A standardized approach to estimating survival statistics for population-based cystic fibrosis registry cohorts

Journal of Clinical Epidemiology

Volumn 70, Issue , 2016, Pages 206-213

  Sykes, Jenna ^a   Stanojevic, Sanja ^b,c   Goss, Christopher H ^d   Quon, Bradley S ^e   Marshall, Bruce C ^f   Petren, Kristofer ^f   Ostrenga, Josh ^f   Fink, Aliza ^f   Elbert, Alexander ^f   Stephenson, Anne L ^a,g  

^a ST MICHAEL'S HOSPITAL   (Canada)

^b HOSPITAL FOR SICK CHILDREN   (Canada)

^c UNIVERSITY OF TORONTO   (Canada)

^d UNIVERSITY OF WASHINGTON MEDICAL CENTER   (United States)

^e UNIVERSITY OF BRITISH COLUMBIA   (Canada)

^f CYSTIC FIBROSIS FOUNDATION   (United States)

^g ST MICHAEL'S HOSPITAL   (Canada)

Author keywords

Cox proportional hazards; Cystic fibrosis; International comparisons; Life tables; Registry; Survival

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CALCULATION; CHILD; COHORT ANALYSIS; CYSTIC FIBROSIS; DEATH; FEMALE; FOLLOW UP; HUMAN; INFANT; MAJOR CLINICAL STUDY; MALE; POPULATION RESEARCH; PRIORITY JOURNAL; REGISTER; SIMULATION; STANDARDIZATION; SURVIVAL; AGE; CANADA; EPIDEMIOLOGY; LIFE TABLE; MORTALITY; PROPORTIONAL HAZARDS MODEL; STANDARDS; SURVIVAL ANALYSIS;

AGE FACTORS; CANADA; CYSTIC FIBROSIS; HUMANS; LIFE TABLES; PROPORTIONAL HAZARDS MODELS; REGISTRIES; SURVIVAL ANALYSIS;

EID: 84957433724     PISSN: 08954356     EISSN: 18785921     Source Type: Journal    
DOI: 10.1016/j.jclinepi.2015.08.026     Document Type: Article

References (10)

1. A.L. Stephenson, M. Tom, Y. Berthiaume, L.G. Singer, S.D. Aaron, G.A. Whitmore, and et al. A contemporary survival analysis of individuals with cystic fibrosis: a cohort study Eur Respir J 45 2015 670 679
2. UK cystic fibrosis registry annual data report 2012, "cystic fibrosis: our focus", 2013 Cystic Fibrosis Trust Kent
3. Cystic fibrosis foundation patient registry, "2012 annual data report to the center directors" 2013 Cystic Fibrosis Foundation Bethesda, Maryland
4. L.K. Smith, P.C. Lambert, J.L. Botha, and D.R. Jones Providing more up-to-date estimates of patient survival: a comparison of standard survival analysis with period analysis using life-table methods and proportional hazards models J Clin Epidemiol 57 2004 14 20
5. A.D. Jackson, L. Daly, C. Kelleher, B.C. Marshall, H.B. Quinton, L. Foley, and et al. The application of current lifetable methods to compare cystic fibrosis median survival internationally is limited J Cyst Fibros 10 2011 62 65
6. J.A. Nick, C.S. Chacon, S.J. Brayshaw, M.C. Jones, C.M. Barboa, C.G. St. Clair, and et al. Effects of gender and age at diagnosis on disease progression in long-term survivors of cystic fibrosis Am J Respir Crit Care Med 182 2010 614 626
7. C.L. Chiang Variance and covariance of life table functions estimated from a sample of deaths Vital Health Stat 2 1967 1 8
8. M. Corey, F.J. McLaughlin, M. Williams, and H. Levison A comparison of survival, growth, and pulmonary function in patients with cystic fibrosis in Boston and Toronto J Clin Epidemiol 41 1988 583 591
9. J. McCormick, E.J. Sims, M.W. Green, G. Mehta, F. Culross, and A. Mehta Comparative analysis of cystic fibrosis registry data from the UK with USA, France and Australasia J Cyst Fibros 4 2005 115 122
10. A.D. Jackson, L. Daly, A.L. Jackson, C. Kelleher, B.C. Marshall, H.B. Quinton, and et al. Validation and use of a parametric model for projecting cystic fibrosis survivorship beyond observed data: a birth cohort analysis Thorax 66 2011 674 679