The family of a child with cancer - changes within the family system

Polish Psychological Bulletin

Volumn 39, Issue 4, 2008, Pages 192-201

  Sieminska, Maria J ^a   Greszta, Elzbieta ^b  

^a POMERANIAN MEDICAL UNIVERSITY   (Poland)

^b SWPS UNIVERSITY OF SOCIAL SCIENCES AND HUMANITIES   (Poland)

Author keywords

childhood cancer; family functioning; family system; Olson's Circumplex Model

Indexed keywords

EID: 84952657458     PISSN: 00792993     EISSN: 16417844     Source Type: Journal    
DOI: 10.2478/v10059-008-0023-6     Document Type: Article

References (63)

1. Andersen, T. (2002). Blinding and Deafening Moments, and Threatening Futures. Family Process, 41, 11–14.
2. Barakat, L., Kazak, A., Gallagher, P., Meeske, K., & Stuber, M. (2000). Posttraumatic stress symptoms and stressful life events predict the long-term adjustment of survivors of childhood cancer and their mothers. Journal of Clinical Psychology in Medical Settings, 7, 189–196.
3. Barakat, L., Kazak, A., Meadows, A., Casey, R., Meeske, K., & Stuber, M. (1997). Families surviving childhood cancer: A comparison of posttraumatic stress symptoms with families of healthy children. Journal of Pediatric Psychology, 22, 843–859.
4. Barbarin, O., Hughes, D., & Chesler, M. (1985). Stress, coping and marital functioning among parents of children with cancer. Journal of Marriage and the Family, 47, 473–480.
5. Bateson, G. (1988). Mind and Nature. A Necessary Unit. New York: Bantam Books.
6. Bowen, M. (1960). The family as the unit of study and treatment. American Journal of Orthopsychiatry, 31, 40–60.
7. Brown, R., Kaslow, N., Hazzard, A., Madan-Swain, A., Sexson, S., Lambert, R., & Baldwin, K. (1992). Psychiatric and family functioning in children with leukemia and their parents. Journal of the American Academy of Child and Adolescent Psychiatry, 31, 495–502.
8. Brown, R., Kaslow, N., Madan, S., & Doepke, K. (1993). Parental psychopathology and children's adjustment to leukaemia. Journal of the American Academy of Child and Adolescent, 32, 554–561.
9. Brzeziński, J. (1997). Metodologia badań psychologicznych [Methodology of Psychological Research]. Warsaw: PWN.
10. Clarke-Steffen, L. (1993). Waiting and not knowing: the diagnosis of cancer in a child. Journal of Pediatric Oncology Nursing, 10, 146–153.
11. Clubb, R.L. (1991). Chronic sorrow: adaptation patterns of parents with chronically ill children. Pediatric Nursing, 17, 461–466.
12. Comaroff, J., & MaGuire P. (1981). Ambiguity and the search for meaning: childhood leukaemia in the modern clinical context. Social Science and Medicine, 158, 115–123.
13. Dahlquist, L., Czyzewski, D., Copeland, K., Jones, C., Taub, E., & Vaughan, J. (1993). Parents of children newly diagnosed with cancer: Anxiety, coping and marital distress. Journal of Pediatric Psychology, 18, 365–376.
14. Dodgson, J.E., Garwick, A., Blozis, S.A.; Patterson, J.M., Bennett, F.C., & Blum, R.W. (2000). Uncertainty in Childhood Chronic Conditions and Family Distress in Families of Young Children. Journal of Family Nursing, 6, 252–266.
15. Eibl-Eibesfeldt, I. (1987). Love and hate: The natural history of behavior patterns. (G. Strachan, Trans.). New York: Schocken. Eiser, C. (1998). Practitioner review: Long-term consequences of childhood cancer. Journal of Child Psychology and Psychiatry, 39, 621–633.
16. Fife, B., Norton, J., & Groom, G. (1987). The family's adaptation to childhood leukaemia. Social Science Medicine, 24, 159–168.
17. Frailey, A.M. (1986). Chronic sorrow in parents of premature children. Children's Health Care, 15, 114–118.
