Stroke-related stigma among West Africans: Patterns and predictors

Journal of the Neurological Sciences

Volumn 375, Issue , 2017, Pages 270-274

  Sarfo, Fred Stephen ^a,b   Nichols, Michelle ^c   Qanungo, Suparna ^c   Teklehaimanot, Abeba ^c   Singh, Arti ^a   Mensah, Nathaniel ^b   Saulson, Raelle ^c   Gebregziabher, Mulugeta ^c   Ezinne, Uvere ^d   Owolabi, Mayowa ^d   Jenkins, Carolyn ^c   Ovbiagele, Bruce ^c  

^a KWAME NKRUMAH UNIVERSITY OF SCIENCE AND TECHNOLOGY   (Ghana)

^b KOMFO ANOKYE TEACHING HOSPITAL   (Ghana)

^c MEDICAL UNIVERSITY OF SOUTH CAROLINA   (United States)

^d UNIVERSITY OF IBADAN   (Nigeria)

Author keywords

Neglected; Quality of life; Rehabilitation; Stigma; Stroke; West Africa

Indexed keywords

8 ITEM STIGMA SCALE FOR CHRONIC ILLNESS; ADULT; ARTICLE; CENTRE FOR EPIDEMIOLOGICAL STUDIES DEPRESSION SCALE; CEREBROVASCULAR ACCIDENT; DEMOGRAPHY; DISEASE SEVERITY; FEMALE; GERIATRIC DEPRESSION SCALE; HUMAN; MAJOR CLINICAL STUDY; MALE; MIDDLE AGED; PREVALENCE; PRIORITY JOURNAL; RATING SCALE; SOCIAL PSYCHOLOGY; STIGMA; SURVIVOR; WEST AFRICAN; AFRICA; AGED; ANALYSIS OF VARIANCE; PSYCHOLOGICAL RATING SCALE; PSYCHOLOGY; QUALITY OF LIFE; RETROSPECTIVE STUDY; SOCIAL STIGMA; STROKE;

AFRICA, WESTERN; AGED; ANALYSIS OF VARIANCE; FEMALE; HUMANS; MALE; MIDDLE AGED; PSYCHIATRIC STATUS RATING SCALES; QUALITY OF LIFE; RETROSPECTIVE STUDIES; SOCIAL STIGMA; STROKE;

EID: 85012169809     PISSN: 0022510X     EISSN: 18785883     Source Type: Journal    
DOI: 10.1016/j.jns.2017.02.018     Document Type: Article

References (20)

1. [1] Jenkinson, C., Fitzpatrick, R., Swash, M., Peto, V., ALS-HPS Steering Group, The ALS Health Profile Study: quality of life of amyotrophic lateral sclerosis patients and carers in Europe. J. Neurol. 415 (2000), 835–840.
2. [2] Perez, L., Huang, J., Jansky, L., Nowindki, C., Victorson, D., Peterman, A., Cella, D., Using focus groups to inform the neuro-QOL measurement tool: exploring patient-centered health-related quality of life concepts across neurological conditions. J. Neurosci. Nurs. 39 (2007), 342–353.
3. [3] Dallmeijer, A.J., de Groot, V., Roorda, L.D., Schepers, V.P.M., Linderman, E., van den Berg, L.H., Beelen, A., Dekker, J., Fupro Study Group, Cross-diagnostic validity of the SF-36 physical functioning scale in patients with stroke, multiple sclerosis and amyotrphic lateral sclerosis: a study using Rasch analysis. J. Rehabil. Med. 39 (2007), 163–169.
4. [4] Pugh, M.J.V., Copeland, L.A., Zeber, J.E., Cramer, J.A., Cavazos, J.E., Kazis, L.E., The impact of epilepsy on health among younger and older adults. Epilepsia 46 (2005), 1820–1827.
5. [5] Heilman, K.M., Valenstein, E., (eds.) Clinical Neuropsychology, 2004, Oxford University Press, New York, NY.
6. [6] Rasquin, S.M.C., Lodder, J., Ponds, R.W.H.M., Winkens, I., Jolles, J., Verhey, F.R.J., Cognitive functioning after stroke: a one-year follow-up study. Dement. Geriatr. Cogn. Disord. 18 (2004), 138–144.
7. [7] Joachim, G., Acorn, S., Stigma of visible and invisible chronic conditions. J. Adv. Nurs. 32 (2000), 243–248.
8. [8] Goffman, E., Stigma: Notes on the Management of Spoiled Identity. 1963, Simon and Schuster Inc., New York.
9. [9] Hermann, B., Jacoby, A., The psychosocial impact of epilepsy in adults. Epilepsy Behav., 15, 2004 (S11-S-16).
10. [10] Hill, M., Overcoming the stigma of epilepsy. Neurol. Asia 15 (2010), S21–S24.
11. [11] Taylor, J., Baker, G., Jacoby, A., Levels of epilepsy stigma in an incident population and associated factors. Epilepsy Behav. 21 (2011), 255–260.
12. [12] Jacoby, A., Snape, D., Baker, G.A., Epilepsy and social identity: the stigma of a chronic neurological disorder. Lancet Neurol. 4 (2005), 171–178.
13. [13] Anderson, S., Whitfield, K., Social identity and stroke: ‘they don't make me feel like, there's something wrong with me’. Scand. J. Caring Sci. 27:4 (2013), 820–830 (Dec 23121474).
14. [14] Mukherjee, D., Levin, R.L., Heller, W., The cognitive, emotional, and social sequelae of stroke: psychological and ethical concerns in post-stroke adaptation. Top. Stroke Rehabil. 13:4 (2006), 26–35 (Review. Fall; PMID: 17082166).
15. [15] Sarfo, F.S., Akassi, J., Badu, E., et al. Profile of neurological disorders in an adult neurology clinic in Kumasi, Ghana. eNeurologicalSci 3 (2016), 69–74.
16. [16] Radloff, L.S., The Center for Epidemiologic Studies Depression Scale (CES-D): a self-reported depression scale for research in the general population. Appl. Psychol. Meas. 1 (1977), 385–401.
17. [17] Yesavage, J.A., Brink, T.L., Rose, T.L., Lum, O., Huang, V., Adey, M., et al. Development and validation of a geriatric depression screening scale: a preliminary report. J. Psychiatr. Res. 17 (1982–1983), 37–49.
18. [18] Ojo, Owolabi M., HRQoLISP-26: a concise, multiculturally valid, multidimensional, flexible, and reliable stroke-specific measure. ISRN Neurol., 2011, 2011, 295096.
19. [19] Molina, Y., Choi, S.W., Cella, D., Rao, D., The stigma scale for chronic illnesses 8-item version (SSCI-8): development, validation and use across neurological conditions. (previously included). Int. J. Behav. Med. 20:3 (2013), 450–460, 10.1007/s12529-012-9243-4 (Sep; PMID: 22639392).
20. [20] Hyman, M.D., The stigma of stroke. Its effects on performance during and after rehabilitation. Geriatrics 26:5 (1971), 132–141 (May; PMID: 5556471).