-
1
-
-
24944590352
-
Management strategies for patients with amyotrophic lateral sclerosis from diagnosis through death
-
Simmons Z. Management Strategies for Patients With Amyotrophic Lateral Sclerosis From Diagnosis Through Death. Neurologist. 2005; 11: 257-70.
-
(2005)
Neurologist
, vol.11
, pp. 257-270
-
-
Simmons, Z.1
-
2
-
-
27144448387
-
Multidisciplinary ALS care improves quality of life in patients with ALS
-
van den Berg JP, Kalmijn S, Lindeman E, Veldink JH, de Visser M, van der Graaff MM, et al. Multidisciplinary ALS care improves quality of life in patients with ALS. Neurology. 2005; 65: 1264-7.
-
(2005)
Neurology
, vol.65
, pp. 1264-1267
-
-
Van Den Berg, J.P.1
Kalmijn, S.2
Lindeman, E.3
Veldink, J.H.4
De Visser, M.5
Van Der Graaff, M.M.6
-
3
-
-
0141628879
-
Effect of a multidisciplinary amyotrophic lateral sclerosis (ALS) clinic on ALS survival: A population based study, 1996-2000
-
Traynor BJ, Alexander M, Corr B, Frost E, Hardiman O. Effect of a multidisciplinary amyotrophic lateral sclerosis (ALS) clinic on ALS survival: a population based study, 1996-2000. J Neurol Neurosurg Psychiatry. 2003; 74: 1258-61.
-
(2003)
J Neurol Neurosurg Psychiatry
, vol.74
, pp. 1258-1261
-
-
Traynor, B.J.1
Alexander, M.2
Corr, B.3
Frost, E.4
Hardiman, O.5
-
4
-
-
33746308149
-
Positive effects of tertiary centers for amyotrophic lateral sclerosis on outcome and use of hospital facilities
-
Chiò A, Bottacchi E, Buffa C, Mutani R, Mora G. Positive effects of tertiary centers for amyotrophic lateral sclerosis on outcome and use of hospital facilities. J Neurol Neurosurg Psychiatry. 2006; 77: 948-50.
-
(2006)
J Neurol Neurosurg Psychiatry
, vol.77
, pp. 948-950
-
-
Chiò, A.1
Bottacchi, E.2
Buffa, C.3
Mutani, R.4
Mora, G.5
-
5
-
-
84927590654
-
A multidisciplinary clinic approach improves survival in ALS: A comparative study of ALS in Ireland and Northern Ireland
-
Published Online First
-
Rooney J, Byrne S, Heverin M, Tobin K, Dick A, Donaghy C, et al. A multidisciplinary clinic approach improves survival in ALS: a comparative study of ALS in Ireland and Northern Ireland. J Neurol Neurosurg Psychiatry, Published Online First: (December, 30, 2014) doi: 10.1136/jnnp-2014-309601.
-
(2014)
J Neurol Neurosurg Psychiatry
-
-
Rooney, J.1
Byrne, S.2
Heverin, M.3
Tobin, K.4
Dick, A.5
Donaghy, C.6
-
6
-
-
84875443994
-
The natural history of motor neuron disease: Assessing the impact of specialist care
-
Aridegbe T, Kandler R, Walters SJ, Walsh T, Shaw PJ, McDermott CJ. The natural history of motor neuron disease: assessing the impact of specialist care. Amyotroph Lateral Scler Frontotemporal Degener. 2013; 14: 13-19.
-
(2013)
Amyotroph Lateral Scler Frontotemporal Degener
, vol.14
, pp. 13-19
-
-
Aridegbe, T.1
Kandler, R.2
Walters, S.J.3
Walsh, T.4
Shaw, P.J.5
McDermott, C.J.6
-
7
-
-
34548397674
-
ALS multidisciplinary clinic and survival. Results from a population based study in southern Italy
-
Zoccolella S, Beghi E, Palagano G, Fraddosio A, Guerra V, Lepore V, et al. ALS multidisciplinary clinic and survival. Results from a population based study in southern Italy. J Neurol. 2007; 254: 1107-12.
