Development and preliminary evaluation of a rehabilitation consult for survivors of head and neck cancer: An intervention mapping protocol

Implementation Science

Volumn 10, Issue 1, 2015, Pages

  McEwen, Sara E ^a,b   Davis, Aileen M ^b,c,d   Jones, Jennifer M ^b,e   Martino, Rosemary ^b,c   Poon, Ian ^d,f   Rodriguez, Ana Maria ^g   Ringash, Jolie ^d,e  

^a Canada   (Canada)

^b UNIVERSITY OF TORONTO   (Canada)

^c UNIVERSITY HEALTH NETWORK   (Canada)

^d UNIVERSITY OF TORONTO   (Canada)

^e PRINCESS MARGARET HOSPITAL   (Canada)

^f DEPARTMENT OF RADIATION ONCOLOGY   (Canada)

^g MCGILL UNIVERSITY   (Canada)

Author keywords

Goal setting; Head and neck cancer; Intervention mapping; Protocol; Rehabilitation; Self management

Indexed keywords

CLINICAL PROTOCOL; HEAD AND NECK NEOPLASMS; HUMAN; NEEDS ASSESSMENT; PROGRAM DEVELOPMENT; PROGRAM EVALUATION; TREATMENT OUTCOME;

CLINICAL PROTOCOLS; HEAD AND NECK NEOPLASMS; HUMANS; NEEDS ASSESSMENT; OUTCOME AND PROCESS ASSESSMENT (HEALTH CARE); PROGRAM DEVELOPMENT; PROGRAM EVALUATION;

EID: 84988683710     PISSN: None     EISSN: 17485908     Source Type: Journal    
DOI: 10.1186/s13012-014-0191-z     Document Type: Article

References (49)

