메뉴 건너뛰기




Volumn 15, Issue 1, 2016, Pages

"we're checking them out": Indigenous and non-Indigenous research participants' accounts of deciding to be involved in research

Author keywords

Indigenous research; Participants' motivations and decision making; Research ethics; Research practice

Indexed keywords

DATA INTERPRETATION; DECISION MAKING; ETHICS; EXPLOITATION; HUMAN BEHAVIOR; INDIGENOUS KNOWLEDGE; INDIGENOUS POPULATION; PARTICIPATORY APPROACH; QUESTIONNAIRE SURVEY; RESEARCH METHOD;

EID: 84954454330     PISSN: None     EISSN: 14759276     Source Type: Journal    
DOI: 10.1186/s12939-016-0301-4     Document Type: Article
Times cited : (54)

References (43)
  • 1
    • 84905096950 scopus 로고    scopus 로고
    • A clash of paradigms? Western and indigenous views on health research involving Aboriginal peoples
    • 25059087
    • Campbell TD. A clash of paradigms? Western and indigenous views on health research involving Aboriginal peoples. Nurse Res. 2014;21(6):39-43.
    • (2014) Nurse Res , vol.21 , Issue.6 , pp. 39-43
    • Campbell, T.D.1
  • 2
    • 7244251632 scopus 로고    scopus 로고
    • Understanding health and illness: Research at the interface between science and indigenous knowledge
    • 15218015
    • Durie M. Understanding health and illness: research at the interface between science and indigenous knowledge. Int J Epidemiol. 2004;33(5):1138-43.
    • (2004) Int J Epidemiol , vol.33 , Issue.5 , pp. 1138-1143
    • Durie, M.1
  • 3
    • 84893816016 scopus 로고    scopus 로고
    • Canada's shameful history of nutrition research on residential school children: The need for strong medical ethics in Aboriginal health research
    • 24596474 3941673
    • MacDonald NE, Stanwick R, Lynk A. Canada's shameful history of nutrition research on residential school children: the need for strong medical ethics in Aboriginal health research. Paediatr Child Health. 2014;19(2):64.
    • (2014) Paediatr Child Health , vol.19 , Issue.2 , pp. 64
    • MacDonald, N.E.1    Stanwick, R.2    Lynk, A.3
  • 4
    • 84887283328 scopus 로고    scopus 로고
    • Moving forward: Breaking the cycle of mistrust between American Indians and researchers
    • 24134368 3828980
    • Pacheco CM, Daley SM, Brown T, Filippi M, Greiner KA, Daley CM. Moving forward: breaking the cycle of mistrust between American Indians and researchers. Am J Public Health. 2013;103(12):2152-9.
    • (2013) Am J Public Health , vol.103 , Issue.12 , pp. 2152-2159
    • Pacheco, C.M.1    Daley, S.M.2    Brown, T.3    Filippi, M.4    Greiner, K.A.5    Daley, C.M.6
  • 7
    • 67649249902 scopus 로고    scopus 로고
    • Why do people cooperate with medical research? Findings from three studies
    • 19394741
    • Dixon-Woods M, Tarrant C. Why do people cooperate with medical research? Findings from three studies. Soc Sci Med. 2009;68:2215-22.
    • (2009) Soc Sci Med , vol.68 , pp. 2215-2222
    • Dixon-Woods, M.1    Tarrant, C.2
  • 8
    • 0036730890 scopus 로고    scopus 로고
    • Capturing users' experiences of participating in cancer trials
    • 1:STN:280:DC%2BD38vos1Kqug%3D%3D
    • Donovan JL, Brindle L, Mills N. Capturing users' experiences of participating in cancer trials. Eur J Cancer Care. 2002;11(3):210-4.
    • (2002) Eur J Cancer Care , vol.11 , Issue.3 , pp. 210-214
    • Donovan, J.L.1    Brindle, L.2    Mills, N.3
  • 9
    • 80051485139 scopus 로고    scopus 로고
    • Participating in research: Exploring participation and engagement in a study of self-management for people with chronic obstructive pulmonary disease
    • 21474655
    • Willis KF, Robinson A, Wood-Baker R, Turner P, Walters EH. Participating in research: exploring participation and engagement in a study of self-management for people with chronic obstructive pulmonary disease. Qual Health Res. 2011;21(9):1273-82.
    • (2011) Qual Health Res , vol.21 , Issue.9 , pp. 1273-1282
    • Willis, K.F.1    Robinson, A.2    Wood-Baker, R.3    Turner, P.4    Walters, E.H.5
  • 10
    • 34250008742 scopus 로고    scopus 로고
    • Positive and negative aspects of participation in illicit drug research: Implications for recruitment and ethical conduct
    • 17689370
    • Barratt MJ, Norman JS, Fry CL. Positive and negative aspects of participation in illicit drug research: implications for recruitment and ethical conduct. Int J Drug Policy. 2007;18(3):235-8.
