-
1
-
-
0027214398
-
Human genome project
-
Sawicki, M. P., Samara, G., Hurwitz, M. & Passaro, E. Human genome project. Am. J. Surg. 165, 258-264 (1993).
-
(1993)
Am. J. Surg.
, vol.165
, pp. 258-264
-
-
Sawicki, M.P.1
Samara, G.2
Hurwitz, M.3
Passaro, E.4
-
2
-
-
0026609094
-
Discrimination as a consequence of genetic testing
-
Billings, P. R., Kohn, M. A., De Cuevas, M., Beckwith, J., Alpher, J. S. & Natowicz, M. R. Discrimination as a consequence of genetic testing. Am. J. Hum. Genet. 50, 476-482 (1992).
-
(1992)
Am. J. Hum. Genet.
, vol.50
, pp. 476-482
-
-
Billings, P.R.1
Kohn, M.A.2
De Cuevas, M.3
Beckwith, J.4
Alpher, J.S.5
Natowicz, M.R.6
-
3
-
-
0035778782
-
Privacy and confidentiality of genetic information: What rules for the new science
-
Anderlik, M. R. & Rothstein, M. A. Privacy and confidentiality of genetic information: what rules for the new science. Annu. Rev. Genomics Hum. Genet. 2, 401-433 (2001).
-
(2001)
Annu. Rev. Genomics Hum. Genet.
, vol.2
, pp. 401-433
-
-
Anderlik, M.R.1
Rothstein, M.A.2
-
4
-
-
0026513422
-
Genetic discrimination and the law
-
Natowicz, M. R., Alper, J. K. & Alper, J. S. Genetic discrimination and the law. Am. J. Hum. Genet. 50, 465-475 (1992).
-
(1992)
Am. J. Hum. Genet.
, vol.50
, pp. 465-475
-
-
Natowicz, M.R.1
Alper, J.K.2
Alper, J.S.3
-
5
-
-
0037461744
-
A scarlet letter or a red herring?
-
Nowlan, W. J. A scarlet letter or a red herring? Nature 421, 313 (2003).
-
(2003)
Nature
, vol.421
, pp. 313
-
-
Nowlan, W.J.1
-
6
-
-
0037067622
-
Before it's too late: Addressing fear of genetic information
-
Rothenberg, K. H. & Terry, S. H. Before it's too late: addressing fear of genetic information. Science 297, 196-197 (2002).
-
(2002)
Science
, vol.297
, pp. 196-197
-
-
Rothenberg, K.H.1
Terry, S.H.2
-
7
-
-
78650453646
-
Genetic discrimination in private insurance: Global perspectives
-
Joly, Y., Braker, M. & Le Huynh, M. Genetic discrimination in private insurance: global perspectives. New Genet. Soc. 29, 351-368 (2010).
-
(2010)
New Genet. Soc.
, vol.29
, pp. 351-368
-
-
Joly, Y.1
Braker, M.2
Le Huynh, M.3
-
9
-
-
84964922153
-
-
(eds Quin G., de Paor A. & Blanck P.) Routledge, London, UK
-
Van Hoyweghen, I. in Genetic Discrimination-Transatlantic Perspectives On The Case For A European Level Legal Response (eds Quin G., de Paor A. & Blanck P.) 192-210 (Routledge, London, UK, 2014).
-
(2014)
Genetic Discrimination-Transatlantic Perspectives on the Case for A European Level Legal Response
, pp. 192-210
-
-
Van Hoyweghen, I.1
-
10
-
-
84873033894
-
Genetic discrimination and life insurance: A systematic review of the evidence
-
Joly, Y., Feze, I. N. & Simard, J. Genetic discrimination and life insurance: a systematic review of the evidence. BMC Med. 11, 1-15 (2013).
-
(2013)
BMC Med.
