-
1
-
-
34447136593
-
-
World Federation of Hemophilia, 2nd ed. Montreal, Quebec, Canada: World Federation of Hemophilia
-
World Federation of Hemophilia. Guidelines for the Management of Hemophilia. 2nd ed. Montreal, Quebec, Canada: World Federation of Hemophilia; 2013.
-
(2013)
Guidelines for the Management of Hemophilia
-
-
-
2
-
-
70449568470
-
Changing patterns of bleeding in patients with severe haemophilia A
-
Stephensen D, Tait RC, Brodie N, et al. Changing patterns of bleeding in patients with severe haemophilia A. Haemophilia. 2009;15(6):1210–1214.
-
(2009)
Haemophilia
, vol.15
, Issue.6
, pp. 1210-1214
-
-
Stephensen, D.1
Tait, R.C.2
Brodie, N.3
-
3
-
-
76649087969
-
Musculoskeletal complications of hemophilia
-
Rodriguez-Merchan EC. Musculoskeletal complications of hemophilia. HSS J. 2010;6(1):37–42.
-
(2010)
HSS J
, vol.6
, Issue.1
, pp. 37-42
-
-
Rodriguez-Merchan, E.C.1
-
4
-
-
12144290833
-
Joint range-of-motion limitations among young males with hemophilia: Prevalence and risk factors
-
Soucie JM, Cianfrini C, Janco RL, et al. Joint range-of-motion limitations among young males with hemophilia: prevalence and risk factors. Blood. 2004;103(7):2467–2473.
-
(2004)
Blood
, vol.103
, Issue.7
, pp. 2467-2473
-
-
Soucie, J.M.1
Cianfrini, C.2
Janco, R.L.3
-
5
-
-
84860334027
-
Why should we care about quality of life in persons with haemophilia?
-
Aledort L, Bullinger M, von Mackensen S, Wasserman J, Young NL, Globe D. Why should we care about quality of life in persons with haemophilia? Haemophilia. 2012;18(3):e154–e157.
-
(2012)
Haemophilia
, vol.18
, Issue.3
, pp. e154-e157
-
-
Aledort, L.1
Bullinger, M.2
Von Mackensen, S.3
Wasserman, J.4
Young, N.L.5
Globe, D.6
-
6
-
-
67649876352
-
Measuring patient-reported outcomes in haemophilia clinical research
-
Globe D, Young NL, Von Mackensen S, Bullinger M, Wasserman J. Measuring patient-reported outcomes in haemophilia clinical research. Haemophilia. 2009;15(4):843–852.
-
(2009)
Haemophilia
, vol.15
, Issue.4
, pp. 843-852
-
-
Globe, D.1
Young, N.L.2
Von Mackensen, S.3
Bullinger, M.4
Wasserman, J.5
-
7
-
-
44249084682
-
Quality of life in haemophilia
-
Gringeri A, Von Mackensen S. Quality of life in haemophilia. Haemophilia. 2008;14(Suppl 3):19–25.
-
(2008)
Haemophilia
, vol.14
, pp. 19-25
-
-
Gringeri, A.1
Von Mackensen, S.2
-
8
-
-
0038779220
-
Health-related quality of life as outcome parameter in haemophilia treatment
-
discussion 82
-
Fischer K, van der Bom JG, van den Berg HM. Health-related quality of life as outcome parameter in haemophilia treatment. Haemophilia. 2003;9(Suppl 1):75–81; discussion 82.
-
(2003)
Haemophilia
, vol.9
, pp. 75-81
-
-
Fischer, K.1
Van Der Bom, J.G.2
Van Den Berg, H.M.3
-
9
-
-
37749033557
-
The Haemo-QoL index: Developing a short measure for health-related quality of life assessment in children and adolescents with haemophilia
-
Haemo-QoL Group
-
Pollak E, Muhlan H, von Mackensen S, Bullinger M; Haemo-QoL Group. The Haemo-QoL index: developing a short measure for health-related quality of life assessment in children and adolescents with haemophilia. Haemophilia. 2006;12(4):384–392.
