Challenges of caring for a patient with a rare disease--as demonstrated by Cornelia de Lange Syndrome

Developmental period medicine

Volumn 19, Issue 4, 2015, Pages 511-515

  Wierzba, Jolanta ^a   Mazurkiewicz Bełdzińska, Maria ^a   Jabłońska Brudło, Joanna ^a   Potaż, Piotr ^a   Banach, Piotr ^a  

^a MEDICAL UNIVERSITY OF GDANSK   (Poland)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; DE LANGE SYNDROME; DISEASE MANAGEMENT; EUROPE; HUMAN; INTERDISCIPLINARY COMMUNICATION; ORGANIZATION AND MANAGEMENT; PATIENT CARE; POLAND; PRIMARY HEALTH CARE; RARE DISEASES; STATISTICS AND NUMERICAL DATA;

ADOLESCENT; ADULT; DE LANGE SYNDROME; DISEASE MANAGEMENT; EUROPE; HUMANS; INTERDISCIPLINARY COMMUNICATION; PATIENT CARE TEAM; POLAND; PRIMARY HEALTH CARE; RARE DISEASES;

EID: 84973409172     PISSN: 1428345X     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (0)