, vol.11
, pp. 1-15
-
-
Joly, Y.1
Feze, I.N.2
Simard, J.3
-
11
-
-
77649232762
-
Views of discrimination among individuals confronting genetic disease
-
Klitzman, R. Views of discrimination among individuals confronting genetic disease. J. Genet. Couns. 19, 68-83 (2010).
-
(2010)
J. Genet. Couns.
, vol.19
, pp. 68-83
-
-
Klitzman, R.1
-
12
-
-
84964930869
-
A rational view of insurance and genetic discrimination
-
Nowlan, W. J. A rational view of insurance and genetic discrimination. Science 2, 195-196 (2002).
-
(2002)
Science
, vol.2
, pp. 195-196
-
-
Nowlan, W.J.1
-
13
-
-
0036636439
-
Genetic discrimination-an overblown fear?
-
Wertz, D. C. Genetic discrimination-an overblown fear? Nature 3, 496 (2002).
-
(2002)
Nature
, vol.3
, pp. 496
-
-
Wertz, D.C.1
-
14
-
-
84898824655
-
Life insurance: Genomic stratification and risk classification
-
Joly, Y., Burton, B., Knopper, I., Feze, I. N., Dent, T., Pashayan, N. et al. Life insurance: genomic stratification and risk classification. Eur. J. Human Genet. 22, 575-579 (2014).
-
(2014)
Eur. J. Human Genet.
, vol.22
, pp. 575-579
-
-
Joly, Y.1
Burton, B.2
Knopper, I.3
Feze, I.N.4
Dent, T.5
Pashayan, N.6
-
15
-
-
84869850818
-
Genetic discrimination: International perspectives
-
Otlowski, M. F., Taylor, S. D. & Bombard, Y. Genetic discrimination: international perspectives. Annu. Rev. Genomics Hum. 13, 433-454 (2012).
-
(2012)
Annu. Rev. Genomics Hum.
, vol.13
, pp. 433-454
-
-
Otlowski, M.F.1
Taylor, S.D.2
Bombard, Y.3
-
16
-
-
49449110478
-
Insurance Fears Lead Many to Shun DNA Tests
-
Harmon, A. Insurance Fears Lead Many to Shun DNA Tests. The New York Times (Internet). Available at http://www.nytimes.com/2008/02/24/health/24dna.html?page-wanted =all&-r=1& (2008).
-
(2008)
The New York Times (Internet)
-
-
Harmon, A.1
-
18
-
-
84855846751
-
Beyond the patient: The broader impact of genetic discrimination among individuals at risk of Huntington's disease
-
Bombard, Y., Palin, J., Friedman, J. M., Veenstra, G., Creighton, S., Bottorff, J. L. et al. Beyond the patient: The broader impact of genetic discrimination among individuals at risk of Huntington's disease. Am. J. Med. Genet. 159B, 217-226 (2012).
-
(2012)
Am. J. Med. Genet.
, vol.159 B
, pp. 217-226
-
-
Bombard, Y.1
Palin, J.2
Friedman, J.M.3
Veenstra, G.4
Creighton, S.5
Bottorff, J.L.6
-
19
-
-
84870451528
-
Consumer awareness and attitudes about insurance discrimination post enactment of the genetic information non-discrimination act
-
Allain, D. C., Friedman, S. & Senter, L. Consumer awareness and attitudes about insurance discrimination post enactment of the genetic information non-discrimination act. Fam. Cancer 11, 637-644 (2012).
-
(2012)
Fam. Cancer
, vol.11
, pp. 637-644
-
-
Allain, D.C.1
Friedman, S.2
Senter, L.3
-
20
-
-
0035017036
-
Motivations and concerns of patients with access to genetic testing for hereditary pancreatitis
-
Applebaum-Shapiro, S. E., Peters, J. A., O'Connell, J. A., Aston, C. E. & Whitcomb, M. D. Motivations and concerns of patients with access to genetic testing for hereditary pancreatitis. Am. J. Gastroenterol. 96, 1610-1617 (2001).
-
(2001)
Am. J. Gastroenterol.
