"i'm not like my friends": Understanding how children with a chronic illness use technology to maintain normalcy

CSCW 2015 - Proceedings of the 2015 ACM International Conference on Computer-Supported Cooperative Work and Social Computing

Volumn , Issue , 2015, Pages 1527-1539

  Liu, Leslie S ^a   Inkpen, Kori ^a   Pratt, Wanda ^b  

^a MICROSOFT RESEARCH   (United States)

^b UNIVERSITY OF WASHINGTON   (United States)

Author keywords

asynchronous technologies; Children; chronic illness; communication; health; normalcy; synchronous technologies.; video

Indexed keywords

COMMUNICATION; COMPUTER SUPPORTED COOPERATIVE WORK; GROUPWARE; HEALTH; INTERACTIVE COMPUTER SYSTEMS;

ASYNCHRONOUS TECHNOLOGY; CHILDREN; CHRONIC ILLNESS; NORMALCY; SYNCHRONOUS TECHNOLOGY; VIDEO;

DISEASES;

EID: 84968817595     PISSN: None     EISSN: None     Source Type: Conference Proceeding    
DOI: 10.1145/2675133.2675201     Document Type: Conference Paper

References (29)

1. Aamodt, A., Grassl-Herwehe, S., Farrell, F., and Hutter, J. The childs view of chemically induced alopecia. In Care: The Essence of Nursing and Health, M. Leininger, Ed. Slack, Thorofare, NJ, 1984, 217-231.
2. Ames, M.G., Go, J., Kaye, J.J., and Spasojevic, M. Making love in the network closet: The benefits and work of family video chat. In Proc. CSCW10, 145-154.
3. Bers, M.U., Ackermann, E., Cassell, J., Donegan, B., Gonzalez-Heydrich, J., DeMaso, D.R., Strohecker, C., Lualdi, S., Bromley, D., and Karlin, J. Interactive storytelling environments: coping with cardiac illness at Boston's Children's Hospital. In Proc. CHI98, 603-610.
4. Bers, M.U., Gonzalez-Heydrich, J., and DeMaso, D.R. Identity Construction Environments: Supporting a Virtual Therapeutic Community of Pediatric Patients Undergoing Dialysis. In Proc. CHI01, 380-387.
5. Buhler, T., Neustaedter, C., and Hillman, S. How and why teenagers use video chat. In Proc. CSCW13, 759-768.
6. Chin, J. and Tsuei, M. Multi-user Narrative Sharing System for Children with Chronic Illness. In Proc. Advanced Learning Technologies 2009, 479-481.
7. Farnham, S., Cheng, L., Stone, L., Zaner-Godsey, M., Hibbeln, C., Syrjala, K., Clark, A.M., and Abrams, J. HutchWorld: clinical study of computer-mediated social support for cancer patients and their caregivers. In Proc. CHI02, 375-283.
8. Fels, D.I., Samers, P.J., and Robertson, M. Use of the asynchronous BlackBerry technology in a large childrens hospital to connect sick kids to school. In Proc. Int. Conf. on Computers in Education 2003, 1-6.
9. Fels, D.I. and Weiss, P.L. Video-mediated communication in the classroom to support sick children: A case study. International Journal of Industrial Ergonomics 28, 5 (2001), 251-263.
10. Gibson, L. and Hanson, V.L. Digital Motherhood: How Does Technology Help New Mothers? In Proc. CHI13, 313-322.
11. Hourcade, J.P., Driessnack, M., and Huebner, K.E. Support Face-To-Face Communication Between Clinicians and Children with Chronic Headaches Through a Zoomable Multi-Touch App. In Proc. CHI12, 2609-2618.
12. Inkpen, K., Taylor, B., Junuzovic, S., Tang, J., and Venolia, G. Experiences2Go: Sharing Kids Activities Outside the Home with Remote Family Members. In Proc. CSCW13, 1329-1340.
13. Larouche, S.S. and Chin-Peuckert, L. Changes in body image experienced by adolescents with cancer. Journal of Pediatric Oncology Nursing 23, 4 (2006), 200-209.
14. Lee, M.L. and Dey, A.K. Lifelogging memory appliance for people with episodic memory impairment. In Proc. UbiComp08, 44-53.
15. Mamykina, L., Miller, A.D., Mynatt, E.D., and Greenblatt, D. Constructing Identities through Storytelling in Diabetes Management. In Proc. CHI10, 1203-1212.
16. Massimi, M., Dimond, J.P., and Le Dantec, C.A. Finding a New Normal: The Role of Technology in Life Disruptions. In Proc. CSCW12, 719-728.
17. Mokashi, S., Yarosh, S., and Abowd, G.D. Exploration of Videochat for Children with Autism. In Proc. IDC13, 320-323.
18. Novotney, A. Lights, camera, action! Monitor on Psychology 41, 7 (2010), 58.
19. Plaisant, C., Druin, A., Lathan, C., Dakhane, K., Edwards, K., Vice, J.M., and Montemayor, J. A Storytelling Robot for Pediatric Rehabilitation. In Proc. ASSETS00, 50-55.
20. Shama, W. and Lucchetta, S. Psychosocial Issues of the Adolescent Cancer Patient and the Development of the Teenage Outreach Program (TOP). Journal of Psychosocial Oncology 25, 3 (2007), 99-112.
21. Skeels, M., Unruh, K.T., Powell, C., and Pratt, W. Catalyzing Social Support for Breast Cancer Patients. In Proc. CHI10, 173-182.
22. Strauss, A. and Corbin, J. Grounded theory methodology: An overview. Handbook of Qualitative Research. Sage, Thousand Oaks, CA, 1994.
23. Teens and Technology 2013. http://www.pewinternet.org /Reports/2013/Teens-And-Tech.aspx.
24. van der Velden, M. and El Emam, K. "Not All My Friends Need To Know": A Qualitative Study of Teenage Patients, Privacy, and Social Media. Journal of the American Medical Informatics Association 20, 1 (2013), 16-24.
25. Weiss, P.L., Whiteley, C.P., Treviranus, J., and Fels, D.I. Personal and Ubiquitous Computing 5, 3 (2001), 157-168.
26. Williams, B., Corlett, J., Dowell, J.S., Coyle, J., and Mukhopadhyay, S. "I've Never Not Had it So I Don't Really Know What it's Like Not to": Nondifference and Biographical Disruption Among Children and Young People With Cystic Fibrosis. Qualitative Health Research 19, 10 (2009), 1443-1455.
27. Wise, B.V. In their Own Words: The Lived Experience of Pediatric Liver Transplantation. Qualitative Health Research 12, 1 (2002), 74-90.
28. Woodgate, R.L. The Importance of Being There: Perspectives of Social Support by Adolescents with Cancer. Journal of Pediatric Oncology Nursing 23, 3 (2006), 122-134.
29. Yarosh, S., Inkpen, K.M. and Bernheim Brush, A.J. Video Playdate: Toward Free Play Across Distance. In Proc. CHI10, 1251-1260.