Measuring Sexual and Gender Minority Populations in Health Surveillance

LGBT Health

Volumn 4, Issue 2, 2017, Pages 82-105

  Patterson, Joanne G ^a   Jabson, Jennifer M ^a   Bowen, Deborah J ^b  

^a UNIVERSITY OF TENNESSEE   (United States)

^b UNIVERSITY OF WASHINGTON   (United States)

Author keywords

Gender identity; population health; public health surveillance; quantitative data sources; sexual orientation; transgender

Indexed keywords

BEHAVIOR; FEMALE; GENDER IDENTITY; HEALTH HAZARD; HUMAN; MALE; MINORITY HEALTH; PUBLIC HEALTH; SAMPLING; SEXUAL ORIENTATION; SYSTEMATIC REVIEW; TRANSGENDER; HEALTH SURVEY; MINORITY GROUP; PROCEDURES; SEXUAL AND GENDER MINORITY;

HUMANS; MINORITY GROUPS; PUBLIC HEALTH SURVEILLANCE; SEXUAL AND GENDER MINORITIES;

EID: 85016433010     PISSN: 23258292     EISSN: 23258306     Source Type: Journal    
DOI: 10.1089/lgbt.2016.0026     Document Type: Review

References (71)

1. Institute of Medicine Committee on Lesbian Gay, Bisexual, and Transgender Health Issues and Research Gaps and Opportunities: The Health of Lesbian, Gay, Bisexual, and Transgender People: Building a Foundation for Better Understanding. Washington, DC: National Academies Press, 2011.
2. Bowen DJ, Boehmer U: The lack of cancer surveillance data on sexual minorities and strategies for change. Cancer Causes Control 2007;18:343-349.
3. Centers for Disease Control and Prevention. Behavioral Risk Factor Surveillance System: BRFSS Questionnaires. Available at www.cdc.gov/brfss/questionnaires/index.htm Accessed December 1, 2015.
4. Center for Behavioral Health Statistics and Quality, Substance Abuse and Mental Health Services Administration. National Survey on Drug Use and Health. 2014. Available at www.samhsa.gov/data/population-data-nsduh/reports Accessed December 1, 2015.
5. Sell R: LGBTData.com. 2015. Available at www.lgbtdata.com Accessed October 1, 2015.
6. Sexual Minority Assessment Research Team (SMART): Best Practices for Asking Questions about Sexual Orientation on Surveys. Los Angeles, CA: The Williams Institute, 2009. Available at http://williamsinstitute.law.ucla.edu/wp-content/uploads/SMART-FINAL-Nov-2009.pdf Accessed December 1, 2015.
7. Gender Identity in U.S. Surveillance (GenIUSS) group: Best Practices for Asking Questions to Identify Transgender and Other Gender Minority Respondents on Population-Based Surveys. JL Herman [Ed]. Los Angeles, CA: The Williams Institute, 2014. Available at http://williamsinstitute.law.ucla.edu/wp-content/uploads/geniuss-report-sep-2014.pdf Accessed December 15, 2016.
8. Moher D, Liberati A, Tetzlaff J, Altman DG: Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement. Int J Surg 2010;8:336-341.
9. Institute for Social Research, University of Michigan: Data Resources from the Center for Population Research in Sexual Minority Health. 2016. Available at www.icpsr.umich.edu/icpsrweb/content/ICPSR/fenway.html#aboutprism Accessed October 1, 2015.
10. U.S. General Services Administration Office of Citizen Services and Innovative Technologies: Data.gov Data Catalog. 2015. Available at www.data.gov Accessed August 1, 2016.
11. National Centre for Social Research, University of Leicester: Adult Psychiatric Morbidity Survey, 2007. UK Data Service. 2011. Available at http://dx.doi.org/10.5255/UKDA-SN-6379-1 Accessed September 1, 2016.
12. U.S. Department of Commerce: American Community Survey. 2015. Available at www.census.gov/programs-surveys/acs Accessed December 1, 2015.
13. The University of Newcastle and the University of Queensland: Australian Longitudinal Study on Women's Health. 2015. Available at www.alswh.org.au Accessed December 1, 2015.
14. Centers for Disease Control and Prevention. Behavioral Risk Factor Surveillance System, 2014 BRFSS Modules Used by Category. 2014. Available at www.cdc.gov/brfss/questionnaires/modules/category2014.htm Accessed December 1, 2015.