, vol.96
, pp. 1610-1617
-
-
Applebaum-Shapiro, S.E.1
Peters, J.A.2
O'Connell, J.A.3
Aston, C.E.4
Whitcomb, M.D.5
-
21
-
-
0033748806
-
Factors associated with decisions about clinical BRCA1/2 testing
-
Armstrong, K., Calzone, K., Stopfer, J., Fitzgerald, G., Coyne, J. & Weber, B. Factors associated with decisions about clinical BRCA1/2 testing. Cancer Epidemiol. Biomararkers Prev. 9, 1251-1254 (2000).
-
(2000)
Cancer Epidemiol. Biomararkers Prev.
, vol.9
, pp. 1251-1254
-
-
Armstrong, K.1
Calzone, K.2
Stopfer, J.3
FitzGerald, G.4
Coyne, J.5
Weber, B.6
-
22
-
-
80052578272
-
Why is genetic screening for autosomal dominant disorders underused in families? the case of hereditary haemorrhagic telangiectasia
-
Bernhardt, B. A., Zayac, C. & Pyeritz, R. E. Why is genetic screening for autosomal dominant disorders underused in families? The case of hereditary haemorrhagic telangiectasia. Genet. Med. 13, 812-820 (2011).
-
(2011)
Genet. Med.
, vol.13
, pp. 812-820
-
-
Bernhardt, B.A.1
Zayac, C.2
Pyeritz, R.E.3
-
23
-
-
30744479185
-
Referral and experience with genetic testing among women with early onset breast cancer
-
Brown, K. L., Hutchison, R., Zinberg, R. E. & McGovern, M. M. Referral and experience with genetic testing among women with early onset breast cancer. Genet. Test. 9, 301-305 (2005).
-
(2005)
Genet. Test.
, vol.9
, pp. 301-305
-
-
Brown, K.L.1
Hutchison, R.2
Zinberg, R.E.3
McGovern, M.M.4
-
24
-
-
77954380463
-
Perception, experience, and response to genetic discrimination in Huntington's disease: The international RESPOND-HD study
-
Erwin, C., Williams, J. K., Juhl, A. E., Mengeling, M., Mills, J. A., Bombard, Y. et al. Perception, experience, and response to genetic discrimination in Huntington's disease: the international RESPOND-HD study. Am. J. Med. Genet. 1538, 1081-1093 (2010).
-
(2010)
Am. J. Med. Genet.
, vol.1538
, pp. 1081-1093
-
-
Erwin, C.1
Williams, J.K.2
Juhl, A.E.3
Mengeling, M.4
Mills, J.A.5
Bombard, Y.6
-
25
-
-
0037429615
-
Genetic counseling and testing in families with hereditary nonpolyposis colorectal cancer
-
Hadley, D. W., Jenkins, J., Dimond, E., Nakahara, K., Grogan, L., Liewehr, D. J. et al. Genetic counseling and testing in families with hereditary nonpolyposis colorectal cancer. Arch. Intern. Med. 163, 573-582 (2003).
-
(2003)
Arch. Intern. Med.
, vol.163
, pp. 573-582
-
-
Hadley, D.W.1
Jenkins, J.2
Dimond, E.3
Nakahara, K.4
Grogan, L.5
Liewehr, D.J.6
-
26
-
-
20444489588
-
(2005) Concerns in a primary care population about genetic discrimination by insurers
-
Hall, M. A., McEwen, J. D., Barton, J. C., Walker, A. P., Howe, E. G., Reiss, J. A. et al. (2005) Concerns in a primary care population about genetic discrimination by insurers. Genet. Med. 7, 311-316 (2005).
-
(2005)
Genet. Med.
, vol.7
, pp. 311-316
-
-
Hall, M.A.1
McEwen, J.D.2
Barton, J.C.3
Walker, A.P.4
Howe, E.G.5
Reiss, J.A.6
-
27
-
-
0041805502
-
Attitudes of African American premedical students toward genetic testing and screening
-
Laskey, S. L., Williams, J., Jacqui, P.-L. & Riordan, M. O. Attitudes of African American premedical students toward genetic testing and screening. Genet. Med. 5, 49-54 (2003).
