-
2
-
-
84923762812
-
A new initiative on precision medicine
-
Collins FS, Varmus H. A new initiative on precision medicine. N Engl J Med 2015; 372: 793-795
-
(2015)
N Engl J Med
, vol.372
, pp. 793-795
-
-
Collins, F.S.1
Varmus, H.2
-
3
-
-
84882449721
-
Broad consent versus dynamic consent in biobank research: Is passive participation an ethical problem?
-
Steinsbekk KS, Myskja BK, Solberg B. Broad consent versus dynamic consent in biobank research: is passive participation an ethical problem?. Eur J Hum Genet 2013; 21: 897-902
-
(2013)
Eur J Hum Genet
, vol.21
, pp. 897-902
-
-
Steinsbekk, K.S.1
Myskja, B.K.2
Solberg, B.3
-
4
-
-
84971635812
-
Problems, challenges and promises: Perspectives on precision medicine
-
Duffy DJ. Problems, challenges and promises: perspectives on precision medicine. Brief Bioinform DOI: 10.1093/bib/bbv060
-
Brief Bioinform
-
-
Duffy, D.J.1
-
5
-
-
77952294318
-
Meeting the governance challenges of next-generation biorepository research
-
Fullerton SM, Anderson NR, Guzauskas G, Freeman D, Fryer-Edwards K. Meeting the governance challenges of next-generation biorepository research. Sci Transl Med 2010; 2: 15cm3
-
(2010)
Sci Transl Med
, vol.2
, pp. 15cm3
-
-
Fullerton, S.M.1
Anderson, N.R.2
Guzauskas, G.3
Freeman, D.4
Fryer-Edwards, K.5
-
6
-
-
38449089111
-
The uneasy ethical and legal underpinnings of large-scale genomic biobanks
-
Greely HT. The uneasy ethical and legal underpinnings of large-scale genomic biobanks. Annu Rev Genomics Hum Genet 2007; 8: 343-364
-
(2007)
Annu Rev Genomics Hum Genet
, vol.8
, pp. 343-364
-
-
Greely, H.T.1
-
7
-
-
78751681441
-
Research practice and participant preferences: The growing gulf
-
Trinidad SB, Fullerton SM, Ludman EJ, Jarvik GP, Larson EB, Burke W. Research practice and participant preferences: The growing gulf. Science 2011; 331: 287-288
-
(2011)
Science
, vol.331
, pp. 287-288
-
-
Trinidad, S.B.1
Fullerton, S.M.2
Ludman, E.J.3
Jarvik, G.P.4
Larson, E.B.5
Burke, W.6
-
8
-
-
77949828684
-
Attitudes toward genetic research review: Results from a national survey of professionals involved in human subjects protection
-
Lemke AA, Trinidad SB, Edwards KL, Starks H, Wiesner GL. Attitudes toward genetic research review: results from a national survey of professionals involved in human subjects protection. J Empir Res Hum Res Ethics 2010; 5: 83-91
-
(2010)
J Empir Res Hum Res Ethics
, vol.5
, pp. 83-91
-
-
Lemke, A.A.1
Trinidad, S.B.2
Edwards, K.L.3
Starks, H.4
Wiesner, G.L.5
-
9
-
-
84856764069
-
Genetics researchers and IRB professionals attitudes toward genetic research review: A comparative analysis
-
Edwards KL, Lemke AA, Trinidad SB, Lewis SM, Starks H, Snapin KW, et al. Genetics researchers and IRB professionals attitudes toward genetic research review: a comparative analysis. Genet Med 2012; 14: 236-242
-
(2012)
Genet Med
, vol.14
, pp. 236-242
-
-
Edwards, K.L.1
Lemke, A.A.2
Trinidad, S.B.3
Lewis, S.M.4
Starks, H.5
Snapin, K.W.6
-
10
-
-
60149102137
-
Broadening consent-and diluting ethics?
