Poverty, Depression, or Lost in Translation? Ethnic and Language Variation in Patient-Reported Outcomes in Rheumatoid Arthritis

Arthritis Care and Research

Volumn 68, Issue 5, 2016, Pages 621-628

  Katz, Patricia P ^a   Barton, Jennifer ^b   Trupin, Laura ^a   Schmajuk, Gabriela ^a   Yazdany, Jinoos ^a   Ruiz, Pedro J ^c   Yelin, Edward ^a  

^a UNIVERSITY OF CALIFORNIA   (United States)

^b PORTLAND VA MEDICAL CENTER   (United States)

^c CALIFORNIA PACIFIC MEDICAL CENTER   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

BIOLOGICAL PRODUCT; DISEASE MODIFYING ANTIRHEUMATIC DRUG; PREDNISONE;

ADULT; ARTICLE; CAUCASIAN; COHORT ANALYSIS; CONTROLLED STUDY; DEMOGRAPHY; DEPRESSION; DISEASE SEVERITY; ETHNIC DIFFERENCE; ETHNICITY; FATIGUE; FEMALE; FUNCTIONAL DISEASE; HISPANIC; HUMAN; LANGUAGE ABILITY; LONGITUDINAL STUDY; MAJOR CLINICAL STUDY; MALE; MEDICAL EXAMINATION; OUTCOME ASSESSMENT; PAIN; PHYSICAL ACTIVITY; POVERTY; RHEUMATOID ARTHRITIS; RISK FACTOR; SCORING SYSTEM; SELF EVALUATION; SELF REPORT; SPANISH (LANGUAGE); STRUCTURED INTERVIEW; AGED; CULTURAL FACTOR; ETHNOLOGY; HEALTH DISPARITY; LANGUAGE; MIDDLE AGED; PATIENT-REPORTED OUTCOME; PSYCHOLOGY; PUBLICATION; REGRESSION ANALYSIS;

ADULT; AGED; ARTHRITIS, RHEUMATOID; CULTURAL CHARACTERISTICS; DEPRESSION; EUROPEAN CONTINENTAL ANCESTRY GROUP; FEMALE; HEALTH STATUS DISPARITIES; HISPANIC AMERICANS; HUMANS; LANGUAGE; MIDDLE AGED; PATIENT REPORTED OUTCOME MEASURES; POVERTY; REGRESSION ANALYSIS; TRANSLATIONS;

EID: 84964557301     PISSN: 2151464X     EISSN: 21514658     Source Type: Journal    
DOI: 10.1002/acr.22748     Document Type: Article

References (31)