-
(2003)
Genet. Med.
, vol.5
, pp. 49-54
-
-
Laskey, S.L.1
Williams, J.2
Jacqui, P.-L.3
Riordan, M.O.4
-
28
-
-
0037086542
-
Utilization of BRCA1/2 testing in the clinical setting: Report from a single institution
-
Lee, S.-C., Bernhardt, B. & Helzlsouer, K. J. Utilization of BRCA1/2 testing in the clinical setting: report from a single institution. Cancer 94, 1876-1885 (2002).
-
(2002)
Cancer
, vol.94
, pp. 1876-1885
-
-
Lee, S.-C.1
Bernhardt, B.2
Helzlsouer, K.J.3
-
29
-
-
0036727809
-
A population-based study of Ashkenazi Jewish women's attitudes toward genetic discrimination and BRCA1/2 testing
-
Lehmann, L. S., Weeks, J. C., Klar, N. & Garber, J. E. A population-based study of Ashkenazi Jewish women's attitudes toward genetic discrimination and BRCA1/2 testing. Genet. Med. 4, 346-352 (2002).
-
(2002)
Genet. Med.
, vol.4
, pp. 346-352
-
-
Lehmann, L.S.1
Weeks, J.C.2
Klar, N.3
Garber, J.E.4
-
30
-
-
0032988715
-
An update on DNA-based BRCA1/BRCA2 genetic counseling in hereditary breast cancer
-
Lynch, H. T., Watson, P., Tinley, S., Snyder, C., Durham, C., Lynch, J. et al. An update on DNA-based BRCA1/BRCA2 genetic counseling in hereditary breast cancer. Cancer Genet. Cytogenet. 102, 91-98 (1999).
-
(1999)
Cancer Genet. Cytogenet.
, vol.102
, pp. 91-98
-
-
Lynch, H.T.1
Watson, P.2
Tinley, S.3
Snyder, C.4
Durham, C.5
Lynch, J.6
-
31
-
-
49449110043
-
Fear of health insurance loss among individuals at risk for Huntington's disease
-
Oster, E., Dorsey, E. R., Bausch, J., Shinaman, A., Kayson, E., Oakes, D. et al. Fear of health insurance loss among individuals at risk for Huntington's disease. Am. J. Med. Genet. 146, 2070-2077 (2008).
-
(2008)
Am. J. Med. Genet.
, vol.146
, pp. 2070-2077
-
-
Oster, E.1
Dorsey, E.R.2
Bausch, J.3
Shinaman, A.4
Kayson, E.5
Oakes, D.6
-
32
-
-
0036164587
-
Health Insurance and discrimination concerns and BRCA1/2 testing in a clinic population
-
Peterson, E. A., Milliron, K. J., Lewis, K. E., Goold, S. D. & Merajver, S. D. Health Insurance and discrimination concerns and BRCA1/2 testing in a clinic population. Cancer Epidemiol. Biomararker Prev. 11, 79-87 (2002).
-
(2002)
Cancer Epidemiol. Biomararker Prev.
, vol.11
, pp. 79-87
-
-
Peterson, E.A.1
Milliron, K.J.2
Lewis, K.E.3
Goold, S.D.4
Merajver, S.D.5
-
33
-
-
0034095911
-
Perceptions of Ashkenazi Jewish breast cancer patients on genetic testing for mutations in BRCA1 and BRCA2
-
Phillips, K.-A., Warner, E., Meschino, W. S., Hunter, J., Abdolell, M., Glendon, G. et al. Perceptions of Ashkenazi Jewish breast cancer patients on genetic testing for mutations in BRCA1 and BRCA2. Clin. Genet. 57, 376-383 (2000).
-
(2000)
Clin. Genet.
