Talking about sex with health professionals: The experience of people with cancer and their partners

European Journal of Cancer Care

Volumn 25, Issue 2, 2016, Pages 280-293

  Gilbert, E ^a   Perz, J ^a   Ussher, Jane M ^a  

^a UNIVERSITY OF WESTERN SYDNEY   (Australia)

Author keywords

Communication with health professionals; Mixed method survey; Patient and partner perspectives; Sexual and non sexual cancers; Sexual well being after cancer

Indexed keywords

ADULT; AGED; FEMALE; HUMAN; INTERPERSONAL COMMUNICATION; MALE; MIDDLE AGED; NEOPLASM; PATIENT SATISFACTION; PROFESSIONAL-PATIENT RELATIONSHIP; QUALITATIVE RESEARCH; QUESTIONNAIRE; REPRODUCTIVE HEALTH; SEXUALITY;

ADULT; AGED; COMMUNICATION; FEMALE; HUMANS; MALE; MIDDLE AGED; NEOPLASMS; PATIENT SATISFACTION; PROFESSIONAL-PATIENT RELATIONS; QUALITATIVE RESEARCH; REPRODUCTIVE HEALTH; SEXUAL PARTNERS; SEXUALITY; SURVEYS AND QUESTIONNAIRES;

EID: 84958921863     PISSN: 09615423     EISSN: 13652354     Source Type: Journal    
DOI: 10.1111/ecc.12216     Document Type: Article

References (76)

