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Volumn 38, Issue 4, 2015, Pages 282-299

Surviving Overwhelming Challenges: Family Caregivers Lived Experience of Caring for a Child Diagnosed with HIV and Enrolled in Antiretroviral Treatment in Ethiopia

Author keywords

[No Author keywords available]

Indexed keywords

ADAPTIVE BEHAVIOR; CAREGIVER; CHILD; CHILD WELFARE; CRITICAL ILLNESS; ETHIOPIA; FEMALE; HIGHLY ACTIVE ANTIRETROVIRAL THERAPY; HOME CARE; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; MALE; PATHOLOGY; PSYCHOLOGY; QUALITY OF LIFE;

EID: 84949723809     PISSN: 01460862     EISSN: 1521043X     Source Type: Journal    
DOI: 10.3109/01460862.2015.1079278     Document Type: Article
Times cited : (14)

References (47)
  • 1
    • 84864214397 scopus 로고    scopus 로고
    • Disclosure of diagnosis by parents and caregivers to children infected with HIV: Prevalence associated factors and perceived barriers in Addis Ababa, Ethiopia
    • Abebe, W., &, Teferra, S. (2012). Disclosure of diagnosis by parents and caregivers to children infected with HIV: prevalence associated factors and perceived barriers in Addis Ababa, Ethiopia. AIDS Care, 24, 1097-1102
    • (2012) AIDS Care , vol.24 , pp. 1097-1102
    • Abebe, W.1    Teferra, S.2
  • 3
    • 84879340026 scopus 로고    scopus 로고
    • Primary caregivers challenges related to caring for children living with HIV in a semi-rural area in South Africa
    • Bejane, S.M. (2013). Primary caregivers challenges related to caring for children living with HIV in a semi-rural area in South Africa. Africa Journal of Nursing and Midwifery, 15, 68-80
    • (2013) Africa Journal of Nursing and Midwifery , vol.15 , pp. 68-80
    • Bejane, S.M.1
  • 4
    • 0032869167 scopus 로고    scopus 로고
    • Determinants of depression and HIV-related worry among HIV-positive women who have recently given birth, Bangkok, Thailand
    • Bennetts, A., Shaffer, N., Manopaiboon, C., Chaiyakul, P., Siriwasin, W., Mock, P.,., Clark, L. (1999). Determinants of depression and HIV-related worry among HIV-positive women who have recently given birth, Bangkok, Thailand. Social Science Medicine, 49, 737-749
    • (1999) Social Science Medicine , vol.49 , pp. 737-749
    • Bennetts, A.1    Shaffer, N.2    Manopaiboon, C.3    Chaiyakul, P.4    Siriwasin, W.5    Mock, P.6    Clark, L.7
  • 5
    • 76549086353 scopus 로고    scopus 로고
    • Living with childhood cancer: Family members experiences and needs. Lund University, Faculty of Medicine
    • Björk, M. (2008). Living with childhood cancer: family members experiences and needs. Lund University, Faculty of Medicine. Doctoral Dissertation Series, 2008: 60.
    • (2008) Doctoral Dissertation Series , vol.2008 , pp. 60
    • Björk, M.1
  • 6
    • 33745084594 scopus 로고    scopus 로고
    • Needs of young children with cancer during their initial hospitalization: An observational study
    • Bjork, M., Nordstrom, B., &, Hallstrom, I. (2006). Needs of young children with cancer during their initial hospitalization: an observational study. Journal of Pediatric Oncology Nursing, 23, 210-219
    • (2006) Journal of Pediatric Oncology Nursing , vol.23 , pp. 210-219
    • Bjork, M.1    Nordstrom, B.2    Hallstrom, I.3
  • 7
    • 79551501190 scopus 로고    scopus 로고
    • Returning to a changed ordinary life: Families' lived experience after completing a child's cancer treatment
    • Bjork, M., Nordstrom, B., Wiebe, T., &, Hallstrom, I. (2011). Returning to a changed ordinary life: families' lived experience after completing a child's cancer treatment. European Journal of Cancer Care, 20, 163-169
    • (2011) European Journal of Cancer Care , vol.20 , pp. 163-169
    • Bjork, M.1    Nordstrom, B.2    Wiebe, T.3    Hallstrom, I.4
  • 8
    • 25144506596 scopus 로고    scopus 로고
    • Striving to survive: Families' lived experiences when a child is diagnosed with cancer
    • Bjork, M., Wiebe, T., &, Hallstrom, I. (2005). Striving to survive: families' lived experiences when a child is diagnosed with cancer. Journal of Pediatric Oncology Nursing, 22, 265-275