, vol.57
, pp. 376-383
-
-
Phillips, K.-A.1
Warner, E.2
Meschino, W.S.3
Hunter, J.4
Abdolell, M.5
Glendon, G.6
-
34
-
-
77951436850
-
Spinocerebellar ataxia: Patient and health professional perspectives on whether and how patents affect access to clinical genetic testing
-
Pwell, A., Chandrsekharan, S. & Cook-Deegan, R. Spinocerebellar ataxia: patient and health professional perspectives on whether and how patents affect access to clinical genetic testing. Genet.Med. 12, 83-110 (2010).
-
(2010)
Genet.Med.
, vol.12
, pp. 83-110
-
-
Pwell, A.1
Chandrsekharan, S.2
Cook-Deegan, R.3
-
35
-
-
84964926720
-
What factors impact upon a woman's decision to undertake genetic cancer testing?
-
Quinlivan, J. A., Battikhi, Z. & Petersen, R. W. What factors impact upon a woman's decision to undertake genetic cancer testing? Cancer Genet. 3, 1-6 (2014).
-
(2014)
Cancer Genet.
, vol.3
, pp. 1-6
-
-
Quinlivan, J.A.1
Battikhi, Z.2
Petersen, R.W.3
-
36
-
-
23944469329
-
Attitudes and misconceptions about predictive genetic testing for cancer
-
Rose, A. L., Peters, N., Shea, J. A. & Armstrong, K. Attitudes and misconceptions about predictive genetic testing for cancer. Community Genet. 8, 145-151 (2005).
-
(2005)
Community Genet.
, vol.8
, pp. 145-151
-
-
Rose, A.L.1
Peters, N.2
Shea, J.A.3
Armstrong, K.4
-
37
-
-
26044442224
-
Factors influencing uptake of genetic testing for colorectal cancer risk in an Australian Jewish population
-
Warner, B. J., Curnow, L. J., Polglase, A. L. & Debinski, H. S. Factors influencing uptake of genetic testing for colorectal cancer risk in an Australian Jewish population. J. Genet. Couns. 14, 387-394 (2005).
-
(2005)
J. Genet. Couns.
, vol.14
, pp. 387-394
-
-
Warner, B.J.1
Curnow, L.J.2
Polglase, A.L.3
Debinski, H.S.4
-
38
-
-
34247278074
-
Access to health insurance: Experiences and attitudes of those with genetic versus non-genetic medical conditions
-
Kass, N. E., Medley, A. M., Natowicz, R., Hull, S., Faden, R. R., Platinga, L. Access to health insurance: experiences and attitudes of those with genetic versus non-genetic medical conditions. Am. J. Med. Genet. 143A, 707-717 (2007).
-
(2007)
Am. J. Med. Genet.
, vol.143 A
, pp. 707-717
-
-
Kass, N.E.1
Medley, A.M.2
Natowicz, R.3
Hull, S.4
Faden, R.R.5
Platinga, L.6
-
39
-
-
9644308045
-
Perceptions of genetic discrimination among at-risk relatives of colorectal cancer patients
-
Apse, K. A., Biesecker, B. B., Giardiello, F., Fuller, B. P. & Bernhardt, A. Perceptions of genetic discrimination among at-risk relatives of colorectal cancer patients. Genet. Med. 6, 510-516 (2004).
-
(2004)
Genet. Med.
, vol.6
, pp. 510-516
-
-
Apse, K.A.1
Biesecker, B.B.2
Giardiello, F.3
Fuller, B.P.4
Bernhardt, A.5
-
40
-
-
0042825231
-
Life insurance and breast cancer risk assessment: Adverse selection, genetic testing decisions, and discrimination
-
Armstrong, K., Weber, B., FitzGerald, G., Hershey, J. C., Pauly, M. V., Lemaire, J. et al. Life insurance and breast cancer risk assessment: adverse selection, genetic testing decisions, and discrimination. Am. J. Med. Genet. 120A, 359-364 (2003).
-
(2003)
Am. J. Med. Genet.
