Development of a Web-based, self-reporting symptom diary for Crohn's Disease, and its correlation with the Crohn's Disease Activity Index☆

Journal of Crohn's and Colitis

Volumn 11, Issue 12, 2017, Pages 1449-1455

  Kim, Eun Soo ^a   Park, Kyung Sik ^a   Cho, Kwang Bum ^a   Kim, Kyeong Ok ^b   Jang, Byung Ik ^b   Kim, Eun Young ^c   Jung, Jin Tae ^c   Jeon, Seong Woo ^d   Jung, Min Kyu ^d   Lee, Hyun Seok ^d   Yang, Chang Heon ^e   Lee, Yong Kook ^e  

^a Keimyung University   (South Korea)

^b Yeungnam University College of Medicine   (South Korea)

^c Catholic University of Daegu   (South Korea)

^d Kyungpook National University School of Medicine   (South Korea)

^e Dongguk University College of Medicine   (South Korea)

Author keywords

CDAI; Correlation; Crohn's disease; Diary; Symptoms; Web

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; CORRELATIONAL STUDY; CROHN DISEASE; CROHN DISEASE ACTIVITY INDEX; DATA ANALYSIS; DISEASE SEVERITY; FEMALE; HUMAN; INTERNET; MAJOR CLINICAL STUDY; MALE; MEDICAL DOCUMENTATION; PREDICTIVE VALUE; PRIORITY JOURNAL; REMISSION; SCORING SYSTEM; SELF REPORT; COMPLICATION; MIDDLE AGED; PROCEDURES; RECEIVER OPERATING CHARACTERISTIC; SEVERITY OF ILLNESS INDEX; SYMPTOM ASSESSMENT; YOUNG ADULT;

ADOLESCENT; ADULT; AGED; CROHN DISEASE; FEMALE; HUMANS; INTERNET; MALE; MIDDLE AGED; PREDICTIVE VALUE OF TESTS; ROC CURVE; SELF REPORT; SEVERITY OF ILLNESS INDEX; SYMPTOM ASSESSMENT; YOUNG ADULT;

EID: 84956744822     PISSN: 18739946     EISSN: 18764479     Source Type: Journal    
DOI: 10.1016/j.crohns.2014.09.003     Document Type: Article

References (24)

1. Vermeire S, van Assche G, Rutgeerts P. Review article: altering the natural history of Crohn's disease-evidence for and against current therapies. Aliment Pharmacol Ther 2007;25:3-12.
2. Husain A, Triadafilopoulos G. Communicating with patients with inflammatory bowel disease. Inflamm Bowel Dis 2004;10:444-450 [discussion 451].
3. Henriksen M, Jahnsen J, Lygren I, Aadland E, Schulz T, Vatn MH. et al. Clinical course in Crohn's disease: results of a five-year population-based follow-up study (the IBSEN study). Scand J Gastroenterol 2007;42:602-610.
4. Veloso FT, Ferreira JT, Barros L, Almeida S. Clinical outcome of Crohn's disease: analysis according to the Vienna classification and clinical activity. Inflamm Bowel Dis 2001;7:306-313.
5. Best WR, Becktel JM, Singleton JW, Kern F Jr. Development of a Crohn's disease activity index. National Cooperative Crohn's Disease Study. Gastroenterology 1976;70:439-444.
6. Sandborn WJ, Feagan BG, Hanauer SB, Lochs H, Lofberg R, Modigliani R. et al. A review of activity indices and efficacy endpoints for clinical trials of medical therapy in adults with Crohn's disease. Gastroenterology 2002;122:512-530.
7. Summers RW, Switz DM, Sessions JT. Jr., Becktel JM, Best WR, Kern F Jr. et al. National Cooperative Crohn's Disease Study: results of drug treatment. Gastroenterology 1979;77:847-869.
8. Sands BE, Ooi CJ. A survey of methodological variation in the Crohn's disease activity index. Inflamm Bowel Dis 2005;11:133-138.
9. Harvey RF, Bradshaw JM. A simple index of Crohn's-disease activity. Lancet 1980;1:514.
10. Vermeire S, Schreiber S, Sandborn WJ, Dubois C, Rutgeerts P. Correlation between the Crohn's disease activity and Harvey-Bradshaw indices in assessing Crohn's disease severity. Clin Gastroenterol Hepatol 2010;8:357-363.
11. Evangelista LS, Stromberg A, Westlake C, Ter-Galstanyan A, Anderson N, Dracup K. Developing a Web-based education and counseling program for heart failure patients. Prog Cardiovasc Nurs 2006;21:196-201.
12. Gomez EJ, Hernando ME, Garcia A, Del Pozo F, Cermeno J, Corcoy R. et al. Telemedicine as a tool for intensive management of diabetes: the DIABTel experience. Comput Methods Programs Biomed 2002;69:163-177.
13. Maiolo C, Mohamed EI, Fiorani CM, De Lorenzo A. Home telemonitor-ing for patients with severe respiratory illness: the Italian experience. J Telemed Telecare 2003;9:67-71.
14. Elkjaer M, Shuhaibar M, Burisch J, Bailey Y, Scherfig H, Laugesen B. et al. E-health empowers patients with ulcerative colitis: a randomised controlled trial of the web-guided 'Constant-care' approach. Gut 2010;59:1652-1661.
15. Pedersen N, Elkjaer M, Duricova D, Burisch J, Dobrzanski C, Andersen N.N. et al. eHealth: individualisation of infliximab treatment and disease course via a self-managed web-based solution in Crohn's disease. Aliment Pharmacol Ther 2012;36:840-849.
16. Ulrich R, Wirtz M. On the correlation of a naturally and an artificially dichotomized variable. Br J Math Stat Psychol 2004;57:235-251.
17. Litcher-Kelly L, Kellerman Q, Hanauer SB, Stone AA. Feasibility and utility of an electronic diary to assess self-report symptoms in patients with inflammatory bowel disease. Ann Behav Med 2007;33:207-212.
18. Elkjaer M. E-health: Web-guided therapy and disease self-management in ulcerative colitis. Impact on disease outcome, quality of life and compliance. Dan Med J 2012;59:B4478.
19. Best WR. Predicting the Crohn's disease activity index from the Harvey-Bradshaw Index. Inflamm Bowel Dis 2006;12:304-310.
20. Laugsand EA, Sprangers MA, Bjordal K, Skorpen F, Kaasa S, Klepstad P. Health care providers underestimate symptom intensities of cancer patients: a multicenter European study. Health Qual Life Outcomes 2010;8:104.
21. Lesage AC, Hagege H, Tucat G, Gendre JP. Results of a national survey on quality of life in inflammatory bowel diseases. Clin Res Hepatol Gastroenterol 2011;35:117-124.
22. Evertsz FB, Hoeks CC, Nieuwkerk PT, Stokkers PC, Ponsioen CY, Bockting CL. et al. Development of the patient Harvey Bradshaw index and a comparison with a clinician-based Harvey Bradshaw index assessment of Crohn's disease activity. J Clin Gastroenterol 2013;47:850-856.
23. Williams PA, Hossack E. It will never happen to us: the likelihood and impact of privacy breaches on health data in Australia. Stud Health Tech-nol Inform 2013;188:155-161.
24. Rodrigues JJ, de la Torre I, Fernandez G, Lopez-Coronado M. Analysis of the security and privacy requirements of cloud-based electronic health records systems. J Med Internet Res 2013;15:e186.