메뉴 건너뛰기




Volumn 6, Issue 2, 2016, Pages

Implementation of electronic consent at a Biobank: An opportunity for precision medicine research

Author keywords

Biobank; Electronic consent; Informed consent; Precision medicine

Indexed keywords

E-MAIL; ELECTRONIC HEALTH RECORD; GENERAL HOSPITAL; HUMAN; INFORMED CONSENT; MAJOR CLINICAL STUDY; MASSACHUSETTS; PERSONALIZED MEDICINE;

EID: 85019312569     PISSN: None     EISSN: 20754426     Source Type: Journal    
DOI: 10.3390/jpm6020017     Document Type: Article
Times cited : (52)

References (15)
  • 1
    • 77955854999 scopus 로고    scopus 로고
    • A review of international biobanks and networks: Success factors and key benchmarks
    • [CrossRef][PubMed]
    • Vaught, J.; Kelly, A.; Hewitt, R. A review of international biobanks and networks: Success factors and key benchmarks. Biopreserv. Biobank. 2010, 7, 143-150. [CrossRef] [PubMed]
    • (2010) Biopreserv. Biobank , vol.7 , pp. 143-150
    • Vaught, J.1    Kelly, A.2    Hewitt, R.3
  • 2
    • 80053418891 scopus 로고    scopus 로고
    • Biobanking in a fast moving world: An international perspective
    • [CrossRef][PubMed]
    • Hewitt, R.; Hainaut, P. Biobanking in a fast moving world: An international perspective. J. Nat. Cancer Inst. Monoraphs 2011, 42, 50-51. [CrossRef] [PubMed]
    • (2011) J. Nat. Cancer Inst. Monoraphs , vol.42 , pp. 50-51
    • Hewitt, R.1    Hainaut, P.2
  • 3
    • 84890107642 scopus 로고    scopus 로고
    • Systematic comparison of phenome-wide association study of electronic medical record data and genome-wide association study data
    • [CrossRef][PubMed]
    • Denny, J.C.; Bastarache, L.; Ritchie, M.D.; Carroll, R.J.; Zink, R.; Mosley, J.D.; Field, J.R.; Pulley, J.M.; Ramirez, A.H.; Bowton, E. et al. Systematic comparison of phenome-wide association study of electronic medical record data and genome-wide association study data. Nat. Biotechnol. 2013, 31, 1102-1111. [CrossRef] [PubMed]
    • (2013) Nat. Biotechnol , vol.31 , pp. 1102-1111
    • Denny, J.C.1    Bastarache, L.2    Ritchie, M.D.3    Carroll, R.J.4    Zink, R.5    Mosley, J.D.6    Field, J.R.7    Pulley, J.M.8    Ramirez, A.H.9    Bowton, E.10
  • 4
    • 85022226683 scopus 로고    scopus 로고
    • The Precision Medicine Initiative Cohort Program—Building a Research Foundation for 21st Century Medicine; Precision Medicine Initiative (PMI) Working Group Report to the Advisory Committee to the Director; National Institutes of Health: New York City, NY, USA
    • The Precision Medicine Initiative Cohort Program—Building a Research Foundation for 21st Century Medicine; Precision Medicine Initiative (PMI) Working Group Report to the Advisory Committee to the Director; National Institutes of Health: New York City, NY, USA, 2015.
    • (2015)
  • 6
    • 84866057641 scopus 로고    scopus 로고
    • Preferences for opt-in and opt-out enrollment and consent models in biobank research: A national survey of veterans administration patients
    • [CrossRef][PubMed]
    • Kaufman, D.; Bollinger, J.; Dvoskin, R.; Scott, J. Preferences for opt-in and opt-out enrollment and consent models in biobank research: A national survey of veterans administration patients. Genet. Med. 2012, 14, 787-794. [CrossRef] [PubMed]
