Meaning of self-management from the perspective of individuals with traumatic spinal cord injury, their caregivers, and acute care and rehabilitation managers: An opportunity for improved care delivery

BMC Neurology

Volumn 16, Issue 1, 2016, Pages

  Munce, Sarah E P ^a   Webster, Fiona ^b   Fehlings, Michael G ^b   Straus, Sharon E ^c   Jang, Eunice ^d   Jaglal, Susan B ^a,d,e  

^a UNIVERSITY OF TORONTO   (Canada)

^b UNIVERSITY OF TORONTO   (Canada)

^c ST MICHAEL'S HOSPITAL   (Canada)

^d UNIVERSITY OF TORONTO   (Canada)

^e TORONTO REHABILITATION INSTITUTE   (Canada)

Author keywords

Meaning; Qualitative; Self management; Spinal cord injury; Traumatic

Indexed keywords

ADULT; AGE DISTRIBUTION; AGED; ARTICLE; CAREGIVER; CASE MANAGER; DESCRIPTIVE RESEARCH; FEMALE; HEALTH CARE DELIVERY; HEALTH CARE PERSONNEL; HEALTH CARE SYSTEM; HEALTH PERSONNEL ATTITUDE; HEALTH PROGRAM; HUMAN; MALE; PATIENT CARE; PATIENT MONITORING; QUALITATIVE ANALYSIS; SELF CARE; SEMI STRUCTURED INTERVIEW; SEX DIFFERENCE; SPINAL CORD INJURY; THEMATIC ANALYSIS; TREATMENT PLANNING; ATTITUDE TO HEALTH; DISABLED PERSON; DISEASE MANAGEMENT; MIDDLE AGED; SPINAL CORD INJURIES;

ADULT; ATTITUDE TO HEALTH; CAREGIVERS; DISABLED PERSONS; DISEASE MANAGEMENT; FEMALE; HEALTH PERSONNEL; HUMANS; MALE; MIDDLE AGED; SELF CARE; SPINAL CORD INJURIES;

EID: 84960092843     PISSN: None     EISSN: 14712377     Source Type: Journal    
DOI: 10.1186/s12883-016-0534-2     Document Type: Article

References (33)

