The role of the Carer Support Needs Assessment Tool in palliative home care: A qualitative study of practitioners' perspectives of its impact and mechanisms of action

Palliative Medicine

Volumn 30, Issue 4, 2016, Pages 392-400

  Ewing, Gail ^a   Austin, Lynn ^b   Grande, Gunn ^b  

^a UNIVERSITY OF CAMBRIDGE   (United Kingdom)

^b UNIVERSITY OF MANCHESTER   (United Kingdom)

Author keywords

Carers; evidence based practice; expressed need; needs assessment; palliative care; qualitative research

Indexed keywords

CONVERSATION; EXPECTATION; HOME CARE; HOSPICE; HUMAN; HUMAN EXPERIMENT; INTERVIEW; NEEDS ASSESSMENT; PHYSICIAN; QUALITATIVE RESEARCH; SCIENTIST; STAFF; THEMATIC ANALYSIS; CAREGIVER; HOSPICE CARE; INFORMATION PROCESSING; PALLIATIVE THERAPY; PATIENT CARE; PROCEDURES; PSYCHOLOGY; SOCIAL SUPPORT; STANDARDS;

CAREGIVERS; FOCUS GROUPS; HOME CARE SERVICES; HOSPICE CARE; HUMANS; INTERVIEWS AS TOPIC; NEEDS ASSESSMENT; PALLIATIVE CARE; PATIENT CARE TEAM; QUALITATIVE RESEARCH; SOCIAL SUPPORT;

EID: 84961246660     PISSN: 02692163     EISSN: 1477030X     Source Type: Journal    
DOI: 10.1177/0269216315596662     Document Type: Article

References (31)

1. Aoun SM, Kristjanson LJ, Currow DC, et al. Caregiving for the terminally ill: at what cost? Palliat Med 2005; 19 (7): 551-555.
2. Schulz R, Beach SR,. Caregiving as a risk factor for mortality: the caregiver health effects study. JAMA 1999; 282 (23): 2215-2219.
3. McNamara B, Rosenwax L,. Which carers of family members at the end of life need more support from health services and why? Soc Sci Med 2010; 70 (7): 1035-1041.
4. Candy B, Jones L, Drake R, et al. Interventions for supporting informal caregivers of patients in the terminal phase of a disease. Cochrane Database Syst Rev 2011; 6: CD007617.
5. Harding R, List S, Epiphaniou E, et al. How can informal caregivers in cancer and palliative care be supported? An updated systematic literature review of interventions and their effectiveness. Palliat Med 2012; 26: 7-22.
6. National Institute for Clinical Excellence (NICE). Guidance on cancer services. Improving supportive and palliative care for adults with cancer. The manual. London: NICE, 2004.
7. Department of Health. End of Life Care Strategy: promoting high quality care for all adults at the end of life. London: Department of Health, 2008.
8. Palliative Care Australia (PCA). Standards for providing quality palliative care for all Australians. Canberra, ACT, Australia: PCA, 2005.
9. Canadian Hospice Palliative Care Association. A model to guide hospice palliative care. Ottawa, ON, Canada: Canadian Hospice Palliative Care Association, 2013.
10. Department of Health. End of Life Care Strategy: quality markers and measures for end of life care. London: Department of Health, 2009.
11. Ewing G, Grande G, on behalf of the National Association for Hospice at Home. Development of a Carer Support Needs Assessment Tool (CSNAT) for end-of-life care practice at home: a qualitative study. Palliat Med 2013; 27 (3): 244-256.
12. Stajduhar KI, Nickel DD, Martin WL, et al. Situated/being situated: client and co-worker roles of family caregivers in hospice palliative care. Soc Sci Med 2008; 67 (11): 1789-1797.
13. Ewing G, Brundle C, Payne S, et al. The Carer Support Needs Assessment Tool (CSNAT) for use in palliative and end-of-life care at home: a validation study. J Pain Symptom Manage 2013; 46 (3): 395-405.
14. Medical Research Council (MRC). A framework for development and evaluation of RCTs for complex interventions to improve health., 2000, http://www.mrc.ac.uk/documents/pdf/rcts-for-complex-interventions-to-improve-health/
15. Ritchie J, Spencer L,. Qualitative data analysis for applied policy research. In: Bryman A, Burgess RG, (eds) Analyzing qualitative data. London: Routledge, 1994, pp. 173-194.
16. Grande GE, Austin L, Ewing G,. Investigating the impact of a Carer Support Needs Assessment Tool (CSNAT) intervention in palliative home care: stepped wedge cluster trial. Palliat Med 2014; 28 (6): 609-610.
17. Aoun SM, Grande G, Howting D, et al. The impact of the Carer Support Needs Assessment Tool (CSNAT) in community palliative care using a stepped wedge cluster trial. PLoS ONE 2015; 10 (4): e0123012.
18. Payne S, Hudson P, Grande G, et al. White paper on improving support for family carers in palliative care: part 1. Eur J Palliat Care 2010; 17 (5): 238-245.
19. Rabow MW Hauser JM Adams J., Supporting family caregivers at the end of life: 'they don't know what they don't know'. JAMA 2004; 291 (4): 483-491.
20. Harding R, Higginson I,. Working with ambivalence: informal caregivers of patients at the end of life. Support Care Cancer 2001; 9 (8): 642-645.
21. DiGiacomo M, Lewis J, Nolan MT, et al. Transitioning from caregiving to widowhood. J Pain Symptom Manage 2013; 46 (6): 817-825.
22. Cain R, Maclean M, Sellick S,. Giving support and getting help: informal caregivers' experiences with palliative care services. Palliat Support Care 2004; 2 (3): 265-272.
23. Aranda SK, Hayman-White K,. Home caregivers of the person with advanced cancer: an Australian perspective. Cancer Nurs 2001; 24 (4): 300-307.
24. Mangan PA, Taylor KL, Yabroff KR, et al. Caregiving near the end of life: unmet needs and potential solutions. Palliat Support Care 2003; 1 (3): 247-259.
25. Stenberg U, Ruland CM, Miaskowski C,. Review of the literature on the effects of caring for a patient with cancer. Psychooncology 2010; 19 (10): 1013-1025.
26. Stajduhar KI, Funk L, Toye C, et al. Part 1: home-based family caregiving at the end of life: a comprehensive review of published quantitative research (1998-2008). Palliat Med 2010; 24 (6): 573-593.
27. Funk L, Stajduhar KI, Toye C, et al. Part 2: home-based family caregiving at the end of life: a comprehensive review of published qualitative research (1998-2008). Palliat Med 2010; 24 (6): 594-607.
28. Carduff E, Finucane A, Kendall M, et al. Understanding the barriers to identifying carers of people with advanced illness in primary care: triangulating three data sources. BMC Fam Pract 2014; 15 (1): 48.
29. Aoun S, Deas K, Toye C, et al. Supporting family caregivers to identify their own needs in end-of-life care: qualitative findings from a stepped wedge cluster trial. Palliat Med 2015; 29: 508-517.
30. Nolan M, Grant G, Keady J, et al. New directions for partnerships: relationship-centred care. In: Nolan M, Lundh U, Grant G, et al. (eds) Partnerships in family care. Maidenhead: Open University Press, 2003, pp. 257-291.
31. National Cancer Action Team. Holistic Needs Assessment for people with cancer: a practical guide for healthcare professionals. London: National Cancer Action Team, 2011.