Challenges for sharing data from embedded research

New England Journal of Medicine

Volumn 374, Issue 19, 2016, Pages 1897-

  Platt, Richard ^a   Ramsberg, Joakim ^a  

^a HARVARD PILGRIM HEALTH CARE INSTITUTE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

CLUSTER ANALYSIS; CONCEPTUAL FRAMEWORK; DATA PROCESSING; HEALTH CARE SYSTEM; INFORMATION DISSEMINATION; LETTER; MEDICAID; MEDICAL INFORMATION; MEDICAL INFORMATION SYSTEM; MEDICAL LITERATURE; MEDICAL RESEARCH; MEDICARE; PRIORITY JOURNAL; RISK MANAGEMENT; CLINICAL TRIAL (TOPIC); HUMAN; PUBLISHING; REGISTER; STANDARDS;

CLINICAL TRIALS AS TOPIC; EDITORIAL POLICIES; HUMANS; INFORMATION DISSEMINATION; PUBLISHING; REGISTRIES;

EID: 84966587882     PISSN: 00284793     EISSN: 15334406     Source Type: Journal    
DOI: 10.1056/NEJMc1602016     Document Type: Letter

References (3)

1. Taichman DB, Backus J, Baethge C, et al. Sharing clinical trial data-A proposal from the International Committee of Medical Journal Editors. N Engl J Med 2016; 374: 384-6.
2. Sweeney L. Simple demographics often identify people uniquely (data privacy working paper 3). Pittsburgh: Carnegie Mellon University, 2000 (http://dataprivacylab .org/projects/identifiability/paper1 .pdf ).
3. Curtis LH, Brown J, Platt R. Four health data networks illustrate the potential for a shared national multipurpose big-data network. Health Aff (Millwood) 2014; 33: 1178-86.