Prevention of congenital disorders and care of affected children: A consensus statement

JAMA Pediatrics

Volumn 170, Issue 8, 2016, Pages 790-793

  Darmstadt, Gary L ^a   Howson, Christopher P ^b   Walraven, Gijs ^c   Armstrong, Robert W ^d   Blencowe, Hannah K ^e   Christianson, Arnold L ^f   Kent, Alastair ^g   Malherbe, Helen ^h   Murray, Jeffrey C ⁱ   Padilla, Carmencita D ^j   Walani, Salimah R ^b   Aagaard, Kjersti ^k   Aggarwal, Neelam ^l   Amarasena, Sujeewa ^m   Barlow Mosha, Linda ⁿ   Vastani, Muneerah Amin ^d   Nyaligu, Eric Aswani ^o   Awoyale, Tayo ^p   Bauwens, Lieven ^q   Carvalho, Martha ^r   Chellani, Harish ^s   Cosmas, George ^t   D'Agostino, Sergio ^u   Darlison, Matthew W ^v   Devraj, Safiyya ^w   El Rafei, Rym ^x   Elias, Munda ^y   Ens Dokkum, Martina ^z   Ezeaka, Chinyere V ^p   Familiar Lopez, Itziar ^aa   Gowans, Lord Jephthah Joojo ^ab   Grant, Abby ^ac   Gupta, Shobhna ^s   Huhtinen, Petri ^ad   Iretiola, Fajolu ^ae   Jayaratne, Kapila ^af   Joseph, Alix ^ag   Kancherla, Vijaya ^ah   Khera, Ajay ^ai   Levy Fisch, Jill ^aj   Liang, Desheng ^ak   Lloyd Puryear, Michele ^aj   Macharia, William ^d   Madeira, Luis ^al   Muburirwa, Jerusalem Makotore ^w   Malasa, Leonard James ^am   Manduca, Paola ^an   Manoni, Janet ^ao   Kilasi, Shaba Michael ^t   Miquel Verges, Franscesca ^ap   Mohamed, Shaffiq ^w   Mtei, Lillian ^aq   Mullumba, Edina ^w   Mushema, Beata ^am   Musoke, Rachel ^ar   Nembhard, Wendy ^ap   Nguhi, Margaret ^as   Nippert, Irmgard ^at   Njoroge, Esther Nyambura ^au   Obondo, John Nelson ^av   Olubunmi, Comrade Lawal Aiyedun ^aw   Alitsi, Rebecca Opetsi ^ax   Pachón, Helena ^ay   Poortman, Ysbrand ^az   Powell, Charles ^ba   Powell, Lynne ^bb   Raina, Neena ^bc   Rajarajeswari, K ^bd   Sabet, Nagy ^be   Safori, Henry ^bf   Kishimba, Rogath Saika ^t   Bayakub, Abdulhakim Salim ^bg   Salum, Hilal ^bh   Salvatory, Florence ^am   Sambala, Switbert ^w   Sanseverino, Maria Teresa Vieira ^bi   Frank, Vivian Saria ^bj   Sayed Raeisy, Iran ^w   Seya, Neema ^bk   Shabani, Hamisi Kimaro ^bl   Shalua, Alice ^bm   Therrell, Bradford ^bn   Tole, John ^d   Tusiime, Christine ^bo   Weliwagamage, W K N ^af   Woods, D L ^bp   Wu, Lingqian ^bq   more..

^a STANFORD UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b March of Dimes Birth Defects Foundation   (United States)

^c Aga Khan Development Network   (Switzerland)

^d AGA KHAN UNIVERSITY   (Pakistan)

^e LONDON SCHOOL OF HYGIENE AND TROPICAL MEDICINE   (United Kingdom)

^f UNIVERSITY OF THE WITWATERSRAND   (South Africa)

^g GENETIC ALLIANCE UK   (United Kingdom)

^h UNIVERSITY OF KWAZULU NATAL   (South Africa)

ⁱ BILL AND MELINDA GATES FOUNDATION   (United States)

^j UNIVERSITY OF THE PHILIPPINES MANILA   (Philippines)

^k BAYLOR COLLEGE OF MEDICINE   (United States)

^l POSTGRADUATE INSTITUTE OF MEDICAL EDUCATION AND RESEARCH   (India)

^m Sri Lanka College of Paediatricians   (Sri Lanka)

ⁿ MAKERERE UNIVERSITY   (Uganda)

^o Technomed Limited   (Kenya)

^p LAGOS UNIVERSITY TEACHING HOSPITAL   (Nigeria)

^q International Federation for Spina Bifida and Hydrocephalus   (Belgium)

^r Brazilian Genetic Alliance   (Brazil)

^s SAFDARJUNG HOSPITAL   (India)

^t National Tuberculosis and Leprosy Programme   (Tanzania)

^u Humanitarian Association   (Italy)

^v UNIVERSITY COLLEGE LONDON   (United Kingdom)

^w Aga Khan Hospital   (Tanzania)

^x AMERICAN UNIVERSITY OF BEIRUT   (Lebanon)

^y Kakonko District Council   (Tanzania)

^z LEIDEN UNIVERSITY MEDICAL CENTER   (Netherlands)

^aa MICHIGAN STATE UNIVERSITY   (United States)

^ab KWAME NKRUMAH UNIVERSITY OF SCIENCE AND TECHNOLOGY   (Ghana)

^ac UNIVERSITY HOSPITAL OF NORTH NORWAY   (Norway)

^ad PerkinElmer   (Finland)

^ae UNIVERSITY OF LAGOS   (Nigeria)

^af MINISTRY OF HEALTH   (Sri Lanka)

