I’m Still Me: Inspiration and Instruction from Individuals with Brain Cancer

Journal of Health Care Chaplaincy

Volumn 23, Issue 1, 2017, Pages 15-33

  Piderman, Katherine M ^a   Egginton, Jason S ^a   Ingram, Cory ^a   Dose, Ann Marie ^a   Yoder, Timothy J ^a   Lovejoy, Laura A ^a   Swanson, Spence W ^a   Hogg, James T ^a   Lapid, Maria I ^a   Jatoi, Aminah ^a   Remtema, Megan S ^a   Tata, Beba S ^a   Breitkopf, Carmen Radecki ^a  

^a MAYO CLINIC   (United States)

Author keywords

brain cancer; chaplains; legacy; qualitative research; spirituality

Indexed keywords

ADULT; AGED; BRAIN TUMOR; COPING BEHAVIOR; FEMALE; GRIEF; HOSPITAL SUBDIVISIONS AND COMPONENTS; HUMAN; HUMAN RELATION; MALE; MIDDLE AGED; PSYCHOLOGY; QUALITATIVE RESEARCH; RELIGION; SELF CONCEPT; YOUNG ADULT;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; BRAIN NEOPLASMS; CHAPLAINCY SERVICE, HOSPITAL; FEMALE; GRIEF; HUMANS; INTERPERSONAL RELATIONS; MALE; MIDDLE AGED; QUALITATIVE RESEARCH; RELIGION; SELF CONCEPT; YOUNG ADULT;

EID: 84978077105     PISSN: 08854726     EISSN: 15286916     Source Type: Journal    
DOI: 10.1080/08854726.2016.1196975     Document Type: Article

References (33)

