Setting up a cohort study of functioning: From classification to measurement

Journal of Rehabilitation Medicine

Volumn 48, Issue 2, 2016, Pages 131-140

  Prodinger, Birgit ^a,b,c   Ballert, Carolina Saskia ^a,c   Cieza, Alarcos ^d,e  

^a SWISS PARAPLEGIC RESEARCH   (Switzerland)

^b WORLD HEALTH ORGANIZATION   (Switzerland)

^c UNIVERSITY OF LUCERNE   (Switzerland)

^d UNIVERSITY OF SOUTHAMPTON   (United Kingdom)

^e UNIVERSITY OF MUNICH   (Germany)

Author keywords

Cohort study; Epidemiology; International Classification of Functioning, Disability and Health; Standardized reporting

Indexed keywords

CLASSIFICATION; COHORT ANALYSIS; DISABILITY; HUMAN; INTERNATIONAL CLASSIFICATION OF FUNCTIONING, DISABILITY AND HEALTH; METHODOLOGY; SPINAL CORD INJURY; SWITZERLAND;

COHORT STUDIES; DISABILITY EVALUATION; HUMANS; INTERNATIONAL CLASSIFICATION OF FUNCTIONING, DISABILITY AND HEALTH; RESEARCH DESIGN; SPINAL CORD INJURIES; SWITZERLAND;

EID: 84959363266     PISSN: 16501977     EISSN: None     Source Type: Journal    
DOI: 10.2340/16501977-2030     Document Type: Article

References (31)