-
(2007)
J Neurol
, vol.254
, pp. 1107-1112
-
-
Zoccolella, S.1
Beghi, E.2
Palagano, G.3
Fraddosio, A.4
Guerra, V.5
Lepore, V.6
-
9
-
-
70350149848
-
Practice parameter: The care of the patient with amyotrophic lateral sclerosis (an evidence based review
-
Miller RG, Rosenberg JA, Gelinas DF, Mitsumoto H, Newman D, Sufit R, et al. Practice parameter: the care of the patient with amyotrophic lateral sclerosis (an evidence based review). American Academy of Neurology. Neurology. 2009; 73: 1218-26.
-
(2009)
American Academy of Neurology. Neurology
, vol.73
, pp. 1218-1226
-
-
Miller, R.G.1
Rosenberg, J.A.2
Gelinas, D.F.3
Mitsumoto, H.4
Newman, D.5
Sufit, R.6
-
10
-
-
70350138259
-
Practice parameter update: The care of the patient with amyotrophic lateral sclerosis: Multidisciplinary care, symptom management, and cognitive/behavioral impairment (an evidence based review): Report of the quality standards subcommittee of the American academy of neurology
-
Miller RG, Jackson CE, Kasarskis EJ, England JD, Forshew D, Johnston W, et al. Practice parameter update: the care of the patient with amyotrophic lateral sclerosis: multidisciplinary care, symptom management, and cognitive/behavioral impairment (an evidence based review): report of the Quality Standards Subcommittee of the American Academy of Neurology. Neurology. 2009; 73: 1227-33.
-
(2009)
Neurology
, vol.73
, pp. 1227-1233
-
-
Miller, R.G.1
Jackson, C.E.2
Kasarskis, E.J.3
England, J.D.4
Forshew, D.5
Johnston, W.6
-
11
-
-
84892171129
-
Quality improvement in neurology: Amyotrophic lateral sclerosis quality measures: Report of the quality measurement and reporting subcommittee of the American academy of neurology
-
Miller RG, Brooks BR, Swain-Eng RJ, Basner RC, Carter GT, Casey P, et al. Quality improvement in neurology: amyotrophic lateral sclerosis quality measures: report of the quality measurement and reporting subcommittee of the American Academy of Neurology. Neurology. 2013; 81: 2136-40.
-
(2013)
Neurology
, vol.81
, pp. 2136-2140
-
-
Miller, R.G.1
Brooks, B.R.2
Swain-Eng, R.J.3
Basner, R.C.4
Carter, G.T.5
Casey, P.6
-
13
-
-
0032692481
-
The alsfrs-r: A revised als functional rating scale that incorporates assessments of respiratory function
-
Cedarbaum JM, Stambler N, Fuller C, Hilt D, Thurmond B, Nakanishi A, et al. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. Neurology. 1999; 169: 13-21.
-
(1999)
Neurology
, vol.169
, pp. 13-21
-
-
Cedarbaum, J.M.1
Stambler, N.2
Fuller, C.3
Hilt, D.4
Thurmond, B.5
Nakanishi, A.6
-
14
-
-
84855371703
-
Validation of the ALS specific quality of life-revised measure (ALSSQoL-R
-
Felgoise SH, Rodriquez JL, Bremer BA, Walsh SM, Stephens HE, Horowitz MD, Simmons Z. Validation of the ALS specific quality of life-revised measure (ALSSQoL-R). Amyotroph Lateral Scler. 2008; 9: 12-13.
