TOSCA - first international registry to address knowledge gaps in the natural history and management of tuberous sclerosis complex

Orphanet journal of rare diseases

Volumn 9, Issue , 2014, Pages 182-

  Kingswood, John C ^a   Bruzzi, Paolo ^a   Curatolo, Paolo ^a   de Vries, Petrus J ^b   Fladrowski, Carla ^a   Hertzberg, Christoph ^b   Jansen, Anna C ^a   Jozwiak, Sergiusz ^c   Nabbout, Rima ^a   Sauter, Matthias ^a   Touraine, Renaud ^a   O'Callaghan, Finbar ^a   Zonnenberg, Bernard ^b   Crippa, Stefania ^c   Comis, Silvia ^b   d'Augères, Guillaume B eaure ^b   Belousova, Elena ^c   Carter, Tom ^d   Cottin, Vincent ^a   Dahlin, Maria ^a   Ferreira, José Carlos ^b   Macaya, Alfons ^a   Benedik, Mirjana P erkovic ^a   Sander, Valentin ^a   Youroukos, Sotirios ^c   Castellana, Ramon ^b   Ulker, Bulent ^b   Feucht, Martha ^a   more..

^a NOVARTIS PHARMA AG   (Switzerland)

^b BU Oncology Novartis Farma SpA   (Italy)

^c UNIV KLIN KINDER JUGENDHEILKUNDE   (Austria)

^d Tallinn Children Hospital   (Estonia)

Author keywords

[No Author keywords available]

Indexed keywords

ATTITUDE TO HEALTH; AWARENESS; CLINICAL TRIAL; COHORT ANALYSIS; DISEASE MANAGEMENT; FEMALE; FOLLOW UP; HUMAN; INTERNATIONAL COOPERATION; MALE; MULTICENTER STUDY; REGISTER; TUBEROUS SCLEROSIS;

AWARENESS; COHORT STUDIES; DISEASE MANAGEMENT; FEMALE; FOLLOW-UP STUDIES; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; INTERNATIONALITY; MALE; REGISTRIES; TUBEROUS SCLEROSIS;

EID: 84964696682     PISSN: None     EISSN: 17501172     Source Type: Journal    
DOI: 10.1186/s13023-014-0182-9     Document Type: Article

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