1. Ananth H., Jones L., King M. & Tookman A. (2003) The impact of cancer on sexual function: a controlled study. Palliative Medicine 17, 202-205.
2. Anderson B.L. & Golden-Kreutz D.M. (2000) Sexual self-concept for the women with cancer. In: Cancer and the Family (eds Baider L., Cooper C.L. & De-Nour A.K.), pp. 311-316. John Wiley and Sons, England, UK.
3. Annon J.S. (1981) PLISSIT therapy. In: Handbook of Innovative Psychotherapies (ed. Corsine R.J.), pp. 629-639. Wiley and Sons, New York, USA.
4. Archibald S., Lemieux S., Byers E.S., Tamlyn K. & Worth J. (2006) Chemically-induced menopause and the sexual functioning of breast cancer survivors. Women & Therapy 29, 83-106.
5. Badr H. & Carmack Taylor C.L. (2009) Sexual dysfunction and spousal communication in couples coping with prostate cancer. Psycho-Oncology 18, 735-746.
6. Basson R. (2010) Sexual function of women with chronic illness and cancer. Women's Health 6, 407-429.
7. Beck J.M. (2009) Nurses' attitudes towards the sexuality of colorectal patients. Nursing Standard 23, 44-48.
8. Beckjord E.B., Arora N.K., Bellizzi K., Hamilton A.S. & Rowland J.H. (2011) Sexual well-being among survivors of non-Hodgkin lymphoma. Oncology Nursing Forum 38, E351-E359.
9. Bergmark K., Avall-Lundqvist E., Dickman P.W., Henningsohn L. & Steineck G. (1999) Vaginal changes and sexuality in women with a history of cervical cancer. The New England Journal of Medicine 340, 1383-1389.
10. Bertero C. & Wilmoth M.C. (2007) Breast cancer diagnosis and its treatment affecting the self. Cancer Nursing 30, 194-202.
11. Braun V. & Clarke B. (2006) Using thematic analysis in psychology. Qualitative Research in Psychology 3, 77-101.
12. Brown J.B., Stewart M. & McWilliam C.L. (1999) Using the patient-centered method to achieve excellence in care for women with breast cancer. Patient Education and Counseling 38, 121-129.
13. Connell R.W. (1987) Gender and Power: Society, the Person, and Sexual Politics. Stanford University Press, Stanford, CA, USA.
14. Creswell J.W. (2009) Mixed methods procedures. In: Research Design: Qualitative, Quantitative, and Mixed Methods Approaches, 3rd edn (ed. Creswell J.W.), pp. 203-225. Sage, Los Angeles, CA, USA.
15. Danile A. & Haddow S. (2011) Erectile dysfunction after prostate cancer. The Clinical Advisor March, 64-68.
16. Dupras A. & Poissant M.S. (1987) The fear of sexuality in residents of a long-term care hospital. Sexuality and Disability 8, 203-215.
17. Ellingson L. & Buzzanell P.N. (1999) Listening to women's narratives of breast cancer treatment: a feminist approach to patient satisfaction with physician-patient communication. Health Communication 11, 153-183.
18. Emslie C., Browne S., MacLeod U., Rozmovits L., Mitchell E. & Ziebland S. (2009) 'Getting through' not 'going under': a qualitative study of gender and spousal support after diagnosis with colorectal cancer. Social Science & Medicine 68, 1169-1175.
19. Fallowfield L. & Jenkins V. (1999) Effective communication skills are the key to good cancer care. European Journal of Cancer 35, 1592-1597.
20. Fergus K.D., Gray R.E. & Fitch M.I. (2002) Sexual dysfunciton and the preservation of manhood: experiences of men with prostate cancer. Journal of Health Psychology 7, 303-316.
21. Flynn K.E., Reese J.B., Jeffery D.D., Abernethy A.P., Lin L., Shelby R.A., Porter L.S., Dombeck C.B. & Weinfurt K.P. (2012) Patient experiences with communication about sex during and after treatment for cancer. Psycho-Oncology 21, 594-601.
22. Foucault M. (1989) Birth of the Clinic. Penguin, London, UK.
23. Frankel R.M. (1995) Emotion and the physician-patient relationship. Motivation and Emotion 19, 163-173.
24. Gallo-Silver L. (2000) The sexual rehabilitation of persons with cancer. Cancer Practice 18, 10-15.
25. Gamel C., Hengenveld M. & Davis B. (2000) Informational needs about the effects of gynaecological cancer on sexuality: a review of the literature. Journal of Clinical Nursing 9, 678-688.
26. Gilbert E., Ussher J.M. & Hawkins Y. (2009) Accounts of disruptions to sexuality following cancer: the perspective of informal carers who are the intimate partner of a person with cancer. Health 13, 523-541.
27. Gilbert E., Ussher J.M. & Perz J. (2010) Sexuality after breast cancer: a review. Maturitas 66, 397-407.
28. Gilbert E., Ussher J.M., Perz J., Wong T.W.K., Hobbs K. & Mason C. (2013) Men's experiences of sexuality after cancer: a material, discursive and intra-psychic approach. Culture, Health and Sexuality 15, 881-895.
29. Greene M.G. & Adelman R.D. (2003) Physician-older patient communication about cancer. Patient Education and Counseling 50, 55-60.
