santis, J.P., Friedman, L.B., Transitioning Adolescents and Young Adults With HIV Infection to Adult Care: Pilot Testing the “Movin' Out” Transitioning Protocol. Journal of Pediatric Nursing 30 (2015), e29–e35, 10.1016/j.pedn.2015.06.013.
22. McDonnell, W.M., Kocolas, I., Roosevelt, G.E., Yetman, A.T., Pediatric emergency department use by adults with chronic pediatric disorders. Archives of Pediatrics and Adolescent Medicine 164:6 (2010), 572–576, 10.1001/archpediatrics.2010.60.
23. McManus, M., White, P., Barbour, A., Downing, B., Hawkins, K., Quion, N., Mcallister, J.W., Pediatric to Adult Transition: A Quality Improvement Model for Primary Care. Journal of Adolescent Health 56:1 (2015), 73–78, 10.1016/j.jadohealth.2014.08.006.
24. Moynihan, M., Saewyc, E., Whitehouse, S., Paone, M., McPherson, G., Assessing readiness for transition from paediatric to adult health care: Revision and psychometric evaluation of the ‘Am I ON TRAC for Adult Care’ questionnaire. Journal of Advanced Nursing 71:6 (2015), 1324–1335, 10.1111/jan.12617.
25. National Institute for Health and Care Excellence. (2016). Transition from children's to adults' services for young people using health or social care services: NICE guidance. Retrieved from https:// www.nice.org.uk/guidance/ng43.
26. National Med-Peds Residents' Association, Transition for Youth and Young Adults from Pediatric to Adult Health Care: A Practice Quality Improvement Approach. Retrieved July 19, 2016, from https://medpeds.org/transition-for-youth-and-young-adults-from-pediatric-to-adult-health-care-a-practice-quality-improvement-approach/, 2013.
27. Nehring, W.N., Betz, C.L., Lobo, M.L., Uncharted Territory: Systematic Review of Providers’ Roles, Understanding and Views Pertaining to Health Care Transition. Journal of Pediatric Nursing 30:5 (2015), 732–747, 10.1016/j.pedn.2015.05.030.
28. Prior, M., McManus, M., White, P., Davidson, L., Measuring the “Triple Aim” in transition care: A systematic review., 134, 2014, e1648–e1661.
29. Quinn, C.T., Rogers, Z.R., McCavit, T.L., Buchanan, G.R., Improved survival of children and adolescents with sickle cell disease. Blood 115 (2010), 3447–3452.
30. Reiss, J., Gibson, R., Health care transition: destinations unknown. Pediatrics 110 (2002), 1307–1314.
31. Reiss, J.G., Gibson, R.W., Walker, L.R., Health care transition: youth, family, and povider perspectives. Pediatrics 115 (2005), 112–120.
32. Royal College of Nursing, Adolescent transition care: Guidance for nursing staff. Retrieved from Royal College of Nursing: https://www.rcn.org.uk/professional-development/publications/pub-004510, 2013.
33. Scal, P., Ireland, M., Addressing transition to adult health care for adolescents with special health care needs. Pediatrics 115 (2005), 1607–1612, 10.1542/peds.2004- 0458.
34. Schultz, R.J., Parental experiences transitioning their adolescent with epilepsy and cognitive impairments to adult health care. Journal of Pediatric Health Care 27:5 (2013), 359–366, 10.1016/j.pedhc.2012.03.004.
35. Speller-Brown, B., Patterson, K.K., VanGraafeiland, B., Feetham, S., Sill, A., Darbari, D., Meier, E.R., Measuring Transition Readiness: A Correlational Study of Perceptions of Parent and Adolescents and Young Adults with Sickle Cell Disease. Journal of Pediatric Nursing 30 (2015), 788–796, 10.1016/j.pedn.2015.06.008.
36. Uzark, K., Smith, C., Donohue, J., Yu, S., Afton, K., Norris, M., Cotts, T., Assessment of Transition Readiness in Adolescents and Young Adults with Heart Disease. Journal of Pediatrics 67 (2015), 1233–1238, 10.1016/j.jpeds.2015.07.043.
37. Wood, D.L., Sawicki, G.S., Miller, M.D., Smotherman, C., Lukens-Bull, K., Livingood, W.C., Kraemer, D.F., The Transition Readiness Assessment Questionnaire (TRAQ): Its Factor Structure, Reliability, and Validity. Academic Pediatrics 14 (2014), 415–422, 10.1016/j.acap.2014.03.008.
38. Young, N.L., Barden, W.S., Mills, W.A., Burke, T.A., Law, M., Boydell, K., Transition to adult-oriented health care: Perspectives of youth and adults with complex physical disabilities. Physical and Occupational Therapy in Pediatrics 29:4 (2009), 345–361, 10.3109/01942630903245994.
39. de Beaufort, C., Jarosz-Chobot, P., Frank, M., deBart, J., Deja, G., Transition from pediatric to adult diabetes care: smooth or slippery?. Pediatric Diabetes 11 (2010), 24–27, 10.1111/j.1399-5448.2009.00524.x.
40. Betz, C.L., Ferris, M.E., Woodward, J.F., Okumura, M.J., Jan, S., Wood, D.L., authoring group for the Health Care Transition Research Consortium, The Health Care Transition Research Consortium Health Care Transition Model: A Framework for Research and Practice. Journal of Pediatric Rehabilitation Medicine 7 (2014), 3–15, 10.3233/PRM-140277.
41. Betz, C.L., Nehring, W., Lobo, M., Bui, K., Voices Not Heard: A Systematic Review of Adolescents’ and Emerging Adults’ Perspectives of Health Care Transition. Nursing Outlook 61 (2013), 311–336.
42. Betz, C.L., O'Kane, L., Lobo, M., & Nehring, A Systematic Review: Health Care Transition Service Models. Nursing Outlook Doi: http://dx.doi.org/10.1016/j.outlook.2015.12.011.
43. Betz, C.L., Redcay, G., Dimensions of the Transition Service Coordinator Role. Journal of Specialized Pediatric Nursing 10:2 (2005), 49–59.
44. Betz, C.L., Smith, K.A., & Van Speybroeck, A. Hernandez, F.V., & Jacobs, R.A. Movin' on Up: An Innovative Nurse-Led Interdisciplinary Health Care Transition Program. Journal of Pediatric Health Care, doi: 10.16/j.pedhc.2015.08.005.
45. Ohio Department of Health, Transition Issues: Medical Transition. Retrieved July 19, 2016, from http://www.odh.ohio.gov/odhPrograms/cmh/cwmh/infofam/cmhfmtrn.aspx, 2014, September 15.
46. Reiss, J.G., Gibson, R.W., Walker, L.R., Health care transition: Youth, family, and provider perspectives. Pediatrics 115:1 (2005), 112–120, 10.1542/peds.2004-1321.