Physical function for children and youth with cerebral palsy: Item bank development for computer adaptive testing

Journal of Pediatric Rehabilitation Medicine

Volumn 1, Issue 3, 2008, Pages 245-253

  Tucker, Carole A ^a   Haley, Stephen M ^b   Dumas, Helene M ^c   Fragala Pinkham, Maria A ^c   Watson, Kyle ^d   Gorton, George E ^e   Montpetit, Kathleen ^f   Bilodeau, Nathalie ^f  

^a TEMPLE UNIVERSITY   (United States)

^b BOSTON UNIVERSITY   (United States)

^c FRANCISCAN HOSPITAL FOR CHILDREN   (United States)

^d SHRINERS HOSPITALS FOR CHILDREN   (United States)

^e SHRINERS HOSPITALS FOR CHILDREN   (United States)

^f SHRINERS HOSPITAL FOR CHILDREN   (Canada)

Author keywords

Cerebral palsy; Computerized adaptive testing; Item bank; Outcome measure; Pediatrics

Indexed keywords

EID: 85013574927     PISSN: 18745393     EISSN: 18758894     Source Type: Journal    
DOI: None     Document Type: Article

References (51)

1. V. Bhushan, N. Paneth and J. Kiely, Impact of improved survival of very low birth weight infants on recent secular trends in the prevalence of cerebral palsy, Pediatr 91 (1993), 1094-1100.
2. J. Calmes, D. Damiano, D. Oeffinger, D. Barnes and E. Sullivan, Relationship and redundancy among measures of pediatric health-related function in ambulatory children with cerebral palsy, Dev Med Child Neurol 47 (2005), 24-25.
3. D. Cella, R. Gershon, J.-S. Lai and S. Choi, The future of outcomes measurement: item banking, tailored short forms, and computerized adaptive assessment, Qual Life Res 16 (2007), 133-141.
4. W. Coster, T. Deeney, J. Haltiwanger and S. Haley, School Function Assessment, San Antonio, TX: Psychological Corporation/Therapy Skill Builders, 1998.
5. L.H. Daltroy, W.L. Cats-Baril, J.N. Katz, A.H. Fossel and M.H. Liang, The North American Spine Society Outcome Assessment Instrument: reliability and validity tests, Spine 21 (1996), 741-749.
6. J.R. Davids, L.C. Peace, L.V. Wagner, M.A. Gidewall, D.W. Blackhurst and W.M. Roberson, Validation of the Shriners Hospital for Children Upper Extremity Evaluation (SHUEE) for Children with Hemiplegic Cerebral Palsy, The Journal of Bone and Joint Surgery (American) 88 (2006), 326-333.
7. H.M. Dumas, K. Watson, M.A. Fragala-Pinkham, S.M. Haley, N. Bilodeau, K. Montpetit et al., Cognitive interviewing to elicit parent feedback of test items for assessing physical function in children with cerebral palsy, Pediatric Physical Therapy 2008, accepted.
8. M. Eisen, J.E.Ware, C.A. Donald and R.H. Brook, Measuring components of children’s health status, Med Care 17 (1979), 902-921.
9. A. Eliasson, L. Krumlinde-Sundholm, B. Rösblad, E. Beckung, M. Arner, A. Öhrvall and P. Rosenbaum, The Manual Ability Classification System (MACS) for children with cerebral palsy: scale development and evidence of validity and reliability, Dev Med Child Neurol 48 (2006), 549-554.
10. P. Flett, Rehabilitation of spasticity and related problems in childhood cerebral palsy, Journal Paediat Child Health 39 (2003), 6-14.
11. M. Folio and R. Fewell, Peabody Developmental Motor Scales, 2nd ed., Western Psychological Services, Los Angeles, CA, 2000.
12. M.A. Fragala-Pinkham, S.M. Haley and S. Goodgold, Evaluation of a community-based group fitness program for children with disabilities, Pediatr Phys Ther 18 (2006), 159-167.
13. J. Fries, J.B. Bruce and M. Rose, More relevant, precise, and efficient items for assessment of physical function and disability: moving beyond the classic instruments, Ann Rheum Dis 65 (2006), 16-21.
14. A. Glaus, Fatigue in Patients With Cancer: Analysis and Assessment, Berlin: Springer-Verlag, 1998.
15. S.M. Haley, W.J. Coster and K. Binda-Sundberg, Measuring physical disablement: The contextual challenge, Physical Therapy 74(5) (1994), 443-451.