-
(2006)
Haemophilia
, vol.12
, Issue.4
, pp. 384-392
-
-
Pollak, E.1
Muhlan, H.2
Von Mackensen, S.3
Bullinger, M.4
-
11
-
-
84890857187
-
Haemophilia Experiences, Results and Opportunities (HERO) study: Survey methodology and population demographics
-
Forsyth AL, Gregory M, Nugent D, et al. Haemophilia Experiences, Results and Opportunities (HERO) study: survey methodology and population demographics. Haemophilia. 2014;20(1):44–51.
-
(2014)
Haemophilia
, vol.20
, Issue.1
, pp. 44-51
-
-
Forsyth, A.L.1
Gregory, M.2
Nugent, D.3
-
12
-
-
84921475470
-
Haemophilia Experiences, Results and Opportunities (HERO) study: Treatment-related characteristics of the population
-
Nugent D, Kalnins W, Querol F, et al. Haemophilia Experiences, Results and Opportunities (HERO) study: treatment-related characteristics of the population. Haemophilia. 2015;21(1):e26–e38.
-
(2015)
Haemophilia
, vol.21
, Issue.1
, pp. e26-e38
-
-
Nugent, D.1
Kalnins, W.2
Querol, F.3
-
13
-
-
84904641126
-
Haemophilia Experiences, Results and Opportunities (HERO) study: Influence of haemophilia on interpersonal relationships as reported by adults with haemophilia and parents of children with haemophilia
-
Cassis FR, Buzzi A, Forsyth A, et al. Haemophilia Experiences, Results and Opportunities (HERO) study: influence of haemophilia on interpersonal relationships as reported by adults with haemophilia and parents of children with haemophilia. Haemophilia. 2014;20(4):e287–e295.
-
(2014)
Haemophilia
, vol.20
, Issue.4
-
-
Cassis, F.R.1
Buzzi, A.2
Forsyth, A.3
-
14
-
-
0025688231
-
EuroQol – a new facility for the measurement of health-related quality of life
-
EuroQol Group
-
EuroQol Group. EuroQol – a new facility for the measurement of health-related quality of life. Health Policy. 1990;16(3):199–208.
-
(1990)
Health Policy
, vol.16
, Issue.3
, pp. 199-208
-
-
-
15
-
-
14844319324
-
US valuation of the EQ-5D health states: Development and testing of the D1 valuation model
-
Shaw JW, Johnson JA, Coons SJ. US valuation of the EQ-5D health states: development and testing of the D1 valuation model. Med Care. 2005;43(3):203–220.
-
(2005)
Med Care
, vol.43
, Issue.3
, pp. 203-220
-
-
Shaw, J.W.1
Johnson, J.A.2
Coons, S.J.3
-
16
-
-
0141482007
-
Cost of care and quality of life for patients with hemophilia complicated by inhibitors: The COCIS Study Group
-
Gringeri A, Mantovani LG, Scalone L, Mannucci PM. Cost of care and quality of life for patients with hemophilia complicated by inhibitors: the COCIS Study Group. Blood. 2003;102(7):2358–2363.
-
(2003)
Blood
, vol.102
, Issue.7
, pp. 2358-2363
-
-
Gringeri, A.1
Mantovani, L.G.2
Scalone, L.3
Mannucci, P.M.4
-
18
-
-
0033432718
-
Assessing health-related quality-of-life in individuals with haemophilia
-
Miners AH, Sabin CA, Tolley KH, Jenkinson C, Kind P, Lee CA. Assessing health-related quality-of-life in individuals with haemophilia. Haemophilia. 1999;5(6):378–385.
-
(1999)
Haemophilia
, vol.5
, Issue.6
, pp. 378-385
-
-
Miners, A.H.1
Sabin, C.A.2
Tolley, K.H.3
Jenkinson, C.4
Kind, P.5
Lee, C.A.6
-
19
-
-
84865560824
-
Quality of life in haemophilia A: Hemophilia Utilization Group Study Va (HUGS-Va)
-
Poon JL, Zhou ZY, Doctor JN, et al. Quality of life in haemophilia A: Hemophilia Utilization Group Study Va (HUGS-Va). Haemophilia. 2012;18(5):699–707.