1. Chen D, Apple Jr DF, Hudson LM, Bode R. Medical complications during acute rehabilitation following spinal cord injury--current experience of the model systems. Arch Phys Med Rehabil. 1999;80:1397-401.
2. McColl MA, Aiken A, McColl A, Sakakibara B, Smith K. Primary care of people with spinal cord injury. Can Fam Physician. 2012;58:1207-16.
3. Jaglal SB, Munce SEP, Guilcher SJT, Couris CM, Fung K, Craven BC, et al. Health system factors associated with rehosptialisations after traumatic spinal cord injury: a population-based study. Spinal Cord. 2009;47:604-9.
4. Jones ML, Evans RW. Outcomes in a managed care environment. Top Spinal Cord Injury Rehabil. 1998;3:61-73.
5. Munce SEP, Guilcher SJT, Couris CM, Fung K, Craven BC, Verrier M, et al. Physician utilization among adults with traumatic spinal cord injury in Ontario: a population-based study. Spinal Cord. 2009;47:470-6.
6. Kroll T, Neri MT, Ho P-S. Secondary conditions in spinal cord injury: results from a perspective survey. Disabil Rehabil. 2007;29:1229-37.
7. Barlow J, Wright C, Sheasby J, Turner A, Hainsworth J. Self- management approaches for people with chronic conditions: a review. Patient Educ Couns. 2002;48:177-87.
8. Barlow JH, Williams RB, Wright CC. Instilling the strength to fight the pain and get on with life: learning to become an arthritis self-manager. Health Educ Res. 1999;14:101-14.
9. Lorig K, González VM, Laurent DD, Morgan L, Laris BA. Arthritis self-management program variations: three studies. Arthritis Care Res. 1998;11:448-54.
10. Barlow JH, Turner AP, Wright CC. A randomised controlled study of the arthritis self-management programme in the UK. Health Educ Res. 2000;15:665-80.
11. Janssen TW, van Oers CA, van Kamp GJ, TenVoorde BJ, van der Woude LH, Hollander AP. Coronary heart disease risk indicators, aerobic power, and physical activity in men with spinal cord injuries. Arch Phys Med Rehabil. 1997;78:697-705.
12. Warms CA, Belza BL, Whitney JD, Mitchell PH, Stiens SA. Lifestyle physical activity for individuals with spinal cord injury: a pilot study. Am J Health Promot. 2004;18:288-91.
13. Hirsche RC, Williams B, Jones A, Manns P. Chronic disease self-management for individuals with stroke, multiple sclerosis and spinal cord injury. Disabil Rehabil. 2011;33:1136-46.
14. Ide-Okochi A, Tadaka E, Fujimura K. The meaning of self-care in persons with cervical spinal cord injury in Japan: a qualitative study. BMC Neurol. 2013;13:115.
15. Sandelowski M. Whatever happened to qualitative description? Res Nurs Health. 2000;23:334-40.
16. Sandelowski M. What's in a name? Qualitative description revisited. Res Nurs Health. 2010;33:77-84.
17. Patton MQ. Qualitative research and evaluation methods. 3rd ed. Thousand Oaks: Sage; 2002.
18. Creswell JW, Plano Clark VL, Gutmann M, Hanson W. Advanced mixed methods research designs. In: Tashakkori A, Teddlie C, editors. Handbook of mixed methods in social and behavioral research. Thousand Oaks: Sage; 2003. p. 209-40.
19. NVivo qualitative data analysis software; QSR International Pty Ltd. Version 9, 2010.
20. Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3:77-101.
21. Audulv A, Asplund K, Norbergh KG. Who's in charge? The role of responsibility attribution in self-management among people with chronic illness. Patient Educ Couns. 2010;81:94-100.
22. Larsson ME, Nordholm LA, Öhrn I. Patients' views on responsibility for the management of musculoskeletal disorders-a qualitative study. BMC Musculoskelet Disord. 2009;10:1-12.
23. Olsson L-E, Nyström AEM, Karlsson J, Ekman I. Admitted with a hip fracture: patient perceptions of rehabilitation. J Clin Nurs. 2006;16:853-9.
24. Hibbard JH, Mahoney ER, Stock R, Tusler M. Do increases in patient activation result in improved self-management behaviors? Health Serv Res. 2007;42:1443-63.
25. Koch T, Jenkin P, Kralik D. Chronic illness self-management: locating the 'self.'. J Adv Nurs. 2004;48:484-92.
26. Ploughman M, Austin MW, Murdoch M, Kearney A, Fisk JD, Godwin M, et al. Factors influencing healthy aging with multiple sclerosis: a qualitative study. Disabil Rehabil. 2012;34:26-33.
27. Munce SEP, Webster F, Fehlings MG, Straus SE, Jang E, Jaglal SB. Perceived facilitators and barriers to self-management in individuals with traumatic spinal cord injury: a qualitative descriptive study. BMC Neurol. 2014;14:48.
28. Lorig KR, Holman H. Self-management education: history, definition, outcomes, and mechanisms. Ann Behav Med. 2003;26:1-7.
29. Stuifbergen AK. Building health promotion interventions for persons with chronic disabling conditions. Fam Community Health. 2006;29(1 Suppl):28S-34.
30. Stuifbergen AK, Morris M, Jung JH, Pierini D, Morgan S. Benefits of wellness interventions for persons with chronic and disabling conditions: a review of the evidence. Disabil Health J. 2010;3:133-45.
31. Couris CM, Guilcher SJT, Munce SEP, Fung K, Craven BC, Verrier M, et al. Characteristics of adults with incident traumatic spinal cord injury (SCI) in Ontario, Canada. Spinal Cord. 2010;48:39-44.
32. Kennedy P, Duff J, Evans M, Beedie A. Coping effectiveness training reduces depression and anxiety following traumatic spinal cord injuries. Br J Clin Psychol. 2003;42(Pt 1):42-52.
33. Bodenheimer T, MacGregor K, Shafiri C. Helping patients manage their chronic conditions. California: California Healthcare Foundation; 2005.