Empowered citizen 'health hackers' who are not waiting

BMC Medicine

Volumn 14, Issue 1, 2016, Pages

  Omer, Timothy ^a  

^a London   (United Kingdom)

Author keywords

WeAreNotWaiting; Artificial pancreas; Citizen Hackers; Type 1 diabetes

Indexed keywords

GLUCOSE; INSULIN;

ACCESS TO INFORMATION; ARTIFICIAL PANCREAS; AUTOMATION; BLOOD GLUCOSE METER; BLOOD GLUCOSE MONITORING; EMPOWERMENT; HEALTH CARE NEED; HUMAN; INSULIN DEPENDENT DIABETES MELLITUS; INSULIN PUMP; INTERNET; MEDICAL DEVICE REGULATION; MOBILE APPLICATION; NOTE; PATIENT INFORMATION; REMOTE SENSING; SELF CARE; ATTITUDE TO HEALTH; DIABETES MELLITUS, TYPE 1; PATIENT PARTICIPATION; TRENDS;

DIABETES MELLITUS, TYPE 1; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; INTERNET; PANCREAS, ARTIFICIAL; PATIENT PARTICIPATION;

EID: 84982083994     PISSN: None     EISSN: 17417015     Source Type: Journal    
DOI: 10.1186/s12916-016-0670-y     Document Type: Note

References (20)

1. National Institute for Health and Care Excellence. Type 1 diabetes in adults Care Pathway. http://pathways.nice.org.uk/pathways/type-1-diabetes-in-adults. Accessed 27 July 2016.
2. Input. NICE Guidelines for Long-term (continuous) use of a CGM. http://www.inputdiabetes.org.uk/cgm/cgm-costs/ Accessed 27 July 2016.
3. The creation of the tagline "We Are Not Waiting" http://www.healthline.com/health/diabetesmine/innovation/we-are-not-waiting Accessed 27 July 2016.
4. Example Communities include: Facebook CGM in the Cloud ( https://www.facebook.com/groups/cgminthecloud/ ).
5. Gitter Developer Chat Rooms (https://gitter.im/orgs/nightscout/rooms)
6. OpenAPS GitHub code (https://github.com/openaps/oref0) Accessed 27 July 2016.
7. xDrip Parts. Example Hobby Electronics hardware-based community project. https://github.com/StephenBlackWasAlreadyTaken/xDrip/blob/master/hardware_setup.md Accessed 27 July 2016.
8. Diabetes Hacking Timeline. Summary of key community projects over the last few years. https://drive.google.com/open?id=1n3YVRaCUeB2l80tzZ1o2FbnH-jKlk9TMwKsoAMgdD6s Accessed 27 July 2016.
9. Don Browne Dexwatch. Monitoring CGM data via smartwatch. http://dexwatch.blogspot.co.uk/ Accessed 27 July 2016.
10. The Nightscout Project. Uploading CGM and other data to a personal website. http://www.nightscout.info/ Accessed 27 July 2016.
11. #DIYPS. System built to augment CGM alerts. https://diyps.org/ Accessed 27 July 2016.
12. Open Artificial Pancreas System using existing medical devices and assessing their data via community projects. https://openaps.org/what-is-openaps/ Accessed 27 July 2016.
13. Meet the Bigfoot Family and Their Homemade Closed Loop System. http://www.healthline.com/diabetesmine/bigfoot-family-their-diabetes-and-homemade-closed-loop-system Accessed 27 July 2016.
14. Dear Machines: You Can Take This Job - Michael Stebbins Write-up describing his artificial pancreas. http://labs.teague.com/?p=2035 Accessed 27 July 2016.
15. HAPP. DIY, Open Loop, Artificial Pancreas. http://www.hypodiabetic.co.uk/home/blog/hacking-diabetes/diy-open-loop-artificial-pancreas Accessed 27 July 2016.
16. Example 3D printed projects from the #WeAreNotWaiting Community. http://www.shapeways.com/search?q=xdrip+or+wearenotwaiting&type=product Accessed 27 July 2016.
17. Andrew Abramowicz Twitter.com | Example of a community lead "xDrip Party" where sharing of knowledge and assistance is provided to build xDrip receivers https://twitter.com/westwindscanada/status/670718035687174144 Accessed 27 July 2016.
18. Hearing Hacks Twitter.com | Any of the founders of #WeAreNotWaiting in London? Trying to build something similar for #hearingaids industry and could use advice https://twitter.com/hearinghacks/status/633292264773668864 Accessed 27 July 2016.
19. Nightscout instance displaying Tim Omer's blood sugars and other treatment data. http://bg.hypodiabetic.co.uk/ Accessed 27 July 2016.
20. We're Not Waiting for Our Automatic Pancreas System | Mark Wilson, Ben West, Jason Calabrese, James Matheson, Scott Leibrand, Erzsi Szilagyi, Mikel Curry, Jason Curry discuss the creation of the OpenAPS system and results of real world usage. https://medium.com/quantified-self-public-health/were-not-waiting-for-our-automatic-pancreas-system-888162fcde2b#.e17scv470 Accessed 27 July 2016.