메뉴 건너뛰기




Volumn 95, Issue , 2015, Pages 30-35

Challenges in the management of haemophilia on transition from adolescence to adulthood

Author keywords

Adolescents; Adults; Haemophilia; Multidisciplinary; Transition

Indexed keywords

ADOLESCENT; ADULT; HEMOPHILIA A; HUMAN; PATHOPHYSIOLOGY; PATIENT COMPLIANCE; YOUNG ADULT;

EID: 84952773363     PISSN: 09024441     EISSN: 16000609     Source Type: Journal    
DOI: 10.1111/ejh.12582     Document Type: Review
Times cited : (21)

References (30)
  • 1
    • 84952825849 scopus 로고    scopus 로고
    • Transition guidelines for people with bleeding disorders
    • (accessed 13 August 2014)
    • National Hemophilia Association. Transition guidelines for people with bleeding disorders. 2014. Available at: https://www.hemophilia.org/Researchers-Healthcare-Providers/Medical-and-Scientific-Advisory-Council-MASAC/All-MASAC-Recommendations/Transition-Guidelines-for-People-with-Bleeding-Disorders (accessed 13 August 2014).
    • (2014)
  • 2
    • 78049233736 scopus 로고    scopus 로고
    • Towards comprehensive care in transition for young people with haemophilia
    • Breakey VR, Blanchette VS, Bolton-Maggs PH. Towards comprehensive care in transition for young people with haemophilia. Haemophilia 2010;16:848-57.
    • (2010) Haemophilia , vol.16 , pp. 848-857
    • Breakey, V.R.1    Blanchette, V.S.2    Bolton-Maggs, P.H.3
  • 3
    • 84952825850 scopus 로고    scopus 로고
    • Transitions toward independence
    • In:, 2nd edn. Canadian Hemophilia Society, 2010. Chapter 13. (accessed 18 September 2014).
    • Wu J, Purves P, Breakey VR, Creighton K. Transitions toward independence. In: All About Hemophilia: A Guide for Families, 2nd edn. Canadian Hemophilia Society, 2010. Chapter 13. Available at: http://www.hemophilia.ca/files/Chapter%2013.pdf (accessed 18 September 2014).
    • (2010) All About Hemophilia: A Guide for Families
    • Wu, J.1    Purves, P.2    Breakey, V.R.3    Creighton, K.4
  • 4
    • 84863537436 scopus 로고    scopus 로고
    • From boy to man: recommendations for the transition process in haemophilia
    • Young G. From boy to man: recommendations for the transition process in haemophilia. Haemophilia 2012;18(Suppl. 5):27-32.
    • (2012) Haemophilia , vol.18 , pp. 27-32
    • Young, G.1
  • 5
    • 34548490969 scopus 로고    scopus 로고
    • Transition of care from paediatric to adult services in haematology
    • Bolton-Maggs PH. Transition of care from paediatric to adult services in haematology. Arch Dis Child 2007;92:797-801.
    • (2007) Arch Dis Child , vol.92 , pp. 797-801
    • Bolton-Maggs, P.H.1
  • 6
    • 33644980041 scopus 로고    scopus 로고
    • When should young people with chronic rheumatic disease move from paediatric to adult-centred care?
    • Robertson L. When should young people with chronic rheumatic disease move from paediatric to adult-centred care? Best Pract Res Clin Rheumatol 2006;20:387-97.
    • (2006) Best Pract Res Clin Rheumatol , vol.20 , pp. 387-397
    • Robertson, L.1
  • 7
    • 84904641126 scopus 로고    scopus 로고
    • Haemophilia Experiences, Results and Opportunities (HERO) study: influence of haemophilia on interpersonal relationships as reported by adults with haemophilia and parents of children with haemophilia
    • Cassis FR, Buzzi A, Forsyth A, Gregory M, Nugent D, Garrido C, Pilgaard T, Cooper DL, Iorio A. Haemophilia Experiences, Results and Opportunities (HERO) study: influence of haemophilia on interpersonal relationships as reported by adults with haemophilia and parents of children with haemophilia. Haemophilia 2014;20:e287-95.
    • (2014) Haemophilia , vol.20 , pp. e287-e295
    • Cassis, F.R.1    Buzzi, A.2    Forsyth, A.3    Gregory, M.4    Nugent, D.5    Garrido, C.6    Pilgaard, T.7    Cooper, D.L.8    Iorio, A.9
  • 8
    • 84890857187 scopus 로고    scopus 로고
    • Haemophilia Experiences, Results and Opportunities (HERO) study: survey methodology and population demographics
    • Forsyth AL, Gregory M, Nugent D, Garrido C, Pilgaard T, Cooper DL, Iorio A. Haemophilia Experiences, Results and Opportunities (HERO) study: survey methodology and population demographics. Haemophilia 2014;20:44-51.