30. Gurevich M., Bishop S., Bower J., Malka M. & Nyhof-Young J. (2004) (dis)embodying gender and sexuality in testicular cancer. Social Science & Medicine 58, 1597-1607.
31. Halldorsdottir S. & Hamrin E. (1997) Caring and uncaring encounters within nursing and health care from the cancer patient's perspective. Cancer Nursing 20, 120-128.
32. Hautamäki-Lamminen K., Lipiäinen L., Beaver K., Lehto J. & Kellokumpu-Lehtinen P.K. (2013) Identifying cancer patients with greater need for information about sexual issues. European Journal of Oncology Nursing 17, 9-15.
33. Hawkins Y., Ussher J.M., Gilbert E., Perz J., Sandoval M. & Sundquist K. (2009) Changes in sexuality and intimacy after the diagnosis of cancer. The experience of partners in a sexual relationship with a person with cancer. Cancer Nursing 34, 271-280.
34. Herbenick D., Reece M., Hollub A., Satinsky S. & Dodge B. (2008) Young female breast cancer survivors: their sexual function and interest in sexual enhancement products and services. Cancer Nursing 31, 417-425.
35. Hill E.K., Sandbo S., Abramsohn E., Makelarski J., Wrobleswki K., Wrenrich E.R., McCoy S., Temkin S.M., Yamada D.S. & Lindau S.T. (2011) Assessing gynecologic and breast cancer survivors' sexual health care needs. Cancer 117, 2634-2651.
36. Holloway W. (1989) Subjectivity and Method in Psychology: Gender, Meaning and Science. SAGE Publications Ltd, London, UK.
37. Hordern A.J. & Street A.F. (2007a) Communicating about patient sexuality and intimacy after cancer: mismatched expectations and unmet needs. Medical Journal of Australia 186, 224-227.
38. Hordern A.J. & Street A.F. (2007b) Constructions of sexuality and intimacy after cancer: patient and health professional perspectives. Social Science and Medicine 64, 1704-1718.
39. Jankowska M. (2012) Sexual functioning of testicular cancer survivors and their partners: a review of the literature. Reports of Practical Oncology and Radiotherapy 17, 54-62.
40. Jarden M., Schjodt I. & Thygesen K.H. (2012) The impact of hematopoietic stem cell transplantation on sexuality: a systematic review of the literature. Bone Marrow Transplantation 47, 716+.
41. Jensen P.T., Groenvold M., Klee M.C., Thranov I., Petersen M.A. & Machin D. (2004) Early-stage cervical carcinoma, radical hysterectomy, and sexual function. Cancer 100, 97-106.
42. Jonker-Pool G., Hoekstra H.J., van Imhoff G.W., Sonneveld D.J.A., Sleijfer D.T., van Driel M.F., Koops H.S. & van de Wiel H.B.M. (2004) Male sexuality after cancer treatment-needs for information and support: testicular cancer compared to malignant lymphoma. Patient Education and Counseling 52, 143-150.
43. Katz A. (2005) The sounds of silence: sexuality information for cancer patients. Journal of Clinical Oncology 23, 238-241.
44. Kelly D. (2009) Changed men: the embodied impact of prostate cancer. Qualitative Health Research 19, 151-163.
45. Kisinger S.W., Laurenceau J., Carver C.S. & Antoni M.H. (2011) Perceived partner support and psychosexual adjustment to breast cancer. Psychology and Health 26, 1571-1588.
46. Landmark B.T., Bohler A., Loberg K. & Wahl A.K. (2008) Women with newly diagnosed breast cancer and their perceptions of needs in a health-care context. Journal of Clinical Nursing 17, 192-200.
47. Lavery J.F. & Clarke V.A. (1999) Prostate cancer: patients' and spouses' coping and marital adjustment. Psychology, Health and Medicine 4, 289-302.
48. Lindau S.T., Surawska H., Paice J. & Baron S.R. (2011) Communication about sexuality and intimacy in couples affected by lung cancer and their clinical-care providers. Psycho-Oncology 20, 179-185.
49. Loe M. (2001) Fixing broken masculinity: viagra as a technology for the production of gender and sexuality. Sexuality & Culture 5, 97-125.
50. Low C., Fullarton M., Parkinson E., O'Brien K., Jackson S.R., Lowe D. & Rogers S.N. (2009) Issues of intimacy and sexual dysfunction following major head and neck cancer treatment. Oral Oncology 45, 898-903.
51. Lupton D. & McLean J. (1998) Representing doctors: discourses and images in the australian press. Social Science & Medicine 46, 947-958.
52. Miles C., Candy B., Jones L., Williams R., Tookman A. & King M. (2007) Interventions for sexual dysfunction following treatments for cancer. Cochrane Database of Systematic Reviews (4), CD005540.
53. O'Brien R., Rose R., Campbell C., Weller D., Neal R.D., Wilkinson C., McIntosh H. & Watson E. (2011) 'I wish i'd told them': a qualitative study examining the unmet psychosexual needs of prostate cancer patients during follow-up after treatment. Patient Education and Counseling 84, 200-207.