-
(2008)
Amyotroph Lateral Scler
, vol.9
, pp. 12-13
-
-
Felgoise, S.H.1
Rodriquez, J.L.2
Bremer, B.A.3
Walsh, S.M.4
Stephens, H.E.5
Horowitz, M.D.6
Simmons, Z.7
-
15
-
-
33750968193
-
The ALSSQoL: Balancing physical and non-physical factors in assessing quality of life in ALS
-
Simmons Z, Felgoise SH, Bremer BA, Walsh SM, Hufford DJ, Bromberg MB, et al. The ALSSQoL: balancing physical and non-physical factors in assessing quality of life in ALS. Neurology. 2006; 67: 1659-64.
-
(2006)
Neurology
, vol.67
, pp. 1659-1664
-
-
Simmons, Z.1
Felgoise, S.H.2
Bremer, B.A.3
Walsh, S.M.4
Hufford, D.J.5
Bromberg, M.B.6
-
17
-
-
0002996901
-
A template approach to text analysis: Developing and using codebooks
-
In: Crabtree BF, Miller WL, editors. Newbury Park, CA: Sage
-
Crabtree BF, Miller WL. A template approach to text analysis: developing and using codebooks. In: Crabtree BF, Miller WL., editors. Doing Qualitative Research. Newbury Park, CA: Sage; 1992. pp 93-109.
-
(1992)
Doing Qualitative Research
, pp. 93-109
-
-
Crabtree, B.F.1
Miller, W.L.2
-
18
-
-
84887583948
-
Multidisciplinary team working in motor neuron disease: Patient and family carer views
-
OBrien M, Whitehead, Jack B, Mitchell JD. Multidisciplinary team working in motor neuron disease: patient and family carer views. Br J Neurosci Nurs. 2011; 7: 580-5.
-
(2011)
Br J Neurosci Nurs
, vol.7
, pp. 580-585
-
-
OBrien, M.1
Whitehead2
Jack, B.3
Mitchell, J.D.4
-
19
-
-
0030710981
-
Home care of patients with amyotrophic lateral sclerosis (ALS
-
SUPPL
-
Krivickas LS, Shockley L, Mitsumoto H. Home care of patients with amyotrophic lateral sclerosis (ALS). J Neurol Sci. 1997; 152 (Suppl): S82-9.
-
(1997)
J Neurol Sci
, vol.152
, pp. S82-S89
-
-
Krivickas, L.S.1
Shockley, L.2
Mitsumoto, H.3
-
20
-
-
77649324425
-
A timeline for predicting durable medical equipment needs and interventions for amyotrophic lateral sclerosis patients
-
Bromberg MB, Brownell AA, Forshew DA, Swenson M. A timeline for predicting durable medical equipment needs and interventions for amyotrophic lateral sclerosis patients. Amyotroph Lateral Scler. 2010; 11: 110-15.
-
(2010)
Amyotroph Lateral Scler
, vol.11
, pp. 110-115
-
-
Bromberg, M.B.1
Brownell, A.A.2
Forshew, D.A.3
Swenson, M.4
-
21
-
-
79959745539
-
Psychological health in patients with ALS is maintained as physical function declines
-
Cupp J, Simmons Z, Berg A, Felgoise SH, Walsh SM, Stephens HE. Psychological health in patients with ALS is maintained as physical function declines. Amyotroph Lateral Scler. 2011; 12: 290-6.
-
(2011)
Amyotroph Lateral Scler
, vol.12
, pp. 290-296
-
-
Cupp, J.1
Simmons, Z.2
Berg, A.3
Felgoise, S.H.4
Walsh, S.M.5
Stephens, H.E.6
-
22
-
-
77953735008
-
Psychological morbidity in ALS: The importance of psychological assessment beyond depression alone
-
Felgoise SH, Chakraborty BH, Bond E, Rodriguez J, Bremer BA, Walsh SM, et al. Psychological morbidity in ALS: the importance of psychological assessment beyond depression alone. Amyotroph Lateral Scler. 2010; 11: 351-8.
