Palliative Care Quality Indicators for Patients with End-Stage Liver Disease Due to Cirrhosis

Digestive Diseases and Sciences

Volumn 62, Issue 1, 2017, Pages 84-92

  Walling, A M ^a,b,c   Ahluwalia, S C ^c,i   Wenger, N S ^b,c   Booth, M ^c   Roth, C P ^c   Lorenz, K ^g,h   Kanwal, F ^d,e   Dy, S ^f   Asch, S M ^g,h  

^a VA GREATER LOS ANGELES HEALTHCARE SYSTEM   (United States)

^b UNIVERSITY OF CALIFORNIA   (United States)

^c RAND CORPORATION   (United States)

^d MICHAEL E DEBAKEY VETERANS AFFAIRS MEDICAL CENTER   (United States)

^e BAYLOR COLLEGE OF MEDICINE   (United States)

^f JOHNS HOPKINS UNIVERSITY   (United States)

^g Department of Anesthesia   (United States)

^h Division of General Medical Disciplines   (United States)

ⁱ UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

End stage liver disease; Palliative care; Quality

Indexed keywords

ARTICLE; COCHRANE LIBRARY; DELPHI STUDY; END STAGE LIVER DISEASE; GASTROENTEROLOGIST; GENERAL PRACTITIONER; HEALTH CARE QUALITY; HUMAN; LIVER CIRRHOSIS; MEDLINE; PALLIATIVE THERAPY; PRACTICE GUIDELINE; PRIORITY JOURNAL; SYSTEMATIC REVIEW; TREATMENT OUTCOME; ADVANCE CARE PLANNING; CONSENSUS DEVELOPMENT; LIVER TRANSPLANTATION; STANDARDS;

ADVANCE CARE PLANNING; DELPHI TECHNIQUE; END STAGE LIVER DISEASE; HUMANS; LIVER CIRRHOSIS; LIVER TRANSPLANTATION; OUTCOME AND PROCESS ASSESSMENT (HEALTH CARE); PALLIATIVE CARE; QUALITY INDICATORS, HEALTH CARE;

EID: 84994164485     PISSN: 01632116     EISSN: 15732568     Source Type: Journal    
DOI: 10.1007/s10620-016-4339-3     Document Type: Article

References (36)

