Data quality monitoring and performance metrics of a prospective, population-based observational study of maternal and newborn health in low resource settings

Reproductive Health

Volumn 12, Issue 2, 2015, Pages

  Goudar, Shivaprasad S ^a   Stolka, Kristen B ^b   Koso Thomas, Marion ^c   Honnungar, Narayan V ^a   Mastiholi, Shivanand C ^a   Ramadurg, Umesh Y ^d   Dhaded, Sangappa M ^a   Pasha, Omrana ^e   Patel, Archana ^f   Esamai, Fabian ^g   Chomba, Elwyn ^h   Garces, Ana ⁱ   Althabe, Fernando ^j   Carlo, Waldemar A ^k   Goldenberg, Robert L ^l   Hibberd, Patricia L ^m   Liechty, Edward A ⁿ   Krebs, Nancy F ^o   Hambidge, Michael K ^o   Moore, Janet L ^b   Wallace, Dennis D ^b   Derman, Richard J ^q   Bhalachandra, Kodkany S ^a   Bose, Carl L ^p   more..

^a JAWAHARLAL NEHRU MEDICAL COLLEGE   (India)

^b RTI INTERNATIONAL   (United States)

^c EUNICE KENNEDY SHRIVER NATIONAL INSTITUTE OF CHILD HEALTH AND HUMAN DEVELOPMENT   (United States)

^d S Nijalingappa Medical College   (India)

^e AGA KHAN UNIVERSITY   (Pakistan)

^f GOVERNMENT MEDICAL COLLEGE   (India)

^g University School of Medicine   (Kenya)

^h UNIVERSITY TEACHING HOSPITAL   (Zambia)

ⁱ IMSALUD/San Carlos University   (Guatemala)

^j INSTITUTE FOR CLINICAL EFFECTIVENESS AND HEALTH POLICY   (Argentina)

^k University of Alabama at Birmingham   (United States)

^l Columbia University ^*  (United States)

^m MASSACHUSETTS GENERAL HOSPITAL   (United States)

ⁿ INDIANA UNIVERSITY   (United States)

^o UNIVERSITY OF COLORADO SCHOOL OF MEDICINE   (United States)

^p UNIVERSITY OF NORTH CAROLINA SCHOOL OF MEDICINE   (United States)

^q CHRISTIANA CARE HEALTH SYSTEM   (United States)

more..

Author keywords

Data monitoring; Data quality; Low income countries; Maternal health; Metrics; Newborn health; Perinatal registry

Indexed keywords

BIRTH WEIGHT; HUMAN; INFORMATION PROCESSING; LOWEST INCOME GROUP; MATERNAL WELFARE; MONITORING; OBSERVATIONAL STUDY; PREGNANCY OUTCOME; PUBLIC HEALTH; QUALITY CONTROL; QUANTITATIVE STUDY; REGISTER; CHILD HEALTH; DEVELOPING COUNTRY; EPIDEMIOLOGY; FEMALE; HEALTH CARE PLANNING; INFANT; MATERNAL MORTALITY; MEASUREMENT ACCURACY; NEWBORN; PERINATAL MORTALITY; PREGNANCY; PROSPECTIVE STUDY; STANDARDS; STATISTICS AND NUMERICAL DATA;

DATA ACCURACY; DEVELOPING COUNTRIES; FEMALE; HUMANS; INFANT; INFANT HEALTH; INFANT, NEWBORN; MATERNAL HEALTH; MATERNAL MORTALITY; MEDICALLY UNDERSERVED AREA; PERINATAL MORTALITY; PREGNANCY; PREGNANCY OUTCOME; PROSPECTIVE STUDIES; REGISTRIES;

EID: 84977493600     PISSN: None     EISSN: 17424755     Source Type: Journal    
DOI: 10.1186/1742-4755-12-S2-S2     Document Type: Article

References (25)