    • (2014) Haemophilia , vol.20 , pp. 44-51
    • Forsyth, A.L.1    Gregory, M.2    Nugent, D.3    Garrido, C.4    Pilgaard, T.5    Cooper, D.L.6    Iorio, A.7
  • 9
    • 84860343298 scopus 로고    scopus 로고
    • Psychosocial aspects of haemophilia: a systematic review of methodologies and findings
    • Cassis FR, Querol F, Forsyth A, Iorio A. Psychosocial aspects of haemophilia: a systematic review of methodologies and findings. Haemophilia 2012;18:e101-4.
    • (2012) Haemophilia , vol.18 , pp. e101-e104
    • Cassis, F.R.1    Querol, F.2    Forsyth, A.3    Iorio, A.4
  • 11
  • 20
    • 63049125914 scopus 로고    scopus 로고
    • Haemophilia, aging and sexuality
    • Gianotten WL, Heijnen L. Haemophilia, aging and sexuality. Haemophilia 2009;15:55-62.
    • (2009) Haemophilia , vol.15 , pp. 55-62
    • Gianotten, W.L.1    Heijnen, L.2
  • 21
    • 84904742068 scopus 로고    scopus 로고
    • Better adherence to prescribed treatment regimen is related to less chronic pain among adolescents and young adults with moderate or severe haemophilia
    • McLaughlin JM, Witkop ML, Lambing A, Anderson TL, Munn J, Tortella B. Better adherence to prescribed treatment regimen is related to less chronic pain among adolescents and young adults with moderate or severe haemophilia. Haemophilia 2014;20:506-12.
    • (2014) Haemophilia , vol.20 , pp. 506-512
    • McLaughlin, J.M.1    Witkop, M.L.2    Lambing, A.3    Anderson, T.L.4    Munn, J.5    Tortella, B.6
  • 22
  • 23
    • 33644671600 scopus 로고    scopus 로고
    • Executive function, working memory, and medication adherence among older adults
    • Insel K, Morrow D, Brewer B, Figueredo A. Executive function, working memory, and medication adherence among older adults. J Gerontol B Psychol Sci Soc Sci 2006;61:P102-7.
    • (2006) J Gerontol B Psychol Sci Soc Sci , vol.61 , pp. P102-P107
    • Insel, K.1    Morrow, D.2    Brewer, B.3    Figueredo, A.4
  • 24
    • 2542597718 scopus 로고    scopus 로고
    • Dynamic mapping of human cortical development during childhood through early adulthood
    • Gogtay N, Giedd JN, Lusk L, et al. Dynamic mapping of human cortical development during childhood through early adulthood. Proc Natl Acad Sci U S A 2004;101:8174-9.
    • (2004) Proc Natl Acad Sci U S A , vol.101 , pp. 8174-8179
    • Gogtay, N.1    Giedd, J.N.2    Lusk, L.3
  • 26
    • 84868624911 scopus 로고    scopus 로고
    • Transition and sickle cell disease
    • DeBaun TR, Telfair J. Transition and sickle cell disease. Pediatrics 2012;130:926-35.
    • (2012) Pediatrics , vol.130 , pp. 926-935
    • DeBaun, T.R.1    Telfair, J.2
  • 27
    • 34447136593 scopus 로고    scopus 로고
    • 2nd edn. (accessed 18 September 2014)
    • World Federation of Hemophilia. Guidelines for the Management of Hemophilia, 2nd edn. Available at: http://www1.wfh.org/publications/files/pdf-1472.pdf (accessed 18 September 2014).
    • Guidelines for the Management of Hemophilia
  • 28
    • 44249113317 scopus 로고    scopus 로고
    • Prophylaxis for severe haemophilia: clinical challenges in the absence as well as in the presence of inhibitors
    • Fischer K, Valentino L, Ljung R, Blanchette V. Prophylaxis for severe haemophilia: clinical challenges in the absence as well as in the presence of inhibitors. Haemophilia 2008;14(Suppl. 3):196-201.
    • (2008) Haemophilia , vol.14 , pp. 196-201
    • Fischer, K.1    Valentino, L.2    Ljung, R.3    Blanchette, V.4
  • 29
    • 27744550029 scopus 로고    scopus 로고
    • Addressing transition to adult health care for adolescents with special health care needs
    • Scal P, Ireland M. Addressing transition to adult health care for adolescents with special health care needs. Pediatrics 2005;115:1607-12.
    • (2005) Pediatrics , vol.115 , pp. 1607-1612
    • Scal, P.1    Ireland, M.2
  • 30
    • 84952825861 scopus 로고    scopus 로고
    • (accessed 3 February 2015)
    • Got Transition. Available at: http://www.gottransition.org/ (accessed 3 February 2015).
    • (2015)


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.