Heart, lung, and vascular registries: Evolving goals, successful approaches, and ongoing innovation

Journal of Heart and Lung Transplantation

Volumn 35, Issue 10, 2016, Pages 1149-1157

  Stehlik, Josef ^a   Bavaria, Joseph E ^b   Bax, Jeroen ^c   Cronenwett, Jack L ^d   Edwards, Leah B ^e   Fairman, Ronald M ^b   Ferrari, Roberto ^f   Jacobs, Jeffrey P ^g,n   Johnson, Maryl R ^h   Kraiss, Larry W ^a   Masoudi, Frederick A ⁱ   Mehra, Mandeep R ^j   Vahanian, Alec ^k   Walsh, Mary Norine ^l   Lund, Lars H ^m  

^a UNIVERSITY OF UTAH SCHOOL OF MEDICINE   (United States)

^b HOSPITAL OF THE UNIVERSITY OF PENNSYLVANIA   (United States)

^c LEIDEN UNIVERSITY MEDICAL CENTER   (Netherlands)

^d DARTMOUTH HITCHCOCK MEDICAL CENTER   (United States)

^e International Society for Heart and Lung Transplantation Thoracic Transplant Registry   (United States)

^f UNIVERSITY OF FERRARA   (Italy)

^g JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE   (United States)

^h UNIVERSITY OF WISCONSIN SCHOOL OF MEDICINE AND PUBLIC HEALTH   (United States)

ⁱ UNIVERSITY OF COLORADO   (United States)

^j BRIGHAM AND WOMEN S HOSPITAL   (United States)

^k BICHAT HOSPITAL   (France)

^l St Vincent Heart Center of Indiana   (United States)

^m KAROLINSKA UNIVERSITY HOSPITAL   (Sweden)

ⁿ JOHNS HOPKINS ALL CHILDREN S HOSPITAL   (United States)

more..

Author keywords

[No Author keywords available]

Indexed keywords

DRUG;

CLINICAL PRACTICE; COST EFFECTIVENESS ANALYSIS; DEVICES; EDITORIAL; FOLLOW UP; HEART TRANSPLANTATION; HUMAN; LUNG TRANSPLANTATION; MORBIDITY; MORTALITY; PRIORITY JOURNAL; REGISTER; TOTAL QUALITY MANAGEMENT; BLOOD VESSEL; PROGRAM EVALUATION; TRANSPLANTATION; TRENDS;

BLOOD VESSELS; HEART TRANSPLANTATION; HUMANS; LUNG TRANSPLANTATION; PROGRAM EVALUATION; REGISTRIES;

EID: 84992663958     PISSN: 10532498     EISSN: 15573117     Source Type: Journal    
DOI: 10.1016/j.healun.2016.08.021     Document Type: Editorial

References (11)

1. 1 Evidence-Based Medicine Working Group. Evidence-based medicine. A new approach to teaching the practice of medicine. JAMA 268 (1992), 2420–2425.
2. 2 Sheridan, D.J., Julian, D.G., Achievements and limitations of evidence-based medicine. J Am Coll Cardiol 68 (2016), 204–213.
3. 3 Rossello, X., Pocock, S.J., Julian, D.G., Long-term use of cardiovascular drugs: challenges for research and for patient care. J Am Coll Cardiol 66 (2015), 1273–1285.
4. 4 Lund, L.H., Edwards, L.B., Kucheryavaya, A.Y., Benden, C., Dipchand, A.I., Goldfarb, S., et al. The registry of the International Society for Heart and Lung Transplantation: thirty-second official adult heart transplantation report—2015; focus theme: early graft failure. J Heart Lung Transplant 34 (2015), 1244–1254.
5. 5 Ansari, D., Lund, L.H., Stehlik, J., Andersson, B., Höglund, P., Edwards, L., et al. Induction with anti-thymocyte globulin in heart transplantation is associated with better long-term survival compared with basiliximab. J Heart Lung Transplant 34 (2015), 1283–1291.
6. 6 Cronenwett, J.L., Kraiss, L.W., Cambria, R., The Society for Vascular Surgery Vascular Quality Initiative. J Vasc Surg 55 (2012), 1529–1537.
7. 7 European Society of Cardiology. EURObservational Research Programme. Available at: http://www.escardio.org/Research/Registries-&-surveys/EURObservational-Research-Programme. Accessed September 9, 2016.
8. 8 Jacobs, J.P., Shahian, D.M., Prager, R.L., Edwards, F.H., McDonald, D., Han, J.M., et al. Introduction to the STS National Database Series: outcomes analysis, quality improvement, and patient safety. Ann Thorac Surg 100 (2015), 1992–2000.
9. 9 Masoudi, F.A., Ponirakis, A., Yeh, R.W., Maddox, T.M., Beachy, J., Casale, P.N., et al. Cardiovascular care facts: a report from the national cardiovascular data registry: 2011. J Am Coll Cardiol 62 (2013), 1931–1947.
10. 10 Writing Committee Members, Bhatt, D.L., Drozda, J.P. Jr, Shahian, D.M., Chan, P.S., Fonarow, G.C., Heidenreich, P.A., et al. ACC/AHA/STS statement on the future of registries and the performance measurement enterprise: a report of the American College of Cardiology/American Heart Association Task Force on Performance Measures and The Society of Thoracic Surgeons. Circ Cardiovasc Qual Outcomes 8 (2015), 634–648.
11. 11 Workman, T.A., Engaging patients in information sharing and data collection: the role of patient-powered registries and research networks. AHRQ Community Forum White Paper. AHRQ Publication No. 13-EHC124-EF. 2013, Agency for Healthcare Research and Quality, Rockville, MD.