1. Deng J, Ridner SH, Dietrich MS, Wells N, Wallston KA, Sinard RJ, et al. Factors associated with external and internal lymphedema in patients with head-and-neck cancer. Int J Radiat Oncol Biol Phys. 2012;84:e319-28.
2. Bragante KC, Nascimento DM, Motta NW. Evaluation of acute radiation effects on mandibular movements of patients with head and neck cancer. Rev Bras Fisioter. 2012;16:141-7.
3. Neilson KA, Pollard AC, Boonzaier AM, Corry J, Castle DJ, Mead KR, et al. Psychological distress (depression and anxiety) in people with head and neck cancers. Med J Aust. 2010;193(Suppl 5):S48-51.
4. Lima LP, Amar A, Lehn CN. Spinal accessory nerve neuropathy following neck dissection. Braz J Otorhinolaryngol. 2011;77:259-62.
5. Campos RJ, Maciel CT, Cesca MG, Leite IC. Voice analysis after cancer treatment with organ preservation. Head Neck Oncol. 2011;3:19.
6. Watkins JP, Williams GB, Mascioli AA, Wan JY, Samant S. Shoulder function in patients undergoing selective neck dissection with or without radiation and chemotherapy. Head Neck. 2011;33:615-9.
7. Zhen Y, Wang JG, Tao D, Wang HJ, Chen WL. Efficacy survey of swallowing function and quality of life in response to therapeutic intervention following rehabilitation treatment in dysphagic tongue cancer patients. Eur J Oncol Nurs. 2012;16:54-8.
8. Killguss H, Gottwald F, Haderlein T, Maier A, Rosanowski F, Iro H, et al. Voice handicap and health-related quality of life after treatment for small laryngeal carcinoma. Folia Phoniatr Logop. 2011;63:122-8.
9. Martino R, Beaton D, Diamant NE. Using different perspectives to generate items for a new scale measuring medical outcomes of dysphagia (MOD). J Clin Epidemiol. 2009;62:518-26.
10. Fingeret MC, Hutcheson KA, Jensen K, Yuan Y, Urbauer D, Lewin JS. Associations among speech, eating, and body image concerns for surgical patients with head and neck cancer. Head Neck. 2013;35:354-60.
11. Sawada NO, de Paula JM, Sonobe HM, ZagoMM, Guerrero GP, Nicolussi AC. Depression, fatigue, and health-related quality of life in head and neck cancer patients: a prospective pilot study. Support Care Cancer. 2012;20:2705-11.
12. Hutcheson KA, Alvarez CP, Barringer DA, Kupferman ME, Lapine PR, Lewin JS. Outcomes of elective total laryngectomy for laryngopharyngeal dysfunction in disease-free head and neck cancer survivors. Otolaryngol Head Neck Surg. 2012;146:585-90.
13. Yuen HK, Gillespie MB, Barkley RA, Day TA, Bandyopadhyay D, Sharma AK. Driving performance in patients with cancer in the head and neck region: a pilot study. Arch Otolaryngol Head Neck Surg. 2007;133:904-9.
14. Cooper AF, Hankins M, Rixon L, Eaton E, Grunfeld EA. Distinct work-related, clinical and psychological factors predict return to work following treatment in four different cancer types. Psychooncology. 2013;22:659-67.
15. Verdonck-de Leeuw IM, van Bleek WJ, Leemans CR, de Bree R. Employment and return to work in head and neck cancer survivors. Oral Oncol. 2010;46:56-60.
16. Canadian Cancer Society's Steering Committee on Cancer Statistics. Canadian Cancer Statistics 2012. Toronto; 2012.
17. Nichols AC, Palma DA, Dhaliwal SS, Tan S, Theuer J, Chow W, et al. The epidemic of human papillomavirus and oropharyngeal cancer in a Canadian population. Curr Oncol. 2013;20:212-9.
18. Chaturvedi AK, Engels EA, Pfeiffer RM, Hernandez BY, Xiao W, Kim E, et al. Human papillomavirus and rising oropharyngeal cancer incidence in the United States. J Clin Oncol. 2011;29:4294-301.
19. Ramqvist T, Dalianis T. Oropharyngeal cancer epidemic and human papillomavirus. Emerg Infect Dis. 2010;16:1671-7.
20. Egan MY, McEwen S, Sikora L, Chasen M, Fitch M, Eldred S. Rehabilitation following cancer treatment. Disabil Rehabil. 2013;35:2245-58.
21. Nagy J, Braunitzer G, Antal M, Berkovits C, Novak P, Nagy K. Quality of life in head and neck cancer patients after tumor therapy and subsequent rehabilitation: an exploratory study. Qual Life Res. 2014;23:135-43.
22. Kotz T, Federman AD, Kao J, Milman L, Packer S, Lopez-Prieto C, et al. Prophylactic swallowing exercises in patients with head and neck cancer undergoing chemoradiation: a randomized trial. Arch Otolaryngol Head Neck Surg. 2012;138:376-82.
23. Retel VP, van der Molen L, Hilgers FJ, Rasch CR, L'Ortye AA, Steuten LM, et al. A cost-effectiveness analysis of a preventive exercise program for patients with advanced head and neck cancer treated with concomitant chemo-radiotherapy. BMC Cancer. 2011;11:475.