18. Grootenhuis, M., & Last, B. (1997). Adjustment and coping by parents of children with cancer: a review of the literature. Supportive Care in Cancer, 5, 466–484.
19. Hawley, D. (2000). Clinical implications of family resilience. American Journal of Family Therapy, 28, 101–116.
20. Hoekstra-Weebers, J., Jaspers, J., Kamps, W., & Klip, E. (1999). Risk factors for psychological maladjustment of parents of children with cancer. Journal of the American Academy Child and Adolescent Psychiatry, 38, 1526–1535.
21. Kaplan, D.M., Smith, A., Grobstein, R., & Fischman, S.E. (1973). Family mediation of stress. Social Work, 18, 60–69.
22. Kazak, A., Boyer, B.A., Brophy, P., & Johnson, K. (1995). Parental perceptions of procedure - related distress and family adaptation in childhood leukemia. Children's Health Care, 24, 143–158.
23. Kazak, A.E., Christakis, D., Alderfer, M., & Jo Coiro, M. (1994). Young Adolescent Cancer Survivors and Their Parents: Adjustment, Learning Problems, and Gender. Journal of Family Psychology, 8, 74–84.
24. Kazak, A.E., & Nachman, G.S. (1991). Family research on childhood chronic illness: Pediatric oncology as an example. Journal of Family Psychology, 4, 462–483.
25. Kazak, A.E., Barakat, L.P., Meeske, K., Christakis, D., Meadows, A., Casey, R., Penati, B., & Stuber, M. (1997). Posttraumatic Stress, Family Functioning, and Social Support in Survivors of Childhood leukaemia and Their Mothers and Fathers. Journal of Consulting and Clinical Psychology, 65, 120–129.
26. Knaf, K., Breitmayer, B., Gallo, A., & Zoeller, L. (1996). Family response to childhood chronic illness: Description of management styles. Journal of Pediatric Nursing, 11, 315–326.
27. Koch-Hattem, A. (1987). Families and chronic illness. Family Therapy Collections, 22, 33–50.
28. Koralewicz, J., & Wnuk-Lipiński, E. (1987). Życie rodzinne, towarzyskie i publiczne. Wartości i deprywacje. [Family and social life. Values and deprivation]. In: E. Wnuk-Lipiński (Ed.). Nierówności i upośledzenia w świadomosści społecznej [Social inequalities and discriminations in social consciousness] (pp. 207–260). Warsaw: IFiS PAN.
29. Kupst, M. J., & Schulman, J. L. (1988). Long-term coping with pediatric leukemia: A six-year follow-up study. Journal of Pediatric Psychology, 13, 7–22.
30. Manne, S., DuHamel, K., Gallelli, K., Sorgen, K., & Redd, W. (1998). Posttraumatic stress disorder among mothers of pediatric cancer survivors: Diagnosis, comorbidity, and utility of the PTSD checklist as a screening instrument. Journal of Pediatric Psychology, 23, 357–366.
31. Mishel, M.H. (1991). Reconceptualization of the uncertainty in illness theory. Image, 22, 256–262.
32. Mishel, M.H. (1999). Uncertainty in chronic illness. Annual Review of Nursing Research, 17, 269–299.
33. McCubbin, M., Balling, K., Possin, P., Frierdich, S., & Bryne, B. (2002). Family resiliency in childhood cancer. Family Relations, 51, 103–111.
34. Merton R.K. (1979). Qualitative and Quantitative Social Research: Papers in Honor of Paul F. Lazarsfeld. New York: The Free Press.
35. Midence, K. (1994). The effects of chronic illness on children and their families: An. overview. Genetic, Social and General Psychology Monograhps, 120, 311–326.
36. Minuchin, S. (1974). Families and Family Therapy. Boston: Harvard University Press.
37. Morval, M., & Biron, G. (1993). Family rituals. Therapy Familiale, 14, 149–167.
38. Namyslowska, I., & Siewierska, A. (1994). Lek w systemie rodzinnym [Anxiety in family system]. Psychiatria Polska [Polish Psychiatry], 5, 547–556.
39. Olson, D.H. (1986). Circumplex Model VII: validation studies and FACES III. Family Process, 25, 337–351.