    • (2005) Journal of Pediatric Oncology Nursing , vol.22 , pp. 265-275
    • Bjork, M.1    Wiebe, T.2    Hallstrom, I.3
  • 9
    • 70349280600 scopus 로고    scopus 로고
    • An everyday struggle: Swedish families' lived experiences during a child's cancer treatment
    • Bjork, M., Wiebe, T., &, Hallstrom, I. (2009). An everyday struggle: Swedish families' lived experiences during a child's cancer treatment. Journal of Pediatric Nursing, 24, 423-432
    • (2009) Journal of Pediatric Nursing , vol.24 , pp. 423-432
    • Bjork, M.1    Wiebe, T.2    Hallstrom, I.3
  • 10
    • 80052121783 scopus 로고    scopus 로고
    • Disclosure of HIV status to infected children in a Nigerian HIV care programme
    • Brown, B.J., Oladokun, R.E., Osinusi, K., Ochigbo, S., Adewole, I.F., &, Kanki, P. (2011). Disclosure of HIV status to infected children in a Nigerian HIV care programme. AIDS Care, 23, 1053-1058
    • (2011) AIDS Care , vol.23 , pp. 1053-1058
    • Brown, B.J.1    Oladokun, R.E.2    Osinusi, K.3    Ochigbo, S.4    Adewole, I.F.5    Kanki, P.6
  • 17
    • 24644469658 scopus 로고    scopus 로고
    • The relationship between expressed HIV/AIDS-related stigma and beliefs and knowledge about care and support of people living with AIDS in families caring for HIV-infected children in Kenya
    • Hamra, M., Ross, M.W., Karuri, K., Orrs, M., &, D'Agostino, A. (2005). The relationship between expressed HIV/AIDS-related stigma and beliefs and knowledge about care and support of people living with AIDS in families caring for HIV-infected children in Kenya. AIDS Care, 17, 911-922
    • (2005) AIDS Care , vol.17 , pp. 911-922
    • Hamra, M.1    Ross, M.W.2    Karuri, K.3    Orrs, M.4    D'Agostino, A.5
  • 18
    • 77952676594 scopus 로고    scopus 로고
    • A multi-disciplinary education process related to the discharging of children from hospital when the child has been diagnosed with type 1 diabetes-A qualitative study
    • Jonsson, L., Hallstrom, I., &, Lundqvist, A. (2010). A multi-disciplinary education process related to the discharging of children from hospital when the child has been diagnosed with type 1 diabetes-A qualitative study. BMC Pediatrics, 10, 36
    • (2010) BMC Pediatrics , vol.10 , pp. 36
    • Jonsson, L.1    Hallstrom, I.2    Lundqvist, A.3
  • 19
    • 84894589710 scopus 로고    scopus 로고
    • Hermeneutic phenomenological research method simplified
    • Kafle, N.P. (2011). Hermeneutic phenomenological research method simplified. An interdisciplinary
    • (2011) An Interdisciplinary
    • Kafle, N.P.1
  • 20
    • 0026129821 scopus 로고
    • Rigor in qualitative research: The assessment of trustworthiness
    • Krefting, L. (1991). Rigor in qualitative research: the assessment of trustworthiness. The American Journal of Occupational Therapy, 45, 214-22 10.5014/ajot.45.3.214
    • (1991) The American Journal of Occupational Therapy , vol.45 , pp. 214-222
    • Krefting, L.1
  • 21
    • 84880343535 scopus 로고    scopus 로고
    • Disclosure of HIV status between parents and children in Uganda in the context of greater access to treatment
    • Kyaddondo, D., Wanyenze, R.K., Kinsman, J., &, Hardon, A. (2013). Disclosure of HIV status between parents and children in Uganda in the context of greater access to treatment. Sahara Journal, 10, S37-S45
    • (2013) Sahara Journal , vol.10 , pp. S37-S45
    • Kyaddondo, D.1    Wanyenze, R.K.2    Kinsman, J.3    Hardon, A.4
  • 23
    • 70350660962 scopus 로고    scopus 로고
    • Extended family childcare arrangements in a context of AIDS: Collapse or adaptation?
    • Mathambo, V., &, Gibbs, A. (2009). Extended family childcare arrangements in a context of AIDS: collapse or adaptation? AIDS Care, 21, 22-27
    • (2009) AIDS Care , vol.21 , pp. 22-27
    • Mathambo, V.1    Gibbs, A.2
  • 24
    • 84898841135 scopus 로고    scopus 로고
    • Disclosure of HIV diagnosis to children: A poorly addressed issue in pediatric HIV care
