User involvement leads to more ethically sound research

Clinical Ethics

Volumn 1, Issue 2, 2006, Pages 95-100

  Staley, Kristina ^a   Minogue, Virginia ^b  

^a TwoCan Associates   (United States)

^b Head of Research and Development Partnerships in Care   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 84992875387     PISSN: 14777509     EISSN: None     Source Type: Journal    
DOI: 10.1258/147775006777254489     Document Type: Article

References (14)

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2. Minogue V, Boness J, Brown A, Girdlestone J. The impact of service user involvement in research. Int J Health Care Qual Assur 2005; 18: 103-12
3. Hanley B, Bradburn J, Barnes M, et al. Involving the Public in NHS, Public Health and Social Care Research: Briefing Notes for Researchers. Eastleigh: INVOLVE, 2004
4. Beresford P. User Involvement in Research: Connecting Lives, Experience and Theory. University of Warwick, 2003
5. Turner M, Beresford P. User Controlled Research: Its Meanings and Potential. Report Summary. Eastleigh: INVOLVE, 2005
6. Faulkner A. The Ethics of Survivor Research. Guidelines for the Ethical Conduct of Research Carried out by Mental Health Service Users and Survivors. Bristol: The Policy Press for the Joseph Rowntree Foundation, 2004
7. Department of Health. Research Governance Framework for Health and Social Care. 2nd edn. London: Department of Health, 2005
8. Section 11. Health and Social Care Act. 2001. London: The Stationery Office Ltd.
9. Robinson EJ, Kerr CEP, Stevens AJ, et al. Lay public's understanding of equipoise and randomisation in randomised controlled trials. Health Technology Assessment 2005; 9
10. INVOLVE. Ethics Review in Social Care Research: Option Appraisal and Guidelines by Jan Pahl: A Response from INVOLVE. Eastleigh: INVOLVE, 2005
11. Steel R. Full Consultation Document for Involving Marginalised and Vulnerable Groups in Research. Eastleigh: INVOLVE, 2004
12. Hanley B on behalf of the Toronto Group. Research as Empowerment? Report of a Series of Seminars Organised by the Toronto Group. York: Joseph Rowntree Foundation, 2005
13. Langston AL, McCallum M, Campbell MK, Robertson C, Ralston SH. An integrated approach to consumer representation and involvement in a multi-centre randomised controlled trial. J Soc Clin Trials 2005; 2: 1-8
14. Koops L, Lindley RI. Thrombolysis for acute ischaemic stroke: consumer involvement in design of new randomised controlled trial. BMJ 2002; 325: 415-8