24. Carnaby-Mann G, Crary MA, Schmalfuss I, Amdur R. "Pharyngocise": randomized controlled trial of preventative exercises to maintain muscle structure and swallowing function during head-and-neck chemoradiotherapy. Int J Radiat Oncol Biol Phys. 2012;83:210-9.
25. Eades M, Murphy J, Carney S, Amdouni S, Lemoignan J, Jelowicki M, et al. Effect of an interdisciplinary rehabilitation program on quality of life in patients with head and neck cancer: Review of clinical experience. Head Neck. 2013;35:343-9.
26. Bartholomew LK, Parcel GS, Kok G, Gottlieb NH, Fernandez ME. Planning Health Promotion Programs: An Intervention Mapping Approach. San Francisco: John Wiley & Sons; 2011.
27. Lorig KR. Self-management of chronic illnesses: a model for the future. Generations. 1993;17:11-4.
28. McGowan PT. Self-management education and support in chronic disease management. Prim Care. 2012;39:307-25.
29. Department of Health. The expert patient: a new approach to chronic disease management for the 21st century. London; 2001.
30. Wagner EH. Meeting the needs of chronically ill people. BMJ. 2001;323:945-6.
31. Canadian Health Services Research Foundation. Self-management education to optimize health and reduce hospital admissions for chronically ill patients. Ottawa; 2007.
32. Rodgers H, Atkinson C, Bond S, Suddes M, Dobson R, Curless R. Randomized controlled trial of a comprehensive stroke education program for patients and caregivers. Stroke. 1999;30:2585-91.
33. Taal E, Riemsma RP, Brus HL, Seydel ER, Rasker JJ, Wiegman O. Group education for patients with rheumatoid arthritis. Patient Educ Couns. 1993;20:177-87.
34. Richardson A, Addington-Hall J, Amir Z, Foster C, Stark D, Armes J, et al. Knowledge, ignorance and priorities for research in key areas of cancer survivorship: findings from a scoping review. Br J Cancer. 2011;105(Suppl 1):S82-94.
35. Law M, Polatajko H, Pollock N, Mccoll MA, Carswell A, Baptiste S. Pilot testing of the Canadian occupational performance measures: clinical and measurement issues. Can J Occup Ther. 1994;61:191-7.
36. Randall KE, McEwen IR. Writing patient-centered functional goals. Phys Ther. 2000;80:1197-203.
37. Levack WM, Taylor K, Siegert RJ, Dean SG, McPherson KM, Weatherall M. Is goal planning in rehabilitation effective? A systematic review. Clin Rehabil. 2006;20:739-55.
38. Heckhausen H, Gollwitzer PM. Thought contents and cognitive functioning in motivational versus volitional states of mind. Motiv Emotion. 1987;11:101-20.
39. Ware Jr JE, Sherbourne CD. The MOS 36-item short-form health survey (SF-36). I. conceptual framework and item selection. Med Care. 1992;30:473-83.
40. Medical Outcomes Study 36-Item Short Form Health Survey: Psychometric Properties. [http://strokengine.ca/assess/module_sf36_psycho-en.html]
41. List MA, D'Antonio LL, Cella DF, Siston A, Mumby P, Haraf D, et al. The performance status scale for head and neck cancer patients and the functional assessment of cancer therapy-head and neck scale. A study of utility and validity. Cancer. 1996;77:2294-301.
42. Wood-Dauphinee SL, Opzoomer MA, Williams JI, Marchand B, Spitzer WO. Assessment of global function: the reintegration to normal living index. Arch Phys Med Rehabil. 1988;69:583-90.
43. Gage M, Noh S, Polatajko HJ, Kaspar V. Measuring perceived self-efficacy in occupational therapy. Am J Ocup Ther. 1994;48:783-90.
44. Radiation Therapy Oncology Group. Compiled Computer-Assisted Self Interview (CASI) system questionnaires. [http://www.rtog.org/LinkClick.aspx?fileticket=-JUjxRtTMVuE%3D&tabid=290].
45. Kiresuk T, Sherman R. Goal attainment scaling: a general method for evaluating comprehensive community mental health programs. Community Ment Health J. 1968;4:443-53.
46. Stolee P, Stadnyk K, Myers AM, Rockwood K. An individualized approach to outcome measurement in geriatric rehabilitation. J Gerontol A Biol Sci Med Sci. 1999;54:M641-7.
47. Cohen J. Statistical Power Analysis for the Behavioral Sciences. Hillsdale, N.J: Lawrence Erlbaum Associates, Incorporated; 1988.
48. Fritz CO, Morris PE, Richler JJ. Effect size estimates: current use, calculations, and interpretation. J Exp Psychol Gen. 2012;141:2-18.
49. Fereday J, Muir-Cochrane E. Demonstrating rigor using thematic analysis: a hybrid approach of inductive and deductive coding and theme development. Int J Qual Methods. 2006;5:1-11.