Involvement of informal caregivers in supporting patients with COPD: A review of intervention studies

International Journal of COPD

Volumn 11, Issue 1, 2016, Pages 1587-1596

  Bryant, Jamie ^a,b   Mansfield, Elise ^a,b   Boyes, Allison W ^a,b   Waller, Amy ^a,b   Sanson Fisher, Rob ^a,b   Regan, Timothy ^a,b  

^a UNIVERSITY OF NEWCASTLE   (Australia)

^b HUNTER MEDICAL RESEARCH INSTITUTE   (Australia)

Author keywords

Carer; COPD; Intervention studies; Support persons

Indexed keywords

CAREGIVER SUPPORT; CHRONIC OBSTRUCTIVE LUNG DISEASE; CLINICAL EFFECTIVENESS; EMOTION ASSESSMENT; EXPERIMENTAL STUDY; FOLLOW UP; HEALTH CARE DELIVERY; HEALTH CARE QUALITY; HEALTH EDUCATION; HOME CARE; HOSPITAL CARE; HOSPITAL DISCHARGE; HOSPITAL READMISSION; HUMAN; INFORMATION PROCESSING; INTERVENTION STUDY; PATIENT CARE; PRACTICE GUIDELINE; PSYCHOSOCIAL CARE; PULMONARY REHABILITATION; QUALITY OF LIFE; REVIEW; RISK ASSESSMENT; RISK FACTOR; RISK OF BIAS; SELF CARE; SOCIAL SUPPORT; SYSTEMATIC REVIEW; TREATMENT OUTCOME; ATTITUDE TO HEALTH; CAREGIVER; COST OF ILLNESS; EVIDENCE BASED MEDICINE; MEDICAL RESEARCH; METHODOLOGY; PATHOPHYSIOLOGY; PATIENT ADVOCACY; PATIENT COMPLIANCE; PATIENT EDUCATION; PROCEDURES; PSYCHOLOGY; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE;

BIOMEDICAL RESEARCH; CAREGIVERS; COST OF ILLNESS; EVIDENCE-BASED MEDICINE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; PATIENT ADVOCACY; PATIENT CARE; PATIENT COMPLIANCE; PATIENT EDUCATION AS TOPIC; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE; RESEARCH DESIGN; SOCIAL SUPPORT;

EID: 84978532263     PISSN: 11769106     EISSN: 11782005     Source Type: Journal    
DOI: 10.2147/COPD.S107571     Document Type: Review

References (46)

