Spiritual well-being in patients with metastatic colorectal cancer receiving noncurative chemotherapy: A qualitative study

Cancer Nursing

Volumn 40, Issue 3, 2017, Pages 209-216

  Rohde, Gudrun ^a   Kersten, Christian ^a   Vistad, Ingvild ^a   Mesel, Terje ^a  

^a UNIVERSITY OF AGDER   (Norway)

Author keywords

Colorectal cancer; Qualitative research; Spiritual well being

Indexed keywords

BEVACIZUMAB; CAPECITABINE PLUS OXALIPLATIN; FLUOROURACIL; FOLINIC ACID; IRINOTECAN; OXALIPLATIN;

ADULT; AGED; ARTICLE; CANCER CHEMOTHERAPY; CANCER COMBINATION CHEMOTHERAPY; CANCER PALLIATIVE THERAPY; CANCER PATIENT; CLINICAL ARTICLE; COPING BEHAVIOR; EDUCATIONAL STATUS; EMPIRICAL RESEARCH; FEMALE; HERMENEUTICS; HUMAN; HUMAN RELATION; MALE; METASTATIC COLORECTAL CANCER; PRIORITY JOURNAL; QUALITY OF LIFE; SELF CONCEPT; SPIRITUAL CARE; SPIRITUAL WELL BEING; WELLBEING; COLORECTAL NEOPLASMS; METASTASIS; MIDDLE AGED; PALLIATIVE THERAPY; PSYCHOLOGY; QUALITATIVE RESEARCH; RELIGION;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; COLORECTAL NEOPLASMS; FEMALE; HUMANS; MALE; MIDDLE AGED; NEOPLASM METASTASIS; PALLIATIVE CARE; QUALITATIVE RESEARCH; QUALITY OF LIFE; SPIRITUALITY;

EID: 84964403213     PISSN: 0162220X     EISSN: 15389804     Source Type: Journal    
DOI: 10.1097/NCC.0000000000000385     Document Type: Article

References (49)

