Longitudinal evaluation of patient-reported outcomes measurement information systems measures in pediatric chronic pain

Pain

Volumn 157, Issue 2, 2016, Pages 339-347

  Kashikar Zuck, Susmita ^a,b   Carle, Adam ^a,b   Barnett, Kimberly ^a   Goldschneider, Kenneth R ^a,b   Sherry, David D ^c   Mara, Constance A ^a,b   Cunningham, Natoshia ^a,b   Farrell, Jennifer ^d   Tress, Jenna ^c   Dewitt, Esi Morgan ^a,b  

^a CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER   (United States)

^b UNIVERSITY OF CINCINNATI COLLEGE OF MEDICINE   (United States)

^c CHILDREN S HOSPITAL OF PHILADELPHIA   (United States)

^d UNIVERSITY OF NORTH TEXAS   (United States)

Author keywords

Pain interference; Patient reported outcomes; Pediatric pain; PROMIS; Quality of life

Indexed keywords

ADOLESCENT; ADULT; ANXIETY; ARM MOVEMENT; ARM PAIN; ARTICLE; BACKACHE; CHILD; CHILDREN DEPRESSION INVENTORY; CHRONIC PAIN; CONSTRUCT VALIDITY; DEPRESSION; DEPRESSION INVENTORY; FATIGUE; FEMALE; FOLLOW UP; FUNCTIONAL DISABILTY INVENTORY; HUMAN; INFORMATION SYSTEM; LEG PAIN; LONGITUDINAL STUDY; MAJOR CLINICAL STUDY; MALE; MUSCULOSKELETAL PAIN; NECK PAIN; OUTCOME ASSESSMENT; PATIENT MOBILITY; PATIENT REPORTED OUTCOMES MEASUREMENT INFORMATION SYSTEM; PEDSQL QUESTIONNAIRE; PEER GROUP; PRIORITY JOURNAL; QUESTIONNAIRE; RATING SCALE; SELF REPORT; SENSITIVITY AND SPECIFICITY; ANALGESIA; CLINICAL TRIAL; DISABILITY; ELECTRONIC HEALTH RECORD; MULTICENTER STUDY; PAIN CLINIC; PAIN MEASUREMENT; PATHOPHYSIOLOGY; PSYCHOLOGICAL RATING SCALE; PSYCHOLOGY; REPRODUCIBILITY; STATISTICS AND NUMERICAL DATA; TREATMENT OUTCOME;

ADOLESCENT; CHILD; CHRONIC PAIN; DEPRESSION; DISABILITY EVALUATION; ELECTRONIC HEALTH RECORDS; FEMALE; HUMANS; LONGITUDINAL STUDIES; MALE; PAIN CLINICS; PAIN MANAGEMENT; PAIN MEASUREMENT; PSYCHIATRIC STATUS RATING SCALES; REPRODUCIBILITY OF RESULTS; SELF REPORT; TREATMENT OUTCOME;

EID: 84955605359     PISSN: 03043959     EISSN: 18726623     Source Type: Journal    
DOI: 10.1097/j.pain.0000000000000378     Document Type: Article

References (29)