-
Hofmann B. Broadening consent-and diluting ethics?. J Med Ethics 2009; 35: 125-129
-
(2009)
J Med Ethics
, vol.35
, pp. 125-129
-
-
Hofmann, B.1
-
11
-
-
38549099198
-
Biobanks and blanket consent: The proper place of the public good and public perception rationales
-
Caulfield T. Biobanks and blanket consent: The proper place of the public good and public perception rationales. King Law J 2007; 18: 2090-2026
-
(2007)
King Law J
, vol.18
, pp. 2090-2126
-
-
Caulfield, T.1
-
12
-
-
1842556267
-
Coding and consent: Moral challenges of the database project in Iceland
-
Arnason V. Coding and consent: moral challenges of the database project in Iceland. Bioethics 2004; 18: 27-49
-
(2004)
Bioethics
, vol.18
, pp. 27-49
-
-
Arnason, V.1
-
13
-
-
84923863238
-
Participants understanding of informed consent in clinical trials over three decades: Systematic review and meta-analysis
-
Tam NT, Thoa LTB, Long NP, Trang NTH, Hirayama K, Karbwang J. Participants understanding of informed consent in clinical trials over three decades: systematic review and meta-analysis. Bull World Health Organ 2015; 93: 186-198H
-
(2015)
Bull World Health Organ
, vol.93
, pp. 186-198H
-
-
Tam, N.T.1
Thoa, L.T.B.2
Long, N.P.3
Trang, N.T.H.4
Hirayama, K.5
Karbwang, J.6
-
14
-
-
84955313029
-
Participant views on consent in cancer genetic research: Preparing for the precision medicine era
-
Edwards KL, Korngiebel DM, Pfeifer L, Renz A, Shridhar NN, Wenzel L, et al. Participant views on consent in cancer genetic research: preparing for the precision medicine era. J Community Genet 2016; 7: 133-143
-
(2016)
J Community Genet
, vol.7
, pp. 133-143
-
-
Edwards, K.L.1
Korngiebel, D.M.2
Pfeifer, L.3
Renz, A.4
Shridhar, N.N.5
Wenzel, L.6
-
15
-
-
3142694082
-
The cancer genetics network: Recruitment results and pilot studies
-
Anton-Culver H, Ziogas A, Bowen D, Finkelstein D, Griffin C Hanson J, et al. The Cancer Genetics Network: recruitment results and pilot studies. Community Genet 2003; 6: 171-177
-
(2003)
Community Genet
, vol.6
, pp. 171-177
-
-
Anton-Culver, H.1
Ziogas, A.2
Bowen, D.3
Finkelstein, D.4
Griffin Hanson C, J.5
-
16
-
-
0031154225
-
Use of human tissues in research: Clarifying clinician and researcher roles and information flows
-
Merz JF, Sankar P, Taube SE, Livolsi V. Use of human tissues in research: clarifying clinician and researcher roles and information flows. J Investig Med 1997; 45: 252-257
-
(1997)
J Investig Med
, vol.45
, pp. 252-257
-
-
Merz, J.F.1
Sankar, P.2
Taube, S.E.3
Livolsi, V.4
-
17
-
-
84938602585
-
What should be the character of the researcher-participant relationship? Views of participants in a longstanding cancer genetic registry
-
Condit CM, Korngiebel DM, Pfeifer M, Renz AD, Bowen DJ, Kaufman D, et al. What should be the character of the researcher-participant relationship?. Views of participants in a longstanding cancer genetic registry. IRB 2015; 37: 1-10
-
(2015)
IRB
, vol.37
, pp. 1-10
-
-
Condit, C.M.1
Korngiebel, D.M.2
Pfeifer, M.3
Renz, A.D.4
Bowen, D.J.5
Kaufman, D.6
-
20
-
-
84863304598
-
-
R Core Team: R R Foundation for Statistical Computing Vienna 2015; MASS package (code for ordinal logistic regression; Venables WN Ripley BD. Modern Applied Statistics with S ed 4. Springer New York