, vol.120 A
, pp. 359-364
-
-
Armstrong, K.1
Weber, B.2
FitzGerald, G.3
Hershey, J.C.4
Pauly, M.V.5
Lemaire, J.6
-
41
-
-
0031151757
-
Toward a model informed consent process for BRCA1 testing: A qualitative assessment of women ' s attitudes
-
Bernhardt, B. A., Geller, G., Strauss, M., Helzlsouer, K. J., Stefanek, M. & Wilcox, P. M. Toward a model informed consent process for BRCA1 testing: a qualitative assessment of women ' s attitudes. J. Genet. Couns. 6, 207-222 (1997).
-
(1997)
J. Genet. Couns.
, vol.6
, pp. 207-222
-
-
Bernhardt, B.A.1
Geller, G.2
Strauss, M.3
Helzlsouer, K.J.4
Stefanek, M.5
Wilcox, P.M.6
-
42
-
-
39749118704
-
Engagement with genetic discrimination: Concerns and experiences in the context of Huntington's disease
-
Bombard, Y., Penziner, E., Suchowersky, O., Guttman, M., Paulsen, J. S., Bottorff, J. L. et al. Engagement with genetic discrimination: concerns and experiences in the context of Huntington's disease. Eur. J. Hum. Genet. 16, 279-2789 (2008).
-
(2008)
Eur. J. Hum. Genet.
, vol.16
, pp. 279-2789
-
-
Bombard, Y.1
Penziner, E.2
Suchowersky, O.3
Guttman, M.4
Paulsen, J.S.5
Bottorff, J.L.6
-
43
-
-
70449533863
-
Survey of unaffected BRCA and mismatch repair (MMR) mutation positive individuals
-
McKinnon, W., Banks, K. C., Skelly, J., Kohlmann, W., Bennett, R., Shannon, K. et al. Survey of unaffected BRCA and mismatch repair (MMR) mutation positive individuals. Fam. Cancer 8, 363-369 (2009).
-
(2009)
Fam. Cancer
, vol.8
, pp. 363-369
-
-
McKinnon, W.1
Banks, K.C.2
Skelly, J.3
Kohlmann, W.4
Bennett, R.5
Shannon, K.6
-
44
-
-
0030000957
-
Experiences and attitudes concerning genetic testing and insurance in a Colorado population: A survey of families diagnosed with fragile X syndrome
-
Wingrove, K. J., Norris, J., Barton, P. L. & Hagerman, R. Experiences and attitudes concerning genetic testing and insurance in a Colorado population: a survey of families diagnosed with fragile X syndrome. Am. J. Med. Genet. 64, 378-381 (1996).
-
(1996)
Am. J. Med. Genet.
, vol.64
, pp. 378-381
-
-
Wingrove, K.J.1
Norris, J.2
Barton, P.L.3
Hagerman, R.4
-
45
-
-
33745581001
-
Ethical social and legal implications of genetic testing in liver disease
-
Van Leeuwen, D. J. & Bernat, J. L. Ethical, social and legal implications of genetic testing in liver disease. Hepatology 43, 1195-1201 (2006).
-
(2006)
Hepatology
, vol.43
, pp. 1195-1201
-
-
Van Leeuwen, D.J.1
Bernat, J.L.2
-
46
-
-
78650451729
-
A slap in the face. An exploratory study of genetic discrimination in Germany
-
Lemke, T. A slap in the face. An exploratory study of genetic discrimination in Germany. Genomics Soc. Policy 5, 22-39 (2009).
-
(2009)
Genomics Soc. Policy
, vol.5
, pp. 22-39
-
-
Lemke, T.1
-
47
-
-
42149107453
-
Perceptions of discrimination among persons who have undergone predictive testing for Huntington's disease
-
Penziner, E., Williams, J. K., Erwin, C., Bombard, Y., Wallis, A., Beglinger, L. J. et al. Perceptions of discrimination among persons who have undergone predictive testing for Huntington's disease. Am. J. Med. Genet. 147, 320-325 (2008).
