Facilitating independence: The benefits of a post-diagnostic support project for people with dementia

Dementia

Volumn 15, Issue 2, 2016, Pages 162-180

  Kelly, Fiona ^a   Innes, Anthea ^b  

^a UNIVERSITY OF STIRLING   (United Kingdom)

^b BOURNEMOUTH UNIVERSITY   (United Kingdom)

Author keywords

dementia; evaluation; facilitating independence; post diagnostic support; Scotland

Indexed keywords

AGED; CAREGIVER; DEMENTIA; FEMALE; HUMAN; INDEPENDENT LIVING; MALE; MIDDLE AGED; PILOT STUDY; PSYCHOLOGY; QUESTIONNAIRE; SCOTLAND; SOCIAL SUPPORT; VERY ELDERLY;

AGED; AGED, 80 AND OVER; CAREGIVERS; DEMENTIA; FEMALE; HUMANS; INDEPENDENT LIVING; MALE; MIDDLE AGED; PILOT PROJECTS; SCOTLAND; SOCIAL SUPPORT; SURVEYS AND QUESTIONNAIRES;

EID: 84958953132     PISSN: 14713012     EISSN: 17412684     Source Type: Journal    
DOI: 10.1177/1471301214520780     Document Type: Article

References (31)

1. Bowes, A., Mackintosh, S., & Andrews, J. (2009). Baseline assessment of current information provision to people with dementia and their carers. Edinburgh, UK: NHS Quality Improvement Scotland. Retrieved from http://tinyurl.com/nhsqisinfoprovision
2. J.Capus (2005) The Kingston Dementia Cafe: The benefits of establishing an Alzheimer cafe for carers and people with dementia. Dementia4(4): 588–591.
3. Carver, C. (1997). You want to measure coping but your protocol's too long: Consider the Brief COPE. International Journal of Behavioural Medicine, 4(1), 92–100
4. L.Clare (2002) Developing awareness about awareness in early stage dementia: The role of psychosocial factors. Dementia1(3): 295–312.
5. L.ClareI.RothR.Pratt (2005) Perceptions of change over time in early-stage Alzheimer’s disease: Implications for understanding awareness and coping style. Dementia4(4): 487–520.
6. C.ConnellJ.RobertsS.McLaughlinB.Carpenter (2009) Black and white adult family members’ attitudes toward a dementia diagnosis. Journal of the American Geriatrics Society57: 1562–1568.
7. Department of Health. (2009). Living well with dementia: A national dementia strategy. London, UK: Author. Retrieved from http://www.iow.nhs.uk/uploads/General/pdfs/Living%20well%20with%20dementia%20-%20a%20National%20Dementia%20Strategy%20-%20Accessible%20Summary.pdf
8. Department of Health, Social Services and Public Safety. (2010). Consultation on improving dementia services in Northern Ireland – A regional strategy. Retrieved from http://www.dhsspsni.gov.uk/showconsultations?txtid=42566
9. M.DijkhuizenL.ClareA.Pearce (2006) Striving for connection: Appraisal and coping among women with early-stage Alzheimer’s disease. Dementia5(1): 73–94.
10. N.FieldingH.Thomas (2002) Qualitative interviewing. In: (eds) Researching social life, 2nd ed. London, UK: Sage, pp. 123–144.
11. Gilmour, T. (2011). Facing dementia together project, Alzheimer Scotland. Retrieved from http://www.alzscot.org/assets/0000/1821/Facing-dementia-together-post-diagnostic-support-pilot.pdf
12. E.Goffman (1968) Stigma, Englewood Cliffs, NJ: Prentice Hall.
13. C.Hertogh (2011) The misleading simplicity of advance directives. International Psychogeriatrics23(4): 511–515.
14. A.InnesF.KellyO.Dincarslan (2011) Care home design for people with dementia: what do people with dementia and their family carers value?Aging and Mental Health15(5): 548–556.
15. Innes, A., Kelly, F., Bowes, A., Macintosh, S., & Robertson, J. (2011). ‘Facing dementia together’: Post diagnostic support pilot for people with dementia and their families in Renfrewshire and East Renfrewshire. Final project Evaluation Report, University of Stirling, Stirling
16. T.Kitwood (1997) Dementia reconsidered: The person comes first, Buckingham, UK: Open University Press.
17. Knapp, M., & Prince, M. (2007). Dementia UK: Report to the Alzheimer’s Society, King’s College and LSE. London, UK: The Stationary Office. Retrieved from http://alzheimers.org.uk/site/scripts/download_info.php?fileID=2
18. R.G.LogsdonL.E.GibbonsS.M.McCurryL.Teri (2002) Assessing quality of life in older adults with cognitive impairment. Psychosomatic Medicine64: 510–519.
19. E.MasonL.ClareN.Pistrang (2005) Processes and experiences of mutual support in professionally-led support groups for people with early-stage dementia. Dementia4(1): 87–112.
20. J.McKillopH.Wilkinson (2004) Make it easy on yourself! Advice to researchers from someone with dementia on being interviewed. Dementia3(2): 117–125.
21. Mental Health Foundation (2011) Personalisation and dementia: a practitioner’s guide to self-directed support for people living with dementia, London, UK: Mental Health Foundation.
22. Miesen, B., & Blom, M. (2001). The Alzheimer café: A guideline manual for setting one up. Retrieved from http://www.alzheimercafé.co.uk/Acrobat/HOW_TO.pdf
23. E.Moniz-CookM.Vernooij-DassenB.WoodsM.Orrell. Interdem Network (2011) Psychosocial interventions in dementia care research: The INTERDEM manifesto. Aging & Mental Health15(3): 283–290.
24. M.MountainC.Craig (2012) What should be in a self-management programme for people with early dementia?Aging & Mental Health16(5): 576–583.
25. R.PrattL.ClareN.Aggarwal (2005) The ‘talking about memory coffee group’: A new model of support for people with early stage dementia and their families. Dementia4(1): 143–148.
26. E.SampsonL.JonesI.Thune-BoyleR.KukkastenvehmasM.KingB.LeurentM.Blanchard (2010) Palliative assessment and advance care planning in severe dementia: An exploratory randomized controlled trial of a complex intervention. Palliative Medicine25(3): 197–209.
27. Scottish Government. (2007). HEAT targets. Retrieved from http://www.scotland.gov.uk/Topics/Health/NHS-Scotland/17273/targets
28. Scottish Government (2010) Scotland’s national dementia strategy, Edinburgh, UK: St. Andrew’s House.
29. Scottish Government. (2013). Social care (self-directed support) (Scotland) Act 2013. Retrieved from http://www.selfdirectedsupportscotland.org.uk/sds-act/
30. D.Silverman (2005) Doing qualitative research (Second Edition), London, UK: Sage.
31. A.SixsmithG.Gibson (2007) Music and the well-being of people with dementia. Ageing & Society27(1): 127–154.