"I want to keep the personal relationship with my doctor": Understanding barriers to portal use among african americans and latinos

Journal of Medical Internet Research

Volumn 18, Issue 10, 2016, Pages

  Lyles, Courtney Rees ^a,b   Allen, Jill Y ^b   Poole, Dolly ^b   Tieu, Lina ^a   Kanter, Michael H ^b,c   Garrido, Terhilda ^b,d  

^a UNIVERSITY OF CALIFORNIA   (United States)

^b KAISER PERMANENTE   (United States)

^c Permanente Federation   (United States)

^d Camino Advisors LLC   (United States)

Author keywords

African Americans; Electronic health record; Hispanic Americans; Qualitative research

Indexed keywords

ADULT; AFRICAN AMERICAN; AGED; ELECTRONIC HEALTH RECORD; ETHNOLOGY; FEMALE; HEALTH CARE DISPARITY; HISPANIC; HUMAN; INFORMATION PROCESSING; MALE; MEDICAL RECORD; MIDDLE AGED; PSYCHOLOGY; QUALITATIVE RESEARCH; UTILIZATION;

ADULT; AFRICAN AMERICANS; AGED; ELECTRONIC HEALTH RECORDS; FEMALE; FOCUS GROUPS; HEALTHCARE DISPARITIES; HISPANIC AMERICANS; HUMANS; MALE; MIDDLE AGED; PATIENT PORTALS; QUALITATIVE RESEARCH;

EID: 84994476871     PISSN: None     EISSN: 14388871     Source Type: Journal    
DOI: 10.2196/jmir.5910     Document Type: Article

References (27)