    • (2007) Int J Drug Policy , vol.18 , Issue.3 , pp. 235-238
    • Barratt, M.J.1    Norman, J.S.2    Fry, C.L.3
  • 12
    • 0034857204 scopus 로고    scopus 로고
    • For love or money? An exploratory study of why injecting drug users participate in research
    • 1:STN:280:DC%2BD3MrmsFKjuw%3D%3D 11672496
    • Fry C, Dwyer R. For love or money? An exploratory study of why injecting drug users participate in research. Addiction. 2001;96(9):1319-25.
    • (2001) Addiction , vol.96 , Issue.9 , pp. 1319-1325
    • Fry, C.1    Dwyer, R.2
  • 13
    • 79959401937 scopus 로고    scopus 로고
    • If I could in a small way help": Motivations for and beliefs about sample donation for genetic research
    • 21680977 3313647
    • Michie M, Henderson G, Garrett J, Corbie-Smith G. "If I could in a small way help": motivations for and beliefs about sample donation for genetic research. J Empir Res Hum Res Ethics. 2011;6(2):57-70.
    • (2011) J Empir Res Hum Res Ethics , vol.6 , Issue.2 , pp. 57-70
    • Michie, M.1    Henderson, G.2    Garrett, J.3    Corbie-Smith, G.4
  • 14
    • 33749056147 scopus 로고    scopus 로고
    • Patients' decision-making process regarding participation in phase I oncology research
    • 16983117
    • Agrawal M, Grady C, Fairclough DL, Meropol NJ, Maynard K, Emanuel EJ. Patients' decision-making process regarding participation in phase I oncology research. J Clin Oncol. 2006;24(27):4479-84.
    • (2006) J Clin Oncol , vol.24 , Issue.27 , pp. 4479-4484
    • Agrawal, M.1    Grady, C.2    Fairclough, D.L.3    Meropol, N.J.4    Maynard, K.5    Emanuel, E.J.6
  • 15
    • 0029002060 scopus 로고
    • Volunteers or victims: Patients' views of randomised cancer clinical trials
    • 1:STN:280:DyaK2M3pvVKktQ%3D%3D 2033847 7779722
    • Slevin M, Mossman J, Bowling A, Leonard R, Steward W, Harper P, et al. Volunteers or victims: patients' views of randomised cancer clinical trials. Br J Cancer. 1995;71(6):1270.
    • (1995) Br J Cancer , vol.71 , Issue.6 , pp. 1270
    • Slevin, M.1    Mossman, J.2    Bowling, A.3    Leonard, R.4    Steward, W.5    Harper, P.6
  • 17
    • 77951641631 scopus 로고    scopus 로고
    • An investigation of patients' motivations for their participation in genetics-related research
    • 1:STN:280:DC%2BD1Mfjs12isA%3D%3D 20026692
    • Hallowell N, Cooke S, Crawford G, Lucassen A, Parker M, Snowdon C. An investigation of patients' motivations for their participation in genetics-related research. J Med Ethics. 2010;36(1):37-45.
    • (2010) J Med Ethics , vol.36 , Issue.1 , pp. 37-45
    • Hallowell, N.1    Cooke, S.2    Crawford, G.3    Lucassen, A.4    Parker, M.5    Snowdon, C.6
  • 18
    • 24944516255 scopus 로고    scopus 로고
    • Paying research participants: A study of current practices in Australia
    • 1:STN:280:DC%2BD2MvmsFaltQ%3D%3D 16131558 1734228
    • Fry CL, Ritter A, Baldwin S, Bowen K, Gardiner P, Holt T, et al. Paying research participants: a study of current practices in Australia. J Med Ethics. 2005;31(9):542-7.
    • (2005) J Med Ethics , vol.31 , Issue.9 , pp. 542-547
    • Fry, C.L.1    Ritter, A.2    Baldwin, S.3    Bowen, K.4    Gardiner, P.5    Holt, T.6
  • 19
    • 34548494354 scopus 로고    scopus 로고
    • Reasons for and attitudes toward follow-up research participation among adolescents enrolled in an outpatient substance abuse treatment program
    • Garner BR, Passetti LL, Orndorff MG, Godley SH. Reasons for and attitudes toward follow-up research participation among adolescents enrolled in an outpatient substance abuse treatment program. J Child Adolesc Subst Abuse. 2007;16(4):45-57.
    • (2007) J Child Adolesc Subst Abuse , vol.16 , Issue.4 , pp. 45-57
    • Garner, B.R.1    Passetti, L.L.2    Orndorff, M.G.3    Godley, S.H.4
  • 20
    • 0036209896 scopus 로고    scopus 로고
    • The recruitment of normal healthy volunteers: A review of the literature on the use of financial incentives
    • 11936560
    • Tishler CL, Bartholomae S. The recruitment of normal healthy volunteers: a review of the literature on the use of financial incentives. J Clin Pharmacol. 2002;42(4):365-75.
    • (2002) J Clin Pharmacol , vol.42 , Issue.4 , pp. 365-375