1. Centers for Disease Control and Prevention (CDC). Chronic obstructive pulmonary disease among adults - United States, 2011. MMWR Morb Mortal Wkly Rep. 2012;61(46): 938-943.
2. Seamark D, Blake SD, Seamark CJ, Halpin DM. Living with severe chronic obstructive pulmonary disease (COPD): perceptions of patients and their carers. An interpretative phenomenological analysis. Palliat Med. 2004;18(7): 619-625.
3. Halbert R, Natoli JL, Gano A, Badamgarav E, Buist A, Mannino DM. Global burden of COPD: systematic review and meta-analysis. Eur Respir J. 2006;28(3): 523-532.
4. Lopez AD, Shibuya K, Rao C, et al. Chronic obstructive pulmonary disease: current burden and future projections. Eur Respir J. 2006;27(2): 397-412.
5. Mannino DM, Buist AS. Global burden of COPD: risk factors, prevalence, and future trends. Lancet. 2007;370(9589): 765-773.
6. Walker P, Mitchell P, Diamantea F, Warburton C, Davies L. Effect of primary-care spirometry on the diagnosis and management of COPD. Eur Respir J. 2006;28(5): 945-952.
7. Vestbo J, Hurd SS, Agustí AG, et al. Global strategy for the diagnosis, management, and prevention of chronic obstructive pulmonary disease: GOLD executive summary. Am J Respir Crit Care Med. 2013;187(4): 347-365.
8. Overington JD, Huang YC, Abramson MJ, et al. Implementing clinical guidelines for chronic obstructive pulmonary disease: barriers and solutions. J Thorac Dis. 2014;6(11): 1586-1596.
9. Scanlon PD, Connett JE, Waller LA, et al. Smoking cessation and lung function in mild-to-moderate chronic obstructive pulmonary disease: the Lung Health Study. Am J Respir Crit Care Med. 2000;161(2 pt 1): 381-390.
10. Benzo R, Flume PA, Turner D, Tempest M. Effect of pulmonary rehabilitation on quality of life in patients with COPD: the use of SF-36 summary scores as outcomes measures. J Cardiopulm Rehabil Prev. 2000;20(4): 231-234.
11. Moullec G, Laurin C, Lavoie KL, Ninot G. Effects of pulmonary rehabilitation on quality of life in chronic obstructive pulmonary disease patients. Curr Opin Pulm Med. 2011;17(2): 62-71.
12. Sabaté E. Adherence to Long-Term Therapies: Evidence for Action. Geneva: World Health Organization; 2003.
13. Ta M, George J. Management of COPD in Australia after the publication of national guidelines. Intern Med J. 2011;41: 263-270.
14. Effective Practice and Organisation of Care (EPOC) [webpage on the Internet]. EPOC Resources for review authors. Norwegian Centre for the Health Services; 2015. Available from: http://epoc.cochrane.org/epoc-specific-resources-for-review-authors. Accessed June 3, 2016.
15. Abraham C, Michie S. A taxonomy of behavior change techniques used in interventions. Health Psychol. 2008;27(3): 379-387.
16. Regan TW, Lambert SD, Girgis A, Kelly B, Kayser K, Turner J. Do couple-based interventions make a difference for couples affected by cancer? A systematic review. BMC Cancer. 2012;12(1): 279.
17. Visser-Meily A, van Heugten C, Post M, Schepers V, Lindeman E. Intervention studies for caregivers of stroke survivors: a critical review. Patient Educ Couns. 2005;56(3): 257-267.
18. Nakken N, Janssen DJ, van den Bogaart EH, et al. Informal caregivers of patients with COPD: Home Sweet Home? Eur Respir Rev. 2015;24(137): 498-504.
19. Bandura A. Social Learning Theory. New York: General Learning Corporation; 1971.
20. Bainbridge HT, Cregan C, Kulik CT. The effect of multiple roles on caregiver stress outcomes. J Appl Psychol. 2006;91(2): 490-497.
21. Simpson AC, Rocker GM. Advanced chronic obstructive pulmonary disease: impact on informal caregivers. J Palliat Care. 2008;24: 49-54.
22. Kasikci M, Alberto J. Family support, perceived self-efficacy and self-care behaviour of Turkish patients with chronic obstructive pulmonary disease. J Clin Nurs. 2007;16: 1468-1478.
23. Trivedi R, Bryson C, Udris E, Au D. The influence of informal caregivers on adherence in COPD patients. Ann Behav Med. 2012;44: 66-72.
24. DiMatteo M. Social support and patient adherence to medical treatment: a meta-analysis. Health Psychol. 2004;23(2): 207-218.
25. Martínez-Martín P, Forjaz MJ, Frades-Payo B, et al. Caregiver burden in Parkinson’s disease. Mov Disord. 2007;22(7): 924-931.