15. UCLA Center for Health Policy Research. California Health Interview Survey. CHIS 2013-2014 Adult Questionnaire Version 5.4 January 8, 2015. Available at http://health policy.ucla.edu/chis/design/Documents/chis2013adultquestion naire.pdf Accessed December 1, 2015.
16. Weinbaum Z, Thorfinnson T (eds): Women's Health: Findings from the California Women's Health Survey, 1997-2003. California Department of Health Services, Office of Women's Health, Sacramento, CA, 2006. Available at www.cdph.ca.gov/pubsforms/Pubs/OWH-CWHS-97-03-Rpt.pdf Accessed January 10, 2015.
17. Canadian Institute for Health Information, Statistics Canada, and Health Canada. Canadian Community Health Survey. 2015. Available at www23.statcan.gc.ca/imdb/p3Instr.pl? Function=getInstrumentList&Item-Id=238890&UL=1V& Accessed December 1, 2015.
18. Colorado School of Public Health. Colorado Tobacco Attitudes and Behaviors Survey. 2008. Available at www.ucdenver.edu/academics/colleges/PublicHealth/community/CEPEG/TABS/Surveys/Pages/default.aspx Accessed September 10, 2016.
19. U.S. Department of the Census, U.S. Census Bureau. Current Population Survey Interviewing Manual. 2015. Available at www2.census.gov/programs-surveys/cps/methodology/intman/CPS-Manual-April2015.pdf Accessed December 1, 2015.
20. NORC at the University of Chicago. General Social Survey, 1972-2014. 2015. Available at www.norc.org/Research/Projects/Pages/general-social-survey.aspx Accessed December 1, 2015.
21. Missmer S, Austin B, Berkley C, et al.: Growing Up Today Study. 2013. Available at www.gutsweb.org Accessed December 1, 2015.
22. Washington State Department of Health. Healthy Youth Survey (HYS). 2010. Available at www.doh.wa.gov/Dataand StatisticalReports/DataSystems/HealthyYouthSurvey Accessed September 15, 2016.
23. Kaiser Permanente: 2014 Member Health Survey. 2014. Available at www.dor.kaiser.org/external/DORExternal/mhs/2014-15surveyresults.aspx Accessed December 1, 2015.
24. Los Angeles County Department of Public Health. Los Angeles County Health Survey. 2011. Available at www.publichealth.lacounty.gov/ha/hasurveyintro.htm Accessed December 1, 2015.
25. MacArthur Foundation Research Network on Successful Midlife Development. National Survey of Midlife Development in the United States (MIDUS 1) 1995-1996. 2000. Available at http://midus.wisc.edu/midus1/index.php Accessed December, 1 2015.
26. Ryff C, Almeida DM, Ayanian JS, et al.: National Survey of Midlife Development in the United States (MIDUS II), 2004-2006. 2012. Available at http://doi.org/10.3886/ICPSR04652.v6 Accessed December, 1 2015.
27. Ryff C, Almeida D, Ayanian J, et al.: National Survey of Midlife Development in the United States (MIDUS 3), 2013-2014. 2015. Available at http://doi.org/10.3886/ICPSR36346.v1 Accessed December, 1 2015.
28. Minnesota Department of Health. Minnesota Student Survey. 2010. Available at www.health.state.mn.us/divs/chs/mss Accessed September 10, 2016.
29. Centers for Disease Control and Prevention. National Adult Tobacco Survey. 2009. Available at www.cdc.gov/tobacco/data-statistics/surveys/nats Accessed August 1, 2016.
30. Alcohol Research Group, Public Health Institute. National Alcohol Surveys. 2010. Available at http://arg.org/center/national-alcohol-surveys Accessed December 1, 2015.
31. American College Health Association. National College Health Assessment. ACHA-NCHA I. Sample web survey (Spring version, 2000 to 2008). 2003. Available at www.acha-ncha.org/docs/SampleSurvey-ACHA-NCHA-Sp00-Sp08.pdf Accessed December 1, 2015.
32. American College Health Association. National College Health Assessment. ACHA-NCHA II. 2011. Available at www.acha-ncha.org/docs/ACHA-NCHAII-sample.pdf Accessed Decem-ber 1, 2015.
33. American College Health Association. National College Health Assessment. ACHA-NCHA IIc. Sample Web Survey (Fall 2015 to present). 2015. Available at www.acha-ncha.org/docs/ACHA-NCHA-IIc-Web-Survey-2011-SAMPLE.pdf Accessed December 1, 2015.