54. Ong L.M.L., Visser M.R.M., Lammes F.B. & de Haes J.M. (2000) Doctor-patient communication and cancer patients' quality of life and satisfaction. Patient Education and Counseling 41, 145-156.
55. Perz J., Ussher J.M. & Gilbert E. (2013) Constructions of sex and intimacy after cancer: q methodology study of people with cancer, their partners, and health professionals. BMC Cancer 13, 270.
56. Perz J., Ussher J.M. & Gilbert E. (2014) Feeling well and talking about sex: psycho-social predictors of sexual functioning after cancer. BMC Cancer 14, 228-247.
57. Plotti F., Sansone M., Di Donato V., Antonelli E., Altavilla T., Angioli R. & Panici P.B. (2011) Quality of life and sexual function after type c2/type iii radical hysterectomy for locally advanced cervical cancer: a prospective study. Journal of Sexual Medicine 8, 894-904.
58. Potts A., Grace V.M., Vaares T. & Gavey N. (2006) 'Sex for life'? Men's counter-stories on 'erectile dysfunction', male sexuality and ageing. Sociology of Health & Illness 28, 306-329.
59. Powel J.L. & Clarke J.A. (2005) The value of the marginalia as an adjunct to structured questionnaires: experiences of men after prostate cancer surgery. Quality of Life Research 14, 827-835.
60. Rasmusson E. & Thome B. (2008) Women's wishes and need for knowledge concerning sexuality and relationships in connection with gynecological cancer disease. Sexuality and Disability 26, 207-218.
61. Rassmusson E.D., Plantin L. & Elmerstig E. (2013) 'Did they think i would understand all that on my own?' A questionaire study about sexuality with swedish cancer patients. European Journal of Cancer Care 22, 361-369.
62. Rees C.E. & Bath P.A. (2000) Exploring the information flow: partners of women with breast cancer, patients, and health professionals. Oncology Nursing Forum 27, 1267-1275.
63. Rees C.E., Bath P.A. & Lloyd-Williams M. (1998) The information concerns of spouses of women with breast cancer: patients' and spouses' perspectives. Journal of Advanced Nursing 28, 1249-1258.
64. Reese J.B. (2011) Coping with sexual concerns after cancer. Current Opinion in Oncology 23, 313-321.
65. Salander P. & Spetz A. (2002) How do patients and spouses deal with the serious facts of malignant glioma? Palliative Medicine 16, 305-313.
66. Stead M.L., Brown J.M., Fallowfield L. & Selby P. (2003) Lack of communication between healthcare professionals and women with ovarian cancer about sexual issues. British Journal of Cancer 88, 666-671.
67. Sturges J. & Hanrahan K. (2004) Comparing telephone and face-to-face qualitative interviewing: a research note. Qualitative Research 4, 107-118.
68. Syme M.L., Mona L.R. & Cameron L.P. (2013) Sexual health and wellbeing after cancer: applying the sexual health model. The Counselling Psychologist 41, 268-285.
69. Teifer L. (1996) The medicalization of sexuality: conceptual, normative, and professional issues. Annual Review of Sex Research 7, 252-282.
70. Ussher J.M., Perz J. & Gilbert E. (2013a) Information needs associated with changes to sexual well-being after breast cancer. Journal of Advanced Nursing 69, 327-337.
71. Ussher J.M., Perz J., Gilbert E., Wong W.K.T. & Hobbs K. (2013b) Renegotiating sex after cancer: resisting the coital imperative. Cancer Nursing 36, 454-462.
72. Ussher J.M., Perz J., Gilbert E., Wong W.T.K., Mason C., Hobbs K. & Kirsten L. (2013c) Talking about sex after cancer: a discourse analytic study of health care professional accounts of sexual communication with patients. Psychology and Health 28, 1370-1390.
73. van der Horst-Schrivers A.N.A., van Ieperen E., Wymenga A., Boezen H., Weijmar-Schultz W.C.M., Kema I.P., Meijer W.G., de Herder W.W., Willemse P.H.B. & Links T.P. (2009) Sexual function in patients with metastatic midgut carcinoid tumours. Neuroendocrinology 89, 231-236.
74. Vogel B.A., Leonhart R. & Helmes A.W. (2009) Communication matters: the impact of communication and participation in decision making on breast cancer patients' depression and quality of life. Patient Education and Counseling 77, 391-397.
75. Wall D. & Kristjansen L. (2005) Men, culture and hegemonic masculinity: understanding the experience of prostate cancer. Nursing Inquiry 12, 87-97.
76. White I.D., Faithfull S. & Allan H. (2013) The re-construction of women's sexual lives after pelvic radiotherapy: a critique of social constructionist and biomedical perspectives on the study of female sexuality after cancer treatment. Social Science & Medicine 76, 188-196.