Epidemiology and survival of idiopathic pulmonary fibrosis from national data in Canada

European Respiratory Journal

Volumn 48, Issue 1, 2016, Pages 187-195

  Hopkins, Robert B ^a,b   Burke, Natasha ^a,b   Fell, Charlene ^c   Dion, Genevieve ^d   Kolb, Martin ^b  

^a MCMASTER UNIVERSITY   (Canada)

^b MCMASTER UNIVERSITY   (Canada)

^c UNIVERSITY OF CALGARY   (Canada)

^d LAVAL UNIVERSITY   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; CANADA; CHILD; CHRONIC OBSTRUCTIVE LUNG DISEASE; EPIDEMIOLOGICAL DATA; FEMALE; FIBROSING ALVEOLITIS; HUMAN; INCIDENCE; INFANT; MAJOR CLINICAL STUDY; MALE; MORTALITY; PREVALENCE; PRIORITY JOURNAL; QUALITY OF LIFE; SEX DIFFERENCE; SURVIVAL; VERY ELDERLY; AGE DISTRIBUTION; CODING; EPIDEMIOLOGY; INTERNATIONAL CLASSIFICATION OF DISEASES; KAPLAN MEIER METHOD; MIDDLE AGED; NEWBORN; PRESCHOOL CHILD; SEX RATIO; STANDARDS; YOUNG ADULT;

ADOLESCENT; ADULT; AGE DISTRIBUTION; AGED; AGED, 80 AND OVER; CANADA; CHILD; CHILD, PRESCHOOL; CLINICAL CODING; FEMALE; HUMANS; IDIOPATHIC PULMONARY FIBROSIS; INCIDENCE; INFANT; INFANT, NEWBORN; INTERNATIONAL CLASSIFICATION OF DISEASES; KAPLAN-MEIER ESTIMATE; MALE; MIDDLE AGED; QUALITY OF LIFE; SEX DISTRIBUTION; YOUNG ADULT;

EID: 84977120300     PISSN: 09031936     EISSN: 13993003     Source Type: Journal    
DOI: 10.1183/13993003.01504-2015     Document Type: Article

References (23)

1. Ley B, Collard HR, King TE Jr. Clinical course and prediction of survival in idiopathic pulmonary fibrosis. Am J Respir Crit Care Med 2011; 183: 431-440.
2. Raghu G, Collard HR, Egan JJ, et al. An official ATS/ERS/JRS/ALAT statement: idiopathic pulmonary fibrosis: evidence-based guidelines for diagnosis and management. Am J Respir Crit Care Med 2011; 183: 788-824.
3. 107th United States Congress. Public Law 107-280: Rare Diseases Act of 2002 (House Report 107-543). Washington, United States Government Printing Office, November 6, 2002. Available from www.govtrack.us/ congress/bills/107/hr4013
4. Fernández Pérez ER, Daniels CE, Schroeder DR, et al. Incidence, prevalence, and clinical course of idiopathic pulmonary fibrosis: a population-based study. Chest 2010; 137: 129-137.
5. Navaratnam V, Fleming KM, West J, et al. The rising incidence of idiopathic pulmonary fibrosis in the UK. Thorax 2011; 66: 462-467.
6. Raghu G, Weycker D, Edelsberg J, et al. Incidence and prevalence of idiopathic pulmonary fibrosis. Am J Respir Crit Care Med 2006; 174: 810-816.
7. von Plessen C, Grinde O, Gulsvik A. Incidence and prevalence of cryptogenic fibrosing alveolitis in a Norwegian community. Respir Med 2003; 97: 428-435.
8. Olson AL, Swigris JJ. Idiopathic pulmonary fibrosis: diagnosis and epidemiology. Clin Chest Med 2012; 33: 41-50.
9. Nalysnyk L, Cid-Ruzafa J, Rotella P, et al. Incidence and prevalence of idiopathic pulmonary fibrosis: review of the literature. Eur Respir Rev 2012; 21: 355-361.
10. Kaunisto J, Salomaa ER, Hodgson U, et al. Idiopathic pulmonary fibrosis-a systematic review on methodology for the collection of epidemiological data. BMC Pulm Med 2013; 13: 53.
11. Canadian Institute for Health Information (CIHI). CIHI Annual Report, 2011-2012. At the Heart of Data. Ottawa, CIHI, 2012. https://secure.cihi.ca/free-products/AnnualReport2012-ENweb.pdf
12. Canadian Institute for Health Information (CIHI). Data Quality Documentation for External Users: Discharge Abstract Database, 2010-2011. Ottawa, CIHI, 2011. www.cihi.ca/en/dad-executive-sum-10-11-en.pdf
13. Canadian Institute for Health Information (CIHI). Data Quality Documentation for External Users: National Ambulatory Care Reporting System, 2010-2011. Ottawa, CIHI, 2011. www.cihi.ca/en/nacrs-exec-summ-2010- 2011-en.pdf
14. Canadian Institute for Health Information (CIHI). ICD-10-CA. International Statistical Classification of Diseases and Related Health Problems, Tenth Revision, Canada. Volume Two-Alphabetical Index. Ottawa, CIHI, 2012. www.cihi.ca/en/icd-volume-two-2012-en.pdf
15. Collard HR, Ward AJ, Lanes S, et al. Burden of illness in idiopathic pulmonary fibrosis. J Med Econ 2012; 15: 829-835.
16. Canadian Institute for Health Information (CIHI). CCI. Canadian Classification of Health Interventions. Volume Four-Alphabetical Index. Ottawa, CIHI, 2012. www.cihi.ca/en/cci-volume-four-2012-en.pdf
17. Statistics Canada. Table 051-0001: Estimates of Population, by Age Group and Sex for July 1, Canada, Provinces and Territories. Annual (persons unless otherwise noted). CANSIM (database). Date last updated: September 29, 2015. Date last accessed: March 30, 2016. Available from www5.statcan.gc.ca/cansim/a26?lang=eng&id=510001
18. Horsman J, Furlong W, Feeny D, et al. The Health Utilities Index (HUI): concepts, measurement properties and applications. Health Qual Life Outcomes 2003; 1: 54.
19. Ståhl E, Lindberg A, Jansson SA, et al. Health-related quality of life is related to COPD disease severity. Health Qual Life Outcomes 2005; 3: 56.
20. Statistics Canada. Table 102-0561: Leading Causes of Death, Total Population, by Age Group and Sex, Canada. Annual. CANSIM (database). Date last updated: December 10, 2015. Date last accessed: March 30, 2016. Available from www5.statcan.gc.ca/cansim/a26?lang=eng&id=1020561
21. Gribbin J, Hubbard RB, Le Jeune I, et al. Incidence and mortality of idiopathic pulmonary fibrosis and sarcoidosis in the UK. Thorax 2006; 61: 980-985.
22. The Health Improvement Network (THIN) Research Team. THIN Database. www.ucl.ac.uk/pcph/research-groupsthemes/ thin-pub/database Date last updated: April 14, 2015. Date last accessed: March 30, 2016.
23. Tarride JE, Hopkins RB, Leslie WD, et al. The burden of illness of osteoporosis in Canada. Osteoporos Int 2012; 23: 2591-2600.