    • Mengistu, A.D. (2013). Disclosure of HIV diagnosis to children: a poorly addressed issue in pediatric HIV care. Ethiopia Medical Journal, 51, 273-278
    • (2013) Ethiopia Medical Journal , vol.51 , pp. 273-278
    • Mengistu, A.D.1
  • 25
    • 0004221441 scopus 로고    scopus 로고
    • C. Smith (Trans.). New York, NY: Routledge. (First published 1962)
    • Merleau-Ponty, M. (1996). Phenomenology of perception. C. Smith (Trans.). New York, NY: Routledge. (First published 1962)
    • (1996) Phenomenology of Perception
    • Merleau-Ponty, M.1
  • 26
    • 84901276369 scopus 로고    scopus 로고
    • Factors associated with HIV-status disclosure to HIV-infected children receiving care at Kilimanjaro Christian Medical Centre in Moshi, Tanzania
    • Mumburi, L.P., Hamel, B.C., Philemon, R.N., Kapanda, G.N., &, Msuya, L.J. (2014). Factors associated with HIV-status disclosure to HIV-infected children receiving care at Kilimanjaro Christian Medical Centre in Moshi, Tanzania. Pan African Medical Journal, 18, 50. doi: 10.11604/pamj.2014.18.50.2307
    • (2014) Pan African Medical Journal , vol.18 , pp. 50
    • Mumburi, L.P.1    Hamel, B.C.2    Philemon, R.N.3    Kapanda, G.N.4    Msuya, L.J.5
  • 28
    • 33645162166 scopus 로고    scopus 로고
    • Psychosocial impacts on caregivers of people living with AIDS
    • Orner, P. (2006). Psychosocial impacts on caregivers of people living with AIDS. AIDS Care, 18, 236-240
    • (2006) AIDS Care , vol.18 , pp. 236-240
    • Orner, P.1
  • 29
    • 34548387588 scopus 로고    scopus 로고
    • The political economy of marriage and HIV: The ABC approach, "safe" infidelity, and managing moral risk in Uganda
    • Parikh, S.A. (2007). The political economy of marriage and HIV: the ABC approach, "safe" infidelity, and managing moral risk in Uganda. American Journal of Public Health, 97, 1198-1208
    • (2007) American Journal of Public Health , vol.97 , pp. 1198-1208
    • Parikh, S.A.1
  • 31
    • 69949100898 scopus 로고    scopus 로고
    • Parenting stress of caregivers of young children who are HIV positive
    • Potterton, J., Stewart, A., &, Cooper, P. (2007). Parenting stress of caregivers of young children who are HIV positive. African Journal of Psychiatry, 10, 210-214
    • (2007) African Journal of Psychiatry , vol.10 , pp. 210-214
    • Potterton, J.1    Stewart, A.2    Cooper, P.3
  • 33
    • 39049098090 scopus 로고    scopus 로고
    • Working HIV care-givers in Botswana: Spill-over effects on work and family well-being
    • Rajaraman, D., Earle, A., &, Heymann, S.J. (2008). Working HIV care-givers in Botswana: spill-over effects on work and family well-being. Community, Work & Family, 11, 1-17
    • (2008) Community, Work & Family , vol.11 , pp. 1-17
    • Rajaraman, D.1    Earle, A.2    Heymann, S.J.3
  • 34
    • 84866655727 scopus 로고    scopus 로고
    • The teacher/researcher and the role of pre-understanding: A personal analysis
    • Ryan, T.G. (2011). The teacher/researcher and the role of pre-understanding: a personal analysis. New Zealand Journal of Teachers Work, 8, 220-228
    • (2011) New Zealand Journal of Teachers Work , vol.8 , pp. 220-228
    • Ryan, T.G.1
  • 35
    • 3142680761 scopus 로고    scopus 로고
    • Strategies for ensuring trustworthiness in qualitative research projects
    • Shenton, A.K. (2004). Strategies for ensuring trustworthiness in qualitative research projects. Education for Information IOS Press, 22, 63-67
    • (2004) Education for Information IOS Press , vol.22 , pp. 63-67
    • Shenton, A.K.1
  • 36
    • 84964963823 scopus 로고    scopus 로고
    • Family-centred care: Effective care delivery or sacred cow?
    • Shields, L. (2011). Family-centred care: Effective care delivery or sacred cow? Forum on Public Policy
    • (2011) Forum on Public Policy
    • Shields, L.1
  • 37
    • 84859759656 scopus 로고    scopus 로고
    • Psychosocial support intervention for HIV-affected families in Haiti: Implications for programs and policies for orphans and vulnerable children