16. S.M. Haley, C.A. McHorney and J.E. Ware Jr., Evaluation of the MOS SF-36 physical functioning scale (PF-10): I. Unidimensionality and reproducibility of the Rasch item scale, Journal of Clinical Epidemiology 47(6) (1994), 671-684.
17. S.M. Haley, W.J. Coster, L.H. Ludlow, J.T. Haltiwanger and P.A. Andrellos, Pediatric Evaluation of Disability Inventory: Development, Standardization and Administration Manual, Boston, MA: Trustees of Boston University, 1992.
18. S.M. Haley, A.E. Raczek, W.J. Coster, H.M. Dumas and M.A. Fragala-Pinkham, (2005) Assessing mobility in children using a computer adaptive testing version of the Pediatric Evaluation of Disability Inventory (PEDI), Arch Phys Med Rehabil 86 (2005), 932-939.
19. S. Haley, P. Ni, M. Fragala-Pinkham, A. Skrinar and D. Corzo, A computer adaptive testing approach for assessing physical function in children and adolescents, Dev Med Child Neurol 47 (2005), 113-120.
20. S.M. Haley, M. Fragala-Pinkham and P. Ni, Sensitivity of a computer adaptive assessment for measuring functional mobility changes in children enrolled in a community fitness programme, Clin Rehabil 20 (2006), 616-622.
21. S.M. Haley, P. Ni, R.K. Hambleton, M.D. Slavin and A.M. Jette, Computer adaptive testing improves accuracy and precision of scores over random item selection in a physical functioning item bank, J Clin Epidemiol 59 (2006), 1174-1182.
22. S. Haley, H. Siebens, W. Coster, W. Tao, R. Black-Schaffer, B. Gandek, S. Sinclair and P. Ni, Computerized adaptive testing for follow-up after discharge from inpatient rehabilitation: I. Activity outcomes, Arch Phys Med Rehabil 87 (2006), 1033-1042.
23. S. Haley, P. Ni, L. Ludlow and M. Fragala-Pinkham, Measurement precision and efficiency of multidimensional computer adaptive testing of physical functioning using the Pediatric Evaluation of Disability Inventory, Arch Phys Med Rehabil 87 (2006), 1223-1229.
24. R.K. Hambleton, Applications of Item Response Theory to Improve Health Outcomes Assessment: Developing Item Banks, Linking Instruments, and Computer-Adaptive Testing, in: Outcomes Assessment in Cancer, J. Lipscomb, C.C. Gotay and C. Snyder, eds, Cambridge, UK: Cambridge University Press, 2005, PP. 445-464.
25. R.K. Hambleton and N. Han, Assessing the fit of IRT models to educational and psychological test data: a five-step plan and several graphical displays, in: Advancing Health Outcome Research Methods and Clinical Applications, W. Lenderking and D. Revicki, eds, Boston, MA: International Society for Quality of Life Research, 2004, pp. 57-78.
26. A. Jette, S. Haley, W. Tao, P. Ni, R. Moed, D. Meyers and M. Zurek, Prospective evaluation of the AM-PAC-CAT in outpatient rehabilitation settings, Phys Ther 87 (2007), 385-398.
27. M. Ketelaar, A. Vermeer and P.J. Helders, Functional motor abilities of children with cerebral palsy: a systematic literature review of assessment measures, Clin Rehabil 12 (1998), 369-380.
28. M.L. McCarthy, C.E. Silberstein, E.A. Atkins, S.E. Harryman, P.D. Sponseller and N.A. Hadley-Miller, Comparing reliability and validity of pediatric instruments for measuring health and well-being of children with spastic cerebral palsy, Dev Med Child Neurol 44 (2002), 468-476.
29. M.E. Msall, R.C. Avery, M.R. Tremont, J.C. Lima, M.L. Rogers and D.P. Hogan, Functional disability and school activity limitations in 300 school-age children: relationship to medical impairments, Pediatr 111 (2003), 548-553.
30. M. Mulcahey, S. Haley, T.P.N. Duffy and R. Betz, Measuring physical functioning in children with spinal impairments with computerized adaptive testing, J Ped Orthop (in press).
31. National Association of Nursing Diagnosis: Definition and Classification. 1997-1998. (1996) Philadelphia, PA: McGraw-Hill.