1. Aschengrau A, Seage GR. Essentials of epidemiology in public health. Burlington, MA: Jones & Bartlett Learning; 2014.
2. Grimes DA, Schulz KF. Cohort studies: marching towards outcomes. Lancet 2002; 359: 341-345.
3. Bonita R, Beaglehole R, Kjellström T, editors. Basic Epidemiology. 2nd edn. Geneva: World Health Organization; 2006.
4. WHO. International Classifcation of Functioning, Disability and Health. Geneva: World Health Organization (WHO); 2001.
5. Salomon JA, Mathers CD, Chatterji S, Sadana R, Üstün B, Murray CJL. Quantifying individual levels of health: defnitions, concepts, and measurement issues. In: Murray CJL, Evans DB, editors WHO: Health Systems Performance Assessment Debates, Methods and Empiricism. Geneva: WHO; 2003, p. 301-318.
6. Kostanjsek N, Rubinelli S, Escorpizo R, Cieza A, Kennedy C, Selb M, et al. Assessing the impact of health conditions using the ICF. Disabil Rehabil 2011; 33: 1475-1482.
7. Post MW, Brinkhof MW, von Elm E, Boldt C, Brach M, Fekete C, et al. Design of the Swiss Spinal Cord Injury Cohort Study. Am J Phys Med Rehabil 2011; 90: S5-S16.
8. Selb M, Escorpizio R, Kostanjsek N, Stucki G, Ustün B, Cieza A. A guide on how to develop an international classifcation of functioning, disability and health core set. Eur J Phys Rehabil Med 2014; 51: 105-117.
9. Bickenbach J, Cieza A, Rauch A, Stucki G, editors. ICF Core Sets. Manual for clinical practice. Göttingen: Hogrefe Publishing; 2012.
10. Ballert C, Oberhauser C, Biering-Sørensen F, Stucki G, Cieza A. Explanatory power does not equal clinical importance: study of the use of the Brief ICF Core Sets for Spinal Cord Injury with a purely statistical approach. Spinal Cord 2012; 50: 734-739.
11. Cieza A, Oberhauser C, Bickenbach J, Chatterji S, Stucki G. Towards a minimal generic set of domains of functioning and health. BMC Public Health 2014; 14: 218.
12. Prodinger B, Bickenbach J, Stucki G, Cieza A, editors. Toward the system-wide implementation of the ICF in clinical and rehabilitation practice to describe functioning along the continuum of care. WHO-Family of International Classifcations Network Annual Meeting: Barcelona; 2014.
13. Eriks-Hoogland I, Cieza A, Post M, Hilfker R, van Hedel H, Cripps R, et al. Category specifcation and measurement instruments in large spinal cord injury studies: a comparison using the International Classifcation of Functioning, Disability, and Health as a reference. Am J Phys Med Rehabil 2011; 90: S39-S49.
14. Chicago RIo. Rehabilitation Measures Database. 2010 [cited 2015 Jul 2]; Available from: http://www.rehabmeasures.org/default.aspx.
15. Cieza A, Brockow T, Ewert T, Amman E, Kollerits B, Chatterji S, et al. Linking health-status measurements to the international classifcation of functioning, disability and health. J Rehabil Med 2002; 34: 205-210.
16. Cieza A, Geyh S, Chatterji S, Kostanjsek N, Üstün B, Stucki G. ICF linking rules: an update based on lessons learned. J Rehabil Med 2005; 37: 212-218.
17. Fekete C, Boldt C, Post M, Eriks-Hoogland I, Cieza A, Stucki G. How to measure what matters: development and application of guiding principles to select measurement instruments in an epidemiologic study on functioning. Am J Phys Med Rehabil 2011; 90: S29-S38.
18. Mokkink LB, Terwee CB, Patrick DL, Alonso J, Stratford PW, Knol DL, et al. The COSMIN checklist for assessing the methodological quality of studies on measurement properties of health status measurement instruments: an international Delphi study. Qual Life Res 2010; 19: 539-549.
19. Kirchberger I, Cieza A, Biering-Sørensen F, Baumberger M, Charlifue S, Post M, et al. ICF Core Sets for individuals with spinal cord injury in the early post-acute context. Spinal Cord 2010; 48: 297-304.
20. Cieza A, Kirchberger I, Biering-Sørensen F, Baumberger M, Char-lifue S, Post M, et al. ICF Core Sets for individuals with spinal cord injury in the long-term context. Spinal Cord 2010; 48: 305-312.
21. ISCoS. International SCI Data Sets. 2014 [cited 2014 Nov 3]; Available from: http://www.iscos.org.uk/international-sci-data-sets.
22. Project S. Spinal Cord Injury Rehabilitation Evidence. 2013 [cited 2013 May 22]; Available from: http://www.scireproject.com/.
23. Cieza A, Boldt C, Ballert CS, Eriks-Hoogland I, Bickenbach JE, Stucki G. Setting up a cohort study on functioning: deciding what to measure. Am J Phys Med Rehabil 2011; 90: S17-S28.
24. Geyh S, Müller R, Peter C, Bickenbach JE, Post MW, Stucki G, et al. Capturing the psychologic-personal perspective in spinal cord injury. Am J Phys Med Rehabil 2011; 90: S79-S96.
25. Escorpizo R, Graf S, Marti A, Noreau L, Post MW, Stucki G, et al. Domain sets and measurement instruments on participation and environmental factors in spinal cord injury research. Am J Phys Med Rehabil 2011; 90: S66-S78.
26. Reinhardt JD, Post MW. Measurement and evidence of environmental determinants of participation in spinal cord injury: a systematic review of the literature. Topics Spinal Cord Inj Rehabil 2010; 15: 26-48.
27. Eriks-Hoogland IE, Brinkhof MW, Al-Khodairy A, Baumberger M, Brechbühl J, Curt A, et al. Measuring body structures and body functions from the international classifcation of functioning, disability, and health perspective: considerations for biomedical parameters in spinal cord injury research. Am J Phys Med Rehabil 2011; 90: S50-S65.
28. Fekete C, Eriks-Hoogland I, Baumberger M, Catz A, Itzkovich M, Lüthi H, et al. Development and validation of a self-report version of the Spinal Cord Independence Measure (SCIM III). Spinal Cord 2012; 51: 40-47.
29. Prodinger B, Ballert CS, Brinkhof MWG, Tennant A, Post M.W.M. Metric properties of the Spinal Cord Independence Measure-Self Report in a community survey. J Rehabil Med 2016; 48: 149-164.
30. WHO. World report on disability. Geneva: World Health Organization; 2011.
31. WHO, ISCoS. International perspectives on spinal cord injury. Malta: World Health Organization; 2013.