1. Ralston JD, Carrell D, Reid R, Anderson M, Moran M, Hereford J. Patient web services integrated with a shared medical record: patient use and satisfaction. J Am Med Inform Assoc 2007;14(6):798-806 [FREE Full text] [doi: 10.1197/jamia.M2302] [Medline: 17712090]
2. Harris LT, Koepsell TD, Haneuse SJ, Martin DP, Ralston JD. Glycemic control associated with secure patient-provider messaging within a shared electronic medical record: A longitudinal analysis. Diabetes Care 2013 Sep;36(9):2726-2733 [FREE Full text] [doi: 10.2337/dc12-2003] [Medline: 23628618]
3. Sarkar U, Lyles CR, Parker MM, Allen J, Nguyen R, Moffet HH, et al. Use of the refill function through an online patient portal is associated with improved adherence to statins in an integrated health system. Med Care 2014 Mar;52(3):194-201 [FREE Full text] [doi: 10.1097/MLR.0000000000000069] [Medline: 24374412]
4. Tenforde M, Nowacki A, Jain A, Hickner J. The association between personal health record use and diabetes quality measures. J Gen Intern Med 2012 Apr;27(4):420-424 [FREE Full text] [doi: 10.1007/s11606-011-1889-0] [Medline: 22005937]
5. Zhou YY, Kanter MH, Wang JJ, Garrido T. Improved quality at Kaiser Permanente through e-mail between physicians and patients. Health Aff (Millwood) 2010 Jul;29(7):1370-1375 [FREE Full text] [doi: 10.1377/hlthaff.2010.0048] [Medline: 20606190]
6. Zarcadoolas C, Vaughon WL, Czaja SJ, Levy J, Rockoff ML. Consumers' perceptions of patient-accessible electronic medical records. J Med Internet Res 2013;15(8):e168 [FREE Full text] [doi: 10.2196/jmir.2507] [Medline: 23978618]
7. Schickedanz A, Huang D, Lopez A, Cheung E, Lyles CR, Bodenheimer T, et al. Access, interest, and attitudes toward electronic communication for health care among patients in the medical safety net. J Gen Intern Med 2013 Jul;28(7):914-920 [FREE Full text] [doi: 10.1007/s11606-012-2329-5] [Medline: 23423453]
8. Dhanireddy S, Walker J, Reisch L, Oster N, Delbanco T, Elmore JG. The urban underserved: attitudes towards gaining full access to electronic medical records. Health Expect 2014 Oct;17(5):724-732. [doi: 10.1111/j.1369-7625.2012.00799.x] [Medline: 22738155]
9. Sarkar U, Karter AJ, Liu JY, Adler NE, Nguyen R, López A, et al. Social disparities in internet patient portal use in diabetes: evidence that the digital divide extends beyond access. J Am Med Inform Assoc 2011 May 1;18(3):318-321 [FREE Full text] [doi: 10.1136/jamia.2010.006015] [Medline: 21262921]
10. Lyles CR, Harris LT, Jordan L, Grothaus L, Wehnes L, Reid RJ, et al. Patient race/ethnicity and shared medical record use among diabetes patients. Med Care 2012 May;50(5):434-440. [doi: 10.1097/MLR.0b013e318249d81b] [Medline: 22354209]
11. Garrido T, Kanter M, Meng D, Turley M, Wang J, Sue V, et al. Race/ethnicity, personal health record access, and quality of care. Am J Manag Care 2015 Feb;21(2):e103-e113 [FREE Full text] [Medline: 25880485]
12. Goel MS, Brown TL, Williams A, Hasnain-Wynia R, Thompson JA, Baker DW. Disparities in enrollment and use of an electronic patient portal. J Gen Intern Med 2011 Oct;26(10):1112-1116 [FREE Full text] [doi: 10.1007/s11606-011-1728-3] [Medline: 21538166]
13. Osborn CY, Mayberry LS, Wallston KA, Johnson KB, Elasy TA. Understanding patient portal use: implications for medication management. J Med Internet Res 2013;15(7):e133 [FREE Full text] [doi: 10.2196/jmir.2589] [Medline: 23823974]
14. Kim E, Stolyar A, Lober WB, Herbaugh AL, Shinstrom SE, Zierler BK, et al. Challenges to using an electronic personal health record by a low-income elderly population. J Med Internet Res 2009;11(4):e44 [FREE Full text] [doi: 10.2196/jmir.1256] [Medline: 19861298]
15. Tieu L, Schillinger D, Sarkar U, Hoskote M, Hahn KJ, Ratanawongsa N, et al. Online patient websites for electronic health record access among vulnerable populations: portals to nowhere? J Am Med Inform Assoc 2016 Jul 8 [doi: 10.1093/jamia/ocw098] [Medline: 27402138]
16. Czaja SJ, Zarcadoolas C, Vaughon WL, Lee CC, Rockoff ML, Levy J. The usability of electronic personal health record systems for an underserved adult population. Hum Factors 2015 May;57(3):491-506. [doi: 10.1177/0018720814549238] [Medline: 25875437]
17. Winkelman WJ, Leonard KJ, Rossos PG. Patient-perceived usefulness of online electronic medical records: employing grounded theory in the development of information and communication technologies for use by patients living with chronic illness. J Am Med Inform Assoc 2005;12(3):306-314 [FREE Full text] [doi: 10.1197/jamia.M1712] [Medline: 15684128]
18. Richards L, Morse J. User's Guide to Qualitative Methods. 2nd edition. Thousand Oaks, CA: Sage Publications; 2007.
19. Miles M, Huberman M. Qualitative Data Analysis: An Expanded Sourcebook. Thousand Oaks, CA: Sage Publications; 1994.
20. Lyles CR, Sarkar U, Osborn CY. Getting a technology-based diabetes intervention ready for prime time: A review of usability testing studies. Curr Diab Rep 2014 Oct;14(10):534. [doi: 10.1007/s11892-014-0534-9] [Medline: 25173689]
21. Lyles CR, Sarkar U. Health literacy, vulnerable patients, and health information technology use: where do we go from here? J Gen Intern Med 2015 Mar;30(3):271-272 [FREE Full text] [doi: 10.1007/s11606-014-3166-5] [Medline: 25588688]
22. Bickmore TW, Paasche-Orlow MK. The role of information technology in health literacy research. J Health Commun 2012;17 Suppl 3:23-29. [doi: 10.1080/10810730.2012.712626] [Medline: 23030559]
23. Chakkalakal RJ, Kripalani S, Schlundt DG, Elasy TA, Osborn CY. Disparities in using technology to access health information: race versus health literacy. Diabetes Care 2014;37(3):e53-e54 [FREE Full text] [doi: 10.2337/dc13-1984] [Medline: 24558085]
24. Hoofnagle C, King J, Li S, Turow J. How Different are Young Adults from Older Adults When it Comes to Information Privacy Attitudes and Policies?. 2010. URL: http://papers.ssrn.com/sol3/papers.cfm?abstract-id=1589864 [accessed 2016-09-26] [WebCite Cache ID 6koYPEbac]
25. Benkert R, Peters RM, Clark R, Keves-Foster K. Effects of perceived racism, cultural mistrust and trust in providers on satisfaction with care. J Natl Med Assoc 2006 Sep;98(9):1532-1540. [Medline: 17019925]
26. Corbie-Smith G, Thomas SB, Williams MV, Moody-Ayers S. Attitudes and beliefs of African Americans toward participation in medical research. J Gen Intern Med 1999 Sep;14(9):537-546 [FREE Full text] [Medline: 10491242]
27. Atienza AA, Zarcadoolas C, Vaughon W, Hughes P, Patel V, Chou WS, et al. Consumer Attitudes and Perceptions on mHealth Privacy and Security: Findings From a Mixed-Methods Study. J Health Commun 2015;20(6):673-679. [doi: 10.1080/10810730.2015.1018560] [Medline: 25868685]