-
(2008)
Am. J. Med. Genet.
, vol.147
, pp. 320-325
-
-
Penziner, E.1
Williams, J.K.2
Erwin, C.3
Bombard, Y.4
Wallis, A.5
Beglinger, L.J.6
-
48
-
-
0008195461
-
A descriptive study of BRCA1 testing and reactions to disclosure of test results
-
Lynch, H. T., Lemon, S. J., Durham, C., Tinley, S. T., Connolly, C., Lynch, J. F. et al. A descriptive study of BRCA1 testing and reactions to disclosure of test results. Cancer 79, 2219-2228 (1997).
-
(1997)
Cancer
, vol.79
, pp. 2219-2228
-
-
Lynch, H.T.1
Lemon, S.J.2
Durham, C.3
Tinley, S.T.4
Connolly, C.5
Lynch, J.F.6
-
49
-
-
0032227550
-
Genetic testing for cancer risk: A population survey on attitudes and intention
-
Ulrich, C. M., Kristal, A. R., White, E., Hunt, J. R., Durfy, S. J. & Potter, J. D. Genetic testing for cancer risk: a population survey on attitudes and intention. Community Genet. 1, 213-222 (1998).
-
(1998)
Community Genet.
, vol.1
, pp. 213-222
-
-
Ulrich, C.M.1
Kristal, A.R.2
White, E.3
Hunt, J.R.4
Durfy, S.J.5
Potter, J.D.6
-
50
-
-
78149358674
-
Unjustified discrimination: Is the moratorium on the use of genetic test results by insurers a contradiction in terms?
-
Wilkinson, R. H. Unjustified discrimination: is the moratorium on the use of genetic test results by insurers a contradiction in terms? Health Care Anal. 18, 279-293 (2010).
-
(2010)
Health Care Anal.
, vol.18
, pp. 279-293
-
-
Wilkinson, R.H.1
-
51
-
-
84866556451
-
Unravelling fears of genetic discrimination: An exploratory study of Dutch HCM families in an era of genetic non-discrimination acts
-
Geelen, E., Horstman, K., Marcelis, C. L., Doevendans, P. A. & Van Hoyweghen, I. Unravelling fears of genetic discrimination: an exploratory study of Dutch HCM families in an era of genetic non-discrimination acts. Eur. J. Human Genet. 20, 1018-1023 (2012).
-
(2012)
Eur. J. Human Genet.
, vol.20
, pp. 1018-1023
-
-
Geelen, E.1
Horstman, K.2
Marcelis, C.L.3
Doevendans, P.A.4
Van Hoyweghen, I.5
-
52
-
-
84939963789
-
Public awareness of genetic non discrimination laws in four states and perceived importance of life insurance protections
-
Parkman, A. A., Foland, J., Anderson, B., Duquette, D., Sobotka, H., Lynn, M. et al. Public awareness of genetic non discrimination laws in four states and perceived importance of life insurance protections. J. Genet. Couns. 24, 512-521 (2014).
-
(2014)
J. Genet. Couns.
, vol.24
, pp. 512-521
-
-
Parkman, A.A.1
Foland, J.2
Anderson, B.3
Duquette, D.4
Sobotka, H.5
Lynn, M.6
-
53
-
-
84964926697
-
Moving beyond public fear of genetic discrimination
-
Henneman, L. & Van Hoyweghen, I. Moving beyond public fear of genetic discrimination. Asia insurance Rev. 1, 64-65 (2013).
-
(2013)
Asia Insurance Rev.
, vol.1
, pp. 64-65
-
-
Henneman, L.1
Van Hoyweghen, I.2
-
54
-
-
7544250377
-
Warranted concerns, warranted outlooks: A focus group study of public understandings of genetic research
-
Bates, B. R., Lynch, J. A., Bevan, J. L. & Condit, C. M. Warranted concerns, warranted outlooks: a focus group study of public understandings of genetic research. Soc. Sci. Med. 60, 331-344 (2005).