    • (2012) Genet. Med. , vol.14 , pp. 787-794
    • Kaufman, D.1    Bollinger, J.2    Dvoskin, R.3    Scott, J.4
  • 8
    • 84954218290 scopus 로고    scopus 로고
    • Toward high-throughput phenotyping: Unbiased automated feature extraction and selection from knowledge sources
    • [CrossRef][PubMed]
    • Yu, S.; Liao, K.P.; Shaw, S.; Gainer, V.S.; Churchill, S.E.; Szolovits, P.; Murphy, S.N.; Kohane, I.S.; Cai, T. Toward high-throughput phenotyping: Unbiased automated feature extraction and selection from knowledge sources. AMIA 2015, 22, 993-1000. [CrossRef] [PubMed]
    • (2015) AMIA , vol.22 , pp. 993-1000
    • Yu, S.1    Liao, K.P.2    Shaw, S.3    Gainer, V.S.4    Churchill, S.E.5    Szolovits, P.6    Murphy, S.N.7    Kohane, I.S.8    Cai, T.9
  • 10
    • 85022191461 scopus 로고    scopus 로고
    • (accessed on 28 February 2016)
    • National Institutes of Health Genomic Data Sharing Policy. Available online: http://gds.nih.gov/pdf/nih_gds_policy.pdf. (accessed on 28 February 2016).
  • 11
    • 84954338611 scopus 로고    scopus 로고
    • Interactive mulitmedia consent for biobanking: A randomized trial
    • [CrossRef][PubMed]
    • Simon, C.M.; Klein, D.W.; Schartz, H.A. Interactive mulitmedia consent for biobanking: A randomized trial. Genet. Med. 2015, 18, 57-64. [CrossRef] [PubMed]
    • (2015) Genet. Med , vol.18 , pp. 57-64
    • Simon, C.M.1    Klein, D.W.2    Schartz, H.A.3
  • 12
    • 84921382128 scopus 로고    scopus 로고
    • Dynamic consent: A patient interface for twenty-first century research networks
    • [CrossRef][PubMed]
    • Kaye, J.; Whitley, E.A.; Lund, D.; Morrison, M.; Teare, H.; Melham, K. Dynamic consent: A patient interface for twenty-first century research networks. Eur. J. Hum. Genet. 2014, 23, 141-146. [CrossRef] [PubMed]
    • (2014) Eur. J. Hum. Genet , vol.23 , pp. 141-146
    • Kaye, J.1    Whitley, E.A.2    Lund, D.3    Morrison, M.4    Teare, H.5    Melham, K.6
  • 13
    • 84981311502 scopus 로고    scopus 로고
    • Potential bias in the bank: What distinguishes refusers, non-responders and participants in a clinic-based biobank
    • [CrossRef][PubMed]
    • Ridgeway, J.L.; Han, L.C.; Olson, J.E.; Lackore, K.A.; Koenig, B.A.; Beebe, T.J.; Ziegenfuss, J.Y. Potential bias in the bank: What distinguishes refusers, non-responders and participants in a clinic-based biobank. Public Health Genom. 2013, 16, 1-16. [CrossRef] [PubMed]
    • (2013) Public Health Genom , vol.16 , pp. 1-16
    • Ridgeway, J.L.1    Han, L.C.2    Olson, J.E.3    Lackore, K.A.4    Koenig, B.A.5    Beebe, T.J.6    Ziegenfuss, J.Y.7
  • 15
    • 84940852196 scopus 로고    scopus 로고
    • Genomically informed surveillance for carbapenem-resistant enterobacteriaceae in a health care system
    • [CrossRef][PubMed]
    • Pecora, N.D.; Li, N.; Allard, M.; Li, C.; Albano, E.; Delaney, M.; Dubois, A.; Onderdonk, A.B.; Bry, L. Genomically informed surveillance for carbapenem-resistant enterobacteriaceae in a health care system. mBio 2015, 6, e1030-e1035. [CrossRef] [PubMed]
    • (2015) Mbio , vol.6 , pp. e1030-e1035
    • Pecora, N.D.1    Li, N.2    Allard, M.3    Li, C.4    Albano, E.5    Delaney, M.6    Dubois, A.7    Onderdonk, A.B.8    Bry, L.9


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.