-
(2010)
Amyotroph Lateral Scler
, vol.11
, pp. 351-358
-
-
Felgoise, S.H.1
Chakraborty, B.H.2
Bond, E.3
Rodriguez, J.4
Bremer, B.A.5
Walsh, S.M.6
-
23
-
-
0028057223
-
Survival in amyotrophic lateral sclerosis the role of psychological factors
-
McDonald ER, Wiedenfeld SA, Hillel A, Carpenter CL, Walter RA. Survival in amyotrophic lateral sclerosis. The role of psychological factors. Arch Neurol. 1994; 51: 17-23.
-
(1994)
Arch Neurol
, vol.51
, pp. 17-23
-
-
McDonald, E.R.1
Wiedenfeld, S.A.2
Hillel, A.3
Carpenter, C.L.4
Walter, R.A.5
-
24
-
-
0032963128
-
Mood as a predictor of disability and survival in patients newly diagnosed with ALS/MND
-
Johnston M, Earll L, Giles M, Mcclenahan R, Stevens D, Morrison V. Mood as a predictor of disability and survival in patients newly diagnosed with ALS/MND. Br J Health Psychol. 1999; 4: 127-36.
-
(1999)
Br J Health Psychol
, vol.4
, pp. 127-136
-
-
Johnston, M.1
Earll, L.2
Giles, M.3
Mcclenahan, R.4
Stevens, D.5
Morrison, V.6
-
25
-
-
0037435527
-
Fatigue and depression are associated with poor quality of life in ALS
-
Lou J-S, Reeves A, Benice T, Sexton G. Fatigue and depression are associated with poor quality of life in ALS. Neurology. 2003; 60: 122-3.
-
(2003)
Neurology
, vol.60
, pp. 122-123
-
-
Lou, J.-S.1
Reeves, A.2
Benice, T.3
Sexton, G.4
-
26
-
-
0025021343
-
Relationship between hopelessness and ultimate suicide: A replication with psychiatric outpatients
-
Beck AT, Brown G, Berchick RJ, Stewart BL, Steer RA. Relationship between hopelessness and ultimate suicide: a replication with psychiatric outpatients. Am J Psychiatry. 1990; 147: 190-5.
-
(1990)
Am J Psychiatry
, vol.147
, pp. 190-195
-
-
Beck, A.T.1
Brown, G.2
Berchick, R.J.3
Stewart, B.L.4
Steer, R.A.5
-
27
-
-
0032189722
-
Attitudes of patients with amyotrophic lateral sclerosis and their caregivers toward assisted suicide
-
Ganzini L, Johnston WS, McFarland BH, Tolle SW, Lee MA. Attitudes of patients with amyotrophic lateral sclerosis and their caregivers toward assisted suicide. N Engl J Med. 1998; 339: 967-73.
-
(1998)
N Engl J Med
, vol.339
, pp. 967-973
-
-
Ganzini, L.1
Johnston, W.S.2
McFarland, B.H.3
Tolle, S.W.4
Lee, M.A.5
-
28
-
-
84870477847
-
Caregiver burden in amyotrophic lateral sclerosis is more dependent on patients behavioral changes than physical disability: A comparative study
-
Lillo P, Mioshi E, Hodges JR. Caregiver burden in amyotrophic lateral sclerosis is more dependent on patients behavioral changes than physical disability: a comparative study. BMC Neurol. 2012; 12: 151-61.
-
(2012)
BMC Neurol
, vol.12
, pp. 151-161
-
-
Lillo, P.1
Mioshi, E.2
Hodges, J.R.3
-
29
-
-
0034085727
-
Resilience and distress among amyotrophic lateral sclerosis patients and caregivers
-
Rabkin JG, Wagner GJ, Del Bene M. Resilience and distress among amyotrophic lateral sclerosis patients and caregivers. Psychosom Med. 62: 271-9.