1. Cella D, Yount S, Rothrock N, Gershon R, Cook K, Reeve B, Ader D, Fries JF, Bruce B, Rose M. The Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH Roadmap cooperative group during its first two years. Med Care 2007; 45(5 suppl 1): S3
2. Chang CH, Reeve BB. Item response theory and its applications to patient-reported outcomes measurement. Eval Health Prof 2005; 28: 264-82
3. DeWalt DA, Rothrock N, Yount S, Stone AA. Evaluation of item candidates: the PROMIS qualitative item review. Med Care 2007; 45 (5 suppl 1): S12
4. Eccleston C, Palermo TM, Williams AC, Lewandowski Holley A, Morley S, Fisher E, Law E. Psychological therapies for the management of chronic and recurrent pain in children and adolescents. Cochrane Database Syst Rev 2014; 5: CD003968
5. Guite JW, Logan DE, Sherry DD, Rose JB. Adolescent self-perception: associations with chronic musculoskeletal pain and functional disability. J Pain 2007; 8: 379-86
6. Kashikar-Zuck S, Flowers SR, Claar RL, Guite JW, Logan DE, Lynch-Jordan AM, Palermo TM, Wilson AC. Clinical utility and validity of the Functional Disability Inventory (FDI) among a multicenter sample of youth with chronic pain. PAIN 2011; 152: 1600-7
7. Kashikar-Zuck S, Goldschneider KR, Powers SW, Vaught MH, Hershey AD. Depression and functional disability in chronic pediatric pain. Clin J Pain 2001; 17: 341-9
8. Kashikar-Zuck S, Johnston M, Ting TV, Graham BT, Lynch-Jordan AM, Verkamp E, Passo M, Schikler KN, Hashkes PJ, Spalding S, Banez G, Richards MM, Powers SW, Arnold LM, Lovell D. Relationship between school absenteeism and depressive symptoms among adolescents with juvenile fibromyalgia. J Pediatr Psychol 2010; 35: 996-1004
9. Kashikar-Zuck S, Lynch AM, Graham TB, Swain NF, Mullen SM, Noll RB. Social functioning and peer relationships of adolescents with juvenile fibromyalgia syndrome. Arthritis Rheum 2007; 57: 474-80
10. Kashikar-Zuck S, Parkins IS, Graham TB, Lynch AM, Passo M, Johnston M, Schikler KN, Hashkes PJ, Banez G, Richards MM. Anxiety, mood, and behavioral disorders among pediatric patients with juvenile fibromyalgia syndrome. Clin J Pain 2008; 24: 620-6
11. Kashikar-Zuck S, Ting TV, Arnold LM, Bean J, Powers SW, Graham TB, Passo MH, Schikler KN, Hashkes PJ, Spalding S, Lynch-Jordan AM, Banez G, Richards MM, Lovell DJ. Cognitive behavioral therapy for the treatment of juvenile fibromyalgia: a multisite, single-blind, randomized, controlled clinical trial. Arthritis Rheum 2012; 64: 297-305
12. Kashikar-Zuck S, Vaught MH, Goldschneider KR, Graham TB, Miller JC. Depression, coping and functional disability in juvenile primary fibromyalgia syndrome. J Pain 2002; 3: 412-19
13. Kovacs M. Children's depression inventory. North Tonawanda: NY. Multi-Health systems, Inc, 1992
14. Logan DE, Claar RL, Guite JW, Kashikar-Zuck S, Lynch-Jordan A, Palermo TM, Wilson AC, Zhou C. Factor structure of the children's depression inventory in a multisite sample of children and adolescents with chronic pain. J Pain 2013; 14: 689-98
15. Logan DE, Simons LE, Stein MJ, Chastain L. School impairment in adolescents with chronic pain. J Pain 2008; 9: 407-16
16. Maillard SM, Davies K, Khubchandani R, Woo PM, Murray KJ. Reflex sympathetic dystrophy: a multidisciplinary approach. Arthritis Care Res 2004; 51: 284-90
17. McGrath PJ, Walco GA, Turk DC, Dworkin RH, Brown MT, Davidson K, Eccleston C, Finley GA, Goldschneider K, Haverkos L, Hertz SH, Ljungman G, Palermo T, Rappaport BA, Rhodes T, Schechter N, Scott J, Sethna N, Svensson OK, Stinson J, von Baeyer CL, Walker L, Weisman S, White RE, Zajicek A, Zeltzer L. Core outcome domains and measures for pediatric acute and chronic/recurrent pain clinical trials: PedIMMPACT recommendations. J Pain 2008; 9: 771-83
18. Muthén LK, Muthén BO. Mplus user's guide. 6th ed. Los Angeles: Muthén & Muthén, 2010
19. Oerlemans HM, Oostendorp RA, de Boo T, Goris RJA. Pain and reduced mobility in complex regional pain syndrome I: outcome of a prospective randomised controlled clinical trial of adjuvant physical therapy versus occupational therapy. PAIN 1999; 83: 77-83
20. Palermo TM, Fonareva I, Janosy NR. Sleep quality and efficiency in adolescents with chronic pain: relationship with activity limitations and health-related quality of life. Behav Sleep Med 2008; 6: 234-50
21. Reeve BB, Hays RD, Bjorner JB, Cook KF, Crane PK, Teresi JA, Thissen D, Revicki DA, Weiss DJ, Hambleton RK. Psychometric evaluation and calibration of health-related quality of life item banks: plans for the Patient-Reported Outcomes Measurement Information System (PROMIS). Med Care 2007; 45: S22-31
22. Reid GJ, Lang BA, McGrath PJ. Primary juvenile fibromyalgia: psychological adjustment, family functioning, coping, and functional disability. Arthritis Rheum 1997; 40: 752-60
23. Sherry DD, Wallace CA, Kelley C, Kidder M, Sapp L. Short-and long-term outcomes of children with complex regional pain syndrome type I treated with exercise therapy. Clin J Pain 1999; 15: 218-23
24. Varni JW, Burwinkle TM, Limbers CA, Szer IS. The PedsQL as a patientreported outcome in children and adolescents with fibromyalgia: an analysis of OMERACT domains. Health Qual Life Outcomes 2007; 5: 9
25. Varni JW, Limbers CA, Burwinkle TM. Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQ 4.0 Generic Core Scales. Health Qual Life Outcomes 2007; 5: 43
26. Varni JW, Seid M, Kurtin PS. PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Med Care 2001; 39: 800-12
27. Varni JW, Seid M, Rode CA. The PedsQL: measurement model for the pediatric quality of life inventory. Med Care 1999; 37: 126-39
28. Walker LS, Greene JW. The functional disability inventory: measuring a neglected dimension of child health status. J Pediatr Psychol 1991; 16: 39-58
29. White KP, Nielson WR. Cognitive behavioral treatment of fibromyalgia syndrome: a follow-up assessment. J Rheumatol 1995; 22: 717-21