-
(2012)
Haemophilia
, vol.18
, Issue.5
, pp. 699-707
-
-
Poon, J.L.1
Zhou, Z.Y.2
Doctor, J.N.3
-
20
-
-
34147177007
-
Cross-cultural conceptions of pain and pain control
-
Free MM. Cross-cultural conceptions of pain and pain control. Proc (Bayl Univ Med Cent). 2002;15(2):143–145.
-
(2002)
Proc (Bayl Univ Med Cent)
, vol.15
, Issue.2
, pp. 143-145
-
-
Free, M.M.1
-
22
-
-
80052038575
-
A survey of the outcome of prophylaxis, on-demand or combined treatment in 20–35 year old men with severe haemophilia in four European countries
-
Noone D, O’Mahony B, Prihodova L. A survey of the outcome of prophylaxis, on-demand or combined treatment in 20–35 year old men with severe haemophilia in four European countries. Haemophilia. 2011;17(5):e842–e843.
-
(2011)
Haemophilia
, vol.17
, Issue.5
, pp. e842-e843
-
-
Noone, D.1
O’Mahony, B.2
Prihodova, L.3
-
23
-
-
84870988601
-
A survey of the outcome of prophylaxis, on-demand treatment or combined treatment in 18–35-year old men with severe haemophilia in six countries
-
Noone D, O’Mahony B, van Dijk JP, Prihodova L. A survey of the outcome of prophylaxis, on-demand treatment or combined treatment in 18–35-year old men with severe haemophilia in six countries. Haemophilia. 2013;19(1):44–50.
-
(2013)
Haemophilia
, vol.19
, Issue.1
, pp. 44-50
-
-
Noone, D.1
O’Mahony, B.2
Van Dijk, J.P.3
Prihodova, L.4
-
24
-
-
43149116111
-
Secondary prophylaxis with recombinant activated factor VII improves health-related quality of life of haemophilia patients with inhibitors
-
Hoots WK, Ebbesen LS, Konkle BA, et al. Secondary prophylaxis with recombinant activated factor VII improves health-related quality of life of haemophilia patients with inhibitors. Haemophilia. 2008;14(3):466–475.
-
(2008)
Haemophilia
, vol.14
, Issue.3
, pp. 466-475
-
-
Hoots, W.K.1
Ebbesen, L.S.2
Konkle, B.A.3
-
25
-
-
84866430271
-
Effect of acute bleeding on daily quality of life assessments in patients with congenital hemophilia with inhibitors and their families: Observations from the dosing observational study in hemophilia
-
Neufeld EJ, Recht M, Sabio H, et al. Effect of acute bleeding on daily quality of life assessments in patients with congenital hemophilia with inhibitors and their families: observations from the dosing observational study in hemophilia. Value Health. 2012;15(6):916–925.
-
(2012)
Value Health
, vol.15
, Issue.6
, pp. 916-925
-
-
Neufeld, E.J.1
Recht, M.2
Sabio, H.3
-
26
-
-
36249007422
-
US norms for six generic health-related quality-of-life indexes from the National Health Measurement study
-
Fryback DG, Dunham NC, Palta M, et al. US norms for six generic health-related quality-of-life indexes from the National Health Measurement study. Med Care. 2007;45(12):1162–1170.
-
(2007)
Med Care
, vol.45
, Issue.12
, pp. 1162-1170
-
-
Fryback, D.G.1
Dunham, N.C.2
Palta, M.3
-
27
-
-
67650713632
-
Predicting EuroQol (EQ-5D) scores from the patient-reported outcomes measurement information system (PROMIS) global items and domain item banks in a United States sample
-
Revicki DA, Kawata AK, Harnam N, Chen WH, Hays RD, Cella D. Predicting EuroQol (EQ-5D) scores from the patient-reported outcomes measurement information system (PROMIS) global items and domain item banks in a United States sample. Qual Life Res. 2009;18(6):783–791.
-
(2009)
Qual Life Res
, vol.18
, Issue.6
, pp. 783-791
-
-
Revicki, D.A.1
Kawata, A.K.2
Harnam, N.3
Chen, W.H.4
Hays, R.D.5
Cella, D.6
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