Expanding the NCCN guidelines for distress management: A model of barriers to the use of coping resources

Journal of Community and Supportive Oncology

Volumn 12, Issue 8, 2014, Pages 271-277

  Allen, Julie Ober ^a   Zebrack, Brad ^b   Wittmann, Daniela ^c   Hammelef, Karen ^d   Morris, Arden M ^e  

^a University School of Public Health   (United States)

^b School of Social Work   (United States)

^c Medical School   (United States)

^d Division of Hematology Oncology   (United States)

^e UNIVERSITY OF MICHIGAN MEDICAL SCHOOL   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

CANCER PATIENT; COPING BEHAVIOR; DISTRESS SYNDROME; HUMAN; PATIENT CARE; PRACTICE GUIDELINE; REVIEW;

EID: 84971014963     PISSN: 23307749     EISSN: None     Source Type: Journal    
DOI: 10.12788/jcso.0064     Document Type: Review

References (56)

1. Bultz BD, Carlson LE. Emotional distress: The sixth vital sign in cancer care. J Clin Oncol. 2005;23; 6440-6441.
2. Clark KL, Loscalzo M, Trask PC, Zabora, Philip EJ. Psychological distress in patients with pancreatic cancer-an understudied group. Psychooncology. 2010;19:1313-1320.
3. National Comprehensive Cancer Network. NCCN Clinical Practice Guidelines in Oncology: Distress Management, version 3.2012. Fort Washington, PA: National Comprehensive Cancer Network.
4. Carlson LE, Waller A, Mitchell AJ. Screening for distress and unmet needs in patients with cancer: review and recommendations. J Clin Oncol. 2012;30:1160-1177.
5. American College of Surgeons. Cancer Program Standards 2012: Ensuring Patient-Centered Care, v 1.1. Chicago, IL: Commission on Cancer.
6. Baker-Glenn EA, Park B, Granger L, Symonds P, Mitchell AJ. Desire for psychological support in cancer patients with depression or distress: validation of a simple help question. Psychooncology. 2011;20:525-531.
7. McLachlan SA, Allenby A, Matthews J, et al. Randomized trial of coordinated psychosocial interventions based on patient self-assessments versus standard care to improve the psychosocial functioning of patients with cancer. J Clin Oncol. 2001;19:4117-4125.
8. Carlson LE, Grof SL, Maciejewski O, Bultz BD. Screening for distress in lung and breast cancer outpatients: a randomized controlled trial. J Clin Oncol. 2010;28:4884-4891.
9. Shimizu K, Ishibashi Y, Umezawa S, et al. Feasibility and usefulness of the 'Distress Screening Program in Ambulatory Care' in clinical oncology practice. Psychooncology. 2010;19:718-725.
10. Mead EL, Doorenbos AZ, Javid SH, Haozous EA, Alvord LA, Flum DR, et al. Shared decision-making for cancer care among racial and ethnic minorities: a systematic review. Am J Public Health. 2013;103:e15-29.
11. Snowden A, White CA, Christie Z, Murray E, McGowan C, Scott R. The clinical utility of the distress thermometer: a review. Br J Nurs. 2011;20:220-227.
12. Folkman S. Positive psychological states and coping with severe stress. Soc Sci Med. 1997;45:1207-1221.
13. Folkman S, Moskowitz J T. Positive affect and the other side of coping. Am Psychol. 2000;55:647-654.
14. Lazarus RS, Folkman S. (1984). Stress, Appraisal, and Coping. New York, NY: Springer Pub. Co.
15. Lazarus RS. (1991) Emotion and Adaptation. New York, NY: Oxford University Press.
16. Vodermaier A, Linden W, Siu C. Screening for emotional distress in cancer patients: a systematic review of assessment instruments. J Natl Cancer Inst. 2009;101:1464-1488.
17. Mitchell AJ. Short screening tools for cancer-related distress: a review and diagnostic validity meta-analysis. J Natl Compr Canc Netw. 2010;8:487-494.
18. Jacobsen PB, Ransom S. Implementation of NCCN Distress Management Guidelines by member institutions. J Natl Compr Can Netw. 2007;5:99-103.
19. Nancy E Adler and Ann EK Page (Eds.). (2008). Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs. Washington, D. C.: Institue of Medicine.
20. Lord K, Mitchell AJ, Ibrahim K, Kumar S, Rudd N, Symonds P. The beliefs and knowledge of patients newly diagnosed with cancer in a UK ethnically diverse population. Clin Oncol (R Coll Radiol). 2012;24:4-12.
21. Soler-Vilá H, Dubrow R, Franco VI, Saathoff AK, Kasl SV, Jones BA. Cancer-specific beliefs and survival in nonmetastatic colorectal cancer patients. Cancer. 2009;115:4270-4282.
22. Eakin EG, Strycker LA. Awareness and barriers to use of cancer support and information resources by HMO patients with breast, prostate, or colon cancer: patient and provider perspectives. Psychooncology. 2001;10:103-113.
23. McLaughlin CG, Wyszewianski L. Access to care: remembering old lessons. Health Serv Res. 2002;37:1441-1443.
24. Holland JC, Kelly BJ, Weinberger MI. Why psychosocial care is difficult to integrate into routine cancer care: stigma is the elephant in the room. J Natl Compr Canc Netw. 2010;8:362-366.
25. Wittmann D, He C, Mitchell S, et al. A one-day couple group intervention to enhance sexual recovery for surgically treated men with prostate cancer and their partners: a pilot study. Urol Nurs. 2013;33:140-147.
26. Manne S, Badr H. Intimacy and relationship processes in couples' psychosocial adaptation to cancer. Cancer. 2008;112(Suppl 11):2541S-2555S.
27. Pirl WF, Muriel A, Hwang V, et al. Screening for psychosocial distress: a national survey of oncologists. J Support Oncol. 2007;5:499-504.
