Finding the undiagnosed: A qualitative exploration of hepatitis C diagnosis delay in the United Kingdom

Journal of Viral Hepatitis

Volumn 23, Issue 6, 2016, Pages 479-486

  Harris, Magdalena ^a   Ward, E ^b   Gore, C ^b,c  

^a LONDON SCHOOL OF HYGIENE AND TROPICAL MEDICINE   (United Kingdom)

^b Hepatitis C Trust   (United Kingdom)

^c World Hepatitis Alliance   (United Kingdom)

Author keywords

blood transfusion; former PWID; hepatitis C; testing; trust; undiagnosed

Indexed keywords

ADULT; AGED; ARTICLE; CASE FINDING; CLINICAL ARTICLE; DISEASE COURSE; DISEASE TRANSMISSION; FEMALE; HEALTH CARE PERSONNEL; HEPATITIS C; HUMAN; LIVER CIRRHOSIS; LONGITUDINAL STUDY; MALE; PRIORITY JOURNAL; QUALITATIVE RESEARCH; QUALITY OF LIFE; SOCIAL STIGMA; SUBSTANCE USE; SYMPTOM; TRUST; UNITED KINGDOM; WELLBEING; DELAYED DIAGNOSIS; HEALTH SERVICES RESEARCH; HEPATITIS C, CHRONIC; INTERVIEW; MIDDLE AGED;

ADULT; AGED; DELAYED DIAGNOSIS; FEMALE; HEALTH SERVICES RESEARCH; HEPATITIS C, CHRONIC; HUMANS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; UNITED KINGDOM;

EID: 84959291550     PISSN: 13520504     EISSN: 13652893     Source Type: Journal    
DOI: 10.1111/jvh.12513     Document Type: Article

References (29)

1. Sussman NL, Remien CH, Kanwal F,. The end of hepatitis C. Clin Gastroenterol Hepatol 2014; 12 (4): 533-536.
2. Cornberg M, Razavi HA, Alberti A, et al,. A systematic review of hepatitis C virus epidemiology in Europe, Canada and Israel. Liver Int 2011; 31: 30-60.
3. Public Health England. Hepatitis C in the UK: 2014 Report. London: Public Health England, 2014.
4. Thompson Coon J, Castelnuovo E, Pitt M, Cramp M, Siebert U, Stein K,. Case finding for hepatitis C in primary care: a cost utility analysis. Fam Pract 2006; 23 (4): 393-406.
5. Bird SM, Robertson R, Beresford H, Hutchinson SJ,. Targets for hepatitis C virus test uptake and case-finding among injecting drug users: in prisons and general practice. Addict Res Theory 2010; 18 (4): 421-432.
6. Castelnuovo E, Thompson-Coon J, Pitt M, et al,. The cost-effectiveness of testing for hepatitis C in former injecting drug users. Health Technol Assess 2006; 10 (32): 1-93.
7. Skipton Fund. Personal communication 2015.
8. Royal College of Physicians of Edinburgh. Consensus Statement on Hepatitis C. Edinburgh: RCPE, 2004.
9. d'Souza RFC, Glynn MJ, Alstead E, Osonayo C, Foster GR,. Knowledge of chronic hepatitis C among East London primary care physicians following the Department of Health's educational campaign. QJM 2004; 97 (6): 331-336.
10. Cullen BL, Hutchinson SJ, Cameron SO, et al,. Identifying former injecting drug users infected with hepatitis C: an evaluation of a general practice-based case-finding intervention. J Public Health (Oxf) 2012; 34 (1): 14-23.
11. Datta S, Horwood J, Hickman M, Sharp D,. Case-finding for hepatitis C in primary care: a mixed-methods service evaluation. Br J Gen Pract 2014; 64 (619): e67-e74.
12. Charmaz K,. Constructing Grounded Theory. London: Sage, 2006.
13. Harris M, McDonald B, Rhodes T,. Hepatitis C testing for people who inject drugs in the United Kingdom: why is uptake so low? Drugs (Abingdon Engl) 2014; 21 (4): 333-342.
14. Khaw FM, Stobbart L, Murtagh MJ,. 'I just keep thinking I haven't got it because I'm not yellow': a qualitative study of the factors that influence the uptake of hepatitis C testing by prisoners. BMC Public Health 2007; 7: 98.
15. Hickman M, McDonald T, Judd A, et al,. Increasing the uptake of hepatitis C virus testing among injecting drug users in specialist drug treatment and prison settings by using dried blood spots for diagnostic testing: a cluster randomized controlled trial. J Viral Hepatitis 2008; 15 (4): 250-254.
16. Harris M, Martin A, Rhodes T,. Taming systems to create enabling environments for HCV treatment: negotiating trust in the drug and alcohol setting. Soc Sci Med 2013; 83: 19-26.
17. Crawford S, Bath N,. Peer support models for people with a history of injecting drug use undertaking assessment and treatment for hepatitis C virus infection. Clin Infect Dis 2013; 57 (Suppl. 2): S75-S79.
18. Treloar C, Rance J,. How to build trustworthy hepatitis C services in an opioid treatment clinic? A qualitative study of clients and health workers in a co-located setting. Int J Drug Policy 2014; 25 (5): 865-870.
19. Aitken CK, Bowden S, Hellard M, Crofts N,. Indications of immune protection from hepatitis C infection. J Urban Health 2004; 81 (1): 58-60.
20. Mays N, Pope C,. Assessing quality in qualitative research. BMJ 2000; 320 (7226): 50-52.
21. Jones L, Atkinson A, Bates G, et al,. Views and experiences of hepatitis C testing and diagnosis among people who inject drugs: systematic review of qualitative research. Int J Drug Policy 2014; 25 (2): 204-211.
22. Swan D, Long J, Carr O, et al,. Barriers to and facilitators of hepatitis C testing, management, and treatment among current and former injecting drug users: a qualitative exploration. AIDS Patient Care STDS 2010; 24 (12): 753-762.
23. Sroczynski G, Esteban E, Conrads-Frank A, et al,. Long-term effectiveness and cost-effectiveness of screening for Hepatitis C virus infection. Eur J Pub Health 2009; 19 (3): 245-253.
24. Royal College of General Practitioners. Hepatitis B and C: Detection, Diagnosis and Management 2015. Available at: http://www.rcgp.org.uk/learning/substance-misuse-and-associated-health-landing-page/rcgp-certificate-in-the-detection-hepatitis-b-and-c.aspx
25. Harris RJ, Ramsay M, Hope VD, et al,. Hepatitis C prevalence in England remains low and varies by ethnicity: an updated evidence synthesis. Eur J Pub Health 2012; 22 (2): 187-192.
26. Prevost TC, Presanis AM, Taylor A, Goldberg DJ, Hutchinson SJ, De Angelis D,. Estimating the number of people with hepatitis C virus who have ever injected drugs and have yet to be diagnosed: an evidence synthesis approach for Scotland. Addiction 2015; 110 (8): 1287-1300.
27. Soldan K, Ramsay M, Robinson A, et al,. The contribution of transfusion to HCV infection in England. Epidemiol Infect 2002; 129 (3): 587-591.
28. Penrose L,. The Penrose Inquiry: Final Report. Edinburgh: APS Group Scotland, 2015.
29. Shivkumar S, Peeling R, Jafari Y, Joseph L, Pant Pai N,. Accuracy of rapid and point-of-care screening tests for hepatitis C: a systematic review and meta-analysis. Ann Intern Med 2012; 157 (8): 558-566.