“It was like walking without knowing where I was going”: A Qualitative Study of Autism in a UK Somali Migrant Community

Journal of Autism and Developmental Disorders

Volumn 47, Issue 2, 2017, Pages 305-315

  Fox, Fiona ^a,b   Aabe, Nura ^c   Turner, Katrina ^a,b   Redwood, Sabi ^a,b   Rai, Dheeraj ^b,d  

^a UNIVERSITY HOSPITALS BRISTOL NHS FOUNDATION TRUST   (United Kingdom)

^b UNIVERSITY OF BRISTOL   (United Kingdom)

^c Silai Centre   (United Kingdom)

^d AVON AND WILTSHIRE MENTAL HEALTH PARTNERSHIP NHS TRUST   (United Kingdom)

Author keywords

Attitudes; Autism; Childhood; Disability; Help seeking; Migrant; Qualitative; Somali

Indexed keywords

ADULT; ARTICLE; AUTISM; AWARENESS; CLINICAL ARTICLE; EDUCATION; EXTENDED FAMILY; FEMALE; HELP SEEKING BEHAVIOR; HUMAN; MALE; MENTAL DISEASE; MIGRANT; PRIORITY JOURNAL; QUALITATIVE RESEARCH; SOCIAL CARE; SOCIAL WORK; SOMALI (PEOPLE); SOMALIA; STIGMA; UNITED KINGDOM; ADOLESCENT; CHILD; ETHNOLOGY; MIGRATION; NEEDS ASSESSMENT; PRESCHOOL CHILD; PSYCHOLOGY;

ADOLESCENT; ADULT; AUTISTIC DISORDER; CHILD; CHILD, PRESCHOOL; FEMALE; HUMANS; MALE; NEEDS ASSESSMENT; QUALITATIVE RESEARCH; SOMALIA; TRANSIENTS AND MIGRANTS; UNITED KINGDOM;

EID: 84995804553     PISSN: 01623257     EISSN: 15733432     Source Type: Journal    
DOI: 10.1007/s10803-016-2952-9     Document Type: Article

References (25)

1. Barnevik-Olsson, M., Gillberg, C., & Fernell, E. (2010). Prevalence of autism in children of Somali origin living in Stockholm: Brief report of an at-risk population. Developmental Medicine and Child Neurology, 52(12), 1167–1168.
2. Becerra, T. A., von Ehrenstein, O. S., Heck, J. E., Olsen, J., Arah, O. A., Jeste, S. S., Rodriguez, M., & Ritz, B. (2014). Autism spectrum disorders and race, ethnicity, and nativity: A population-based study. Pediatrics, 134(1), X19.
3. Bolton, S., McDonald, D., Curtis, E., Kelly, S., & Gallagher, L. (2014). Autism in a recently arrived immigrant population. European Journal of Pediatrics, 173(3), 337–343.
4. Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101.
5. Bristol City Council. (2013). The population of Bristol. August 2013.
6. Edbrooke-Childs, J., Newman, R., Fleming, I., Deighton, J., & Wolpert, M. (2016). The association between ethnicity and care pathway for children with emotional problems in routinely collected child and adolescent mental health services data. European Child and Adolescent Psychiatry, 25(5), 539–546.
7. Elmi, A. (1999). A study on the mental health needs of the Somali community in Toronto. Toronto: York Community Services & Rexdale Community Health Centre.
8. Fassaert, T., de Wit, M. A., Tuinebreijer, W. C., Verhoeff, A. P., Beekman, A. T., & Dekker, J. (2009). Perceived need for mental health care among non-western labour migrants. Social Psychiatry and Psychiatric Epidemiology, 44(3), 208–216.
9. Fernell, E., Eriksson, M. A., & Gillberg, C. (2013). Early diagnosis of autism and impact on prognosis: A narrative review. Clinical Epidemiology, 5, 33–43.
10. Hewitt, A., Gulaid, A., & Hamre, K. (2013). Minneapolis Somali autism spectrum disorder prevalence project: Community report. Minneapolis, MN: Institute on Community Integration, Research and Training Center on Community Living.
11. Jabłonowski, J., Mohamed, A., & Sugulle, A. (2013). Work and Health of Somali Migrants in Bristol Report for Bristol City Council’s Public Health Department by Bristol Centre and Bristol Somali Resource Centre.
12. Kuenzli, J (2012). “The Somali Community’s Experiences with Autism: An Exploratory Study”. Master of Social Work Clinical. Research Papers. Paper 50. http://sophia.stkate.edu/msw_papers/50.
13. Lehti, V., Hinkka-Yli-Salomäki. S., Cheslack-Postava. K., Gissler. M., Brown. A.S., & Sourander. A. (2013). The risk of childhood autism among second-generation migrants in Finland: A case–control study. BMC Pediatrics. BMC series.
14. Magnusson, C., Rai, D., Goodman, A., Lundberg, M., Idring, S., Svensson, A., et al. (2012). Migration and autism spectrum disorder: Population-based study. British Journal of Psychiatry, 201, 109–115.
15. Miller-Gairy, S. & Mofya, S. (2015). Elements of culture and tradition that shape the perceptions and expectations of Somali refugee mothers about autism. International Journal of Child and Adolescent Health, 8(3):335–349.
16. Minkler, M., & Wallerstein, N. (2010). Community-based participatory research for health: From process to outcomes. Hoboken, NJ: John Wiley and Sons.
17. Minnesota Department of Health. (2014). A Qualitative Study of Families of Children with Autism in the Somali Community: Comparing the Experiences of Immigrant Groups. Minnesota Department of Health. Report to the Minnesota Legislature.
18. Patton, M. Q. (2005). Qualitative research. Hoboken: John Wiley & Sons, Ltd.
19. Phillimore, J., Humphris, R. & Khan, K., (2014). Migration, networks and resources: The relationship between migrants’ social networks and their access to integration resources. KING Project - Applied Social Studies Unit. Retrieved from https://www.academia.edu/15014795/Migration_networks_and_resources_the_relationship_between_migrants_social_networks_and_their_access_to_integration_resources.
20. QSR International Pty Ltd. (2012). NVivo qualitative data analysis Software, Version 10.
21. Schuchman, D. M. & McDonald, C. (2004). Somali Mental Health. Bildhaan: International Journal of Somali Studies, 4, 8. Retrieved from http://digitalcommons.macalester.edu/bildhaan/vol4/iss1/8.
22. Selman, L., Fox, F., Aabe, N., Rai, D., Turner, K., & Redwood, S. (2016). ‘You are labelled by your children’s disability’: A community-based, participatory study of stigma among UK Somali parents of children with autism. Ethnicity and Health (under review).
23. Teunissen, E., Sherally, J., van den Muijsenbergh, M., Dowrick, C., van Weel-Baumgarten, E & van Weel, C. (2014). Mental health problems of undocumented migrants (UMs) in The Netherlands: A qualitative exploration of help-seeking behaviour and experiences with primary care. BMJ Open, 4(11):e005738.
24. van der Ven, E., Termorshuizen, F., Laan, W., Breetvelt, E. J., van Os, J. & Selten, J. P. (2013). An incidence study of diagnosed autism-spectrum disorders among immigrants to the Netherlands. Acta Psychiatrica Scandinavica,128(1):54–60.
25. Wright, C. A., Scott, D., Marissa, L., Diener, M. L. & Eaton, J. (2014). Autism spectrum disorder and the applied collaborative approach: A review of community based participatory research and participatory action research. Journal of Autsim. doi: 10.7243/2054-992X-1-1.