-
Psychosom Med
, vol.62
, pp. 271-279
-
-
Rabkin, J.G.1
Wagner, G.J.2
Del Bene, M.3
-
30
-
-
33646750919
-
Predictors of psychological distress in carers of people with amyotrophic lateral sclerosis: A longitudinal study
-
Goldstein LH, Atkins L, Landau S, Brown R, Leigh PN. Predictors of psychological distress in carers of people with amyotrophic lateral sclerosis: a longitudinal study. Psychol Med. 2006; 36: 865-75.
-
(2006)
Psychol Med
, vol.36
, pp. 865-875
-
-
Goldstein, L.H.1
Atkins, L.2
Landau, S.3
Brown, R.4
Leigh, P.N.5
-
31
-
-
34147098428
-
A longitudinal study on quality of life and depression in ALS patient-caregiver couples
-
Gauthier A, Vignola A, Calvo A, Cavallo E, Moglia C, Sellitti L, et al. A longitudinal study on quality of life and depression in ALS patient-caregiver couples. Neurology. 2007; 68: 923-6.
-
(2007)
Neurology
, vol.68
, pp. 923-926
-
-
Gauthier, A.1
Vignola, A.2
Calvo, A.3
Cavallo, E.4
Moglia, C.5
Sellitti, L.6
-
32
-
-
84955695639
-
Identifying needs and interventions to support caregivers of patients with ALS
-
Bremer B, Stephens HE, Walsh S, Felgoise S, Simmons Z. Identifying needs and interventions to support caregivers of patients with ALS. Amyotroph Lateral Scler. 2010; 11 (Suppl 1): 50.
-
(2010)
Amyotroph Lateral Scler
, vol.11
, pp. 50
-
-
Bremer, B.1
Stephens, H.E.2
Walsh, S.3
Felgoise, S.4
Simmons, Z.5
-
33
-
-
84955705966
-
-
Internet]. Available from
-
Hershey ALS Clinic Caregiving Screen [Internet]. Available from http://www.pennstatehershey.org/c/document-library/get-file?uuid = a4a986be-9b45-4589-A4df-16e4657b17f7&groupId = 22147.
-
Hershey ALS Clinic Caregiving Screen
-
-
-
34
-
-
0034771749
-
Patient adherence to treatment: Three decades of research. A comprehensive review
-
Vermeire E, Hearnshaw H, van Royen P, Denekens J. Patient adherence to treatment: three decades of research. A comprehensive review. J Clin Pharm Ther. 2001; 26: 331-42.
-
(2001)
J Clin Pharm Ther
, vol.26
, pp. 331-342
-
-
Vermeire, E.1
Hearnshaw, H.2
Van Royen, P.3
Denekens, J.4
-
35
-
-
33947274664
-
Compliance, concordance, adherence
-
Aronson JK. Compliance, concordance, adherence. Br J Clin Pharmacol. 2007; 63: 383-4.
-
(2007)
Br J Clin Pharmacol
, vol.63
, pp. 383-384
-
-
Aronson, J.K.1
-
36
-
-
77955244910
-
Medication adherence is a partnership, medication compliance is not
-
Gould E, Mitty E. Medication adherence is a partnership, medication compliance is not. Geriatr Nurs. 2010; 31: 290-8.
-
(2010)
Geriatr Nurs
, vol.31
, pp. 290-298
-
-
Gould, E.1
Mitty, E.2
-
37
-
-
70450158917
-
The SEIQoL-DW for assessing quality of life in ALS: Strengths and limitations
-
Felgoise SH, Stewart JL, Bremer BA, Walsh SM, Bromberg MB, Simmons Z. The SEIQoL-DW for assessing quality of life in ALS: strengths and limitations. Amyotroph Lateral Scler. 2009; 10: 456-62.