40. Olson, D.H., (2000). Circumplex Model of Marital and Family Systems. Journal of Family Therapy, 22, 144–167.
41. Olson, D.H., Sprenkle, D.H., & Russell, C. (1979). Circumplex model of martial and family systems: I. Cohesion and adaptability dimensions, family types, and clinical applications. Family Process, 18, 3–28.
42. Patistea E., Makrodimitri, P., & Panteli, V. (2000). Greek parents' reactions, diffculties and resources in childhood leukaemia at the time of diagnosis. European Journal of Cancer Care, 9, 86–96.
43. Patterson, J.M., & Garwick A. W. (1994). The impact of chronic illness on families: A family systems perspective. Annals of Behavioral Medicine, 16, 131–142.
44. Pelcovitz, D., Goldenberg, B., Kaplan, S., Weinblatt, M., Mandel, F., Meyers, B., & Vinciguerra, V. (1996). Posttraumatic stress disorder in mothers of pediatric cancer survivors. Psychosomatics, 37, 116–126.
45. Prigogine, I., & Stengers I. (1984). Order out of chaos. New York: Bantam.
46. Prigogine, I., (1978). Time, structure and fuctuation. Science, 201, 777–795.
47. Radochonski M. (1987). Rodzina a choroba [Family and Illness]. Reshow: WSP.
48. Ranson, D., & Vonderroot, M. (1973).The Development of Family Medicine. Jama, 228, 1098–1102.
49. Ross, S.A. (1989). Childhood leukaemia: The child's view. Journal of Psychosocial Oncology, 7, 75–90.
50. Sabbeth B. (1984). Understanding the impact of chronic childhood illness on families. Pediatric Clinics of North America, 31, 47–56.
51. Shapiro, J. (1986). Assessment of family coping with illness. Psychosomatic, 27, 262–271.
52. Sharkey, T. (1995). The effects of uncertainty in families with children who are chronically ill. Home Healthcare Nurse, 13, 37–42.
53. Spirito, A., Stark, L., Cobiella, C., Drigan, R., Androkites, A., & Hewitt, K. (1990). Social adjustment of children successfully treated for cancer. Journal of Pediatric Psychology, 15, 359–371.
54. Stuber, M. (1995). Stress responses to pediatric cancer: A family phenomenon. Family Systems Medicine, 13, 162–172.
55. Stuber, M. (1997). Posttraumatic stress, family functioning, and social support in survivors of childhood leukemia and their mothers and fathers. Journal of Consulting and Clinical Psychology, 65, 120–129.
56. Stuber, M., Christakis, D., Houskamp, B., & Kazak, A. (1996). Posttrauma Symptoms in Childhood Leukaemia Survivors and Their Parents. Psychosomatics, 37, 254–261.
57. Tarkowski, J., & Tarkowska, E. (1990). „Amoralny familizm‟ czyli o dezintegracji spolecznej w Polsce lat osiemdziesiatych [„Amoral familial loyalty‟ - social disintegration in the 1980 in Poland]. In: E. Wnuk-Lipiński (Ed.). Grupy i więzi spoleczne w systemie monocentrycznym [Social groups and bonds in centralized political system] (pp. 37–70). Warsaw: IFiS PAN.
58. Tsamparli, A., & Kounenou, K. (2004). The Greek family system when a child has diabetes mellitus type 1. Acta Pœdiatrica, 93, 1646–1653.
59. Walsh, F., (1982). Normal family processes. New York: Guilford Press.
60. Ward, J. (2000). Pediatric cancer survivors: Assessment of late effects. Nurse Practitioner, 25, 18–37.
61. Wertheim, E.S. (1973). Family unit therapy and science and typology of family systems. Family Process, 12, 361–367.
62. Wertheim, E.S. (1975). The Science and Typology of Family Systems II. Farther Theoretical and Practical Considerations. Family Process, 14, 285–303.
63. Zahr, L., Kurdahi, K., & Saound-Nabil, B. (1994). Chronic illness in Lebanese preschoolers. Impact of illness and child temperament on the family. American Journal of Orthopsychiatry, 64, 396–403.