1. UNICEF: Committing to Child Survival: A Promise Renewed, Progress Report 2014. 2014, http://www.unicef.org/publications/index-75736.html. Accessed on January 15, 2015
2. WHO, UNICEF, UNFPA: World Bank, United Nations Population Division: Trends in Maternal Mortality: 1990 to 2013. 2013, http://www.who.int/reproductivehealth/publications/monitoring/maternal-mortality-2013/en/. Accessed on January 15, 2015
3. Målqvist M, Eriksson L, Nguyen TN, Fagerland LI, Dinh PH, Wallin L, Ewald U, Persson L-A: Unreported births and deaths, a severe obstacle for improved neonatal survival in low-income countries; a population based study. BMC Int Health Hum Rights. 2008, 8: 4-10.1186/1472-698X-8-4.
4. Hill K, Choi Y: Neonatal mortality in the developing world. Demogr Res. 2006, 14: 429-452.
5. Irgens LM: The Medical Birth Registry of Norway. Epidemiological research and surveillance throughout 30 years. Acta Obstet Gynecol Scand. 2000, 79: 435-439. 10.1080/j.1600-0412.2000.079006435.x.
6. Goudar SS, Carlo Wa, McClure EM, Pasha O, Patel A, Esamai F, Chomba E, Garces A, Althabe F, Kodkany B, Sami N, Derman RJ, Hibberd PL, Liechty Ea, Krebs NF, Hambidge KM, Buekens P, Moore J, Wallace D, Jobe AH, Koso-Thomas M, Wright LL, Goldenberg RL: The Maternal and Newborn Health Registry Study of the Global Network for Women's and Children's Health Research. Int J Gynaecol Obstet. 2012, 118: 190-3. 10.1016/j.ijgo.2012.04.022.
7. Bergsjo P, Irgens LM, Lie RT: Registry based perinatal research. Acta Obs Gynecol Scand. 2000, 79: 433-434.
8. Vaktskjold A, Talykova L, Chashchin V, Nieboer E, Odland JO: The Kola Birth Registry and perinatal mortality in Moncegorsk, Russia. Acta Obs Gynecol Scand. 2004, 83
9. Anda EE, Nieboer E, Voitov AV, Kovalenko AA, Lapina YM, Voitova EA, Kovalenko LF, Odland JO: Implementation, quality control and selected pregnancy outcomes of the Murmansk County Birth Registry in Russia. Int J Circumpolar Health. 2008, 67: 318-334.
10. Chiba Y, Oguttu MA, Nakayama T: Quantitative and qualitative verification of data quality in the childbirth registers of two rural district hospitals in Western Kenya. Midwifery. 2012, 28: 329-39. 10.1016/j.midw.2011.05.005.
11. Bray F, Parkin DM: Evaluation of data quality in the cancer registry: principles and methods. Part I: comparability, validity and timeliness. Eur J Cancer. 2009, 45: 747-55. 10.1016/j.ejca.2008.11.032.
12. Parkin DM, Bray F: Evaluation of data quality in the cancer registry: principles and methods Part II. Completeness. Eur J Cancer. 2009, 45: 756-64. 10.1016/j.ejca.2008.11.033.
13. Larsen IK, Småstuen M, Johannesen TB, Langmark F, Parkin DM, Bray F, Møller B: Data quality at the Cancer Registry of Norway: an overview of comparability, completeness, validity and timeliness. Eur J Cancer. 2009, 45: 1218-31. 10.1016/j.ejca.2008.10.037.
14. Bose C, Bausserman M, Goldenberg R, McClure E: The Global Network Maternal Newborn Health Registry: An Overview. BMC Reprod Heal. 2015.
15. Pasha O, McClure EM, Wright LL, Saleem S, Goudar SS, Chomba E, Patel A, Esamai F, Garces A, Althabe F, Kodkany B, Mabeya H, Manasyan A, Carlo WA, Derman RJ, Hibberd PL, Liechty EK, Krebs N, Hambidge KM, Buekens P, Moore J, Jobe AH, Koso-Thomas M, Wallace DD, Stalls S, Goldenberg RL: A combined community- and facility-based approach to improve pregnancy outcomes in low-resource settings: a Global Network cluster randomized trial. BMC Med. 2013, 11: 12-10.1186/1741-7015-11-12.
16. Althabe F, Belizán JM, Mcclure EM, Hemingway-foday J, Berrueta M, Mazzoni A, Ciganda A, Goldenberg RL, Esamai F, Nyongesa P, Ayunga S, Liechty EA, Garces AL, Figueroa L, Hambidge KM, Chiwila M, Manasyan A, Pineda S, Meleth S, Thorsten V, Stolka K, Wallace DD, Koso-thomas M, Jobe AH, Buekens PM: A population-based, multifaceted strategy to implement antenatal corticosteroid treatment versus standard care for the reduction of neonatal mortality due to preterm birth in low-income and middle-income countries: the ACT cluster- randomised trial. Lancet. 2014, 6736: 1-11.
17. Bang A, Bellad R, Gisore P, Hibberd P, Patel A, Goudar S, Esamai F, Goco N, Meleth S, Derman RJ, Liechty Ea, McClure E, Carlo Wa, Wright LL: Implementation and evaluation of the Helping Babies Breathe curriculum in three resource limited settings: does Helping Babies Breathe save lives? A study protocol. BMC Pregnancy Childbirth. 2014, 14: 116-10.1186/1471-2393-14-116.
18. Pasha O, Goudar S, Patel A, Garces A, Esamai F, et al: Postpartum contraceptive use and unmet need for family planning in five low-income countries. Reprod Health.
19. Mahapatra P, Shibuya K, Lopez AD, Coullare F, Notzon FC, Rao C, Szreter S: Civil registration systems and vital statistics: successes and missed opportunities. Lancet. 2007, 370: 1653-63. 10.1016/S0140-6736(07)61308-7.
20. Mathers CD, Fat DM, Inoue M, Rao C, Lopez AD: Counting the dead and what they died from: an assessment of the global status of cause of death data. Bull World Health Organ. 2005, 015784
21. Cousens S, Blencowe H, Stanton C, Chou D, Ahmed S, Steinhardt L, Creanga Aa, Tunçalp O, Balsara ZP, Gupta S, Say L, Lawn JE: National, regional, and worldwide estimates of stillbirth rates in 2009 with trends since 1995: a systematic analysis. Lancet. 2011, 377: 1319-30. 10.1016/S0140-6736(10)62310-0.
22. Oestergaard MZ, Inoue M, Yoshida S, Mahanani WR, Gore FM, Cousens S, Lawn JE, Mathers CD: Neonatal mortality levels for 193 countries in 2009 with trends since 1990: a systematic analysis of progress, projections, and priorities. PLoS Med. 2011, 8: e1001080-10.1371/journal.pmed.1001080.
23. Glinianaia SV, Rankin J, Pless-Mulloli T, Pearce MS, Charlton M, Parker L: Temporal changes in key maternal and fetal factors affecting birth outcomes: a 32-year population-based study in an industrial city. BMC Pregnancy Childbirth. 2008, 8: 39-10.1186/1471-2393-8-39.
24. Aqil A, Lippeveld T, Hozumi D: PRISM framework: a paradigm shift for designing, strengthening and evaluating routine health information systems. Health Policy Plan. 2009, 24: 217-28. 10.1093/heapol/czp010.
25. Registrar General: SRS BULLETIN: Sample Registration System India. 2013, 48