-
(2009)
Amyotroph Lateral Scler
, vol.10
, pp. 456-462
-
-
Felgoise, S.H.1
Stewart, J.L.2
Bremer, B.A.3
Walsh, S.M.4
Bromberg, M.B.5
Simmons, Z.6
-
38
-
-
0033022984
-
Methodological approaches for assessing response shift in longitudinal health-related quality-of-life research
-
Schwartz CE, Sprangers MA. Methodological approaches for assessing response shift in longitudinal health-related quality-of-life research. Soc Sci Med. 1999; 48: 1531-48.
-
(1999)
Soc Sci Med
, vol.48
, pp. 1531-1548
-
-
Schwartz, C.E.1
Sprangers, M.A.2
-
39
-
-
0035912564
-
Measuring quality of life: Is quality of life determined by expectations or experience?
-
Carr AJ, Gibson B, Robinson PG. Measuring quality of life: is quality of life determined by expectations or experience? Br Med J. 2001; 322: 1240-3.
-
(2001)
Br Med J
, vol.322
, pp. 1240-1243
-
-
Carr, A.J.1
Gibson, B.2
Robinson, P.G.3
-
40
-
-
84897514007
-
Response shift recalibration and reprioritization in health-related quality of life was identified prospectively in older males with and without stroke
-
Barclay R, Tate RB. Response shift recalibration and reprioritization in health-related quality of life was identified prospectively in older males with and without stroke. J Clin Epidemiol. 2014; 67: 500-7.
-
(2014)
J Clin Epidemiol
, vol.67
, pp. 500-507
-
-
Barclay, R.1
Tate, R.B.2
-
41
-
-
33746448300
-
A social problem-solving model of adherence to HIV medications
-
Johnson MO, Elliott TR, Neilands TB, Morin SF, Chesney MA. A Social Problem-Solving Model of Adherence to HIV Medications. Health Psychol. 2006; 25: 355-63.
-
(2006)
Health Psychol
, vol.25
, pp. 355-363
-
-
Johnson, M.O.1
Elliott, T.R.2
Neilands, T.B.3
Morin, S.F.4
Chesney, M.A.5
-
42
-
-
84890071480
-
Managing lapses in cardiac rehabilitation exercise therapy: Examination of the problem solving process
-
Flora PK, Brawley LR. Managing lapses in cardiac rehabilitation exercise therapy: examination of the problem solving process. Rehabil Psychol. 2013; 58: 369-76.
-
(2013)
Rehabil Psychol
, vol.58
, pp. 369-376
-
-
Flora, P.K.1
Brawley, L.R.2
-
43
-
-
84861905781
-
A non-inferiority trial of a problem-solving intervention for hospice caregivers: In person versus videophone
-
Demiris G, Parker Oliver D, Wittenberg-Lyles E, Washington K, Doorenbos A, Rue T, et al. A non-inferiority trial of a problem-solving intervention for hospice caregivers: in person versus videophone. J Palliat Med. 2012; 15: 653-60.
-
(2012)
J Palliat Med
, vol.15
, pp. 653-660
-
-
Demiris, G.1
Parker Oliver, D.2
Wittenberg-Lyles, E.3
Washington, K.4
Doorenbos, A.5
Rue, T.6
-
44
-
-
34547568688
-
Do people want to be autonomous patients? Preferred roles in treatment decision-making in several patient populations
-
Deber RB, Kraetschmer N, Urowitz S, Sharpe N. Do people want to be autonomous patients? Preferred roles in treatment decision-making in several patient populations. Health Expect. 2007; 10: 248-58.
-
(2007)
Health Expect
, vol.10
, pp. 248-258
-
-
Deber, R.B.1
Kraetschmer, N.2
Urowitz, S.3
Sharpe, N.4
-
45
-
-
33744532307
-
AIDES to improving medication adherence in older adults
-
Bergman-Evans B. AIDES to improving medication adherence in older adults. Geriatr Nurs 2006; 27: 174-82.
-
(2006)
Geriatr Nurs
, vol.27
, pp. 174-182
-
-
Bergman-Evans, B.1
|