    • Smith Fawzi, M.C., Eustache, E., Oswald, C., Louis, E., Surkan, P.J., Scanlan, F.,., Mukherjee, J.S. (2012). Psychosocial support intervention for HIV-affected families in Haiti: implications for programs and policies for orphans and vulnerable children. Social Science Medicine, 74, 1494-1503
    • (2012) Social Science Medicine , vol.74 , pp. 1494-1503
    • Smith Fawzi, M.C.1    Eustache, E.2    Oswald, C.3    Louis, E.4    Surkan, P.J.5    Scanlan, F.6    Mukherjee, J.S.7
  • 38
    • 77954736005 scopus 로고    scopus 로고
    • Perceived discrimination and stigma toward children affected by HIV/AIDS and their HIV-positive caregivers in central Haiti
    • Surkan, P.J., Mukherjee, M.J., Williams D.R., Eustache, E., Louis, L., Jean-Paul, T.,., Smith Fawzi, M.C. (2010). Perceived discrimination and stigma toward children affected by HIV/AIDS and their HIV-positive caregivers in central Haiti. AIDS Care, 22, 803-815
    • (2010) AIDS Care , vol.22 , pp. 803-815
    • Surkan, P.J.1    Mukherjee, M.J.2    Williams, D.R.3    Eustache, E.4    Louis, L.5    Jean-Paul, T.6    Smith Fawzi, M.C.7
  • 41
    • 84995308395 scopus 로고    scopus 로고
    • Perceived and Experienced Stigma and Discrimination among Caregivers of Perinatally HIV-Infected Adolescents in Thailand
    • Washington, C.H., &, Oberdorfer, P. (2013). Perceived and Experienced Stigma and Discrimination among Caregivers of Perinatally HIV-Infected Adolescents in Thailand. Journal of Therapy and Management in HIV Infection, 1 (2), 63-68
    • (2013) Journal of Therapy and Management in HIV Infection , vol.1 , Issue.2 , pp. 63-68
    • Washington, C.H.1    Oberdorfer, P.2
  • 42
    • 33847164544 scopus 로고    scopus 로고
    • Swedish families' lived experience when a child is first diagnosed as having insulin-dependent diabetes mellitus: An ongoing learning process
    • Wennick, A., &, Hallstrom, I. (2006). Swedish families' lived experience when a child is first diagnosed as having insulin-dependent diabetes mellitus: an ongoing learning process. Journal of Family Nursing, 12, 368-389
    • (2006) Journal of Family Nursing , vol.12 , pp. 368-389
    • Wennick, A.1    Hallstrom, I.2
  • 43
    • 34848867250 scopus 로고    scopus 로고
    • Families' lived experience one year after a child was diagnosed with type 1 diabetes
    • Wennick, A., &, Hallstrom, I. (2007). Families' lived experience one year after a child was diagnosed with type 1 diabetes. Journal of Advanced Nursing, 60, 299-307
    • (2007) Journal of Advanced Nursing , vol.60 , pp. 299-307
    • Wennick, A.1    Hallstrom, I.2
  • 44
    • 65649116583 scopus 로고    scopus 로고
    • Everyday experience of families three years after diagnosis of type 1 diabetes in children: A research paper
    • Wennick, A., Lundqvist, A., &, Hallstrom, I., (2009). Everyday experience of families three years after diagnosis of type 1 diabetes in children: a research paper. Journal of Pediatric Nursing, 24, 222-230
    • (2009) Journal of Pediatric Nursing , vol.24 , pp. 222-230
    • Wennick, A.1    Lundqvist, A.2    Hallstrom, I.3
  • 46
    • 84888610885 scopus 로고    scopus 로고
    • World Medical Association Declaration of Helsinki: Ethical principles for medical research involving human subjects
    • WMA. (2013). World Medical Association Declaration of Helsinki: ethical principles for medical research involving human subjects. Journal of the American Medical Association, 310, 2191-2194
    • (2013) Journal of the American Medical Association , vol.310 , pp. 2191-2194
    • WMA1
  • 47
    • 33745644730 scopus 로고    scopus 로고
    • The qualitative experience of Chinese parents with children diagnosed of cancer
    • Wong, M.Y., &, Chan, S.W. (2006). The qualitative experience of Chinese parents with children diagnosed of cancer. Journal of Clinical Nursing, 15, 710-717
    • (2006) Journal of Clinical Nursing , vol.15 , pp. 710-717
    • Wong, M.Y.1    Chan, S.W.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.