28. Chaitchik S, Kreitler S, Shaked S, Schwartz I, Rosin R. Doctorpatient communication in a cancer ward. J Cancer Educ. 1992;7:41-54.
29. Selye H. Confusion and controversy in the stress field. J Human Stress. 1975;1:37-44.
30. DiMatteo MR, Lepper HS, Croghan TW. Depression is a risk factor for noncompliance with medical treatment: meta-analysis of the effects of anxiety and depression on patient adherence. Arch Intern Med. 2000;16:2101-2107.
31. Stoudemire, A, Thompson TL 2nd. Medication noncompliance: systematic approaches to evaluation and intervention. Gen Hosp Psychiatry. 1983;5:233-239.
32. Katz ML, Donohue KA, Alfano CM, Day JM, Herndon JE 2nd, Paskett ED. Cancer surveillance behaviors and psychosocial factors among long-term survivors of breast cancer. Cancer and Leukemia Group B 79804. Cancer. 2009;115:480-488.
33. Carmack CL, Basen-Engguist K, Gritz ER. Survivors at higher risk for adverse late outcomes due to psychosocial and behavioral risk factors. Cancer Epidemiol Biomarkers Prev. 2011;20:2068-2077.
34. Lerman C, Daly M, Walsh WP, et al. Communication between patients with breast cancer and health care providers. Determinants and implications. Cancer. 1993;72:2612-2620.
35. Von Essen L, Larsson G, Oberg K, Sjödén PO. 'Satisfaction with care': associations with health-related quality of life and psychosocial function among Swedish patients with endocrine gastrointestinal tumours. Eur J Cancer Care (Engl). 2002;11:91-99.
36. Shim EJ, Mehnert A, Koyama A, et al. Health-related quality of life in breast cancer: A cross-cultural survey of German, Japanese, and South Korean patients. Breast Cancer Res Treat. 2006;99:341-350.
37. Törer N, Nursal TZ, Caliskan K, et al. The effect of the psychological status of breast cancer patients on the short-term clinical outcome after mastectomy. Acta Chir Belg. 2010;110:467-470.
38. Simpson, JS, Carlson LE, Trew ME, et al. Effect of group therapy for breast cancer on health care utilization. Cancer Pract. 2001;9:19-26.
39. Skarstein J, Aass N, Fosså SD, Skovlund E, Dahl AA. Anxiety and depression in cancer patients: relation between the Hospital Anxiety and Depression Scale and the European Organization for Research and Treatment of Cancer Core Quality of Life Questionnaire. J Psychosom Res. 2000;49:27-34.
40. Hamer M, Chida Y, Molloy GJ. Psychological distress and cancer mortality. J Psychosom Res. 2009;66:255-258.
41. Faller H, Bülzebruck H, Drings P, Lang H. Coping, distress, and survival among patients with lung cancer. Arch Gen Psychiatry. 1999;56:756-762.
42. Brown KW, Levy AR, Rosberger Z, Edgar L. Psychological distress and cancer survival: a follow-up 10 years after diagnosis. Psychosomatic Med. 2003;65:636-643.
43. Zebrack B, Burg MA, Vaitones V. Distress screening: an opportunity for enhancing quality cancer care and promoting the oncology social work profession. J Psychosoc Oncol. 2012;30:615-624.
44. Rinaldis M, Pakenham KI, Lynch BM. A structural model of the relationships among stress, coping, benefit-finding and quality of life in persons diagnosed with colorectal cancer. Psychol Health. 2012;27:159-177.
45. Groarke, A., et al., Global stress predicts both positive and negative emotional adjustment at diagnosis and post-surgery in women with breast cancer. Psychooncology. 2013;22:177-185.
46. Kershaw TS, Mood DW, Newth G, et al. Longitudinal analysis of a model to predict quality of life in prostate cancer patients and their spouses. Ann Behav Med. 2008;36:117-128.
47. Hamama-Raz Y, Solomon Z, Schacter J, Azizi E. Objective and subjective stressors and the psychological adjustment of melanoma survivors. Psychooncology. 2007;16:287-294.
48. Kessler TA. The Cognitive Appraisal of Health Scale: development of psychometric evaluation. Res Nurs Health. 1998;21:73-82.
49. Peacock EJ, Wong P T. The stress appraisal measure (SAM): A multidimensional approach to cognitive appraisal. Stress Medicine. 1990;6:227-236.
50. Endler NS, Parker J. (1990). Coping Inventory for Stressful Situations (CISS) Manual. Toronto, Canada: Multi-Health Systems.
51. Carver CS. You want to measure coping but your protocol's too long: consider the brief COPE. Int J Behav Med. 1997;4:92-100.
52. De Ridder D, Schreurs K. Developing interventions for chronically ill patients: is coping a helpful concept?, Clin Psychol Rev. 2001;21:205-240.
53. Detmar SB, Muller MJ, Schornagel JH, Wever LD, Aaronson NK. Health-related quality-of-life assessments and patient-physician communication: a randomized controlled trial. JAMA. 2002;288:3027-3034.
54. Velikova G, Booth L, Smith AB, et al. Measuring quality of life in routine oncology practice improves communication and patient wellbeing: a randomized controlled trial. J Clin Oncol. 2004;22:714-724.
55. Taenzer P, Bultz BD, Carlson LE, et al. Impact of computerized quality of life screening on physician behaviour and patient satisfaction in lung cancer outpatients. Psychooncology. 2000;9:203-213.
56. Hilarius DL, Kloeg PH, Gundy CM, Aaronson NK. Use of healthrelated quality-of-life assessments in daily clinical oncology nursing practice: a community hospital-based intervention study. Cancer. 2008;113:628-637.