1. Ferrell BR, Dow KH, Grant M. Measurement of the quality of life in cancer survivors. Qual Life Res. 1995;4(6):523-531.
2. What quality of life? The WHOQOL Group. World Health Organization Quality of Life Assessment. World Health Forum. 1996;17(4): 354-356.
3. Lin HR, Bauer-Wu SM. Psycho Psycho spiritual well being in patients with advanced cancer: an integrative review of the literature. J Adv Nurs. 2003;44(1 69-80
4. Kaasa S, Loge JH. Quality of life in palliative care: principles and practice. Palliat Med. 2003;17(1):11-20.
5. Conroy T, Bleiberg H, Glimelius B. Quality of life in patients with advanced colorectal cancer: what has been learnt? Eur J Cancer. 2003; 39(3):287-294.
6. Saeteren B, Lindström U), N, Den D. Latching onto life: living in the area of tension between the possibility of life and the necessity of death. J Clin Nurs. 2011;20(5-6):811-818.
7. Detmar SB, Aaronson NK, Wever LD, Muller M, Schornagel JH. How are you feeling? Who wants to know? Patients' and oncologists' preferences for discussing health-related quality-of-life issues. J Clin Oncol. 2000;18(18): 3295-3301.
8. Mystakidou K, Tsilika E, Parpa E, et al. Demographic and clinical predictors of spirituality in advanced cancer patients: a randomized control study. J Clin Nurs. 2008;17(13):1779-1785.
9. Edwards A, Pang N, Shiu V, Chan C. The understanding of spirituality and the potential role of spiritual care in end-of-life and palliative care: a meta-study of qualitative research. Palliat Med. 2010;24(8):753-770.
10. Winkelman WD, Lauderdale K, Balboni MJ, et al. The relationship of spiritual concerns to the quality of life of advanced cancer patients: preliminary findings. J Palliat Med. 2011;14(9):1022-1028.
11. Kimmel PL, Emont SL, Newmann JM, Danko H, Moss AH. ESRD patient quality of life: symptoms, spiritual beliefs, psychosocial factors, and ethnicity. Am J Kidney Dis. 2003;42(4):713-721.
12. Steinhauser KE, Christakis NA, Clipp EC, McNeilly M, McIntyre L, Tulsky JA. Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA. 2000;284(19): 2476-2482.
13. Vivat B; Members of the Quality of Life Group of the European Organisation for Research and Treatment of Cancer. Measures of spiritual issues for palliative care patients: a literature review. Palliat Med. 2008; 22(7):859-868.
14. Vivat B, Young T, Efficace F; EORTC Quality of Life Group. Crosscultural development of the EORTC QLQ-SWB36: a stand-Alone measure of spiritual wellbeing for palliative care patients with cancer. Palliat Med. 2013;27(5):457-469.
15. Asgeirsdottir GH, Sigurbjörnsson E, Traustadottir R, Sigurdardottir V, Gunnarsdottir S, Kelly E. ''To cherish each day as it comes'': a qualitative study of spirituality among persons receiving palliative care. Support Care Cancer. 2013;21(5):1445-1451.
16. Bai M, Lazenby M. A systematic review of associations between spiritual well-being and quality of life at the scale and factor levels in studies among patients with cancer. J Palliat Med. 2015;18(3):286-298.
17. Repstad P. A softer God and a more positive anthropology: changes in a religiously strict region in Norway. Religion. 2009;39(2):126-131.
18. Vallurupalli M, Lauderdale K, Balboni MJ, et al. The role of spirituality and religious coping in the quality of life of patients with advanced cancer receiving palliative radiation therapy. J Support Oncol. 2012;10(2): 81-87.
19. Krupski TL, Kwan L, Fink A, Sonn GA, Maliski S, Litwin MS. Spirituality influences health related quality of life in men with prostate cancer. Psychooncology. 2006;15(2):121-131.
20. Gall TL. Relationship with God and the quality of life of prostate cancer survivors. Qual Life Res. 2004;13(8):1357-1368.
21. Yanez B, Edmondson D, Stanton AL, et al. Facets of spirituality as predictors of adjustment to cancer: relative contributions of having faith and finding meaning. J Consult Clin Psychol. 2009;77(4):730-741.
22. Phelps AC, Maciejewski PK, Nilsson M, et al. Religious coping and use of intensive life-prolonging care near death in patients with advanced cancer. JAMA. 2009;301(11):1140-1147.
23. Thuné-Boyle IC, Stygall JA, Keshtgar MR, Newman SP. Do religious/spiritual coping strategies affect illness adjustment in patients with cancer? A systematic review of the literature. Soc Sci Med. 2006;63(1): 151-164.
24. Williams AL. Perspectives on spirituality at the end of life: a metasummary. Palliat Support Care. 2006;4(4):407-417.
25. Blinderman CD, Cherny NI. Existential issues do not necessarily result in existential suffering: lessons from cancer patients in Israel. Palliat Med. 2005;19(5):371-380.
26. Henoch I, Danielson E. Existential concerns among patients with cancer and interventions to meet them: an integrative literature review. Psychooncology. 2009;18(3):225-236.
27. SirgyMJ. The Psychology of Quality of Life. Dordrecht; Boston, MA: Kluwer Academic Publishers; 2002.
28. Schwartz CE, Bode R, Repucci N, Becker J, Sprangers MA, Fayers PM. The clinical significance of adaptation to changing health: a meta-Analysis of response shift. Qual Life Res. 2006;15(9):1533-1550.
29. Sprangers MA, Schwartz CE. Integrating response shift into health-related quality of life research: a theoretical model. Soc Sci Med. 1999;48(11): 1507-1515.
30. Mols F, Holterhues C, Nijsten T, van de Poll-Franse LV. Personality is associated with health status and impact of cancer among melanoma survivors. Eur J Cancer. 2010;46(3):573-580.
31. Crabtree BF, Miller WL. Doing Qualitative Research. Thousand Oaks, CA: Sage; 1999.
32. Torre LA, Bray F, Siegel RL, Ferlay J, Lortet-Tieulent J, Jemal A. Global cancer statistics, 2012. CA Cancer J Clin. 2015;65(2):87-108.
33. Beauchamp TL, Childress JF. Principles of Biomedical Ethics. 7th ed. ed. New York: Oxford University Press; 2013.
34. WMA Declaration of Helsinki. Ethical Principles for Medical Research Involving Human Subjects. http://www.wma.net/en/30publications/10policies/b3/. Accessed April 12, 2016.
35. PolitDF. Essentials of Nursing Research: Methods, Appraisal, and Utilization. Philadelphia, PA: Lippincott Williams & Wilkins; 2006.
36. Schwartz CEAndresen EMNosek MAKrahn GL; RRTC Expert Panel on Health Status Measurement. Response shift theory: important implications for measuring quality of life in people with disability. Arch Phys Med Rehabil. 2007;88(4):529-536.
37. McClimans L, Bickenbach J, Westerman M, Carlson L, Wasserman D, Schwartz C. Philosophical perspectives on response shift. Qual Life Res. 2013;22(7):1871-1878.
38. Schwartz CE, Quaranto BR, Rapkin BD, Healy BC, Vollmer T, Sprangers MA. Fluctuations in appraisal over time in the context of stable versus non-stable health. Qual Life Res. 2014;23(1):9-19.
39. Sprangers MA, Schwartz CE. Integrating response shift into healthrelated quality of life research: a theoretical model. Soc Sci Med. 1999; 48(11):1507-1515.
40. Spiegel D. Mind matters in cancer survival. JAMA. 2011;305(5):502-503.
41. Folkman S. Positive psychological states and coping with severe stress. Soc Sci Med. 1997;45(8):1207-1221.
42. Walsh F. Family resilience: a framework for clinical practice. Fam Process. 2003;42(1):1-18.
43. Antonovsky A. Unraveling the Mystery of Health: How People Manage Stress and Stay Well. San Francisco, CA: Jossey-Bass; 1987.
44. Koffman J, Morgan M, Edmonds P, Speck P, Higginson IJ. ''I know he controls cancer'': the meanings of religion among black Caribbean and white British patients with advanced cancer. Soc Sci Med. 2008;67(5):780-789.
45. Holt CL, Caplan L, Schulz E, et al. Role of religion in cancer coping among African Americans: a qualitative examination. J Psychosoc Oncol. 2009;27(2):248-273.
46. Alcorn SR, Balboni MJ, Prigerson HG, et al. ''If God wanted me yesterday, I wouldn't be here today'': religious and spiritual themes in patients' experiences of advanced cancer. J Palliat Med. 2010;13(5):581-588.
47. Rapkin BD, Schwartz CE. Toward a theoretical model of quality-of-life appraisal: implications of findings from studies of response shift. Health Qual Life Outcomes. 2004;2:14.
48. Sulmasy DP. A biopsychosocial-spiritual model for the care of patients at the end of life. Gerontologist. 2002;42(spec no 3):24-33.
49. Sterba KR, Burris JL, Heiney SP, Ruppel MB, Ford ME, Zapka J. ''We both just trusted and leaned on the Lord'': a qualitative study of religiousness and spirituality among African American breast cancer survivors and their caregivers. Qual Life Res. 2014;23(7):1909-1920.