Challenges in doing participatory design with people with dementia

ACM International Conference Proceeding Series

Volumn 2, Issue , 2014, Pages 33-36

  Hendriks, Niels ^a   Huybrechts, Liesbeth ^a   Wilkinson, Andrea ^a   Slegers, Karin ^a  

^a UNIVERSITY OF LEUVEN   (Belgium)

Author keywords

Participatory design; People with dementia

Indexed keywords

COMPUTER APPLICATIONS; COMPUTER PROGRAMMING;

NOCV1; PARTICIPATORY DESIGN; PARTICIPATORY PROJECTS; PEOPLE WITH DEMENTIA; PERSON WITH DEMENTIAS;

NEURODEGENERATIVE DISEASES;

EID: 85011661835     PISSN: None     EISSN: None     Source Type: Conference Proceeding    
DOI: 10.1145/2662155.2662196     Document Type: Conference Paper

References (26)

1. American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders: DSM-IV-TR®. American Psychiatric Pub.
2. Binder, T. (1996). Learning and knowing with artifacts: An interview with Donald A. Schön. AI & SOCIETY, 10(1), 51-57. doi:10.1007/BF02716754
3. Bødker, S., & Iversen, O. S. (2002). Staging a professional participatory design practice: moving PD beyond the initial fascination of user involvement (pp. 11-18). Proc. of the second Nordic conference on Human-computer interaction, ACM.
4. Dresser, R. (2000). Dementia research: Ethics and policy for the twenty-first century. Ga. L. Rev., 35, 661.
5. Grönvall, E., & Kyng, M. (2011). Beyond Utopia: reflections on participatory design in home-based healthcare with weak users (pp. 189-196). Proc. of the 29th Annual European Conference on Cognitive Ergonomics, ACM.
6. Grönvall, E., & Kyng, M. (2013). On participatory design of home-based healthcare. Cognition, Technology & Work, 15(4), 389-401.
7. Holbø, K., Bøthun, S., & Dahl, Y. (2013). Safe walking technology for people with dementia: what do they want? (p. 21). Proc. of the 15th International ACM SIGACCESS Conference on Computers and Accessibility, ACM.
8. Jones, C. A., & Arning, B. (2006). Sensorium: embodied experience, technology, and contemporary art. MIT Press.
9. jwatson. (2011, August 17). Alzheimer's Disease Fact Sheet. National Institute on Aging. Text. Retrieved February 27, 2014, from http://www.nia.nih.gov/alzheimers/publication/alzheimers-disease-fact-sheet
10. Kensing, F., & Blomberg, J. (1998). Participatory design: Issues and concerns. Computer Supported Cooperative Work (CSCW), 7(3-4), 167-185.
11. Kitwood, T. (1997). Dementia reconsidered: The person comes first. Philadelphia.
12. Lee, J.-J. (2013). Method-making as a method of designing. In Proceedings from the 5th Nordic Design Research Conference, Nordes 2013. Copenhagen, Denmark.
13. Lewis, J., & Ritchie, J. (2003). Generalising from qualitative research. Qualitative Research Practice: A Guide for Social Science Students and Researchers, 263-286.
14. Light, A., & Luckin, R. (2008). Designing for social justice: people, technology, learning.
15. Lindsay, S., Brittain, K., Jackson, D., Ladha, C., Ladha, K., & Olivier, P. (2012). Empathy, participatory design and people with dementia (pp. 521-530). Proc. of the 2012 ACM ann. conference on Human Factors in Computing Systems, ACM.
16. Lindsay, S., Jackson, D., Schofield, G., & Olivier, P. (2012). Engaging older people using participatory design (pp. 1199-1208). Proc. of the 2012 ACM ann. conference on Human Factors in Computing Systems, ACM.
17. Lobo, A., Launer, L., Fratiglioni, L., Andersen, K., Di Carlo, A., Breteler, M., ... Martinez-Lage, J. (1999). Prevalence of dementia and major subtypes in Europe: A collaborative study of population-based cohorts. Neurologic Diseases in the Elderly Research Group. Neurology, 54(11 Suppl 5), S4-9.
18. Luck, R. (2003). Dialogue in participatory design. Design Studies, 24(6), 523-535.
19. Mayer, J. M., & Zach, J. (2013). Lessons learned from participatory design with and for people with dementia (pp. 540-545). Proc. of the 15th international conference on Human-computer interaction with mobile devices and services, ACM.
20. Meiland, F. J., Bouman, A. I., Sävenstedt, S., Bentvelzen, S., Davies, R. J., Mulvenna, M. D., ... Bengtsson, J. E. (2012). Usability of a new electronic assistive device for community-dwelling persons with mild dementia. Aging & Mental Health, 16(5), 584-591.
21. Miller, J. (1990, April 15). Goodbye to all this. Independent on Sunday, pp. 3-5.
22. Muller, M. J., Wildman, D. M., & White, E. A. (1993). "Equal opportunity" PD using PICTIVE. Communications of the ACM, 36(6), 64.
23. Ponterotto, J. G. (2006). Brief note on the origins, evolution, and meaning of the qualitative research concept "thick description." The Qualitative Report, 11(3), 538-549.
24. Schepers, S. (2013). MAP-it. The Art of Designing a Participatory Mapping Method. Knowing (by) Designing., 1(1), 275-281.
25. Span, M., Hettinga, M., Vernooij-Dassen, M., Eefsting, J., & Smits, C. (2013). Involving people with dementia in the development of supportive IT applications: A systematic review. Ageing Research Reviews, 12(2), 535-551.
26. Vines, J., Clarke, R., Wright, P., McCarthy, J., & Olivier, P. (2013). Configuring participation: on how we involve people in design (pp. 429-438). Proc. of the SIGCHI Conference on Human Factors in Computing Systems, ACM.