Understanding the areas and correlates of diabetes-related distress in parents of teens with type 1 diabetes

Journal of Pediatric Psychology

Volumn 41, Issue 7, 2016, Pages 750-758

  Hessler, Danielle ^d   Fisher, Lawrence ^d   Polonsky, William ^a,b   Johnson, Nicole ^c  

^a Behavioral Diabetes Institute   (United States)

^b UNIVERSITY OF CALIFORNIA   (United States)

^c UNIVERSITY OF SOUTH FLORIDA   (United States)

^d UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

Adolescents; Diabetes; Parent stress; Parenting style; Parent adolescent communication; Psychosocial functioning

Indexed keywords

ADOLESCENT; CHILD PARENT RELATION; CROSS-SECTIONAL STUDY; DIAGNOSIS; ETIOLOGY; FEMALE; HUMAN; INSULIN DEPENDENT DIABETES MELLITUS; MALE; MENTAL STRESS; PARENT; PSYCHOLOGIC TEST; PSYCHOLOGY; RISK FACTOR;

ADOLESCENT; CROSS-SECTIONAL STUDIES; DIABETES MELLITUS, TYPE 1; FEMALE; HUMANS; MALE; PARENT-CHILD RELATIONS; PARENTING; PARENTS; PSYCHOLOGICAL TESTS; RISK FACTORS; STRESS, PSYCHOLOGICAL;

EID: 85006176987     PISSN: 01468693     EISSN: 1465735X     Source Type: Journal    
DOI: 10.1093/jpepsy/jsw002     Document Type: Article

References (26)

1. Anderson, B. J. (2011). Parenting styles and parenting practices in pediatric diabetes. Diabetes Care, 34, 1885–1886.
2. Butler, D. A., Zuehlke, J. B., Tovar, A., Volkening, L. K., Anderson, B. J., & Laffel, L. M. (2008). The impact of modifiable family factors on glycemic control among youth with type 1 diabetes. Pediatr Diabetes, 9, 373–381.
3. Davis, C., Delamater, A. M., Shaw, K. H., La Greca, A., Eidson, M. S., Perez-Rodriguez, J. E., & Nemery, R. (2001). Brief report: Parenting styles, regimen adherence and glycemic control in 4- to 10- year old children with diabetes. Journal of Pediatric Psychology, 26, 123–129.
4. Fisher, L., Gonzalez, J. S., & Polonsky, W. (2013). The confusing tale of depression and distress in patients with diabetes a call for greater clarity and precision. Diabetic Medicine, 31, 764–772.
5. Fisher, L., Hessler, D. M., Polonsky, W. H., Masharani, U., Peters, A. L., Blumer, I., & Strycker, L. A. (2016). Prevalence of depression in Type 1 diabetes and the problem of over-diagnosis. Diabetic Medicine. doi: 10.1111/dme.12973
6. Fisher, L., Hessler, D. M., Polonsky, W. H., & Mullan, J. (2012). When is diabetes distress clinically meaningful? Establishing cut points for the diabetes distress scale. Diabetes Care, 35, 259–264.
7. Fisher, L., Mullan, J., Arean, P., Glasgow, R. E., Hessler, D., & Masharani, U. (2010). Diabetes distress but not clinical depression or depressive symptoms is associated with glycemic control in both cross-sectional and longitudinal analyses. Diabetes Care, 33, 23–28.
8. Fisher, L., Polonsky, W. H., Hessler, D. M., Masharani, U., Blumer, I., Peters, A. L., & Bowyer, V. (2015). Understanding the sources of diabetes distress in adults with type 1 diabetes. Journal of Diabetes and its Complications, 29, 572–577.
9. Hajos, T. R., Pouwer, F., Skovlund, S. E., den Oudsten, B. L., Geelhoed-Duijvestijn, P. H., & Tack, C. J. (2013). Psychometric and screening properties of the WHO-5 well-being index in adult outpatients with type 1 or type 2 diabetes mellitus. Diabetic Medicine, 30, 63–69.
10. Helgeson, V. S., Becker, D., Escobar, O., & Siminerio, L. (2012). Families with children with diabetes: Implications of parent stress for parent and child health. Journal of Pediatric Psychology, 37, 467–478.
11. Jaser, S., & Grey, M. (2010). A pilot study of observed parenting and adjustment in adolescents with type 1 diabetes and their mothers. Journal of Pediatric Psychology, 35, 738–747.
12. Jaser, S., Whittemore, R., Ambrosino, J. B., Lindemann, E., & Grey, M. (2009). Coping and psychosocial adjustment in mothers of young children with type 1 diabetes. Child Health Care, 38, 81–106.
13. Kroenke, K., Spitzer, R. L., & Williams, J. B. (2001). The PHQ-9: The validity of a brief depression severity measure. Journal of General Interanl Medicine, 16, 606–613.
14. La Greca, A. M., Auslander, W. F., Greco, P., Spetter, D., Fisher, E. B., & Santiago, J. V. (1995). I get by with a little help from my family and friends: Adolescents’ support for diabetes care. Journal of Pediatric Psychology, 20, 449–476.
15. Markowitz, J. T., Volkening, L. K., Butler, D. A., Antisdel-Lomaglio, J., Anderson, B. J., & Laffel, L. M. B. (2012). Re-examining a measure of diabetes-related burden in parents of young people with type 1 diabetes: The problem areas in diabetes survey–parent revised version (PAID-PR). Diabetic Medicine, 29, 526–530.
16. Mitchell, S. J., Hilliard, M. E., Mednick, L., Henderson, C., Cogen, F. R., & Streissand, R. (2009). Stress among fathers of young children with type 1 diabetes. Families Systems & Health, 27, 314–324.
17. Pearlin, L. I., Lieberman, M. A., Menaghan, E. G., & Mullan, J. T. (1981). The stress process. Journal of Health and Social Behavior, 22, 333–356.
18. Polonsky, W. H., Fisher, L., Earles, J., Dudl, R. J., Lees, J., Mullan, J., & Jackson, R. A. (2005). Assessing psychosocial distress in diabetes development of the diabetes distress scale. Diabetes Care, 28, 626–631.
19. Radloff, L. S. (1977). The CES–D scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1, 385–401.
20. Reitman, D., Rhode, P., Hupp, S., & Altobello, C. (2002). Development and validation of the parental authority questionnaire – revised. Journal of Psychopathology and Behavioral Assessment, 24, 119–127.
21. Schreiner, B., Brow, S., & Philips, M. (2000). Management strategies for the adolescent lifestyle. Diabetes Spectrum, 13, 83–88.
22. Stallwood, L. (2005). Influence of caregiver stress and coping on glycemic control of young children with diabetes. Journal of Pediatric Health Care, 19, 293–300.
23. Streisand, R., Braniecki, S., Tercyak, K. P., & Kazak, A. E. (2001). Childhood illness-related parenting stress: The pediatric inventory for parents. Journal of Pediatric Psychology, 26, 155–162.
24. Streisand, R., Swift, E., Wickmark, T., Chen, R., & Holmes, C. S. (2005). Pediatric parenting stress among parents of children with type 1 diabetes: The role of self-efficacy, responsibility, and fear. Journal of Pediatric Psychology, 30, 513–521.
25. Whittemore, R., Jaser, S., Chao, A., Jang, M., & Grey, M. (2012). Psychological experience of parents of children with type 1 diabetes: A systematic mixed-studies review. The Diabetes Educator, 38, 562–579.
26. Williams, L. B., Laffel, L. M., & Hood, K. K. (2009). Diabetes-specific family conflict and psychological distress in paediatric type 1 diabetes. Diabetic Medicine, 26, 908–914.