1. Ando, M., Morita, T., Lee, V., & Okamoto, T., (2008). A pilot study of transformation, attributed meanings to the illness, and spiritual well-being for terminally ill cancer patients. Palliative & Supportive Care, 6(4), 335–340. doi:10.1017/s1478951508000539
2. Borneman, T., Ferrell, B., & Puchalski, C. M., (2010). Evaluation of the FICA tool for spiritual assessment. Journal of Pain & Symptom Management, 40(2), 163–173. doi:10.1016/j.jpainsymman.2009.12.019
3. Charon, R., (2000). Literature and medicine:Origins and destinies. Academic Medicine, 75(1), 23–27. doi:10.1097/00001888-200001000-00008
4. Chochinov, H. M., (2002). Dignity-conserving care–A new model for palliative care:Helping the patient feel valued. Journal of the American Medical Association, 287(17), 2253–2260. doi:10.1001/jama.287.17.2253
5. Chochinov, H. M., Kristjanson, L. J., Breitbart, W., McClement, S., Hack, T. F., Hassard, T., & Harlos, M., (2011). Effect of dignity therapy on distress and end-of-life experience in terminally ill patients:A randomized controlled trial. Lancet Oncology, 12(8), 753–762. doi:10.1016/S1470-2045(11)70153-X
6. De Ieso, P. B., Schick, U., Rosenfelder, N., Mohammed, K., & Ross, G. M., (2015). Breast cancer brain metastases - A 12 year review of treatment outcomes. The Breast, 24(4), 426–433. doi:10.1016/j.breast.2015.03.007
7. Dose, A. M., Leonard, B., McAlpine, C. P., & Kreitzer, M. J., (2014). The meaning of spirituality at the end of life. Journal of Hospice & Palliative Nursing, 16(3), 158–164. doi:10.1097/njh.0000000000000041
8. Erikson, E. H., (1982). The life cycle completed. New York, NY:W. W. Norton.
9. Erikson, E. H., Erikson, J. M., & Kivnick, H. Q., (1986). Vital involvement in old age. New York, NY:W. W. Norton.
10. Fitchett, G., Emanuel, L., Handzo, G., Boyken, L., & Wilkie, D. J., (2015). Care of the human spirit and the role of dignity therapy:A systematic review of dignity therapy research. BMC Palliative Care, 14(8). doi:10.1186/s12904-015-0007-1
11. Frank, A. W., (1998). Just listening:Narrative and deep illness. Families, Systems, & Health, 16(3), 197–212. doi:10.1037/h0089849
12. Frank, A. W., (2009). The necessity and dangers of illness narratives, especially at the end of life. In Y., Gunaratnam & D., Oliviere (Eds.), Narrative and stories in health care:Illness, dying, and bereavement (pp. 161–176). New York, NY:Oxford University Press.
13. Gale, N. K., Heath, G., Cameron, E., Rashid, S., & Redwood, S., (2013). Using the framework method for the analysis of qualitative data in multi-disciplinary health research. BMC Medical Research Methodology, 13, 117. doi:10.1186/1471-2288-13-117
14. Gallagher, T. M., (2007). Spiritual consolation:The Ignatian guide for the greater discernment of spirits. New York, NY:Crossroads Publishing.
15. Glaser, B. G., & Strauss, A. L., (2012). Discovery of grounded theory:Strategies for qualitative research (Seventh ed.). London, UK:Transaction Publishers.
16. Grossoehme, D. H., (2013). Chaplaincy and narrative theory:A response to risk’s case study. Journal of Health Care Chaplaincy, 19(3), 99–111. doi:10.1080/08854726.2013.806119
17. Gu, X. D., Cai, Y. T., Zhou, Y. M., Li, Z. Y., Xiang, J. B., & Chen, Z. Y., (2015). Prognostic factors and multidisciplinary treatment modalities for brain metastases from colorectal cancer:analysis of 93 patients. BMC Cancer, 15(1), 1–6. doi:10.1186/s12885-015-1933-2
18. Ingram, C., (2014). A paradigm shift:Healing, quality of life, and a professional choice. Journal of Pain and Symptom Management, 47(1), 198–201. doi:10.1016/j.jpainsymman.2013.09.015
19. Kim, S. S., Harford, J. B., Pirollo, K. F., & Chang, E. H., (2015). Effective treatment of glioblastoma requires crossing the blood-brain barrier and targeting tumors including cancer stem cells:The promise of nanomedicine. Biochemical and Biophysical Research Communications, 468(3), 485–489. doi:10.1016/j.bbrc.2015.06.137
20. Kim, S. Y., Hong, C. K., Kim, T. H., Hong, J. B., Park, C. H., Chang, Y. S., & Byun, M. K., (2015). Efficacy of surgical treatment for brain metastasis in patients with non-small cell lung cancer. Yonsei Medical Journal, 56(1), 103–111. doi:10.3349/ymj.2015.56.1.103
21. Kleinman, A., (1988). The illness narratives:Suffering, healing, and the human condition. New York, NY:Basic Books.
22. Lange, F. D., (2011). Inventing yourself:How older adults deal with the pressure of late-modern identity construction. In E. B. G., Kenyon & W. L., Randall (Eds.), Storying later life:Issues, investigations, and interventions in narrative gerontology (pp. 51–65). New York, NY:Oxford University Press.
23. Newberry, A. G., Choi, C. W. J., Donovan, H. S., Schulz, R., Bender, C., Given, B., & Sherwood, P., (2013). Exploring spirituality in family caregivers of patients with primary malignant brain tumors across the disease trajectory. Oncology Nursing Forum, 40(3), E119–E125. doi:10.1188/13.ONF.E119-E125
24. Pargament, K. I., (2007). Spiritually integrated psychotherapy:Understanding and addressing the sacred. New York, NY:Guilford Press.
25. Piderman, K. M., Radecki Breitkopf, C., Jenkins, S. M., Euerle, T. T., Lovejoy, L. A., Kwete, G. M., & Jatoi, A., (2015). A chaplain-led spiritual life review pilot study for patients with brain cancers and other degenerative neurologic diseases. Rambam Maimonides Medical Journal, 6(2), e0015. doi:10.5041/RMMJ.10199
26. Piderman, K. M., Radecki Breitkopf, C., Jenkins, S. M., Lapid, M. I., Kwete, G. M., Sytsma, T. T., & Jatoi, A., (2015). The impact of a spiritual legacy intervention in patients with brain cancers and other neurologic illnesses and their support persons. Psycho-Oncology. [e-pub ahead of print] doi:10.1002/pon.4031
27. Piderman, K. M., Radecki Breitkopf, C., Jenkins, S. M., Lovejoy, L. A., Dulohery, Y. M., Marek, D. V., & Jatoi, A., (2015). The feasibility and educational value of hear my voice, a chaplain-led spiritual life review process for patients with brain cancers and progressive neurologic conditions. Journal of Cancer Education, 30, 209–212. doi:10.1007/s13187-014-0686-y
28. Piderman, K. M., Kung, S., Jenkins, S. M., Euerle, T. T., Yoder, T. J., Kwete, G. M., & Lapid, M. I., (2015). Respecting the spiritual side of advanced cancer care:A systematic review. Current Oncology Reports, 17(2), 6. doi:10.1007/s11912-014-0429-6
29. Puchalski, C., Ferrell, B., Virani, R., Otis-Green, S., Baird, P., Bull, J., & Sulmasy, D., (2009). Improving the quality of spiritual care as a dimension of palliative care:The report of the consensus conference. Journal of Palliative Medicine, 12(10), 885–904. doi:10.1089/jpm.2009.0142
30. Risk, J. L., (2013). Building a new life:a chaplain’s theory based case study of chronic illness. Journal of Health Care Chaplaincy, 19(3), 81–98. doi:10.1080/08854726.2013.806117
31. Ritchie, J., & Spencer, L., (1994). Qualitative data analysis for applied policy research. In A., Byrman & R., Burgess (Eds.), Analyzing qualitative data (pp. 173–194). New York, NY:Routledge.
32. Srivastava, A., & Thomson, S. B., (2009). Framework analysis:A qualitative methodology for applied policy research. Journal of Administration and Governance, 4, 72–79.
33. Tong, A., Sainsbury, P., & Craig, J., (2007). Consolidated criteria for reporting qualitative research (COREQ):A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19(6), 349–357.