1. Schmajuk G, Schneeweiss S, Katz JN, Weinblatt ME, Setoguchi S, Avorn J, et al., Treatment of older adult patients diagnosed with rheumatoid arthritis: improved but not optimal. Arthritis Rheum 2007; 57: 928-34.
2. Jacobi CE, Mol GD, Boshuizen HC, Rupp I, Dinant HJ, van den Bos GA., Impact of socioeconomic status on the course of rheumatoid arthritis and on related use of health care services. Arthritis Rheum 2003; 49: 567-73.
3. Hernandez-Garcia C, Vargas E, Abasolo L, Lajas C, Bellajdell B, Morado I, et al., Lag time between onset of symptoms and access to rheumatology care and DMARD therapy in a cohort of patients with rheumatoid arthritis. J Rheumatol 2000; 27: 2323-8.
4. Sokka T, Kautiainen H, Pincus T, Toloza S, da Rocha Castelar Pinheiro G, Lazovskis J, et al., Disparities in rheumatoid arthritis disease activity according to gross domestic product in 25 countries in the QUEST-RA database. Ann Rheum Dis 2009; 68: 1666-72.
5. Bruce B, Fries J, Murtagh K., Health status disparities in ethnic minority patients with rheumatoid arthritis: a cross-sectional study. J Rheumatol 2007; 34: 1475-9.
6. Suarez-Almazor M, Berrios-Rivera J, Cox V, Janssen N, Marcus D, Sessoms S., Initiation of disease-modifying antirheumatic drug therapy in minority and disadvantaged patients with rheumatoid arthritis. J Rheumatol 2007; 34: 2400-7.
7. Margaretten M, Barton J, Julian L, Katz P, Trupin L, Tonner C, et al., Socioeconomic determinants of disability and depression in patients with rheumatoid arthritis. Arthritis Care Res (Hoboken) 2011; 63: 240-6.
8. Barton JL, Trupin L, Schillinger D, Gansky SA, Tonner C, Margaretten M, et al., Racial and ethnic disparities in disease activity and function among persons with rheumatoid arthritis from university-affiliated clinics. Arthritis Care Res (Hoboken) 2011; 63: 1238-49.
9. Hirsh J, Boyle D, Collier D, Oxenfeld A, Nash A, Quinzanos I, et al., Limited health literacy is a common finding in a public hospital's rheumatology clinic and is predictive of disease severity. J Clin Rheumatol 2011; 17: 236-41.
10. Caplan L, Wolfe F, Michaud K, Quinzanos I, Hirsh JM., Strong association of health literacy with functional status among rheumatoid arthritis patients: a cross-sectional study. Arthritis Care Res (Hoboken) 2014; 66: 508-14.
11. Schillinger D, Grumbach K, Piette J, Wang F, Osmond D, Daher C, et al., Association of health literacy with diabetes outcomes. JAMA 2002; 288: 475-82.
12. Lopez-Quintero C, Berry E, Neumark Y., Limited English proficiency is a barrier to receipt of advice about physical activity and diet among Hispanics with chronic diseases in the United States. J Am Diet Assoc 2009; 109: 1769-74.
13. Wisnivesky J, Kattan M, Evans D, Leventhal H, Musumeci-Szabo T, McGinn T, et al., Assessing the relationship between language proficiency and asthma morbidity among inner-city asthmatics. Med Care 2009; 47: 243-9.
14. Molina E, Haas R, del Rincon I, Battafarano D, Restrepo J, Escalante A., Does the "Hispanic paradox" occur in rheumatoid arthritis? Survival data from a multiethnic cohort. Arthritis Care Res (Hoboken) 2014; 66: 972-9.
15. Bzostek S, Goldman N, Pebley A., Why do Hispanics in the USA report poor health? Soc Sci Med 2007; 65: 990-1003.
16. Liang J, Quinones A, Bennett J, Ye W, Xu X, Shaw B, et al., Evolving self-rated health in middle and old age: how does it differ across black, Hispanic, and white Americans? J Aging Health 2010; 22: 3-26.
17. Brewer JV, Miyasato GS, Gates MA, Curto TM, Hall SA, McKinlay JB., Contributors to self-reported health in a racially and ethnically diverse population: focus on Hispanics. Ann Epidemiol 2013; 23: 19-24.
18. Greenberg J, Spruill T, Shan Y, Reed G, Kremer J, Potter J, et al., Racial and ethnic disparities in disease activity in patients with rheumatoid arthritis. Am J Med 2013; 126: 1089-98.
19. Katz PP, Radvanski DC, Allen D, Buyske S, Schiff S, Nadkarni A, et al., Development and validation of a short form of the Valued Life Activities Disability Questionnaire for rheumatoid arthritis. Arthritis Care Res (Hoboken) 2011; 63: 1664-71.
20. Fries JF, Spitz P, Kraines RG, Holman HR., Measurement of patient outcome in arthritis. Arthritis Rheum 1980; 23: 137-45.
21. Chew L, Bradley K, Boyko E., Brief questions to identify patients with inadequate health literacy. Fam Med 2004; 36: 588-94.
22. Kroenke K, Spitzer R, Williams J., The PHQ-15: validity of a new measure for evaluating the severity of somatic symptoms. Psychosom Med 2002; 64: 258-66.
23. Karpouzas GA, Dolatabadi S, Moran R, Li N, Nicassio PM, Weisman MH., Correlates and predictors of disability in vulnerable US Hispanics with rheumatoid arthritis. Arthritis Care Res (Hoboken) 2012; 64: 1274-81.
24. Withers M, Moran R, Nicassio P, Weisman M, Karpouzas G., Perspectives of vulnerable US Hispanics with rheumatoid arthritis on depression: awareness, barriers to disclosure and treatment options. Arthritis Care Res 2015; 67: 484-92.
25. National Center for Health Statistics. Health, United States, 2013. Tables 124 and 125. Hyattsville (MD); 2014.
26. Cordingley L, Prajapati R, Plant D, Maskell D, Morgan C, Ali FR, et al, and the Biologics in Rheumatoid Arthritis Genetics and Genomics Study Syndicate (BRAGGS). Impact of psychological factors on subjective disease activity assessments in patients with severe rheumatoid arthritis. Arthritis Care Res (Hoboken) 2014; 66: 861-8.
27. Rahim-Williams B, Riley J, Herrera D, Hastie B, Fillingim R., Ethnic identity predicts experiential pain perception in African Americans and Hispanics. Pain 2007; 129: 177-208.
28. Rahim-Williams B, Riley J, Williams A, Fillingim R. A, quantative review of ethnic group differences in experimental pain response: do biology, psychology, and culture matter? Pain Med 2012; 13: 522-40.
29. Sudano J, Perzynski A, Love T, Lewis S, Murray P, Huber G, et al., Measuring disparities: bias in the Short Form-36v2 among Spanish-speaking medical patients. Med Care 2011; 49: 480-8.
30. Stewart S, Napoles-Springer A., Advancing health disparities research: can we afford to ignore measurement issues? Med Care 2003; 41: 1207-20.
31. O'Neill J, Rader T, Guillemin F, Boonen A, Christensen R, Lyddiatt A, et al., Including health equity considerations in development of instruments for rheumatology research: an introduction to a novel OMERACT paradigm. J Rheumatol 2014; 41: 150-2.