    • Tishler, C.L.1    Bartholomae, S.2
  • 21
    • 0034934366 scopus 로고    scopus 로고
    • Dirty questions: Indigenous health and 'Western research'
    • 1:STN:280:DC%2BD3MvkvFaitw%3D%3D 11494986
    • Humphery K. Dirty questions: indigenous health and 'Western research'. Aust N Z J Public Health. 2001;25(3):197-202.
    • (2001) Aust N Z J Public Health , vol.25 , Issue.3 , pp. 197-202
    • Humphery, K.1
  • 22
    • 44349101415 scopus 로고    scopus 로고
    • The importance of story-telling: Research protocols in Aboriginal communities
    • 19385820
    • Poff DC. The importance of story-telling: research protocols in Aboriginal communities. J Empir Res Hum Res Ethics. 2006;1(3):27-8.
    • (2006) J Empir Res Hum Res Ethics , vol.1 , Issue.3 , pp. 27-28
    • Poff, D.C.1
  • 23
    • 84975779012 scopus 로고    scopus 로고
    • Protecting dignitary interests of Biobank research participants: Lessons from Havasupai Tribe v Arizona Board of Regents
    • Van Assche K, Gutwirth S, Sterckx S. Protecting dignitary interests of Biobank research participants: lessons from Havasupai Tribe v Arizona Board of Regents. Law, Innovation & Technology. 2013;5(1):54-84.
    • (2013) Law, Innovation & Technology , vol.5 , Issue.1 , pp. 54-84
    • Van Assche, K.1    Gutwirth, S.2    Sterckx, S.3
  • 26
    • 67649438774 scopus 로고    scopus 로고
    • Indigenous health part 1: Determinants and disease patterns
    • 19577695
    • Gracey M, King M. Indigenous health part 1: determinants and disease patterns. Lancet. 2009;374(9683):65-75.
    • (2009) Lancet , vol.374 , Issue.9683 , pp. 65-75
    • Gracey, M.1    King, M.2
  • 30
    • 79952004098 scopus 로고    scopus 로고
    • A process for the inclusion of Aboriginal people in health research: Lessons from the Determinants of TB Transmission project
    • 21316828
    • Boffa J, King M, McMullin K, Long R. A process for the inclusion of Aboriginal people in health research: lessons from the Determinants of TB Transmission project. Soc Sci Med. 2011;72(5):733-8.
    • (2011) Soc Sci Med , vol.72 , Issue.5 , pp. 733-738
    • Boffa, J.1    King, M.2    McMullin, K.3    Long, R.4
  • 31
    • 84891850410 scopus 로고    scopus 로고
    • Te Waka Oranga: An indigenous intervention for working with Maori children and adolescents with traumatic brain injury
    • Elder H. Te Waka Oranga: an indigenous intervention for working with Maori children and adolescents with traumatic brain injury. Brain Impairment. 2013;14(3):415-24.
    • (2013) Brain Impairment , vol.14 , Issue.3 , pp. 415-424
    • Elder, H.1
  • 32
    • 77957239589 scopus 로고    scopus 로고
    • Bridging the divide between genomic science and indigenous peoples
    • 20880250
    • Jacobs B, Roffenbender J, Collmann J, Cherry K. Bridging the divide between genomic science and indigenous peoples. J Law Med Ethics. 2010;38:684.
    • (2010) J Law Med Ethics , vol.38 , pp. 684
    • Jacobs, B.1    Roffenbender, J.2    Collmann, J.3    Cherry, K.4
  • 33
    • 84864544176 scopus 로고    scopus 로고
    • Makes you proud to be black eh?": Reflections on meaningful Indigenous research participation
    • 22873769 3439313
    • Kelly J, Saggers S, Taylor K, Pearce G, Massey P, Bull J, et al. "Makes you proud to be black eh?": Reflections on meaningful Indigenous research participation. Int J Equity Health. 2012;11:40.
    • (2012) Int J Equity Health , vol.11 , pp. 40
    • Kelly, J.1    Saggers, S.2    Taylor, K.3    Pearce, G.4    Massey, P.5    Bull, J.6
  • 40
    • 33750532967 scopus 로고    scopus 로고
    • It's no skin off my nose": Why people take part in qualitative research
    • 17079797
    • Peel E, Parry O, Douglas M, Lawton J. "It's no skin off my nose": why people take part in qualitative research. Qual Health Res. 2006;16(10):1335-49.
    • (2006) Qual Health Res , vol.16 , Issue.10 , pp. 1335-1349
    • Peel, E.1    Parry, O.2    Douglas, M.3    Lawton, J.4
  • 43
    • 0029268229 scopus 로고
    • Abandoning informed consent
    • 1:STN:280:DyaK2MzgtFCitw%3D%3D 7782200
    • Veatch RM. Abandoning informed consent. Hastings Cent Rep. 1995;25(2):5-12.
    • (1995) Hastings Cent Rep , vol.25 , Issue.2 , pp. 5-12
    • Veatch, R.M.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.