-
R Core Team: R. A Language and Environment for Statistical Computing. R Foundation for Statistical Computing, Vienna, 2015; MASS package (code for ordinal logistic regression; Venables WN, Ripley BD. Modern Applied Statistics with S, ed 4. Springer, New York, 2002
-
(2002)
A Language and Environment for Statistical Computing
-
-
-
22
-
-
77956634832
-
Glad you asked: Participants opinions of re-consent for DbGap data submission
-
Ludman EJ, Fullerton SM, Spangler D, Trinidad SB, Fujii MM, Jarvik GP, et al. Glad you asked: participants opinions of re-consent for DbGap data submission. J Empir Res Hum Res Ethics 2010; 5: 9-16
-
(2010)
J Empir Res Hum Res Ethics
, vol.5
, pp. 9-16
-
-
Ludman, E.J.1
Fullerton, S.M.2
Spangler, D.3
Trinidad, S.B.4
Fujii, M.M.5
Jarvik, G.P.6
-
23
-
-
80053385631
-
Attitudes toward genetic research review: Results from a survey of human genetics researchers
-
Edwards KL, Lemke AA, Trinidad SB, Lewis SM, Starks H, Quinn Griffin MT, Wiesner GL. Attitudes toward genetic research review: results from a survey of human genetics researchers. Public Health Genomics 2011; 14: 337-345
-
(2011)
Public Health Genomics
, vol.14
, pp. 337-345
-
-
Edwards, K.L.1
Lemke, A.A.2
Trinidad, S.B.3
Lewis, S.M.4
Starks, H.5
Quinn Griffin, M.T.6
Wiesner, G.L.7
-
24
-
-
71949131197
-
Broad consent exceptions to consent and the question of using biological samples for research purposes different from the initial collection purpose
-
Petrini C: Broad consent, exceptions to consent and the question of using biological samples for research purposes different from the initial collection purpose Soc Sci Med 2010 70 217-220
-
(2010)
Soc Sci Med
, vol.70
, pp. 217-220
-
-
Petrini, C.1
-
25
-
-
40849139474
-
Ethical, legal, and social implications of biobanks for genetic research
-
Haga SB, Beskow LM. Ethical, legal, and social implications of biobanks for genetic research. Adv Genet 2008; 60: 505-544
-
(2008)
Adv Genet
, vol.60
, pp. 505-544
-
-
Haga, S.B.1
Beskow, L.M.2
-
26
-
-
84893609873
-
Public preferences regarding informed consent models for participation in population-based genomic research
-
Platt J, Bollinger J, Dvoskin R, Kardia SL, Kaufman D. Public preferences regarding informed consent models for participation in population-based genomic research. Genet Med 2014; 16: 11-18
-
(2014)
Genet Med
, vol.16
, pp. 11-18
-
-
Platt, J.1
Bollinger, J.2
Dvoskin, R.3
Kardia, S.L.4
Kaufman, D.5
-
27
-
-
84924365870
-
Evaluating the consent preferences of UK research volunteers for genetic and clinical studies
-
Kelly SE, Spector TD, Cherkas LF, Prainsack B, Harris JM. Evaluating the consent preferences of UK research volunteers for genetic and clinical studies. PLoS One 2015; 10: 1-12
-
(2015)
Plos One
, vol.10
, pp. 1-12
-
-
Kelly, S.E.1
Spector, T.D.2
Cherkas, L.F.3
Prainsack, B.4
Harris, J.M.5
-
28
-
-
57449115536
-
Subjects matter: A survey of public opinions about a large genetic cohort study
-
Kaufman D, Murphy J, Scott J, Hudson K. Subjects matter: a survey of public opinions about a large genetic cohort study. Genet Med 2008; 10: 831-839
-
(2008)
Genet Med
, vol.10
, pp. 831-839
-
-
Kaufman, D.1
Murphy, J.2
Scott, J.3
Hudson, K.4
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