34. Kessler RC: National Comorbidity Survey: Baseline (NCS-1), 1990-1992. 2008. Available at http://doi.org/10.3886/ICPSR06693.v6 Accessed December 1, 2015.
35. Kessler RC: National Comorbidity Survey: Reinterview (NCS-2), 2001-2002. 2015. Available at http://doi.org/10.3886/ICPSR35067.v2 Accessed December 1, 2015.
36. Alegria M, Jackson JS, Kessler RC, Takeuchi D: Collaborative Psychiatric Epidemiology Surveys (CPES), 2001-2003: United States. 2015. Available at http://doi.org/10.3886/ICPSR20240.v8 Accessed December 1, 2015.
37. Australian Government, Australian Institute of Health and Welfare. National Drug Strategy Household Survey 2013. 2014. Available at http://www.aihw.gov.au/WorkArea/Download Asset.aspx?id=60129548125 Accessed October 10, 2016.
38. National Institute on Alcohol Abuse and Alcoholism, National Institutes of Health. National Epidemiologic Survey on Alcohol and Related Conditions. 2015. Available at www.niaaa.nih.gov/research/nesarc-iii/questionnaire Accessed December 1, 2015.
39. National Center for Health Statistics, Centers for Disease Control and Prevention. National Health and Nutrition Examination Survey: Questionnaires, Datasets, and Related Documentation. 2015. Available at http://cdc.gov//nchs/nhanes/nhanes-questionnaires.htm. Accessed December 1, 2015.
40. Laumann EO, Gagnon JH, Michael RT, Michaels S: National Health and Social Life Survey, 1992: United States. 2008. Available at http://doi.org/10.3886/ICPSR06647.v2 Accessed December 1, 2015.
41. National Center for Health Statistics, Centers for Disease Control and Prevention. National Health Interview Survey: Questionnaires, Datasets, and Related Documentation. 2015. Available at www.cdc.gov/nchs/nhis/nhis-questionnaires.htm Accessed December 1, 2015.
42. U.S. Department of Health and Human Services, Centers for Disease Control and Prevention. National Center for Injury Prevention and Control: National Intimate Partner and Sexual Violence Survey (NISVS): General population survey raw data, 2010. 2016. Available at http://doi.org/10.3886/ICPSR34305.v1 Accessed September 10, 2016.
43. Alegria MT, Takeuchi D: National Latino and Asian American Study. 2002-2003. Available at www.icpsr.umich.edu/icpsrweb/ICPSR/studies/00191 Accessed August 10, 2016.
44. Harris KM, Halpern CT, Whitsel E, et al.: The National Longitudinal Study of Adolescent to Adult Health: Code-books. 2009. Available at www.cpc.unc.edu/projects/add health/codebooks Accessed December 1, 2015.
45. UT Counseling and Mental Health Center, The University of Texas at Austin. National Research Consortium of Counseling Centers in Higher Education. 2006. Available at https://utexas.qualtrics.com/jfe/form/SV-2cAjpUSyI8oFEj3 Accessed September 10, 2016.
46. Waite LJ, Laumann EO, Levinson W, et al.: National Social Life, Health, and Aging Project (NSHAP): Wave 1. 2014. Available at http://doi.org/10.3886/ICPSR20541.v6 Accessed December 1, 2015.
47. National Center for Health Statistics, Centers for Disease Control and Prevention. National Survey of Family Growth: Questionnaires, Datasets, and Related Documentation. 2015. Available at www.cdc.gov/nchs/nsfg/nsfg-questionnaires.htm. Accessed December 1, 2015.
48. Natsal. The National Survey of Sexual Attitudes and Lifestyles (Natsal-1). 1990-1991. Available at www.natsal.ac.uk/natsals-12.aspx Accessed September 15, 2016.
49. Natsal. The National Survey of Sexual Attitudes and Lifestyles (Natsal-2). 1999-2001. Available at www.natsal.ac.uk/natsals-12.aspx Accessed September 15, 2016.
50. Natsal. The National Survey of Sexual Attitudes and Lifestyles (Natsal-3). 2010-2012. Available at www.natsal.ac.uk/natsal-3.aspx Accessed September 15, 2016.
51. Tjaden PT, Thoennes N: Violence and threats of violence against women and men in the United States 1994-1996. 1998. Available at http://doi.org/10.3886/ICPSR02566.v1 Accessed September 15, 2016.