26. Institute of Medicine. Crossing the Quality Chasm: A New Health System for the Twenty-First Century. Washington, DC: National Academy Press; 2001.
27. Giacomini M, DeJean D, Simeonov D, Smith A. Experiences of living and dying with COPD: a systematic review and synthesis of the qualitative empirical literature. Ont Health Technol Assess Ser. 2012;12(13): 1-47.
28. Pooler C. Qualitative evidence in chronic obstructive pulmonary disease. Handbook of Qualitative Health Research for Evidence-Based Practice [Internet]. Olson, Karin, Young, Richard A., Schultz, Izabela Z, editors. New York: Springer; 2016: 291-318.
29. Moher D, Liberati A, Tetzlaff J, Altman DG; The PRISMA Group. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. PLoS Med. 2009;6(6): e1000097.
30. Boxall AM, Barclay L, Sayers A, Caplan GA. Managing chronic obstructive pulmonary disease in the community: a randomized controlled trial of home-based pulmonary rehabilitation for elderly housebound patients. J Cardiopulm Rehabil. 2005;25(6): 378-385.
31. Egan E, Clavarino A, Burridge L, Teuwen M, White E. A randomized control trial of nursing-based case management for patients with chronic obstructive pulmonary disease. Lippincotts Case Manag. 2002;7(5): 170-179.
32. Ojoo JC, Moon T, McGlone S, et al. Patients’ and carers’ preferences in two models of care for acute exacerbations of COPD: results of a randomised controlled trial. Thorax. 2002;57(2): 167-169.
33. Abad-Corpa E, Royo-Morales T, Iniesta-Sánchez J, et al. Evaluation of the effectiveness of hospital discharge planning and follow-up in the primary care of patients with chronic obstructive pulmonary disease. J Clin Nurs. 2013;22(5-6): 669-680.
34. Aimonino Ricauda N, Tibaldi V, Leff B, et al. Substitutive "hospital at home" versus inpatient care for elderly patients with exacerbations of chronic obstructive pulmonary disease: a prospective randomized, controlled trial. J Am Geriatr Soc. 2008;56(3): 493-500.
35. Monninkhof E, van der Valk P, van der Palen J, van Herwaarden C, Zielhuis G. Effects of a comprehensive self-management programme in patients with chronic obstructive pulmonary disease. Eur Respir J. 2003;22(5): 815-820.
36. Lainscak M, Kadivec S, Kosnik M, et al. Discharge coordinator intervention prevents hospitalizations in patients with COPD: a randomized controlled trial. J Am Med Dir Assoc. 2013;14(6): 450.e1-e6.
37. Jonsdottir H, Amundadottir OR, Gudmundsson G, et al. Effectiveness of a partnership-based self-management programme for patients with mild and moderate chronic obstructive pulmonary disease: a pragmatic randomized controlled trial. J Adv Nursing. 2015;71(11): 2634-2649.
38. Marques A, Jácome C, Cruz J, Gabriel R, Brooks D, Figueiredo D. Family-based psychosocial support and education as part of pulmonary rehabilitation in COPD: a randomized controlled trial. Chest. 2015;147(3): 662-672.
39. Ugalde A, Meinir K, Schofield P. Supporting informal caregivers of people with advanced cancer: a literature review. Aust J Cancer Nurs. 2011;12(2): 12-16.
40. Matthews AK, Sellergren SA, Manfredi C, Williams M. Factors influencing medical information seeking among African American cancer patients. J Health Commun. 2002;7(3): 205-219.
41. DiMatteo MR. Social support and patient adherence to medical treatment: a meta-analysis. Health Psychol. 2004;23(2): 207-218.
42. Xiaolian J, Chaiwan S, Panuthai S, Yijuan C, Lei Y, Jiping L. Family support and self-care behavior of Chinese chronic obstructive pulmonary disease patients. Nurs Health Sci. 2002;4(1-2): 41-49.
43. Hoffman B, Stovall E. Survivorship perspectives and advocacy. Journal of Clinical Oncology. 2006;24: 5154-5159.
44. Pedro LW. Quality of life for long-term survivors of cancer: influencing variables. Cancer Nurs. 2001;24(1): 1-11.
45. Bodenmann G, Cina A. Stress and Coping Among Stable-Satisfied, Stable-Distressed, and Separated/Divorced Swiss Couples: A 5-Year Prospective Longitudinal Study. Journal of Divorce & Remarriage. 2005;44(1): 71-89.
46. Manne S, Badr H. Intimacy processes and psychological distress among couples coping with head and neck or lung cancers. Psychooncology. 2010;19(9): 941-954.