32. D.J. Oeffinger, C.M. Tylkowski, M.K. Rayens, R.F. Davis, G.E. Gorton, J. D’Astous, D.E. Nicholson, D.L. Damiano, M.F. Abel, A.M. Bagley and J. Luan, Gross Motor Function Classification System and outcome tools for assessing ambulatory cerebral palsy: a multicenter study, Dev Med Child Neurol 46 (2004), 311-319.
33. R. Palisano, W. Copeland and B. Galuppi, Performance of physical activities by adolescents with cerebral palsy, Phys Ther 87 (2007), 77-87.
34. R. Palisano, P. Rosenbaum, S. Walter, D. Russell, E. Wood and B. Galuppi, Development and reliability of a system to classify gross motor function in children with cerebral palsy, Dev Med Child Neurol 39 (1997), 214-223.
35. PROMIS DOMAIN DEFINITIONS Reference Materials at http: //www.nih.promis.org.
36. J.H. Rimmer, Physical fitness levels of persons with cerebral palsy, Dev Med Child Neurol 43 (2001), 208-212.
37. D.J. Russell, L.M. Avery, P.L. Rosenbaum, P.S. Raina, S.D. Walter and R.J. Palisano, Improved scaling of the Gross Motor Function Measure for children with cerebral palsy: evdence of reliability and validity, Phys Ther 80 (2000), 873-885.
38. R. Schenker, W. Coster and S. Parush, Participation and activity performance of students with cerebral palsy within the school environment, Disabil Rehabil 27 (2005), 539-552.
39. A. Shelly, E.Davis, E.Waters, A. Mackinnon, D. Reddihough, R. Boyd, S. Reid and H.K. Graham, The relationship between quality of life and functioning for children with cerebral palsy, Dev Med Child Neurol 50 (2008), 199-203.
40. S. Sparrow, D. Balla and D. Cicchetti, Vineland Adaptive Behavior Scales II, Circle Pines, MN: American Guidance Service, 2005.
41. A. Stewart, J.E.Ware and R.H. Brook, The meaning of health: understanding functional limitations, Med Care 15 (1977), 939-952.
42. A.L. Stewart, S.H. Greenfield, R.D. Hays, K. Wells, W.H. Rogers, S.D. Berry, E.A. McGlynn and J.E. Ware Jr., Functional status and well-being of patients with chronic conditions: results form the medical outcomes study, JAMA 262 (1989), 907-913.
43. A. Stewart, R. Hays and J. Ware Jr., Health perceptions, energy/fatigue, and health distress measures, in: Measuring Functional Status and Well-Being: The Medical Outcomes Study Approach, A. Stewart and J.Ware Jr., eds, Durham, NC: Duke University Press, 1992, pp. 143-172.
44. E. Sullivan, B. Douglas, J.L. Linton, J. Calmes, D. Damiano, D. Oeffinger, M. Abel, A. Bagley, G.E. Gorton, D.E. Nicholson, S. Rogers and C. Tylkowski, Relationships among functional outcome measures used for assessing children with ambulatory CP, Dev Med Child Neurol 49 (2007), 338-349.
45. E. Sullivan, Shriners Hospital for Children, HoustonTechnical Outcomes Draft, unpublished, 2003.
46. R.C. Tervo, S. Azuma, J. Stout and T. Novacheck, Correlation between physical functioning and gait measures in children with cerebral palsy, Dev Med Child Neurol 44 (2002), 185-190.
47. J. Voorman, A. Dallmeijer, C. Schuengel, D. Knol, G. Lankhorst and J. Becher, Activities and participation of 9- to 13-year-old children with cerebral palsy, Clin Rehabil 20 (2006), 937-948.
48. G.Willis, Cognitive Interviewing: A Tool for Improving Questionnaire Design, Thousand Oaks CA.: Sage Publications, 2005.
49. I.B. Wilson and P.D. Cleary, Linking clinical variables with health-related quality of life. A conceptual model of patient outcomes, Journal of the American Medical Association 273(1) (1995), 59-65.
50. World Health Organization. International Classification of Functioning, Disability and Health: ICF. Geneva, Switzerland: World HealthOrganization; 2001.
51. N. Young, J. Williams, K. Yoshida and J. Wright, Measurement properties of the Activities Scale for Kids, J Clin Epidemiol 53 (2000), 125-137.