Establishing a Supportive Care Register Improves End-of-Life Care for Patients with Advanced Chronic Kidney Disease

Nephron

Volumn 129, Issue 3, 2015, Pages 209-213

  Harrison, Jennifer K ^a   Clipsham, Laura E ^b   Cooke, Caroline M ^b   Warwick, Graham ^b   Burton, James O ^b,c  

^a UNIVERSITY OF LEICESTER   (United Kingdom)

^b UNIVERSITY HOSPITALS OF LEICESTER NHS TRUST   (United Kingdom)

^c UNIVERSITY OF LEICESTER   (United Kingdom)

Author keywords

Chronic renal disease; Dialysis; End of life care; End stage renal disease; Palliative care

Indexed keywords

ADULT; AGED; COMPARATIVE STUDY; FEMALE; GLOMERULUS FILTRATION RATE; HEMODIALYSIS; HUMAN; KIDNEY TRANSPLANTATION; MALE; MIDDLE AGED; ORGANIZATION AND MANAGEMENT; PALLIATIVE THERAPY; PATHOPHYSIOLOGY; PATIENT CARE; PATIENT CARE PLANNING; PROSPECTIVE STUDY; RENAL INSUFFICIENCY, CHRONIC; RENAL REPLACEMENT THERAPY; RETROSPECTIVE STUDY; STATISTICS AND NUMERICAL DATA; TERMINAL CARE; VERY ELDERLY;

ADULT; AGED; AGED, 80 AND OVER; FEMALE; GLOMERULAR FILTRATION RATE; HUMANS; KIDNEY TRANSPLANTATION; MALE; MIDDLE AGED; PALLIATIVE CARE; PATIENT CARE PLANNING; PATIENT CARE TEAM; PROSPECTIVE STUDIES; RENAL DIALYSIS; RENAL INSUFFICIENCY, CHRONIC; RETROSPECTIVE STUDIES; TERMINAL CARE;

EID: 84953741705     PISSN: 16608151     EISSN: 22353186     Source Type: Journal    
DOI: 10.1159/000371888     Document Type: Article

References (27)

1. NHS Kidney Care National End of Life Care Programme: End of Life Care in Advanced Kidney Disease: A Framework for Implementation. Suffolk, 2009, pp 1-48 .
2. Department of Health: Part Two: Chronic kidney disease, acute renal failure and end of life care; in DH Renal NSF Team (ed): The National Service Framework for Renal Services. London, 2005, pp 21-23 .
3. European Renal Best Practice: A new European guideline on CKD management in frail or elderly patients. ERBP needs your help! 2012, p 1.
4. Fassett RG, Robertson IK, Mace R, Youl L, Challenor S, Bull R: Palliative care in endstage kidney disease. Nephrology (Carlton) 2011; 16: 4-12.
5. Renal Physicians Association: Shared Decision-Making in the Appropriate Initiation of and Withdrawal from Dialysis: Clinical Practice Guideline. Maryland, Rockville, 2010, pp 1-10.
6. Gunda S, Thomas M, Smith S: National survey of palliative care in end-stage renal disease in the UK. Nephrol Dial Transplant 2005; 20: 392-395.
7. Kane PM, Vinen K, Murtagh FE: Palliative care for advanced renal disease: a summary of the evidence and future direction. Palliat Med 2013; 27: 817-821.
8. Murray SA, Kendall M, Boyd K, Sheikh A: Illness trajectories and palliative care. BMJ 2005; 330: 1007-1011.
9. Murtagh FE, Murphy E, Sheerin NS: Illness trajectories: an important concept in the management of kidney failure. Nephrol Dial Transplant 2008; 23: 3746-3748.
10. Holley JL: Palliative care in end-stage renal disease: focus on advance care planning, hospice referral, and bereavement. Semin Dial 2005; 18: 154-156.
11. Davison R, Sheerin NS: Prognosis and management of chronic kidney disease (CKD) at the end of life. Postgrad Med J 2014; 90: 98-105.
12. Moss AH, Ganjoo J, Sharma S, Gansor J, Senft S, Weaner B, Dalton C, MacKay K, Pellegrino B, Anantharaman P, Schmidt R: Utility of the 'surprise' question to identify dialysis patients with high mortality. Clin J Am Soc Nephrol 2008; 3: 1379-1384.
13. The Gold Standards Framework, Royal College of General Practitioners: The GSF Prognostic Indicator Guidance, 2011, pp 1-4 .
14. Hobson K, Gomm S, Murtagh F, Caress AL: National survey of the current provision of specialist palliative care services for patients with end-stage renal disease. Nephrol Dial Transplant 2011; 26: 1275-1281.
15. Trivedi DD: Palliative dialysis in end-stage renal disease. Am J Hosp Palliat Care 2011; 28: 539-542.
16. O'Connor NR, Kumar P: Conservative management of end-stage renal disease without dialysis: a systematic review. J Palliat Med 2012; 15: 228-235.
17. Murtagh FE, Marsh JE, Donohoe P, Ekbal NJ, Sheerin NS, Harris FE: Dialysis or not? A comparative survival study of patients over 75 years with chronic kidney disease stage 5. Nephrol Dial Transplant 2007; 22: 1955-1962.
18. Davison SN: End-of-life care preferences and needs: perceptions of patients with chronic kidney disease. Clin J Am Soc Nephrol 2010; 5: 195-204.
19. Steinhauser KE, Christakis NA, Clipp EC, McNeilly M, McIntyre L, Tulsky JA: Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA 2000; 284: 2476-2482.
20. Almack K, Cox K, Moghaddam N, Pollock K, Seymour J: After you: conversations between patients and healthcare professionals in planning for end of life care. BMC Palliat Care 2012; 11: 15.
21. Arnold E, Finucane AM, Oxenham D: Preferred place of death for patients referred to a specialist palliative care service. BMJ Support Palliat Care 2013, Epub ahead of print.
22. Bayliss EA, Bhardwaja B, Ross C, Beck A, Lanese DM: Multidisciplinary team care may slow the rate of decline in renal function. Clin J Am Soc Nephrol 2011; 6: 704-710.
23. Murtagh FE, Addington-Hall J, Higginson IJ: The prevalence of symptoms in end-stage renal disease: a systematic review. Adv Chronic Kidney Dis 2007; 14: 82-99.
24. Davison SN, Jhangri GS, Holley JL, Moss AH: Nephrologists' reported preparedness for end-of-life decision-making. Clin J Am Soc Nephrol 2006; 1: 1256-1262.
25. Holley JL, Carmody SS, Moss AH, Sullivan AM, Cohen LM, Block SD, Arnold RM: The need for end-of-life care training in nephrology: national survey results of nephrology fellows. Am J Kidney Dis 2003; 42: 813-820.
26. Cohen LM, Germain M, Poppel DM, Woods A, Kjellstrand CM: Dialysis discontinuation and palliative care. Am J Kidney Dis 2000; 36: 140-144.
27. Cox K, Moghaddam N, Almack K, Pollock K, Seymour J: Is it recorded in the notes? Documentation of end-of-life care and preferred place to die discussions in the final weeks of life. BMC Palliat Care 2011; 10: 18.