^ag Perkin Elmer   (France)

^ah EMORY UNIVERSITY   (United States)

^ai GOVERNMENT OF INDIA   (India)

^aj Save Babies Through Screening Foundation   (United States)

^ak CENTRAL SOUTH UNIVERSITY   (China)

^al MINISTRY OF HEALTH   (Mozambique)

^am HUBERT KAIRUKI MEMORIAL UNIVERSITY   (Tanzania)

^an UNIVERSITY OF GENOA   (Italy)

^ao Friends of Children with Cancer   (Tanzania)

^ap UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCES   (United States)

^aq MUHIMBILI UNIVERSITY OF HEALTH AND ALLIED SCIENCES   (Tanzania)

^ar UNIVERSITY OF NAIROBI   (Kenya)

^as Neonatal and Child Health   (Kenya)

^at UNIVERSITY OF MÜNSTER   (Germany)

^au Smile Train   (United States)

^av Buguruni Anglican Hospital   (Tanzania)

^aw Spina Bifida and Hydrocephalus Care Foundation   (Nigeria)

^ax Wezesha Kupaa: Youth With a Mission   (Tanzania)

^ay Food Fortification Initiative   (United States)

^az Preparing for Life Collaboration   (Netherlands)

^ba Children's Hospital   (Tanzania)

^bb Rockford Memorial Hospital   (United States)

^bc WORLD HEALTH ORGANIZATION   (Switzerland)

^bd SRI RAMACHANDRA UNIVERSITY   (India)

^be MISR UNIVERSITY FOR SCIENCE AND TECHNOLOGY   (Egypt)

^bf GHANA HEALTH SERVICE   (Ghana)

^bg Registered Trustees of ASSAS Trust   (Tanzania)

^bh Registered Trustees of ASSAS Trust ^*  (Tanzania)

^bi HOSPITAL DE CLÍNICAS DE PORTO ALEGRE   (Brazil)

^bj KILIMANJARO CHRISTIAN MEDICAL UNIVERSITY COLLEGE   (Tanzania)

^bk MyRight Empowers People with Disabilities   (Tanzania)

^bl Department of Neurosurgery   (Tanzania)

^bm Bugando School of Nursing   (Tanzania)

^bn US National Newborn Screening and Global Resource Center   (United States)

^bo Department of Plastic and Reconstructive Surgery   (Uganda)

^bp Perinatal Education Trust   (South Africa)

^bq CENTRAL SOUTH UNIVERSITY   (China)

more..

Author keywords

[No Author keywords available]

Indexed keywords

CHILD CARE; CHILDHOOD MORTALITY; CONGENITAL DISORDER; CONSENSUS DEVELOPMENT; DISABILITY; HEALTH CARE FACILITY; HEALTH CARE SYSTEM; HEALTH EDUCATION; HUMAN; MEDICAL EDUCATION; MEDICAL RESEARCH; MEDICAL SERVICE; NEWBORN SCREENING; PRIORITY JOURNAL; REVIEW; SOCIAL WORK; CHILD; CONGENITAL ABNORMALITIES; FEMALE; FOOD CONTAMINATION; HEALTH CARE PLANNING; INFORMATION PROCESSING; PREGNANCY; PREGNANCY COMPLICATIONS; PRENATAL CARE; PREVENTION AND CONTROL; REGISTER; RISK ASSESSMENT; SOCIAL SUPPORT; STANDARDS; TOTAL QUALITY MANAGEMENT;

CHILD; CHILD CARE; CONGENITAL ABNORMALITIES; DATA COLLECTION; FEMALE; FOOD CONTAMINATION; HEALTH EDUCATION; HEALTH PRIORITIES; HUMANS; PREGNANCY; PREGNANCY COMPLICATIONS; PRENATAL CARE; QUALITY IMPROVEMENT; REGISTRIES; RISK ASSESSMENT; SOCIAL SUPPORT;

EID: 84980378472     PISSN: 21686203     EISSN: None     Source Type: Journal    
DOI: 10.1001/jamapediatrics.2016.0388     Document Type: Review

References (8)

1. March of Dimes. 7th International Conference on Birth Defects in the Developing World. http://icbd.marchofdimes.org/. Accessed October 1, 2015.
2. Christianson A, Howson C, Modell B. March of Dimes Global Report on Birth Defects: The Hidden Toll of Dying and Disabled Children. White Plains, NY: March of Dimes Birth Defects Foundation; 2006.
3. March of Dimes, World Health Organization. Management of Birth Defects and Haemoglobin Disorders: Report of a Joint WHO-March of Dimes Meeting. Geneva, Switzerland: World Health Organization; 2006.
4. Liu L, Oza S, Hogan D, et al. Global, regional, and national causes of child mortality in 2000-13, with projections to inform post-2015 priorities: an updated systematic analysis. Lancet. 2015;385 (9966):430-440.
5. Lawn JE, Blencowe H, Waiswa P, et al; Lancet Ending Preventable Stillbirths Series Study Group; Lancet Stillbirth Epidemiology Investigator Group. Stillbirths: rates, risk factors, and acceleration towards 2030. Lancet. 2016;387(10018):587-603.
6. World Health Organization. Birth defects. http://apps.who.int/gb/ebwha/pdf-files/WHA63/A63-R17-en.pdf. Published May 21, 2010. Accessed October 1, 2015.
7. World Health Organization. Prevention and Control of Birth Defects in South-East Asia Region: Strategic Framework (2013-2017). New Delhi, India: World Health Organization; 2013.
8. United Nations Department of Economic and Social Affairs. Sustainable development topics. https://sustainabledevelopment.un.org/topics. Accessed October 1, 2015.