1. Walling AM, Asch SM, Lorenz KA, et al. The quality of care provided to hospitalized patients at the end of life. Arch Intern Med. 2010;170:1057–1063.
2. Teno JM, Gozalo PL, Bynum JP, et al. Change in end-of-life care for Medicare beneficiaries: site of death, place of care, and health care transitions in 2000 2005, and 2009. JAMA. 2013;309:470–477.
3. Meier DE. Increased access to palliative care and hospice services: opportunities to improve value in health care. Milbank Q. 2011;89:343–380.
4. Wachterman MW, Pilver C, Smith D, et al. Quality of end-of-life care provided to patients with different serious illnesses. JAMA Intern Med. 2016;176:1095–1102.
5. Kamal AH, Gradison M, Maguire JM, et al. Quality measures for palliative care in patients with cancer: a systematic review. J Oncol Pract. 2014;10:281–287.
6. Action Plan for Liver Disease Research: National Institute of Diabetes and Digestive Diseases and Kidney Disease http://www2.niddk.nih.gov/AboutNIDDK/ResearchAndPlanning/Liver_Disease/ActionPlanforLiverDiseaseResearchSlidesMinutes.htm. Last Accessed August 12, 2013.
7. UNOS Donate Life America Statistics. http://donatelife.net/understanding-donation/statistics/. Last Accessed December 30, 2014.
8. Larson AM, Curtis JR. Integrating palliative care for liver transplant candidates: “too well for transplant, too sick for life”. JAMA. 2006;295:2168–2175.
9. Roth K, Lynn J, Zhhong Z, et al. Dying with end stage liver disease with cirrhosis: Insights from SUPPORT. J Am Geriatr Soc. 2000;48:S122–S130.
10. Younossi ZM, Bopari N, Price L, et al. Health-related quality of life in chronic liver disease: the impact of type and severity of disease. Am J Gastroenterol. 2001;96:2199–2205.
11. Kanwal F, Kramer J, Asch S, et al. An explicit quality indicator set for measurement of quality of care in patients with cirrhosis. Clin Gastroenterol Hepatol. 2010;8:709–717.
12. The RAND/UCLA appropriateness method user’s manual. Santa Monica, CA, RAND Corporation, 2001.
13. Shekelle PG, Chassin MR, Park RE. Assessing the predictive validity of the RAND/UCLA appropriateness method criteria for performing carotid endarterectomy. Int J Technol Assess Health Care. 1998;14:707–727.
14. Zigmond DS, Ettner SL, Wilber KH, Wenger NS. Association of claims-based quality of care measures with outcomes among community-dwelling vulnerable elders. Med Care. 2011;49:553–559.
15. Higashi T, Shekelle PG, Adams JL, et al. Quality of Care is associated with survival in vulnerable older patients. Ann Intern Med. 2005;143:274–281.
16. Shekelle P. The appropriateness method. Medical Decision Making. 2004;24:228–231.
17. Kahn KL, Tisnado DM, Adams JL, et al. Does Ambulatory process of care predict health related quality of life outcomes for patients with chronic disease. Health Serv Res. 2007;42:63–83.
18. National Consensus Project for Quality Palliative Care. Clinical practice guidelines for quality palliative care. Executive summary. J Palliat Med. 2004;7:611–627.
19. National Quality Forum. NQF endorses palliative and end-of-life care measures. http://www.qualityforum.org/News_And_Resources/Press_Releases/2012/NQF_Endorses_Palliative_and_End-of-Life_Care_Measures.aspx. Accessed August 15, 2013.
20. Spengler U. Management of end-stage liver disease in HIV/hepatitis C virus co-infection. Curr Opin HIV AIDS. 2011;6:527–533.
21. Perumalswami PV, Schiano TD. The management of hospitalized patients with cirrhosis: the Mount Sinai experience and a guide for hospitalists. Dig Dis Sci. 2011;56:1266–1281.
22. Hansen L, Sasaki A, Zucker B. End stage liver disease: challenges and practical implications. Nurs Clin North Am. 2010;45:411–426.
23. Garcia-Tsao G, Lim JK. Management and treatment of patients with cirrhosis and portal hypertension: recommendations from the Department of Veterans Affairs Hepatitis C Resource Center Program and the National Hepatitis C Program. Am J Gastroenterol. 2009;104:1802–1829.
24. Heidelbaugh JJ, Sherbondy M. Cirrhosis and chronic liver failure: part II. Complications and treatment. Am Fam Physician. 2006;74:767–776.
25. Soncini M, Leo P, Triossi O, et al. Management and outcomes of hepatic cirrhosis: Findings from the RING study. Hepatol Rs. 2006;36:176–181.
26. Sanchez W, Talwalkar JA. Palliative care for patients with end-stage liver disease ineligible for liver transplantation. Gastroenterol Clin North Am. 2006;55:201–219.
27. Lorenz KA, Rosenfeld K, Wenger NS. Quality indicators for palliative and end-of-live care in vulnerable elders. JAGS. 2007;55:S318–S326.
28. Lorenz KA, Dy SM, Naeim A, et al. Quality measures for supportive cancer care: The Cancer Quality-ASSIST Project. J Pain Symptom Manage. 2009;37:943–964.
29. Temel JS, Greer JA, Muzikansky A, et al. Early palliative care in patients with metastatic non-small cell lung cancer. NEJM. 2010;363:733–742.
30. Higginson IJ, Finlay IG, Goodwin DM, et al. Is there evidence that palliative care teams alter end-of-life experiences of patients and their caregivers? J Pain Symptom Manag. 2003;25:150–168.
31. Bakitas M, Lyons Hegel MT, et al. Effects of palliative care intervention on clinical outcomes in patients with advanced cancer: the project ENABLE II randomized controlled trial. JAMA. 2009;302:741–749.
32. Walling AM, et al. Evidence-based recommendations for information and care planning in cancer care. J Clin Oncol. 2008;23:3896–3902.
33. Wright AA, Zhang AA, Huskamp H, et al. Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA. 2008;300:1665–1673.
34. Zimmermann C, Swami N, Krzyzanowskam M, et al. Early palliative care for patients with advanced cancer: a cluster-randomized controlled trial. Lancet. 2014;383:1721–1730.
35. Teno JM, Clarridge BR, Casey V, et al. Family perspectives on end-of-life care at the last place of care. JAMA. 2004;291:89–93.
36. Walling AM, Asch SM, Lorenz KA, Wenger NS. Impact of consideration of transplantation on end-of-life care for patients during a terminal hospitalization. Transplantation. 2013;95:641–646.