Recovery curves for pediatric burn survivors advances in patient-oriented outcomes

JAMA Pediatrics

Volumn 170, Issue 6, 2016, Pages 534-542

  Kazis, Lewis E ^a   Lee, Austin F ^b,c,d   Rose, Mary ^e   Liang, Matthew H ^f   Li, Nien Chen ^a   Ren, Xinhua S ^a   Sheridan, Robert ^g   Gilroy Lewis, Janet ^g   Stoddard, Fred ^g   Hinson, Michelle ^g   Warden, Glenn ^h   Stubbs, Kim ^h   Blakeney, Patricia ^e   Meyer, Walter ^e   McCauley, Robert ^e   Herndon, David ^e   Palmieri, Tina ^i,j   Mooney, Kate ⁱ   Wood, David ^k   Pidcock, Frank ^l   Reilly, Debra ^j   Cullen, Marc ^m   Calvert, Catherine ⁿ   Ryan, Colleen M ^d,g,o   Schneider, Jeffrey C ^o,p   Soley Bori, Marina ^a   Tompkins, Ronald G ^g   more..

^a BOSTON UNIVERSITY   (United States)

^b BENTLEY UNIVERSITY   (United States)

^c UNIVERSITY OF INTERNATIONAL BUSINESS AND ECONOMICS   (China)

^d MASSACHUSETTS GENERAL HOSPITAL   (United States)

^e SHRINERS HOSPITALS FOR CHILDREN   (United States)

^f Massachusetts Veterans Epidemiology Research and Information Center   (United States)

^g SHRINERS HOSPITALS FOR CHILDREN   (United States)

^h SHRINERS HOSPITALS FOR CHILDREN   (United States)

ⁱ SHRINERS HOSPITALS FOR CHILDREN NORTHERN CALIFORNIA   (United States)

^j NEBRASKA MEDICAL CENTER   (United States)

^k UNIVERSITY OF FLORIDA COLLEGE OF MEDICINE   (United States)

^l KENNEDY KRIEGER INSTITUTE   (United States)

^m CHILDREN'S HOSPITAL OF MICHIGAN   (United States)

ⁿ North Carolina Jaycee Burn Center   (United States)

^o HARVARD MEDICAL SCHOOL   (United States)

^p and Red Sox Foundation and Massachusetts General Hospital Home Base Program   (United States)

more..

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; BURN; BURN OUTCOMES QUESTIONNAIRE; CHILD; CHILDHOOD INJURY; CONTROLLED STUDY; EMOTION; FAMILY FUNCTIONING; FEMALE; FINE MOTOR SKILL; FUNCTIONAL STATUS; GROSS MOTOR SKILL; HUMAN; LANGUAGE; MAJOR CLINICAL STUDY; MALE; MOTOR PERFORMANCE; OUTCOME ASSESSMENT; PAIN; PATIENT CARE; PATIENT SATISFACTION; PATIENT WORRY; PHYSICAL APPEARANCE; PLAY; PRESCHOOL CHILD; PRIORITY JOURNAL; PROSPECTIVE STUDY; PRURITUS; SURVIVOR; ANXIETY; BURN UNIT; BURNS; CASE CONTROL STUDY; CLINICAL TRIAL; LANGUAGE DEVELOPMENT DISORDERS; LENGTH OF STAY; MOTOR SKILLS DISORDERS; MULTICENTER STUDY; PATHOLOGY; PATIENT-REPORTED OUTCOME; PSYCHOLOGY; PSYCHOMETRY; QUESTIONNAIRE; STATISTICS AND NUMERICAL DATA;

ANXIETY; BURN UNITS; BURNS; CASE-CONTROL STUDIES; CHILD, PRESCHOOL; FEMALE; HUMANS; LANGUAGE DEVELOPMENT DISORDERS; LENGTH OF STAY; MALE; MOTOR SKILLS DISORDERS; PATIENT REPORTED OUTCOME MEASURES; PROSPECTIVE STUDIES; PRURITUS; PSYCHOMETRICS; SURVEYS AND QUESTIONNAIRES; SURVIVORS;

EID: 84973647676     PISSN: 21686203     EISSN: None     Source Type: Journal    
DOI: 10.1001/jamapediatrics.2015.4722     Document Type: Article

References (25)