52. NYC Department of Health and Mental Hygiene, Bureau of Epidemiology Services. 2013 New York City Community Health Survey (NYC CHS). 2013. Available at www1.nyc.gov/assets/doh/downloads/pdf/episrv/chs2013survey.pdf Accessed September 15, 2016.
53. The City University of New York. New York City Health and Nutrition Examination Survey (NYC HANES). 2004. Available at http://nychanes.org/data Accessed August 15, 2016.
54. Speizer FE, Hankinson SE, Willett WC: Nurses' Health Study: Questionnaires. 2015. Available at www.nurses healthstudy.org/participants/questionnaires Accessed December 1, 2015.
55. Centre for Research on Ageing Health, & Wellbeing, Australian National University College of Medicine, Biology and Environment. Personality & Total Health (PATH) Through Life. 2014. Available at http://crahw.anu.edu.au/research/projects/personality-total-health-path-through-life/questionnaire Accessed December 1, 2015.
56. Earls FJ, Brooks-Gunn J, Raudenbush SW, Sampson RJ: Proj-ect on Human Development in Chicago Neighborhoods (PHDCN): Relationships, Wave 3, 2000-2002. 2000-2002. Available at www.icpsr.umich.edu/files/PHDCN/wave-3-instruments/13737-rela.pdf Accessed August 15, 2016.
57. U.S. Census Bureau, U.S. Department of Commerce. Census. Available at www.census.gov/data.html Accessed December 1, 2015.
58. National Center for Biotechnology Information. Women's Health Initiative. 2010. Available at www.nhlbi.nih.gov/whi Accessed December 1, 2015.
59. The University of Auckland. Youth2000. 2012. Available at www.fmhs.auckland.ac.nz/en/faculty/adolescent-health-research-group/collaborations-and-access-to-datasets.html# 9532c01f13a618c5e06eb727005e51ee Accessed September 15, 2016.
60. Centers for Disease Control and Prevention. Youth Risk Behavior Surveillance System: Questionnaires. 2015. Available at www.cdc.gov/yrbs Accessed December 1, 2015.
61. Gwynn RC, Garg RK, Kerker BD, et al.: Contributions of a local health examination survey to the surveillance of chronic and infectious diseases in New York City. Am J Public Health 2009;99:152-159.
62. Tate CC, Ledbetter JN, Youssef CP: A two-question method for assessing gender categories in the social and medical sciences. J Sex Res 2013;50:767-776.
63. National Center for Health Statistics, Centers for Disease Control and Prevention. NCHS Data Linkage Activities. 2016. Available at www.cdc.gov/nchs/data-linkage Accessed October 1, 2016.
64. Baumeister RF: Gender differences in erotic plasticity: The female sex drive as socially flexible and responsive. Psychol Bull 2000;126:347-374; discussion 385-349.
65. Katz-Wise SL, Reisner SL, Hughto JW, Keo-Meier CL: Differences in sexual orientation diversity and sexual fluidity in attractions among gender minority adults in Massa-chusetts. J Sex Res 2016;53:74-84.
66. Rotermann M, Sanmartin C, Trudeau R, St-Jean H: Linking 2006 Census and hospital data in Canada. Health Rep 2015;26:10-20.
67. Kaiser Permanente Division of Research. Division of Research Maintained Data Sources. 2016. Available at www.dor.kaiser.org/external/DORExternal/research/ctsi/data- sources.aspx?id=2668 Accessed October 1, 2016.
68. Fredriksen-Goldsen KI, Kim HJ, Shiu C, et al.: Successful aging among LGBT older adults: Physical and mental health-related quality of life by age group. Gerontologist 2015;55:154-168.
69. Choi SK, Meyer IH: LGBT Aging: A Review of Research Findings, Needs, and Policy Implications. Los Angeles, CA: The Williams Institute, 2016.
70. Addis S, Davies M, Greene G, et al.: The health, social care and housing needs of lesbian, gay, bisexual and transgender older people: A review of the literature. Health Soc Care Community 2009;17:647-658.
71. Wender R, Sharpe KB, Westmaas JL, Patel AV: The American Cancer Society's approach to addressing the cancer burden in the LGBT community. LGBT Health 2015; 3:15-18.