-
(2005)
Soc. Sci. Med.
, vol.60
, pp. 331-344
-
-
Bates, B.R.1
Lynch, J.A.2
Bevan, J.L.3
Condit, C.M.4
-
56
-
-
0035258280
-
Factors influencing patients' decisions to decline cancer genetic counseling services
-
Geer, K. P., Ropka, M. E., Cohn, W. F., Jones, S. M. & Miesfeldt, S. Factors influencing patients' decisions to decline cancer genetic counseling services. J. Genet. Couns. 10, 25-40 (2001).
-
(2001)
J. Genet. Couns.
, vol.10
, pp. 25-40
-
-
Geer, K.P.1
Ropka, M.E.2
Cohn, W.F.3
Jones, S.M.4
Miesfeldt, S.5
-
57
-
-
84872849311
-
Perception, experience, and response to genetic discrimination in Huntington's disease: The Australian results of the international RESPOND-HD study
-
Goh, A. M. Y., Chiu, E., Yastrubetskaya, O., Erwin, C., Williams, J. K., Juhl, A. R. et al. Perception, experience, and response to genetic discrimination in Huntington's disease: the Australian results of the international RESPOND-HD study. Genet. Test Mol. Biomarkers 17, 115-121 (2013).
-
(2013)
Genet. Test Mol. Biomarkers
, vol.17
, pp. 115-121
-
-
Goh, A.M.Y.1
Chiu, E.2
Yastrubetskaya, O.3
Erwin, C.4
Williams, J.K.5
Juhl, A.R.6
-
58
-
-
0029831202
-
Genetic discrimination: Perspectives of consumers
-
Lapham, V. L., Kozman, C. & Weiss, J. O. Genetic discrimination: perspectives of consumers. Science 274, 621-624 (1996).
-
(1996)
Science
, vol.274
, pp. 621-624
-
-
Lapham, V.L.1
Kozman, C.2
Weiss, J.O.3
-
59
-
-
80052629056
-
Self-diagnosis of Lynch syndrome using direct to consumer genetic testing: A case study
-
Roberts, M. E., Rieger-Johnson, D. L. & Thomas, B. C. Self-diagnosis of Lynch syndrome using direct to consumer genetic testing: a case study. J. Genet. Couns. 20, 327-329 (2011).
-
(2011)
J. Genet. Couns.
, vol.20
, pp. 327-329
-
-
Roberts, M.E.1
Rieger-Johnson, D.L.2
Thomas, B.C.3
-
60
-
-
0036358295
-
Mapping the human genome: An assessment of media coverage and public reaction
-
Tambor, E. S., Bernhardt, B. A., Rodgers, J. & Holtzman, N. A. Mapping the human genome: an assessment of media coverage and public reaction. Genet. Med. 4, 31-36 (2002).
-
(2002)
Genet. Med.
, vol.4
, pp. 31-36
-
-
Tambor, E.S.1
Bernhardt, B.A.2
Rodgers, J.3
Holtzman, N.A.4
-
61
-
-
80053384388
-
A population-based survey in Australia of men's and women's perceptions of genetic risk and predictive genetic testing and implications for primary care
-
Taylor, S. A population-based survey in Australia of men's and women's perceptions of genetic risk and predictive genetic testing and implications for primary care. Public Health Genom. 14, 325-336 (2011).
-
(2011)
Public Health Genom.
, vol.14
, pp. 325-336
-
-
Taylor, S.1
-
62
-
-
84898824655
-
Life insurance: Genomic stratification and risk classification
-
Joly, Y., Burton, B., Knoppers, B. M. et al. Life insurance: genomic stratification and risk classification. Eur. J. Hum. Gen. 22, 576-579 (2014).
-
(2014)
Eur. J. Hum. Gen.
, vol.22
, pp. 576-579
-
-
Joly, Y.1
Burton, B.2
Knoppers, B.M.3
|