1. Ryan CM, Schneider JC, Kazis LE, et al; Multi-Center Benchmarking Study Group. Benchmarks for multidimensional recovery after burn injury in young adults: the development, validation, and testing of the American Burn Association/Shriners Hospitals for Children Young Adult Burn Outcome Questionnaire. J Burn Care Res. 2013;34(3):e121-e142.
2. Sheridan RL. Burn care: results of technical and organizational progress. JAMA. 2003;290(6):719-722.
3. Sheridan RL, Hinson MI, Liang MH, et al. Long-term outcome of children surviving massive burns. JAMA. 2000;283(1):69-73.
4. Ryan CM, Schoenfeld DA, Thorpe WP, Sheridan RL, Cassem EH, Tompkins RG. Objective estimates of the probability of death from burn injuries. N Engl J Med. 1998;338(6):362-366.
5. Burke JF, Quinby WC Jr, Bondoc CC. Primary excision and prompt grafting as routine therapy for the treatment of thermal burns in children. Surg Clin North Am. 1976;56(2):477-494.
6. Tompkins RG, Remensnyder JP, Burke JF, et al. Significant reductions in mortality for children with burn injuries through the use of prompt eschar excision. Ann Surg. 1988;208(5):577-585.
7. Sheridan RL, Tompkins RG, Burke JF. Management of burn wounds with prompt excision and immediate closure. J Intensive Care Med. 1994;9(1):6-17.
8. Tompkins RG. Survival from burns in the new millennium: 70 years' experience from a single institution. Ann Surg. 2015;261(2):263-268.
9. Herndon DN, Tompkins RG. Support of the metabolic response to burn injury. Lancet. 2004;363(9424):1895-1902.
10. Herndon DN, Gore D, Cole M, et al. Determinants of mortality in pediatric patients with greater than 70% full-thickness total body surface area thermal injury treated by early total excision and grafting. J Trauma. 1987;27(2):208-212.
11. Kazis LE, Liang MH, Lee A, et al. The development, validation, and testing of a health outcomes burn questionnaire for infants and children 5 years of age and younger: American Burn Association/Shriners Hospitals for Children. J Burn Care Rehabil. 2002;23(3):196-207.
12. Daltroy LH, Liang MH, Phillips CB, et al. American Burn Association/Shriners Hospitals for Children burn outcomes questionnaire: construction and psychometric properties. J Burn Care Rehabil. 2000;21(1, pt 1):29-39.
13. National Quality Forum. Patient Reported Outcomes (PROs) in Performance Measurement. Washington, DC: National Quality Forum; 2013.
14. Kerr EA, Hayward RA. Patient-centered performance management: enhancing value for patients and health care systems. JAMA. 2013;310(2):137-138.
15. McGlynn EA, Schneider EC, Kerr EA. Reimagining quality measurement. N Engl J Med. 2014;371(23):2150-2153.
16. Kazis LE, Lee AF, Hinson M, et al; Multi-Center Benchmarking Study Working Group. Methods for assessment of health outcomes in children with burn injury: the Multi-Center Benchmarking Study. J Trauma Acute Care Surg. 2012;73(3) (suppl 2):S179-S188.
17. Tompkins RG, Liang MH, Lee AF, Kazis LE; Multi-Center Benchmarking Study Working Group. The American Burn Association/Shriners Hospitals for Children Burn Outcomes Program: a progress report at 15 years. J Trauma Acute Care Surg. 2012;73(3) (suppl 2):S173-S178.
18. Palmieri TL, Nelson-Mooney K, Kagan RJ, et al; Multi-Center Benchmarking Study Working Group. Impact of hand burns on health-related quality of life in children younger than 5 years. J Trauma Acute Care Surg. 2012;73(3) (suppl 2):S197-S204.
19. Ryan CM, Lee A, Kazis LE, et al; Multicenter Burn Outcome Group. Recovery trajectories after burn injury in young adults: does burn size matter? J Burn Care Res. 2015;36(1):118-129.
20. Kuczmarski RJ, Ogden CL, Grummer-Strawn LM, et al. CDC growth charts: United States. Adv Data. 2000;8(314):1-27.
21. Kazis LE, Hinson M, Tompkins R, et al. Reliability and validity of the Spanish version of the Childrens Burns Outcomes Questionnaire ages 0-18 and 11-18: results from the multi-center outcomes study. J Burn Care Rehabil. 2004;25:S96.
22. Corry NH, Klick B, Fauerbach JA. Posttraumatic stress disorder and pain impact functioning and disability after major burn injury. J Burn Care Res. 2010;31(1):13-25.
23. Summer GJ, Puntillo KA, Miaskowski C, Green PG, Levine JD. Burn injury pain: the continuing challenge. J Pain. 2007;8(7):533-548.
24. Van Loey NE, van Beeck EF, Faber BW, van de Schoot R, Bremer M. Health-related quality of life after burns: a prospective multicentre cohort study with 18 months follow-up [published online October 24, 2011]. J Trauma. doi:10.1097/TA.0b013e3182199072.
25. Öster C, Willebrand M, Ekselius L. Burn-specific health 2 years to 7 years after burn injury. J Trauma Acute Care Surg. 2013;74(4):1119-1124.